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A tool for the evaluation of clinical needs and eligibility to pediatric palliative care - the validation of the ACCAPED scale

LAZZARIN, Pierina ; GIACOMELLI, Luca ; TERRENATO, Irene ; BENINI, Franca
JOURNAL OF PALLIATIVE MEDICINE, 08/07/2020, Pagination inconnue

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Supportive care needs and service use during palliative care in family caregivers of patients with advanced cancer - a prospective longitudinal study

ULLRICH, Anneke ; MARX, Gabriella ; BERGELT, Corinna ; BENZE, Gesine ; ZHANG, Youyou ; WOWRETZKO, Feline ; HEINE, Julia ; DICKEL, Lisa-Marie ; NAUCK, Friedemann ; BOKEMEYER, Carsten ; OECHSLE, Karin
Supportive care in cancer, 06/07/2020, 13 p.

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Dying still matters in the age of covid-19

RHEE, Joel ; GRANT, Matthew ; DETERING, Karen ; CLAYTON, Josephine ; ARTHURS, Kelly
Australian journal of general practice, 06/2020, vol.49, 2 p.

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Palliative care needs and care giver burden in neurodegenerative diseases - a cross sectional study

LITHIN, Zacharias ; THOMAS, Priya T. ; WARRIER, G. Manjusha ; BHASKAR, Adhin ; NASHI, Saraswathi ; VENGALIL, Seena ; POLAVARAPU, Kiran ; KUMAR, Preethish ; YADAV, Ravi ; ALLADI, Suvarna ; ATCHAYARAM, Nalini ; PAL, Pramod K.
Annals of Indian Academy of Neurology, 06/2020, vol.23, n°3, p. 313-317

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A drive for structure - a longitudinal qualitative study of the implementation of the carer support needs assessment tool (CSNAT) intervention during hospital discharge at end of life

HALL, Alex ; EWING, Gail ; ROWLAND, Christine ; GRANDE, Gunn
PALLIATIVE MEDICINE, 03/06/2020, p. 1-9

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Knowledge, attitudes and expectations of physicians with respect to palliative care in Ecuador - a qualitative study

DAVALOS-BATALLAS, Viviana ; MAHTANI-CHUGANI, Vinita ; LOPEZ-NUNEZ, Carla ; DUQUE, Víctor ; LEON-LARIOS, Fatima ; LOMAS-CAMPOS, Maria-de-las-Mercedes ; SANZ, Emilio
International journal of environmental research and public health, 31/05/2020, vol.17, n°11, p. 1-14

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Family conferences in prenatal palliative care

BERNARDES, Lisandra Stein ; OLIVEIRA, Fernanda Figueiredo ; JESUS, Roberta Carolina de Almeida ; BENUTE, Glaucia Rosana Guerra ; GIBELLI, Maria Augusta Bento Cicaroni ; NASCIMENTO, Nathalia Bertolassi ; BOLIBIO, Renata ; BARBOSA, Tercilia Virginia Aparecida ; SETUBAL, Maria Silvia Vellutini ; GOMES, Ana Lúcia ; ROCHA, Luana Sarmento Neves ; ROSA, Gladys Ribeiro ; FRANCISCO, Rossana Pulcinelli
JOURNAL OF PALLIATIVE MEDICINE, 01/06/2020, Pagination inconnue

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Trends in residential setting and hospice use at the end of life for medicare decedents - study examines trends in hospice use at the end of life for medicare decedents including hospice use in community-based residential settings, private residences, and nursing homes

ALDRIDGE, Melissa D. ; ORNSTEIN, Katherine A. ; MCKENDRICK, Karen ; MORENO, Jaison ; RECKREY, Jennifer M. ; LI, Lihua
Health affairs, 01/06/2020, vol.39, n°6, p. 1060-1064

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Understanding family caregivers’ needs to support relatives with advanced progressive disease at home - an ethnographic study in rural Portugal

