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Dignity in end-of-life care at hospice - an action research study

VIFTRUP, Dorte Toudal ; HVIDT, Niels Christian ; PRINDS, Christina
Scandinavian journal of caring sciences, 17/05/2020, Pagination inconnue

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The impacts and effectiveness of support for people bereaved through advanced illness - a systematic review and thematic synthesis

HARROP, Emily ; MORGAN, Fiona ; LONGO, Mirella ; SEMEDO, Lenira ; FITZGIBBON, Jim ; PICKETT, Sara ; SCOTT, Hannah ; SEDDON, Kathy ; SIVELL, Stephanie ; NELSON, Annmarie ; BYRNE, Anthony
PALLIATIVE MEDICINE, 18/05/2020, p. 1-18

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A qualitative meta-synthesis investigating the experiences of the patient's family when treatment is withdrawn in the intensive care unit

COVENTRY, Alysia ; FORD, Rosemary ; ROSENBERG, John ; MCINNES, Elizabeth
Journal of advanced nursing, 13/05/2020, Pagination inconnue

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Supporting pediatric patients and their families at the end of life - perspectives from bereaved parents

SEDIG, Laura K. ; SPRUIT, Jessica L. ; PAUL, Trisha K. ; COUSINO, Melissa K. ; MCCAFFERY, Harlan ; PITUCH, Kenneth ; HUTCHINSON, Raymond
The American journal of hospice and palliative care, 06/05/2020, Pagination inconnue

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Adapting and going the extra mile - a qualitative study of palliative care in rural Northern Norway from the perspective of healthcare providers

ERVIK, Bente ; BRONDBO, Birgit ; JOHANSEN, May-Lill
Cancer nursing, 03/2020, Pagination inconnue

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End-of-life care for glioma patients - the caregivers’ perspective

HERTLER, Caroline ; EISELE, Günter ; GRAMATZKI, Dorothee ; SEYSTAHL, Katharina ; WOLPERT, Fabian ; ROTH, Patrick ; WELLER, Michael
Journal of neuro-oncology, 30/03/2020, Pagination inconnue

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Experiences and hidden needs of older patients, their families and their physicians in palliative chemotherapy decision-making - a qualitative study

TSUBOI, Rie ; SUGISHITA, Mihoko ; HIRAKAWA, Yoshihisa ; ANDO, Yuichi
Japanese journal of clinical oncology, 13/04/2020, Pagination inconnue

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The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers - a qualitative systematic review

FLEMMING, Kate ; TURNER, Victoria ; BOLSHER, Samantha ; HULME, Bill ; MCHUGH, Elizabeth ; WATT, Ian
PALLIATIVE MEDICINE, 14/04/2020, Pagination inconnue

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"A monster that lives in our lives" - experiences of caregivers of people with motor neuron disease and identifying avenues for support

HENNESSY ANDERSON, Nicole ; GLUYAS, Cathy ; MATHERS, Susan ; HUDSON, Peter ; UGALDE, Anna
BMJ supportive and palliative care, 12/2019, vol.9, n°4, Pagination inconnue

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DOHERTY, Megan ; POWER, Liam ; PETROVA, Mila ; GUNN, Scott ; POWELL, Richard ; COGHLAN, Rachel ; GRANT, Liz ; SUTTON, Brett ; KHAN, Farzana
PLOS MEDICINE, 03/2020, vol.17, n°3, p. 1-17

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Population-based palliative care planning in Ireland - how many people will live and die with serious illness to 2046?

MAY, Peter ; JOHNSTON, Bridget M. ; NORMAND, Charles E. ; HIGGINSON, Irene J. ; KENNY, Rose Anne ; RYAN, Karen
HRB open research, 2019, vol.2, p. 1-21

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Thème : Santé. Cote : eD01.05

