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AGITATION

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Development, feasibility, and acceptability of an intervention to improve care for agitation in people living in nursing homes with dementia nearing the end-of-life

SAMPSON, Elizabeth L. ; BARBER, Julie ; GILLAM, Juliet ; LA FRENAIS, Francesca ; LAMBE, Katie ; LAYBOURNE, Anne ; MANELA, Monica ; MARSTON, Louise ; MOORE, Kirsten ; PANCA, Monica ; STRINGER, Aisling ; WEBSTER, Lucy ; LIVINGSTON, Gill
International psychogeriatrics, 15/09/2020, p. 1-13

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Agitation near the end of life with dementia - an ethnographic study of care

SAMPSON, Elizabeth L. ; STRINGER, Aisling ; LA FRENAIS, Francesca ; HIGGINS, Shanlee ; DOYLE, Mary-Jo ; LAYBOURNE, Anne ; LIVINGSTON, Gill ; LEAVEY, Gerard
Plos one, 2019, vol.14, n°10, p. 1-19

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Thème : Médecine. Cote : eD03.01.01

AGITATION ; FIN VIE ; DEMENCE ; ETHNOGRAPHIE

BACKGROUND AND OBJECTIVES: Agitation is common in people living with dementia especially at the end of life. We examined how staff interpreted agitation behavior in people with dementia nearing end of life, how this may influence their responses and its impact on the quality of care.
RESEARCH DESIGN: Ethnographic study. Structured and semi-structured non-participant observations (referred to subsequently in this paper as "structured observations") of people living with dementia nearing the end of life in hospital and care homes (south-east England) and in-depth interviews with staff, conducted August 2015-March 2017.
METHODS: Three data sources: 1) detailed field notes, 2) observations using a structured tool and checklist for behaviors classed as agitation and staff and institutional responses, 3) staff semi-structured qualitative interviews. We calculated the time participants were agitated and described staff responses. Data sources were analyzed separately, developed continuously and relationally during the study and synthesized where appropriate.
RESULTS: We identified two main 'ideal types' of staff explanatory models for agitation: In the first, staff attribute agitated behaviors to the person's "moral judgement", making them prone to rejecting or punitive responses. In the second staff adopt a more "needs-based" approach in which agitation behaviors are regarded as meaningful and managed with proactive and investigative approaches. These different approaches appear to have significant consequences for the timing, frequency and quality of staff response. While these models may overlap they tend to reflect distinct organizational resources and values.
CONCLUSIONS: Care worker knowledge about agitation is not enough, and staff need organizational support to care better for people living with dementia towards end of life. Positional theory may help to explain much of the cultural-structural context that produces staff disengagement from people with dementia, offering insights on how agitation behavior is reframed by some staff as dangerous. Such behavior may be associated with low-resource institutions with minimal staff training where the personhood of staff may be neglected.

Origine : PubMed

Hydration and symptoms in the last days of life

LOKKER, Martine E. ; VAN DER HEIDE, Agnes ; OLDENMENGER, Wendy H. ; VAN DER RIJT, Carin C. D. ; VAN ZUYLEN, Lia
BMJ supportive and palliative care, 31/08/2019, p. 1-9

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Propofol-based palliative sedation to treat antipsychotic-resistant agitated delirium

COVARRUBIAS-GÓMEZ, Alfredo ; LÓPEZ COLLADA-ESTRADA, Maria
Journal of pain and palliative care pharmacotherapy, 02/10/2017, vol.31, n°3-4, p. 190-194

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Benzodiazepines for agitation in patients with delirium - selecting the right patient, right time, and right indication

HUI, David
Current opinion in supportive and palliative care, 19/09/2018, Pagination inconnue

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Variation of the occurrence of agitated delirium during the day in palliative care

GONCALVES, Ferraz ; ALMEIDA, Ana ; ANTUNES, Luís ; TEIXEIRA, Sara ; PEREIRA, Sara ; EDRA, Natércia
PROGRESS IN PALLIATIVE CARE, 2018, vol.26, n°4, p. 181-183

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Pharmacological management of symptoms in children with life-limiting conditions at the end of life in the Asia Pacific

CHONG, Lee Ai ; CHONG, Poh Heng ; CHEE, Joyce
JOURNAL OF PALLIATIVE MEDICINE, 09/2018, vol.21, n°9, p. 1242-1248

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Un bout de chemin avec Alban

HOUGUENAGUE, Marie-France
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 03/2018, n°132, p. 99-100

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Symptom management, nutrition and hydration at end-of-life - a qualitative exploration of patients', carers' and health professionals' experiences and further research questions

BAILLIE, Jessica ; ANAGNOSTOU, Despina ; SIVELL, Stephanie ; VAN GODWIN, Jordan ; BYRNE, Anthony ; NELSON, Annmarie
BMC palliative care, 2018, vol.17, n°1, p. 1-13

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"Palliative sedation"? - a retrospective cohort study on the use and labelling of continuously administered sedatives on a palliative care unit

SCHILDMANN, Eva ; PORNBACHER, Sebastian ; KALIES, Helen ; BAUSEWEIN, Claudia
PALLIATIVE MEDICINE, 07/2018, vol.32, n°7, p. 1189-1197

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Hispanic hospice patients' experiences of end-stage restlessness

BELTRAN, Susanny J.
Journal of social work in end-of-life and palliative care, 2018, vol.14, n°1, p. 93-109

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Evaluation of a low-light intervention - starlight therapy - for agitation, anxiety, restlessness, sleep disturbances, dyspnea, and pain at end of life

EMERSON, Kathleen ; MURPHY, Mary ; QUINLIN, Linda ; O'MALLEY, Patricia ; HAYES, Kathleen
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2017, vol.19, n°3, p. 214-222

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Palliative care symptom management in the emergency department - the ABC's of symptom management for the emergency physician

SIEGEL, Mari ; BIGELOW, Suzanne
The journal of emergency medicine, 01/2018, vol.54, n°1, p. 25-32

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Safety and effectiveness of palliative drug treatment in the last days of life - a systematic literature review

JANSEN, Kristian ; HAUGEN, Dagny Faksvåg ; PONT, Lisa ; RUTHS, Sabine
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 02/2018, vol.55, n°2, p. 508–521.e3

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Enquête observationnelle sur le delirium palliatif

MAILLY, Maryse ; BENEZECH, Jean-Pierre ; CHEVALLIER MICHAUD, Josiane
REVUE DE L'INFIRMIERE, 02/2017, n°228, p. 37-38

Réactions pouvant apparaître chez l'enfant en deuil

MERINO, Christine
" Accompagner l'enfant en deuil ", Favre , 2015 , p. 31-45

Refractory delirium in a hospice patient - a case study

[ Délire réfractaire chez un patient en soins palliatifs : une étude de cas ]
COHEN, Cynthia L.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, Lippincott ; Williams & Wilkins, 04/2015, vol.17, n°2, p. 98-104

Les symptômes autres que la douleur et leur traitement

SCHAERER, René
JALMALV JUSQU'A LA MORT, ACCOMPAGNER LA VIE, 06/1990, n°21, p. 48-55

Troubles cognitifs et soins palliatifs

- 2008 , [30 p.]

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