VigiPallia : Résultats

BORASIO, Gian Domenico

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Assessing the will to live - a scoping review

BORNET, Marc-Antoine ; BERNARD, Mathieu ; JAQUES, Cécile ; TRUCHARD, Eve Rubli ; BORASIO, Gian Domenico ; JOX, Ralf J.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 12/09/2020, p. 1-31

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Views on a "good death" - end-of-life preferences and their association with socio-demographic characteristics in a representative sample of older adults in Switzerland

BORRAT-BESSON, Carmen ; VILPERT, Sarah ; BORASIO, Gian Domenico ; MAURER, Jürgen
OMEGA JOURNAL OF DEATH AND DYING, 29/07/2020, Pagination inconnue

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Social, cultural and experiential patterning of attitudes and behaviour towards assisted suicide in Switzerland - evidence from a national population-based study

VILPERT, Sarah ; BOLLIGER, Elio ; BORRAT-BESSON, Carmen ; BORASIO, Gian Domenico ; MAURER, Jurgen
Swiss medical weekly, 15/06/2020, vol.150, p. 1-11

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Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.04

SUICIDE MEDICALEMENT ASSISTE ; SUISSE ; ATTITUDE ; PERSONNE AGEE

Switzerland has the longest history of the legal practice of non-physician assisted suicide of any country. Assisted suicide is not very tightly regulated in Switzerland, and almost all assisted suicides are supported by a right-to-die organisation. Our study investigates older adults' attitudes and behaviour towards assisted suicide, and the associations of these with the individuals' sociodemographic and cultural characteristics, as well as with their own health status and healthcare-related experiences in Switzerland. We performed weighted prevalence and multivariable logistic regression estimation on a nationally representative sample of adults aged 55 and over from wave 6 (2015) of the Survey of Health, Ageing and Retirement in Europe (SHARE) in Switzerland (n = 2168). Overall, 81.7% of respondents supported the legality of assisted suicide, as is currently the case in Switzerland, and 60.9% stated that they would potentially consider asking for assisted suicide under certain circumstances; 28.2% of respondents reported either that they are already or that they are likely to become a member of a right-to-die organisation, with 4.9% of respondents reporting to already be a member of such an organisation at the time of the survey. Higher levels of education and previous experience as a healthcare proxy were positively associated with more favourable attitudes and behaviour towards assisted suicide. Compared to individuals aged 55-64, adults aged 65-74 generally showed more favourable attitudes and behaviour towards assisted suicide. By contrast, religious persons displayed more negative attitudes and behaviour towards assisted suicide. Attitudes towards assisted suicide were also more negative in the oldest age group (75+) in comparison to adults aged 55-64, and among persons living in French- and Italian-speaking Switzerland compared to those living in German-speaking Switzerland. While approval for assisted suicide is high overall in Switzerland, more vulnerable population groups, such as older or less educated individuals, have less favourable attitudes towards assisted suicide. In addition, cultural sensitivities to and personal experiences with death and dying are likely to shape the approval or rejection of assisted suicide as it is currently implemented in Switzerland.

Origine : PubMed

Current collaboration between palliative care and neurology - a survey of clinicians in Europe

OLIVER, David ; BORASIO, Gian Domenico ; VERONESE, Simone ; VOLTZ, Raymond ; LORENZL, Stefan ; HEPGUL, Nilay
BMJ supportive and palliative care, 10/07/2020, Pagination inconnue

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Meaning in life and quality of life - palliative care patients versus the general population

BERNARD, Mathieu ; BERCHTOLD, André ; STRASSER, Florian ; GAMONDI, Claudia ; BORASIO, Gian Domenico
BMJ supportive and palliative care, 06/07/2020, 9 p.

