VigiPallia : Résultats

PRESTON, Nancy

0 sélectionnée(s) / 25 réponse(s)

(1) 2 >

Experience of caregivers supporting a patient through voluntarily stopping eating and drinking

LOWERS, Jane ; HUGHES, Sean ; PRESTON, Nancy
JOURNAL OF PALLIATIVE MEDICINE, 09/07/2020, p. -

Document en ligne

Exploring a new model of end-of-life care for older people that operates in the space between the life world and the healthcare system - a qualitative case study

DODD, Steven ; PRESTON, Nancy ; PAYNE, Sheila ; WALSHE, Catherine
International journal of health policy and management, 01/08/2020, vol.9, n°8, p. 344-351

Document en ligne

Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice

PRESTON, Nancy ; HASSELAAR, Jeroen ; HUGHES, Sean ; KALEY, Alex ; LINGE-DAHL, Lisa ; RADVANYI, Ildiko ; TUBMAN, Phil ; VAN BEEK, Karen ; VAREY, Sandra ; PAYNE, Sheila
BMC palliative care, 22/04/2020, vol.19, n°1, p. 1-8

Document en ligne

Ethical and research governance approval across Europe - experiences from three European palliative care studies

PRESTON, Nancy ; VAN DELDEN, Johannes JM ; INGRAVALLO, Francesca ; HUGHES, Sean ; HASSELAAR, Jeroen ; VAN DER HEIDE, Agnes ; VAN DEN BLOCK, Lieve ; DUNLEAVY, Lesley ; GROOT, Marieke M. ; CSIKOS, Agnes ; PAYNE, Sheila
PALLIATIVE MEDICINE, 18/03/2020, Pagination inconnue

Document en ligne

Do journals contribute to the international publication of research in their field? - a bibliometric analysis of palliative care journal data

WALSHE, Catherine ; AHMED, Faraz ; PRESTON, Nancy
PALLIATIVE MEDICINE, 23/01/2020, Pagination inconnue

Document en ligne

Telehealth in palliative care is being described but not evaluated - a systematic review

HANCOCK, Sophie ; PRESTON, Nancy ; JONES, Helen ; GADOUD, Amy
BMC palliative care, 13/12/2019, vol.18, n°1, p. 1-15

Document en ligne

Swiss families' experiences of interactions with providers during assisted suicide - a secondary data analysis of an interview study

GAMONDI, Claudia ; POTT, Murielle ; PRESTON, Nancy ; PAYNE, Sheila
JOURNAL OF PALLIATIVE MEDICINE, 07/11/2019, Pagination inconnue

Document en ligne

Medical aid in dying, hastened death and suicide - a qualitative study of hospice professionals' experiences from Washington state

GERSON, Sheri Mila ; PRESTON, Nancy ; BINGLEY, Amanda
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 02/2020, vol.59, n°3, p. 679-686.e1

Document en ligne

When is hastened death considered suicide? - a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

GERSON, Sheri Mila ; BINGLEY, Amanda ; PRESTON, Nancy ; GRINYER, Anne
BMC palliative care, 31/08/2019, vol.18, n°1, p. 1-13

Document en ligne

Family members' experiences of assisted dying - a systematic literature review with thematic synthesis

GAMONDI, Claudia ; FUSI-SCHMIDHAUSER, Tanja ; ORIANI, Anna ; PAYNE, Sheila ; PRESTON, Nancy
PALLIATIVE MEDICINE, 27/06/2019, Pagination inconnue

Document en ligne

Thème : Soins.

SUICIDE MEDICALEMENT ASSISTE ; FAMILLE ; RESSENTI

BACKGROUND: Families' experiences of assisted dying are under-investigated and families are rarely considered in clinical guidelines concerning assisted dying.
AIM: To systematically review family experiences of assisted dying.
DESIGN: A systematic literature review using thematic synthesis.
DATA SOURCES: MEDLINE, Embase, CINAHL, AMED (Allied and Complementary Medicine) and PsycINFO databases (January 1992 to February 2019). Studies investigating families' experiences on the practice of legalised assisted dying were included. We excluded studies prior to legalisation within the jurisdiction, secondary data analysis and opinion papers.
RESULTS: Nineteen articles met the inclusion criteria. Publications were derived from four countries: The Netherlands, United States (Oregon, Washington and Vermont), Canada and Switzerland. Dutch studies predominately investigated family involvement in euthanasia, while Swiss and American studies only reported on assisted suicide. Eleven studies had a qualitative design, using predominately in-depth interviews; seven were retrospective surveys. Five analytical themes represented families' experiences in assisted dying: (1) context of the decision, (2) grounding the decision, (3) cognitive and emotional work, (4) experiencing the final farewell and (5) grief and bereavement. The results showed that families can be very involved in supporting patients seeking assisted dying, where open communication is maintained. Family involvement appeared to be influenced by the type of legislation in their country and the families' perception of the social acceptability of assisted dying.
CONCLUSION: Our data confirm that families across all jurisdictions are involved in assisted suicide decision and enactment. Family needs are under-researched, and clinical guidelines should incorporate recommendations about how to consider family needs and how to provide them with evidence-based tailored interventions.

