This paper addresses the stories of volunteers in hospice and palliative care (HPC) from eight European countries. The aims of the paper are to explore the experiences of volunteers in HPC from their insider perspective, to understand why volunteers choose to work in this field and to understand what it means to them to be involved in palliative care in this way. Stories were collected by the European Association for Palliative Care (EAPC) Task Force for Volunteering contacts in each of the eight countries. The majority of stories (n = 32) came from volunteers involved in different settings including adult patient's homes, hospices, hospitals and care homes. Twenty volunteers were female, six were male, and ten did not give their gender. Stories were translated into English, and a qualitative framework analysis was performed. Volunteers were asked two questions: 'What do you do as a volunteer?' 'What does volunteering mean to you?' Three themes were identified from the data: (i) What volunteers do (ii) How volunteers approach their work and (iii) What working in HPC means to volunteers. The analysis revealed that common approaches to addressing and describing HPC volunteering in terms of tasks and roles could be expanded. To volunteers, it is not about tasks, but about a part of their life, the impact upon which can be significant. The results of this paper, therefore, add to the understanding of volunteers, in the sense of giving attention, being with, and of compassion as a community resource to patients and families in difficult situations. Theories about presence and presencing might have value in further underpinning this contribution to palliative care. Understanding the extent and depth of the volunteers' experience will help to prevent the undervaluing of their contribution and increase the impact of their involvement.
A significant proportion of secondary school pupils in the UK have experienced the death of someone close. Bereavement in childhood can have a significant and long lasting impact. The aim of this study was to explore how pupils aged between 12 and 18 understand major loss, death and dying, whom they talk to and the support they access at these times, and their awareness of the range of support available to them. A total of 31 pupils, 108 parents and 37 staff from a large Scottish secondary school took part and data was collected using online questionnaires. A high proportion of pupils had experience of major loss or bereavement and showed significant awareness of their feelings and responses to these. It appears that young people primarily seek support from family and friends, but the role of peers is less well recognised by parents and teachers. The school was recognised as a source of support mainly by teachers.
AIM: To explore the relationship between volunteering and the sustainability of UK voluntary hospices.
METHODS: A narrative literature review was conducted to inform the development of a theoretical model. Eight databases were searched: CINAHL (EBSCO), British Nursing Index, Intute: Health and Life Sciences, ERIC, SCOPUS, ASSIA (CSA), Cochrane Library and Google Scholar.
RESULTS: A total of 90 documents were analysed. Emerging themes included the importance of volunteering to the hospice economy and workforce, the quality of services, and public and community support. Findings suggest that hospice sustainability is dependent on volunteers; however, the supply and retention of volunteers is affected by internal and external factors.
CONCLUSIONS: A theoretical model was developed to illustrate the relationship between volunteering and hospice sustainability. It demonstrates the factors necessary for hospice sustainability and the reciprocal impact that these factors and volunteering have on each other. The model has a practical application as an assessment framework and strategic planning tool.
Bereaved people often say that friends, family and colleagues avoid talking to them about their loss. Indeed, sometimes people will cross the road to avoid engaging with them. This project sought to understand why ordinary people come forward to volunteer to help those who have been bereaved and what this experience means to them. Stories gathered from eighteen volunteers at Cruse Scotland suggested that their own experience of bereavement was the main motivating factor and that volunteers found significant meaning and growth through involvement in this work.
En 2013, l'association européenne des soins palliatifs (EAPC) a créé la Taskforce "Bénévolat en soins palliatifs". Parmi ses missions, le groupe de travail devait rendre un livre blanc contenant une définition et une typologie partagées du bénévolat en soins palliatifs. Ce groupe de travail devait également convenir du rôle, de la position, de l'identité et des valeurs d'un bénévole européen. Les auteurs présentent les principaux points du livre blanc.
L'association CHAS (Children's Hospice Association Scotland) utilise un modèle de soins qui combine une expertise clinique et des activités artistiques. Les auteurs expliquent les bénéfices de cette approche à travers deux exemples de projets récents autour de la musique (CHAS the Opera) et de l'art (Art 21).
Au Royaume-Uni, entre 125 000 et 160 000 bénévoles interviennent dans les services de soins palliatifs pour adultes et enfants, faisant ainsi don de 23 millions d'heures de travail tous les ans, pour une valeur économique de 150 millions de livres sterling. Dans les centres de soins palliatifs du Royaume-Uni, l'existence, la qualité et l'envergure des soins palliatifs dépendent du bénévolat. Les bénévoles, qui s'intègrent dans les communautés locales, ont le pouvoir de réduire les tabous qui entourent la fin de vie, la mort et le deuil. Il semble nécessaire que les hôpitaux prennent en compte le travail accompli par les bénévoles pour planifier la relève et développer cette force de travail.
[D'après résumé revue]
Cet article traite du bénévolat en soins palliatifs en Autriche et au Royaume Uni ainsi que du nouveau groupe de travail de l’EAPC lancé en novembre 2013. Celui-ci va explorer l'état actuel du bénévolat en Europe et identifier les moyens d'améliorer l'implication des bénévoles.
Cet article revoie les discussions et dresse les conclusions provenant d'un séminaire mené par le Children's Hospice Association Scotland qui était centré sur les défis auxquels sont confrontés les jeunes adultes en fin de vie.