TEIXEIRA, Maria João Cardoso ; ABREU, Wilson ; COSTA, Nilza ; MADDOCKS, Matthew
BMC palliative care, 25/05/2020, vol.19, n°1, p. 1-11

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Freins et leviers à la mise en place de la démarche palliative en EHPAD

ELIE, Edwige ; ALLUIN, Raphaël
MEDECINE PALLIATIVE, 06/2020, vol.19, n°3, p. 150-159

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Dignity in end-of-life care at hospice - an action research study

VIFTRUP, Dorte Toudal ; HVIDT, Niels Christian ; PRINDS, Christina
Scandinavian journal of caring sciences, 17/05/2020, Pagination inconnue

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The impacts and effectiveness of support for people bereaved through advanced illness - a systematic review and thematic synthesis

HARROP, Emily ; MORGAN, Fiona ; LONGO, Mirella ; SEMEDO, Lenira ; FITZGIBBON, Jim ; PICKETT, Sara ; SCOTT, Hannah ; SEDDON, Kathy ; SIVELL, Stephanie ; NELSON, Annmarie ; BYRNE, Anthony
PALLIATIVE MEDICINE, 18/05/2020, p. 1-18

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A qualitative meta-synthesis investigating the experiences of the patient's family when treatment is withdrawn in the intensive care unit

COVENTRY, Alysia ; FORD, Rosemary ; ROSENBERG, John ; MCINNES, Elizabeth
Journal of advanced nursing, 13/05/2020, Pagination inconnue

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Supporting pediatric patients and their families at the end of life - perspectives from bereaved parents

SEDIG, Laura K. ; SPRUIT, Jessica L. ; PAUL, Trisha K. ; COUSINO, Melissa K. ; MCCAFFERY, Harlan ; PITUCH, Kenneth ; HUTCHINSON, Raymond
The American journal of hospice and palliative care, 06/05/2020, Pagination inconnue

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Adapting and going the extra mile - a qualitative study of palliative care in rural Northern Norway from the perspective of healthcare providers

ERVIK, Bente ; BRONDBO, Birgit ; JOHANSEN, May-Lill
Cancer nursing, 03/2020, Pagination inconnue

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End-of-life care for glioma patients - the caregivers’ perspective

HERTLER, Caroline ; EISELE, Günter ; GRAMATZKI, Dorothee ; SEYSTAHL, Katharina ; WOLPERT, Fabian ; ROTH, Patrick ; WELLER, Michael
Journal of neuro-oncology, 30/03/2020, Pagination inconnue

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Experiences and hidden needs of older patients, their families and their physicians in palliative chemotherapy decision-making - a qualitative study

TSUBOI, Rie ; SUGISHITA, Mihoko ; HIRAKAWA, Yoshihisa ; ANDO, Yuichi
Japanese journal of clinical oncology, 13/04/2020, Pagination inconnue

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The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers - a qualitative systematic review

FLEMMING, Kate ; TURNER, Victoria ; BOLSHER, Samantha ; HULME, Bill ; MCHUGH, Elizabeth ; WATT, Ian
PALLIATIVE MEDICINE, 14/04/2020, Pagination inconnue

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"A monster that lives in our lives" - experiences of caregivers of people with motor neuron disease and identifying avenues for support

HENNESSY ANDERSON, Nicole ; GLUYAS, Cathy ; MATHERS, Susan ; HUDSON, Peter ; UGALDE, Anna
BMJ supportive and palliative care, 12/2019, vol.9, n°4, Pagination inconnue

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Illness-related suffering and need for palliative care in Rohingya refugees and caregivers in Bangladesh - a cross-sectional study

DOHERTY, Megan ; POWER, Liam ; PETROVA, Mila ; GUNN, Scott ; POWELL, Richard ; COGHLAN, Rachel ; GRANT, Liz ; SUTTON, Brett ; KHAN, Farzana
PLOS MEDICINE, 03/2020, vol.17, n°3, p. 1-17

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