Origine : PubMed

Recommendations on priorities for integrated palliative care - transparent expert consultation with international leaders for the InSuP-C project

PAYNE, Sheila ; HUGHES, Sean ; WILKINSON, Joann ; HASSELAAR, Jeroen ; PRESTON, Nancy
BMC palliative care, 03/04/2019, vol.18, n°1, 22 p.

Document en ligne

Thème : Soins. Cote : eD02.00.00

DEMARCHE PALLIATIVE ; RECOMMANDATION ; ETUDE INTERNATIONALE ; CONSULTATION

BACKGROUND: The World Health Organisation (WHO) endorses integrated palliative care which has a significant impact on quality of life and satisfaction with care. Effective integration between hospices, palliative care services, hospitals and primary care services are required to support patients with palliative care needs. Studies have indicated that little is known about which aspects are regarded as most important and should be priorities for international implementation. The Integrated Palliative Care in cancer and chronic conditions (InSup-C) project, aimed to investigate integrated practices in Europe and to formulate requirements for effective palliative care integration. It aimed to develop recommendations, and to agree priorities, for integrated palliative care linked to the InSuP-C project.
METHODS: Transparent expert consultation was adopted at the approach used. Data were collected in two phases: 1) international transparent expert consultation using face-to-face roundtable discussions at a one day workshop in Brussels, and 2) via subsequent online cross-sectional survey where items were rated to indicate degree of agreement on their importance and ranked to indicate priority for implementation. Workshop discussions used content analysis to develop a list of 23 recommendations, which formed the survey questionnaire. Survey analysis used descriptive statistics and qualitative content analysis of open responses.
RESULTS: Thirty-six international experts in palliative care and cancer care, including senior clinicians, researchers, leaders of relevant international organisations and funders, were invited to a face-to-face workshop. Data were collected from 33 (19 men, 14 women), 3 declined. They mostly came from European countries (31), USA (1) and Australia (1). Twenty one of them also completed the subsequent online survey (response rate 63%). We generated 23 written statements that were grouped into the organisational constructs: macro (10), meso (6) and micro (7) levels of integration of palliative care. Highest priority recommendations refer to education, leadership and policy-making, medium priority recommendations focused on funding and relationship-building, and lower priority recommendations related to improving systems and infrastructure.
CONCLUSIONS: Our findings suggest that amongst a group of international experts there was overall good agreement on the importance of recommendations for integrated palliative care. Understanding expert's priorities is important and can guide practice, policymaking and future research.

Origine : PubMed

Palliative care provision for patients with advanced chronic obstructive pulmonary disease - a systematic integrative literature review

FUSI-SCHMIDHAUSER, Tanja ; RIGLIETTI, Alessia ; FROGGATT, Katherine ; PRESTON, Nancy
COPD, 04/02/2019, p. 1-12

Document en ligne

Improving living and dying for people with advanced dementia living in care homes - a realist review of Namaste care and other multisensory interventions

BUNN, Frances ; LYNCH, Jennifer ; GOODMAN, Claire ; SHARPE, Rachel ; WALSHE, Catherine ; PRESTON, Nancy ; FROGGATT, Katherine
BMC GERIATRICS, 06/12/2018, vol.18, n°1, p. 1-15

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.04

DEMENCE ; MAISON RETRAITE ; QUALITE VIE ; SOIN

BACKGROUND: Seventy percent of people with advanced dementia live and die in care homes. Multisensory approaches, such as Namaste Care, have been developed to improve the quality of life and dying for people with advanced dementia but little is known about effectiveness or optimum delivery. The aim of this review was to develop an explanatory account of how the Namaste Care intervention might work, on what outcomes, and in what circumstances.
METHODS: This is a realist review involving scoping of the literature and stakeholder interviews to develop theoretical explanations of how interventions might work, systematic searches of the evidence to test and develop the theories, and their validation with a purposive sample of stakeholders. Twenty stakeholders - user/patient representatives, dementia care providers, care home staff, researchers -took part in interviews and/or workshops.
RESULTS: We included 85 papers. Eight focused on Namaste Care and the remainder on other types of sensory interventions such as music therapy or massage. We identified three context-mechanism-outcome configurations which together provide an explanatory account of what needs to be in place for Namaste Care to work for people living with advanced dementia. This includes: providing structured access to social and physical stimulation, equipping care home staff to cope effectively with complex behaviours and variable responses, and providing a framework for person-centred care. A key overarching theme concerned the importance of activities that enabled the development of moments of connection for people with advanced dementia.
CONCLUSIONS: This realist review provides a coherent account of how Namaste Care, and other multisensory interventions might work. It provides practitioners and researchers with a framework to judge the feasibility and likely success of Namaste Care in long term settings. Key for staff and residents is that the intervention triggers feelings of familiarity, reassurance, engagement and connection.
STUDY REGISTRATION: This study is registered as PROSPERO CRD42016047512.