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Associations of end-of-life preferences and trust in institutions with public support for assisted suicide evidence from nationally representative survey data of older adults in Switzerland

VILPERT, Sarah ; BORRAT-BESSON, Carmen ; BORASIO, Gian Domenico ; MAURER, Jurgen
Plos one, 04/2020, vol.15, n°4, p. 1-18

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Covid-19 - decision making and palliative care

BORASIO, Gian Domenico ; GAMONDI, Claudia ; OBRIST, Monika ; JOX, Ralf
Swiss medical weekly, 24/03/2020, p. 1-2

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Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders - a qualitative study

HEIN, Kerstin ; KNOCHEL, Kathrin ; ZAIMOVIC, Vedrana ; REIMANN, Daniel ; MONZ, Anna ; HEITKAMP, Nari ; BORASIO, Gian Domenico ; FUHRER, Monika
PALLIATIVE MEDICINE, 27/01/2020, p. 1-9

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Visualizing social support in home pediatric palliative care using network maps

LINDEMANN, Daniela ; BORASIO, Gian Domenico ; FUHRER, Monika ; WASNER, Maria
PALLIATIVE MEDICINE, 30/08/2019, Pagination inconnue

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Validation of the French version of the integrated palliative care outcome scale (IPOS)

STERIE, Anca-Cristina ; BORASIO, Gian Domenico ; BERNARD, Mathieu ; FRENCH IPOS CONSORTIUM
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 19/07/2019, Pagination inconnue

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Perinatal palliative care - a qualitative study evaluating the perspectives of pregnancy counselors

FLAIG, Franziska ; LOTZ, Julia D. ; KNOCHEL, Kathrin ; BORASIO, Gian Domenico ; FÜHRER, Monika ; HEIN, Kerstin
PALLIATIVE MEDICINE, 06/2019, vol.33, n°6, p. 704-711

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Physicians' attitudes toward end-of-life decisions in amyotrophic lateral sclerosis

THURN, Tamara ; BORASIO, Gian Domenico ; CHIO, Adriano ; GALVIN, Miriam ; MCDERMOTT, Christopher J. ; MORA, Gabriele ; SERMEUS, Walter ; WINKLER, Andrea S. ; ANNESER, Johanna
Amyotrophic lateral sclerosis and frontotemporal degeneration, 21/02/2019, p. 1-8

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Gratitude at the end of life - a promising lead for palliative care

ALTHAUS, Betty ; BORASIO, Gian Domenico ; BERNARD, Mathieu
JOURNAL OF PALLIATIVE MEDICINE, 11/2018, vol.21, n°11, p. 1566-1572

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Awareness, approval and completion of advance directives in older adults in Switzerland

VILPERT, Sarah ; BORRAT-BESSON, Carmen ; MAURER, Jürgen ; BORASIO, Gian Domenico
Swiss medical weekly, 29/07/2018, vol.148, p. 1-9

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Thème : Soins. Cote : eD02.03

PERSONNE AGEE ; DIRECTIVE ANTICIPEE ; SUISSE

BACKGROUND: Advance directives enable people to describe their preferences for medical treatment (living will) and/or to appoint a healthcare proxy who may decide on their behalf should they lose decision-making capacity. Advance directives are potentially important in determining the course of end-of-life care, as deaths are frequently preceded by end-of-life treatment decisions, which often require someone to make decisions on the patient's behalf. Switzerland introduced legally binding advance directives through its new child and adult protection law of 2013. But there is still no comprehensive evidence on older persons' awareness, attitudes and behaviours with regard to advance directives in Switzerland.
AIM AND METHOD: Our study aimed to assess levels of awareness, approval and completion of advance directives, as well as their respective associations with sociodemographic characteristics in the Swiss population aged 55 and older. Our study was cross-sectional and used data from the Survey of Health, Ageing and Retirement in Europe (SHARE), which included a special module on end-of-life issues in wave 6 (2015) in Switzerland (n = 2085).
RESULTS: Two years after the introduction of advance directives in Switzerland, 78.7% of adults aged 55 years and older had heard of them prior to the survey and 24% reported that they had completed one. Awareness of advance directives was higher in the German-speaking part of Switzerland (91%) than in the Italian- (57.1%) and French-speaking (43.3%) regions (p <0.001). Advance directive completion also differed significantly between the German- (28.7%), French- (10.3%) and Italian-speaking (17.9%) regions of Switzerland (p <0.001). Overall, 76.7% of Swiss adults aged 55 and older generally approved of advance directives, i.e., they either reported having already completed one or were planning to do so in the future. Of those who had not yet completed an advance directive, 32.9% believed that it was still "too early" for them to do so and 30.1% believed that they would not need one. Levels of awareness, approval and completion of advance directives also varied significantly by sex, age, education level and household composition.
DISCUSSION: Our results show some potential for improvement in levels of advance directive awareness and, especially, completion among older adults, notably in the French- and Italian-speaking Switzerland. In view of the generally high levels of approval of advance directives, our findings point to important barriers to their completion by older persons that should be addressed by policy makers in order to ensure an effective translation of individual intentions to complete an advance directive sometime in the future into concrete and timely actions toward this end.

