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AIDE DECISION

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Nursing home residents with cognitive impairment can participate in advance care planning - a qualitative study

SAEVAREID, Trygve J. L. ; PEDERSEN, Reidar ; THORESEN, Lisbeth
Journal of advanced nursing, 24/11/2020, Pagination inconnue

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Improving patient preparedness and confidence in discussing advance directives for end-of-life care with health care providers in the United States and Japan

FRIEND, John M. ; ALDEN, Dana L.
Medical decision making, 2021, vol.41, n°1, p. 60-73

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Feasibility and effectiveness of tools that support communication and decision making in life-prolonging treatments for patients in hospital - a systematic review

THODE, Maureen ; PASMAN, H. Roeline W. ; VAN VLIET, Liesbeth M. ; DAMMAN, Olga C. ; KET, Johannes C. F. ; FRANCKE, Anneke L. ; JONGERDEN, Irene P.
BMJ supportive and palliative care, 05/10/2020, p. 1-8

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Décision éthique et choc septique

RAUTUREAU, Pascal
REVUE DE L'INFIRMIERE, 04/2020, vol.69, n°260-261, p. 25-27

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Development and usability testing of understanding stroke, a tailored life-sustaining treatment decision support tool for stroke surrogate decision makers

CHEN, Emily P. ; ARSLANIAN-ENGOREN, Cynthia ; NEWHOUSE, William ; EGLESTON, Diane ; SAHGAL, Savina ; YANDE, Aneesha ; FAGERLIN, Angela ; ZAHURANEC, Darin B.
BMC palliative care, 20/07/2020, vol.19, n°1, p. 1-8

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Thème : Santé. Cote : eD01.03

PERSONNE CONFIANCE ; OUTIL ; AIDE DECISION ; ACCIDENT CEREBRAL

BACKGROUND: Surrogate decision makers of stroke patients are often unprepared to make critical decisions on life-sustaining treatments. We describe the development process and key features for the Understanding Stroke web-based decision support tool.
METHODS: We used multiple strategies to develop a patient-centered, tailored decision aid. We began by forming a Patient and Family Advisory Council to provide continuous input to our multidisciplinary team on the development of the tool. Additionally, focus groups consisting of nurses, therapists, social workers, physicians, stroke survivors, and family members reviewed key elements of the tool, including prognostic information, graphical displays, and values clarification exercise. To design the values clarification exercise, we asked focus groups to provide feedback on a list of important activities of daily living. An ordinal prognostic model was developed for ischemic stroke and intracerebral hemorrhage using data taken from the Virtual International Stroke Trials Archive Plus, and incorporated into the tool.
RESULTS: Focus group participants recommended making numeric prognostic information optional due to possible emotional distress. Pie charts were generally favored by participants for graphical presentation of prognostic information, though a horizontal stacked bar chart was also added due to its prevalence in stroke literature. Plain language descriptions of the modified Rankin Scale were created to accompany the prognostic information. A values clarification exercise was developed consisting of a list of 13 situations that may make an individual consider comfort measures only. The final version of the web based tool (which can be viewed on tablets) included the following sections: general introduction to stroke, outcomes (prognostic information and recovery), in-hospital and life-sustaining treatments, decision making and values clarification, post-hospital care, tips for talking to the health care team, and a summary report. Preliminary usability testing received generally favorable feedback.
CONCLUSION: We developed Understanding Stroke, a tailored decision support tool for surrogate decision makers of stroke patients. The tool was well received and will be formally pilot tested in a group of stroke surrogate decision makers.

Origine : PubMed

Virtual reality video promotes effectiveness in advance care planning

HSIEH, Wan-Ting
BMC palliative care, 16/08/2020, vol.19, n°1, p. 1-10

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Readability of the informed consent forms in Flanders using the Douma index - analyzing the documents that help patients make decisions

DEL VALLE RAMIREZ-DURAN, Maria ; DEL VALLE CORONADO-VAZQUEZ, Maria ; MARISCAL-CRESPO, María Isabel
Clinical ethics, 09/07/2020, Pagination inconnue

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Evaluation of a video decision aid to reduce decisional conflict in physician orders for life-sustaining treatment (POLST) decision-making

GALLEGOS, Jarred V. ; EDELSTEIN, Barry ; MOSS, Alvin H.
JOURNAL OF PALLIATIVE CARE, 10/2020, vol.35, n°4, p. 243-247

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Realizing better doctor-patient dialogue about choices in palliative care and early phase clinical trial participation - towards an online value clarification tool (OnVaCT)