Origine : PubMed

Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA) - a longitudinal study

WALSHE, Catherine ; PRESTON, Nancy ; PAYNE, Sheila ; DODD, Steve ; PEREZ ALGORTA, Guillermo
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 07/08/2018, Pagination inconnue

Document en ligne

'Being with' or 'doing for'? - how the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

DODD, Steven ; HILL, Matt ; OCKENDEN, Nick ; PEREZ ALGORTA, Guillermo ; PAYNE, Sheila ; PRESTON, Nancy ; WALSHE, Catherine
Supportive care in cancer, 29/03/2018, p. 1-10

Document en ligne

Facilitation of an end-of-life care programme into practice within UK nursing care homes - a mixed-methods study

KINLEY, Julie ; PRESTON, Nancy ; FROGGATT, Katherine
International journal of nursing studies, 24/02/2018, vol.82, p. 1-10

Document en ligne

Thème : Santé.

FIN VIE ; ROYAUME UNI ; POLITIQUE SANITAIRE ; MAISON RETRAITE

BACKGROUND: The predicted demographic changes internationally have implications for the nature of care that older people receive and place of care as they age. Healthcare policy now promotes the implementation of end-of-life care interventions to improve care delivery within different settings. The Gold Standards Framework in Care Homes (GSFCH) programme is one end-of-life care initiative recommended by the English Department of Health. Only a small number of care homes that start the programme complete it, which raises questions about the implementation process.
AIM: To identify the type, role, impact and cost of facilitation when implementing the GSFCH programme into nursing care home practice.
DESIGN: A mixed-methods study.
SETTING: Nursing care homes in south-east England.
PARTICIPANTS: Staff from 38 nursing care homes undertaking the GSFCH programme. Staff in 24 nursing care homes received high facilitation. Of those, 12 also received action learning. The remaining 14 nursing care homes received usual local facilitation of the GSFCH programme.
METHODS: Study data were collected from staff employed within nursing care homes (home managers and GSFCH coordinators) and external facilitators associated with the homes. Data collection included interviews, surveys and facilitator activity logs. Following separate quantitative (descriptive statistics) and qualitative (template) data analysis the data sets were integrated by 'following a thread'. This paper reports study data in relation to facilitation.
RESULTS: Three facilitation approaches were provided to nursing home staff when implementing the GSFCH programme: 'fitting it in' facilitation; 'as requested' facilitation; and 'being present' facilitation. 'Being present' facilitation most effectively enabled the completion of the programme, through to accreditation. However, it was not sufficient to just be present. Without mastery and commitment, from all participants, including the external facilitator, learning and initiation of change failed to occur. Implementation of the programme required an external facilitator who could mediate multi-layered learning at an individual, organisational and appreciative system level. The cost savings in the study outweighed the cost of providing a 'being present' approach to facilitation.
CONCLUSIONS: Different types of facilitation are offered to support the implementation of end-of-life care initiatives. However, in this study 'being present' facilitation, when supported by multi-layered learning, was the only approach that initiated the change required.

Origine : PubMed

Family caregivers' reflections on experiences of assisted suicide in Switzerland - a qualitative interview study

GAMONDI, C. ; POTT, Murielle ; PRESTON, Nancy ; PAYNE, Sheila
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/04/2018, vol.55, n°4, p. 1085-1094

Document en ligne

Using the "social marketing mix framework" to explore recruitment barriers and facilitators in palliative care randomised controlled trials? - a narrative synthesis review

DUNLEAVY, Lesley ; WALSHE, Catherine ; ORIANI, Anna ; PRESTON, Nancy
PALLIATIVE MEDICINE, Sage publications, 05/2018, vol.32, n°5, p. 990-1009

Document en ligne

Integrated palliative care networks from the perspectives of patients - a cross-sectional explorative study in five European countries

DEN HERDER-VAN DER EERDEN, Marlieke ; EBENAU, Anne ; PAYNE, Sheila ; PRESTON, Nancy ; RADBRUCH, Lukas ; LINGE-DAHL, Lisa ; CSIKOS, Agnes ; BUSA, Csilla ; VAN BEEK, Karen ; GROOT, Marieke M. ; VISSERS, Kris ; HASSELAAR, Jeroen
PALLIATIVE MEDICINE, Sage publications, 06/2018, vol.32, n°6, p. 1103-1113

Document en ligne

Integrated palliative care is about professional networking rather than standardisation of care - a qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries

DEN HERDER-VAN DER EERDEN, Marlieke ; VAN WIJNGAARDEN, Jeroen ; PAYNE, Sheila ; PRESTON, Nancy ; LINGE-DAHL, Lisa ; RADBRUCH, Lukas ; VAN BEEK, Karen ; MENTEN, Johan ; BUSA, Csilla ; CSIKOS, Agnes ; VISSERS, Kris ; VAN GURP, Jelle ; HASSELAAR, Jeroen
PALLIATIVE MEDICINE, Sage publications, 06/2018, vol.32, n°6, p. 1091-1102

Document en ligne

(1) 2 >

Actions

##titre_notice##