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Decisions parents make when faced with potentially life-limiting fetal diagnoses and the importance of perinatal palliative care

MARC-AURELE, Krishelle L.
Frontiers in pediatrics, 2020, vol.8, p. 1-5

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Et le soleil refleurira

DRIVET, Aurélie
Hygée Editions , 09/2020 , 120 p.

Le deuil périnatal. Du postnatal à la grossesse d'après - guide d'intervention pour les sages-femmes et les professionnels de santé

SCHALCK, Claudine
l'Harmattan , 09/2020 , 94 p.

Family conferences in prenatal palliative care

BERNARDES, Lisandra Stein ; OLIVEIRA, Fernanda Figueiredo ; JESUS, Roberta Carolina de Almeida ; BENUTE, Glaucia Rosana Guerra ; GIBELLI, Maria Augusta Bento Cicaroni ; NASCIMENTO, Nathalia Bertolassi ; BOLIBIO, Renata ; BARBOSA, Tercilia Virginia Aparecida ; SETUBAL, Maria Silvia Vellutini ; GOMES, Ana Lúcia ; ROCHA, Luana Sarmento Neves ; ROSA, Gladys Ribeiro ; FRANCISCO, Rossana Pulcinelli
JOURNAL OF PALLIATIVE MEDICINE, 10/2020, vol.23, n°10, p. 1349-1356

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Provider perspective on the role of palliative care in hypoplastic left heart syndrome

LOWENSTEIN, Sarah ; MACAULEY, Robert ; PERKO, Kathleen ; RONAI, Christina
Cardiology in the young, 03/2020, vol.30, n°3, p. 377-382

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Top ten tips palliative care clinicians should know about caring for serious illness in pregnancy

BUCKINGHAM, Lindsey ; JANSSEN, Matthew ; RAY, Emily M. ; TUCKER, Katherine ; DAVIDSON, Brittany A. ; ARENTH, Joshua ; LEFKOWITS, Carolyn ; JONES, Joshua A. ; GEHRIG, Paola ; JONES, Christopher A.
JOURNAL OF PALLIATIVE MEDICINE, 05/2020, vol.23, n°5, p. 712-718

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Values clarification - eliciting the values that inform and influence parents' treatment decisions for periviable birth

TUCKER EDMONDS, Brownsyne ; HOFFMAN, Shelley M. ; LAITANO, Tatiana ; BHAMIDIPALLI, Surya Sruthi ; JEFFRIES, Erin ; FADEL, William ; KAVANAUGH, Karen
Paediatric and perinatal epidemiology, 22/10/2019, Pagination inconnue

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Les obstétriciens face aux poursuites de grossesse avec pathologie fœtale

DODERO, Charlotte ; MARTINI, Prisca ; ALLUIN, Raphaël
MEDECINE PALLIATIVE, 09/2019, vol.18, n°4-5, p. 226-229

Severe maternal morbidity surveillance - monitoring pregnant women at high risk for prolonged hospitalisation and death

DZAKPASU, Susie ; DEB-RINKER, Paromita ; ARBOUR, Laura ; DARLING, Elizabeth K. ; KRAMER, Michael S. ; LIU, Shiliang ; LUO, Wei ; MURPHY, Phil A. ; NELSON, Chantal ; RAY, Joel G. ; SCOTT, Heather ; VANDENHOF, Michiel ; JOSEPH, K. S.
Paediatric and perinatal epidemiology, 12/08/2019, p. 1-13

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Thème : Soins. Cote : eD02.03.00