IRLANDE ; DEMARCHE PALLIATIVE ; EPIDEMIOLOGIE ; BESOIN

Background: All countries face growing demand for palliative care services. Projections of need are essential to plan care in an era of demographic change. We aim to estimate palliative care needs in Ireland from 2016 to 2046.
Methods: Static modelling of secondary data. First, we estimate the numbers of people in Ireland who will die from a disease associated with palliative care need. We combine government statistics on cause of death (2007-2015) and projected mortality (2016-2046). Second, we combine these statistics with survey data to estimate numbers of people aged 50+ living and dying with diseases associated with palliative care need. Third, we use these projections and survey data to estimate disability burden, pain prevalence and health care utilisation among people aged 50+ living and dying with serious medical illness.
Results: In 2016, the number of people dying annually from a disease indicating palliative care need was estimated as 22,806, and the number of people not in the last year of life aged 50+ with a relevant diagnosis was estimated as 290,185. Equivalent estimates for 2046 are 40,355 and 548,105, increases of 84% and 89% respectively. These groups account disproportionately for disability burden, pain prevalence and health care use among older people, meaning that population health burdens and health care use will increase significantly in the next three decades. Conclusion: The global population is ageing, although significant differences in intensity of ageing can be seen between countries. Prevalence of palliative care need in Ireland will nearly double over 30 years, reflecting Ireland's relatively young population. People living with a serious disease outnumber those in the last year of life by approximately 12:1, necessitating implementation of integrated palliative care across the disease trajectory. Urgent steps on funding, workforce development and service provision are required to address these challenges.

Origine : PubMed

Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition - a cross-sectional study of caregiver-reported outcomes

COLLINS, Anna ; BURCHELL, Jodie ; REMEDIOS, Cheryl ; THOMAS, Kristina
PALLIATIVE MEDICINE, 27/02/2020, Pagination inconnue

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Where to enhance rural palliative care? - developing a spatial model to identify suitable communities most in need of service enhancement

SCHUURMAN, Nadine ; MARTIN, Michael E. ; CROOKS, Valorie A. ; RANDALL, Ellen
BMC health services research, 04/03/2020, vol.20, n°1, p. 1-8

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Developing a perinatal palliative care service package for women with fetal anomaly diagnosis - protocol for mixed methods study

RAISI DEHKORDI, Ziba ; KOHAN, Shahnaz ; RASSOULI, Maryam ; ZAREAN, Elahe ; MALEKIAN, Azadeh
Reproductive health, 04/03/2020, vol.17, n°1, p. 1-6

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Views and experiences of nurses in providing end-of-life care to patients in an ED context - a qualitative systematic review

MUGHAL, Amber ; EVANS, Catrin
Emergency medicine journal, 09/03/2020, Pagination inconnue

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What are the factors identifying caregivers who need help in managing medications for palliative care patients at home? - a population survey

TAIT, Paul ; CUTHBERTSON, Elizabeth ; CURROW, David
JOURNAL OF PALLIATIVE MEDICINE, 10/03/2020, Pagination inconnue

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Nursing staff needs in providing palliative care for persons with dementia at home or in nursing homes - a survey

BOLT, Sascha R. ; MEIJERS, Judith M. M. ; VAN DER STEEN, Jenny T. ; SCHOLS, Jos M. G. A. ; ZWAKHALEN, Sandra M. G.
Journal of nursing scholarship, 10/02/2020, p. 164-173

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Who needs and continues to need paediatric palliative care? - an evaluation of utility and feasibility of the paediatric palliative screening scale (PaPaS)

CHONG, Poh Heng ; SOO, Janice ; YEO, Zhi Zheng ; ANG, Raymond Qishun ; TING, Celene
BMC palliative care, 10/02/2020, vol.19, n°1, p. 1-10

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Frailty differences in older adults’ use of informal and formal care

LAMBOTTE, Deborah ; DE DONDER, Liesbeth ; VAN REGENMORTEL, Sofie ; FRET, Bram ; DURY, Sarah ; SMETCOREN, An-Sofie ; DIERCKX, Eva ; DE WITTE, Nico ; VERTE, Dominique ; KARDOL, Martinus J. M.
Archives of gerontology and geriatrics, 01/11/2018, vol.79, p. 69-77

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Usage de la consultation dédiée à l’aidant naturel de patients atteints de la maladie d’Alzheimer ou maladies apparentées par le médecin généraliste

VAYSSIERE, Amandine ; MOYET, Julien ; PELTIER, Johann ; LALAU, Jean-Daniel ; MACRON, Jean-Michel ; DERVAUX, Alain ; BLOCH, Frédéric
LA REVUE DE GERIATRIE, 2019, vol.44, n°10, p. 583-589

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