Origine : PubMed

Neurological symptoms in palliative care patients

ANNESER, Johanna ; ARENZ, Victoria ; BORASIO, Gian Domenico
Frontiers in neurology, 2018, vol.9, p. 1-7

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Thème : Médecine. Cote : eD03.01.01

SYMPTOME ; NEUROLOGIE ; DEMARCHE PALLIATIVE ; ETUDE RETROSPECTIVE

Background: Neurological expertise in palliative care may be required not only for patients with primary neurological disorders but also for patients with non-neurological diseases suffering from burdensome neurological symptoms. The aim of this study was to determine the prevalence of neurological diagnoses and symptoms in palliative care patients, as well as the related burden and impact on everyday life.
Methods: We analyzed retrospectively the medical records of 255 consecutive patients from a tertiary medical center, at the time point of referral to an inpatient palliative care consultation service. In addition, 100 patients prospectively answered a questionnaire which included the assessment of neurological symptoms, as well as numeric rating scales for quality of life, symptom-specific burden, and restrictions in everyday life.
Results: Forty-one patients (16%) suffered from a primary neurological disease. Most decisions regarding the termination of life-sustaining measures concerned this group (20/22, 91%). Neurological symptoms (excluding pain) were documented in 122 patients (48%) with an underlying non-neurological disease. In the questionnaire study, 98/100 patients reported at least one neurological or neuropsychiatric symptom, most frequently sleeping problems (N = 63), difficulty concentrating (N = 55), and sensory symptoms (N = 50). Vertigo/dizziness (N = 19) had the greatest impact on everyday life (7.57/10 ± 2.17) and the highest symptom-specific burden (7.14 ± 2.51). Difficulty concentrating (restrictions in everyday life/burden) and pain intensity were the only symptoms significantly correlated with quality of life (r = -0.36, p = 0.009/r = -0.32; p = 0.04; r = -0.327, p = 0.003).
Conclusion: Neurological diseases and symptoms are frequent among palliative care patients and are often associated with a high symptom burden, which may severely affect the patients' lives. It is thus of paramount importance to implement neurological expertise in palliative care.

Origine : PubMed

“Hope for the best, prepare for the worst” - a qualitative interview study on parents’ needs and fears in pediatric advance care planning

LOTZ, Julia Desiree ; DAXER, Marion ; JOX, Ralf J. ; BORASIO, Gian Domenico ; FUHRER, Monika
PALLIATIVE MEDICINE, 09/2017, vol.31, n°8, p. 764-771

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Identification des patients palliatifs - enjeux et outils de dépistage

TEIKE LUTHI, Fabienne ; BORASIO, Gian Domenico ; BERNARD, Mathieu
REVUE MEDICALE SUISSE, 2017, vol.13, p. 307-309

L'autonomie en fin de vie - le débat allemand, des pistes pour la Suisse, un enjeu pour nous tous

BORASIO, Gian Domenico ; ROSSET, Yves ; MODOUX, François
PPUR , 2017 , 159 p.

Voluntary stopping of eating and drinking - is medical support ethically justified?

JOX, Ralf J. ; BLACK, Isra ; BORASIO, Gian Domenico ; ANNESER, Johanna
BMC medicine, 20/10/2017, vol.15, n°1, p. 186 - 190

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Responses to assisted suicide requests - an interview study with Swiss palliative care physicians

GAMONDI, Claudia ; BORASIO, Gian Domenico ; OLIVER, Pam ; PRESTON, Nancy ; PAYNE, Sheila
BMJ supportive and palliative care, 11/08/2017, Pagination inconnue

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