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Perceptions of adolescents with cancer undergoing palliative care about their illness process

GUIMARAES, Tuani Magalhães ; PACHECO, Sandra Teixeira de Araújo ; NUNES, Michelle Darezzo Rodrigues ; SILVA, Liliane Faria da
Revista gaúcha de enfermagem, 2020, vol.41, p. 1-9

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Consulting with a folk deity before making decisions - spiritual practices in parents facing end-of-life decisions for their child on life support with brain stem dysfunction

LIN, Shih-Chun ; HUANG, Mei-Chih
International journal of qualitative studies on health and well-being, 2020, vol.15, n°1, p. 1-10

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End of life care's ongoing evolution

FINK-SAMNICK, Ellen
Professional case management, 2020, vol.25, n°3, p. 111-131

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La littérature de jeunesse au service de l'enfant hospitalisé

TETE, Caroline ; GRELLIER, Anne ; LEFEVRE, Viviane
MEDECINE PALLIATIVE, Elsevier, 02/2020, vol.19, n°1, p. 48-51

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Le vécu de jeunes après le décès d'un(des) parent(s) - expérience sociale, soutiens et acteurs à l'épreuve de la recherche sur les orphelins en France

/ OCIRP, Organisme commun des institutions de rente et de prévoyance ; CADIS, Centre d'analyse et d'intervention sociologiques ; EHESS, Ecole des hautes études en sciences sociales - 2019 , 80 p.

Si c'est pour l'éternité

WALLACH, Tommy
Nathan , 2018 , 318 p.

"It's more difficult…" - clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer

AVERY, Jonathan ; GEIST, Arielle ; MAMMONE D'AGOSTINO, Norma Mammone ; KAWAGUCHI, Sarah K. ; MAHTANI, Ramona ; MAZZOTTA, Paolo ; MOSHER, Pamela J. ; AL-AWAMER, Ahmed ; KASSAM, Alisha ; ZIMMERMANN, Camilla ; SAMADI, Mahsa ; TAM, Seline ; SRIKANTHAN, Amirrtha ; GUPTA, Abha
Journal of oncology practice, 25/11/2019, Pagination inconnue

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End-of-life care among adolescent and young adult patients with cancer living in poverty

ROELAND, Eric J. ; LINDLEY, Lisa C. ; GILBERTSON-WHITE, Stephanie ; SAEIDZADEH, Seyedehtanaz ; CURRIE, Erin R. ; FRIEDMAN, Sarah ; BAKITAS, Marie ; MACK, Jennifer W.
Cancer, 14/11/2019, Pagination inconnue

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Examining key sociodemographic characteristics of adolescents and young adults with cancer - a post hoc analysis of the promoting resilience in stress management randomized clinical trial

LAU, Nancy ; BRADFORD, Miranda C. ; STEINECK, Angela ; SCOTT, Samantha ; BONA, Kira ; YI-FRAZIER, Joyce P. ; MCCAULEY, Elizabeth ; ROSENBERG, Abby R.
PALLIATIVE MEDICINE, 04/11/2019, Pagination inconnue

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"Can you tell me why you made that choice?" - a qualitative study of the influences on treatment decisions in advance care planning among adolescents and young adults undergoing bone marrow transplant

NEEDLE, Jennifer S. ; PEDEN-MCALPINE, Cynthia ; LIASCHENKO, Joan ; KOSCHMANN, Kara ; SANDERS, Noah ; SMITH, Angela ; SCHELLINGER, Sandra E. ; LYON, Maureen E.
PALLIATIVE MEDICINE, 29/10/2019, Pagination inconnue

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End-of-life communication needs for adolescents and young adults with cancer - recommendations for research and practice

SANSOM-DALY, Ursula M. ; WAKEFIELD, Claire E. ; PATTERSON, Pandora ; COHN, Richard J. ; ROSENBERG, Abby R. ; WIENER, Lori ; FARDELL, Joanna E.
Journal of adolescent and young adult oncology, 29/10/2019, p. 1-9

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Soins palliatifs du nouveau-né à l'adolescent

FRACHE, Sandra ; SCHELL, Matthias
Elsevier Masson , 11/2019 , 260 p.

