VigiPallia : Résultats

Background: Despite growing interest from policy makers, researchers and activists, there is still little science to underpin the global development of palliative care. This study presents the methods deployed in the creation of a 'world map' of palliative care development. Building on two previous iterations, with improved rigour and taking into account reviewers' feedback, the aim of the study is to determine the level of palliative care development in 198 countries in 2017, whilst ensuring comparability with previous versions. We present methods of data collection and analysis.
Methods and analysis: Primary data on the level of palliative care development in 2017 was collected from in-country experts through an online questionnaire and, where required, supplemented by published documentary sources and grey literature. Population and per capita opioid consumption data were derived from independent sources. Data analysis was conducted according to a new scoring system and algorithm developed by the research team.
Ethics and dissemination: The study was approved by the University of Glasgow College of Social Sciences Research Ethics Committee. Findings of the study will be disseminated in peer-reviewed journals, as a contribution to the second edition of the Global Atlas of Palliative Care at the End-of-Life, and via social media, including the Glasgow End of Life Studies Group blog and the project website.
Limitations of the study: There are potential biases associated with self-reporting by key in-country experts. In some countries, the identified key expert failed to complete the questionnaire in whole or part and data limitations were potentially compounded by language restrictions, as questionnaires were available only in three European languages. The study relied in part on data from independent sources, the accuracy of which could not be verified.

Origine : PubMed

Gratitude from patients and relatives in palliative care-characteristics and impact - a national survey

APARICIO, Maria ; CENTENO, Carlos ; JULIA, Guillermo ; ARANTZAMENDI, Maria
BMJ supportive and palliative care, 30/08/2019, Pagination inconnue

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Using the term "palliative care" - international survey of how palliative care researchers and academics perceive the term "palliative care"

ZAMBRANO, Sofia C. ; CENTENO, Carlos ; LARKIN, Philip J. ; EYCHMULLER, Steffen
JOURNAL OF PALLIATIVE MEDICINE, 02/2020, vol.23, n°2, p. 184-191

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Recalibrating the 'world map' of palliative care development

BAUR, Nicole ; CENTENO, Carlos ; GARRALDA, Eduardo ; CONNOR, Stephen ; CLARK, David
Wellcome open research, 2019, vol.4, 18 p.

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Consensus building on health indicators to assess PC global development with an international group of experts

ARIAS-CASAIS, Natalia ; GARRALDA, Eduardo ; LOPEZ-FIDALGO, Jesús ; RHEE, John Y. ; PONS, Juan José ; DE LIMA, Liliana ; CENTENO, Carlos
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/06/2019, Pagination inconnue

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The significance of gratitude for palliative care professionals - a mixed method protocol

APARICIO, Maria ; CENTENO, Carlos ; ARANTZAMENDI, María
BMC palliative care, 21/03/2019, vol.18, n°1, p. 1-9

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Thème : Soins. Cote : eD02.04.01

DEMARCHE PALLIATIVE ; RELATION PERSONNEL SOIGNANT FAMILLE ; SENTIMENT ; ESPAGNE

BACKGROUND: In palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say that displays of gratitude create sensations of well-being, pride and increased motivation to carry on caring. No systematic examination in PC was found. These aspects related to gratitude may be important in the field of PC, where there is constant exposure to suffering and the preoccupation which arises from wanting to help HP to go on with their work, but it needs closer study and systemisation. The purpose of this study is to understand the significance and the role of the gratitude received from P/R for palliative care health professionals (PCHP).
METHODS: A suitable mixed method will be used. The first phase will be quantitative and will consist of a survey, piloted by experts, whose goal is to explore the current situation in Spain as regards displays of gratitude received by HP at PC services. It will be sent by e-mail. The results from this part will be incorporated into the second part which will be qualitative and whose goal is to understand the significance of the experience of receiving displays of gratitude from the perspective of PCHP, using a phenomenological approach. Interviews will be undertaken amongst PCHP. The interview guide will be designed after taking the survey results into account. The project has been granted ethical approval.
DISCUSSION: These results are set to provide a key contribution within the context of the growing preoccupation on how to care for HP, how to ensure retention and keep them from resigning, as well as preventing burnout, emotional fatigue and boosting their resilience. In order to do this, it is both interesting and ground breaking, to analyse the repercussion of spontaneous gratitude shown by P/R towards PCHP, to see if this is a useful resource to reduce these problems and to encourage the greater presence of dignity and humanisation, for both those receiving care and for those providing it. This gratitude may be one of these strategies.

Origine : PubMed

Global palliative care and cross-national comparison - how is palliative care development assessed?

ARIAS, Natalia ; GARRALDA, Eduardo ; DE LIMA, Liliana ; RHEE, John Y. ; CENTENO, Carlos
JOURNAL OF PALLIATIVE MEDICINE, 05/2019, vol.22, n°5, p. 580-590

White paper for global palliative care advocacy - recommendations from a PAL-LIFE expert advisory group of the Pontifical Academy for Life, Vatican City

CENTENO, Carlos ; SITTE, Thomas ; DE LIMA, Liliana ; ALSIRAFY, Sami ; BRUERA, Eduardo ; CALLAWAY, Mary ; FOLEY, Kathleen M. ; LUYIRIKA, Emmanuel ; MOSOIU, Daniela ; PETTUS, Katherine ; PUCHALSKI, Christina ; RAJAGOPAL, M. R. ; YONG, Julianna ; GARRALDA, Eduardo ; RHEE, John Y. ; COMORETTO, Nunziata
JOURNAL OF PALLIATIVE MEDICINE, 10/2018, vol.21, n°10, p. 1389-1397

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