VAN LENT, Liza G. G. ; STOEL, Nicole K. ; VAN WEERT, Julia C. M. ; VAN GURP, Jelle ; DE JONGE, Maja J. A. ; LOLKEMA, Martijn P. ; GORT, Eelke H. ; PULLEMAN, Saskia M. ; OOMEN-DE HOOP, Esther ; HASSELAAR, Jeroen ; VAN DER RIJT, Carin C. D.
BMC palliative care, 29/11/2019, vol.18, n°1, p. 1-10

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A novel decision aid to help plan for serious illness - a multisite randomized trial

HEYLAND, Daren K. ; HEYLAND, Rebecca ; BAILEY, Alice ; HOWARD, Michelle
CMAJ open, 06/2020, vol.8, n°2, p. E289-E296

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Consulting with a folk deity before making decisions - spiritual practices in parents facing end-of-life decisions for their child on life support with brain stem dysfunction

LIN, Shih-Chun ; HUANG, Mei-Chih
International journal of qualitative studies on health and well-being, 2020, vol.15, n°1, p. 1-10

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Protocol for a randomised trial of an interprofessional team-delivered intervention to support surrogate decision-makers in ICUs

LINCOLN, Taylor ; SHIELDS, Anne-Marie ; BUDDADHUMARUK, Praewpannarai ; CHANG, Chung-Chou H ; PIKE, Francis ; CHEN, Hsiangyu ; BROWN, Elke ; KOZAR, Veronica ; PIDRO, Caroline ; KAHN, Jeremy M ; DARBY, Joseph M ; MARTIN, Susan ; ANGUS, Derek C ; ARNOLD, Robert M ; WHITE, Douglas B
BMJ Open, 03/2020, vol.10, n°3, p. 1-12

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Identifying end-of-life preferences among Chinese patients with cancer using the heart to heart card game

LI, Tong-Du ; PEI, Xianbo ; CHEN, Xiaoli ; ZHANG, Shuqin
American journal of hospice and palliative medicine, 09/04/2020, Pagination inconnue

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Decision aids available for parents making end-of-life or palliative care decisions for children - a scoping review: decision aids

MEDEIROS, Christina ; BUCKLEY, Laura ; METCALFE, Kelly ; NARAYANAN, Unni G ; WIDGER, Kimberley
Journal of paediatrics and child health, 12/04/2020, Pagination inconnue

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Where to enhance rural palliative care? - developing a spatial model to identify suitable communities most in need of service enhancement

SCHUURMAN, Nadine ; MARTIN, Michael E. ; CROOKS, Valorie A. ; RANDALL, Ellen
BMC health services research, 04/03/2020, vol.20, n°1, p. 1-8

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Effect of a skills training for oncologists and a patient communication aid on shared decision making about palliative systemic treatment - a randomized clinical trial

HENSELMANS, Inge ; VAN LAARHOVEN, Hanneke W. M. ; VAN MAARSCHALKERWEERD, Pomme ; DE HAES, Hanneke C. J. M. ; DIJKGRAAF, Marcel G. W. ; SOMMEIJER, Dirkje W. ; OTTEVANGER, Petronella B. ; FIEBRICH, Helle-Brit ; DOHMEN, Serge ; CREEMERS, Geert-Jan ; DE VOS, Filip Y. F. L. ; SMETS, Ellen M. A.
The oncologist, 03/2020, vol.25, n°3, p. e578-e588

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OCCHIOGROSSO, Jessica ; HEMMINGER, Lauryn ; BURKE, Joy ; IBEGBU, Chinazom ; SERVENTI, Jennifer ; MOHILE, Nimish
JOURNAL OF PALLIATIVE MEDICINE, 02/2020, vol.23, n°2, p. 264-267

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Communication interventions to improve goal-concordant care of seriously ill patients - an integrative review

BENNETT, Frank ; O'CONNER-VON, Susan
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 02/2020, vol.22, n°1, p. 40-48

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Prognosticating for adult patients with advanced incurable cancer - a needed oncologist skill

CHU, Christina ; ANDERSON, Rebecca ; WHITE, Nicola ; STONE, Patrick
Current treatment options in oncology, 16/01/2020, vol.21, n°1, p. 1-18

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Effects of visual aids for end-of-life care on decisional capacity of people with dementia

CHANG, Wan-Zu D. ; BOURGEOIS, Michelle S.
American journal of speech-language pathology, 23/12/2019, p. 1-16

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