Accompagnement de la fin de vie d’une adolescente, entre faire et être

FRIPPIAT, Jessica ; STROSBERG, Cindy ; SCHREDER, Alexandra ; DEVALCK, Christine
MEDECINE PALLIATIVE, 09/2019, vol.18, n°4-5, p. 188-194

Medical and end-of-life decision making in adolescents' pre-heart transplant - a descriptive pilot study

COUSINO, Melissa K. ; MILLER, Victoria A. ; SMITH, Cynthia ; UZARK, Karen ; LOWERY, Ray ; ROTTACH, Nichole ; BLUME, Elizabeth D. ; SCHUMACHER, Kurt R.
PALLIATIVE MEDICINE, 24/10/2019, Pagination inconnue

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Une raison de vivre

HERING, Véronique
Librinova , 10/2019 , Pagination inconnue

Mort, mais pas dans mon coeur - Accompagner un jeune en deuil

MASSON, Josée
Desclée de Brouwer , 10/2019 , 396 p.

Psychometrics of the PTSD and depression screener for bereaved youth

BROWN, Elissa J. ; GOODMAN, Robin F. ; RITHOLTZ, Shira F. ; SWIECICKI, Carole C.
DEATH STUDIES, 2019, vol.43, n°1, p. 20-31

Help-seeking experiences of bereaved adolescents - a qualitative study

ANDRIESSEN, Karl ; LOBB, Elizabeth ; MOWLL, Jane ; DUDLEY, Michael ; DRAPER, Brian ; MITCHELL, Philip B.
DEATH STUDIES, 2019, vol.43, n°1, p. 1-8

Sex differences in behavioral and psychological expression of grief during adolescence - a meta-analysis

SHULLA, Rachel M. ; TOOMEY, Russell B.
Journal of adolescence, 01/01/2018, vol.65, p. 219-227

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A longitudinal investigation of protective factors for bereaved maltreated youth

SASSER, Jeri ; BERNSTEIN DUPREY, Erinn ; OSHRI, Assaf
CHILD ABUSE AND NEGLECT, 26/08/2019, vol.96, Pagination inconnue

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Thème : Deuil et travail du deuil.

PERSONNE ENDEUILLEE ; MALTRAITANCE ; ETUDE LONGITUDINALE ; ADOLESCENT ; SOUTIEN DEUIL

BACKGROUND: Maltreated youth are at an elevated risk for the development of problem behaviors. Coping with the death of a family member or close friend during adolescence, referred to as bereavement, is a stressful event that could potentiate risk linked to maltreatment. However, developmental research suggests that youth adjustment is a product of multiple risk and protective factors. Although maltreated youth who experience loss may be particularly vulnerable to behavior problems, personal and contextual factors may attenuate or exacerbate youths' risk for internalizing and externalizing psychopathology.
OBJECTIVE: The overarching goal of this study is to examine individual, family, and community-level protective factors for maltreated youth who experience bereavement. Specifically, we aim to examine the effect of age 12 bereavement on age 16 internalizing and externalizing psychopathology, and to investigate the moderating role of multi-level protective factors at ages 14 and 16.
METHODS: The study consisted of a sample of 800 youth (52.4% female, 45.1% African-American) drawn from the Longitudinal Studies of Child Abuse and Neglect (LONGSCAN), collected from 1998 to 2011.
RESULTS: Maltreated youth who experienced significant loss were at increased risk for externalizing symptoms, compared to non-bereaved maltreated youth (ß = 0.085, p < .05). Individual future orientation (ß = 0.103, p < .05) family future orientation (ß = -0.120, p < .05), parental monitoring (ß = -0.123, p< .01), and neighborhood collective efficacy (ß = -0.126, p < .01) each significantly moderated the association between bereavement and externalizing symptoms.
CONCLUSIONS: These results have implications for future interventions aimed towards reducing problem behaviors in adolescents with a history of child maltreatment and who experience bereavement.

Origine : PubMed

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