CANADA ; MORT ; MERE ; GROSSESSE

BACKGROUND: There is no international consensus on the definition and components of severe maternal morbidity (SMM).
OBJECTIVES: To propose a comprehensive definition of SMM, to create an empirically justified list of SMM types and subtypes, and to use this to examine SMM in Canada.
METHODS: Severe maternal morbidity was defined as a set of heterogeneous maternal conditions known to be associated with severe illness and with prolonged hospitalisation or high case fatality. Candidate SMM types/subtypes were evaluated using information on all hospital deliveries in Canada (excluding Quebec), 2006-2015. SMM rates for 2012-2016 were quantified as a composite and as SMM types/subtypes. Rate ratios and population attributable fractions (PAF) associated with overall and specific SMM types/subtypes were estimated in relation to length of hospital stay (LOS > 7 days) and case fatality.
RESULTS: There were 22 799 cases of SMM subtypes (among 1 418 545 deliveries) that were associated with a prolonged LOS or high case fatality. Between 2012 and 2016, the composite SMM rate was 16.1 (95% confidence interval [CI] 15.9, 16.3) per 1000 deliveries. Severe pre-eclampsia and HELLP syndrome (514.6 per 100 000 deliveries), and severe postpartum haemorrhage (433.2 per 100 000 deliveries) were the most common SMM types, while case fatality rates among SMM subtypes were highest among women who had cardiac arrest and resuscitation (241.1 per 1000), hepatic failure (147.1 per 1000), dialysis (67.6 per 1000), and cerebrovascular accident/stroke (51.0 per 1000). The PAF for prolonged hospital stay related to SMM was 17.8% (95% CI 17.3, 18.3), while the PAF for maternal death associated with SMM was 88.0% (95% CI 74.6, 94.4).
CONCLUSIONS: The proposed definition of SMM and associated list of SMM subtypes could be used for standardised SMM surveillance, with rate ratios and PAFs associated with specific SMM types/subtypes serving to inform clinical practice and public health policy.

Origine : PubMed

The process and outcome of psychodynamic psychotherapy for pregnancy after loss - a case study analysis

MARKIN, Rayna D. ; MCCARTHY, Kevin S.
Psychotherapy, 26/08/2019, Pagination inconnue

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Perinatal grief following neonatal comfort care for lethal fetal condition

DEPOERS-BEAL, C. ; LE BACCON, F. A. ; LE BOUAR, G. ; PROISY, M. ; ARNAUD, A. ; LEGENDRE, G. ; DAYAN, J. ; BETREMIEUX, P. ; LE LOUS, M.
Journal of neonatal-perinatal medicine, 04/07/2019, Pagination inconnue

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Stigma in the context of pregnancy termination after diagnosis of fetal anomaly - associations with grief, trauma, and depression

HANSCHMIDT, Franz ; TREML, Julia ; KLINGNER, Johanna ; STEPAN, Holger ; KERSTING, Anette
Archives of women's mental health, 08/2018, vol.21, n°4, p. 391-399

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Withdrawing life support in pregnancy - state laws and implications for ethics

TARZIAN, Anita J.
The American journal of bioethics, 07/2017, vol.17, n°7, p. 75-76

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A mother in jeopardy - the ethics of pregnancy and chemotherapy

BAUMRUCKER, Steven J. ; VOGEL, Wendy H. ; STOLICK, Robert M. ; ADKINS, Russell W. ; HOLLAND, Heather ; VANDEKIEFT, Gregg ; EASTRIDGE, Angela
The American journal of hospice and palliative care, 01/2020, vol.37, n°1, p. 72-78

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Birth planning in uncertain or life-limiting fetal diagnoses - perspectives of physicians and parents

CORTEZZO, DonnaMaria E. ; BOWERS, Katherine ; CAMERON MEYER, Marcella
JOURNAL OF PALLIATIVE MEDICINE, 11/2019, vol.22, n°11, p. 1337-1345

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Availability of less invasive prenatal, perinatal and paediatric autopsy will improve uptake rates - a mixed-methods study with bereaved parents

LEWIS, C. ; RIDDINGTON, M. ; HILL, M. ; ARTHURS, O. J. ; HUTCHINSON, J. C. ; CHITTY, L. S. ; BEVAN, C. ; FISHER, J.A. ; WARD, J. ; SEBIRE, N. J.
BJOG: an international journal of obstetrics and gynaecology, 05/2019, vol.126, n°6, p. 745-753

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Diagnostic anténatal et décision médicale partagée

FELSENHELD, Céline
SOINS LA REVUE DE REFERENCE INFIRMIERE, 03/2019, vol.64, n°833, p. 34-35

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Perinatal palliative care - a qualitative study evaluating the perspectives of pregnancy counselors

FLAIG, Franziska ; LOTZ, Julia D. ; KNOCHEL, Kathrin ; BORASIO, Gian Domenico ; FÜHRER, Monika ; HEIN, Kerstin
PALLIATIVE MEDICINE, 06/2019, vol.33, n°6, p. 704-711

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Compassion and community in perinatal palliative care - understanding the necessity of the patient perspective through narrative illustration

KUCHEMBA-HUNTER, Jennifer
JOURNAL OF PALLIATIVE CARE, 07/2019, vol.34, n°3, p. 160-163

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Les soins palliatifs en maternité

MEZERAC, Isabelle de
SOINS PEDIATRIE PUERICULTURE, 02/2019, vol.40, n°306, p. 19-21

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