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What is the preparedness and capacity of palliative care services in middle-Eastern and North african countries to respond to Covid-19? - a rapid survey

BOUFKHED, Sabah ; HARDING, Richard ; KUTLUK, Tezer ; HUSSEINI, Abdullatif ; POURGHAZIAN, Nasim ; SHAMIEH, Omar
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 20/11/2020, p. 1-70

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I heard it on the radio - supporting Pacific family carers through the development of culturally appropriate resources, a descriptive qualitative study

WILLIAMS, Lisa ; DEWES, Ofanaite ; GOTT, Merryn
PROGRESS IN PALLIATIVE CARE, 17/11/2020, p. 1-4

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Integrating palliative care social workers into subacute settings - feasibility of the assessing & listening to individual goals and needs intervention trial

FISCHER, Stacy M. ; TROPEANO, Laurel ; LAHOFF, Dana ; OWENS, Bree ; NIELSEN, Erin ; RETRUM, Jessica ; JENSEN, Eleanor ; ROSS, Colleen ; MANCUSO, Mary ; DRACE, Melanie ; PLATA, Angela ; MELNYK, Aurora ; GOLUB, Matthew ; GOZANSKY, Wendolyn
JOURNAL OF PALLIATIVE MEDICINE, 12/11/2020, Pagination inconnue

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Determining the informational needs of family caregivers of people with intellectual disability who require palliative care - a qualitative study

MCKIBBEN, Laurie ; BRAZIL, Kevin ; McLAUGHLIN, Dorry ; HUDSON, Peter
Palliative and supportive care, 03/11/2020, p. 1-10

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Effect of the carer support needs assessment tool intervention (CSNAT-I) in the Danish specialised palliative care setting - a stepped-wedge cluster randomised controlled trial

LUND, Line ; ROSS, Lone ; PETERSEN, Morten Aagaard ; BLACH, Annemette ; ROSTED, Elizabeth ; BOLLIG, Georg ; JUHL, Gitte Irene ; FARHOLT, Hanne Bollerup ; WINTHER, Helen ; LAURSEN, Louise ; HASSE, Marianne ; WEENSGAARD, Signe ; GULDIN, Mai-Britt ; EWING, Gail ; GRANDE, Gunn ; GROENVOLD, Mogens
BMJ supportive and palliative care, 28/10/2020, Pagination inconnue

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Needs of caregivers of patients receiving in-home palliative and end-of-life care

PEPIN, Elizabeth ; HEBERT, Johanne
Canadian oncology nursing journal, 2020, vol.30, n°2, p. 147-152

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Views of advanced cancer patients, families, and oncologists on initiating and engaging in advance care planning - a qualitative study

TOGURI, J. T. ; GRANT-NUNN, L. ; URQUHART, R.
BMC palliative care, 01/10/2020, vol.19, n°1, p. 1-11

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Caring precariously - an interpretive description of palliative care and welfare worker perspectives on end of life carers navigating social welfare

BINDLEY, Kristin ; LEWIS, Joanne ; TRAVAGLIA, Joanne ; DIGIACOMO, Michelle
PALLIATIVE MEDICINE, 28/10/2020, Pagination inconnue

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Caring for carers - exploring the benefits of group support for carers of people with pulmonary fibrosis

DEAN, Antonia ; MILLER, Barbara ; HEWITT, Claire ; COOK, Manisha ; NICELL, Claire ; SPICER, Karenann
PROGRESS IN PALLIATIVE CARE, 12/10/2020, p. 1-6

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The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs - a scoping review

GILL, Fenella J. ; HASHEM, Zahraa ; STEGMANN, Roswitha ; AOUN, Samar M.
PALLIATIVE MEDICINE, 24/10/2020, Pagination inconnue

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Family experiences with palliative care for children at home - a systematic literature review

WINGER, Anette ; KVARME, Lisbeth Gravdal ; LOYLAND, Borghild ; KRISTIANSEN, Camilla ; HELSETH, Sølvi ; RAVN, Ingrid H.
BMC palliative care, 24/10/2020, vol.19, n°1, p. 1-19

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Supporting GPs around euthanasia requests from people with dementia - a qualitative analysis of Dutch nominal group meetings

SCHUURMANS, Jaap ; VOS, Stephanie ; VISSERS, Pim ; TILBURGS, Bram ; ENGELS, Yvonne
The British journal of general practice, 2020, vol.70, n°700, p. e833-e842

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"My wife is my doctor at home" - a qualitative study exploring the challenges of home-based palliative care in a resource-poor setting

SALIFU, Yakubu ; ALMACK, Kathryn ; CASWELL, Glenys
PALLIATIVE MEDICINE, 18/09/2020, p. 1-12

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Nurses' needs when collaborating with other healthcare professionals in palliative dementia care

KHEMAI, C. ; JANSSEN, D. J. A. ; SCHOLS, J. M. G. A. ; NAUS, L. ; KEMPER, S. ; JOLE, I. ; BOLT, S. R. ; MEIJERS, J. M. M.
Nurse education in practice, 28/08/2020, vol.48, Pagination inconnue

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Palliative care in the greater China region - a systematic review of needs, models and outcomes

CHUNG, Huei ; HARDING, Richard ; GUO, Ping
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 08/09/2020, p. 1-28

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Thème : Santé. Cote : e00.07JPS

DEMARCHE PALLIATIVE ; CHINE ; BESOIN ; REVUE SYSTEMATIQUE

CONTEXT: There is rapidly increasing need for palliative care in Greater China due to rapidly aging populations.
OBJECTIVES: This study aimed to systematically review and appraise evidence for palliative care needs, models of care, interventions, and outcomes in Greater China.
METHODS: Four databases (MEDLINE, EMBASE, CINAHL, PsycINFO) were searched, with hand searching of local journals and databases. Narrative synthesis was applied to the qualitative and quantitative evidence.
RESULTS: Nineteen qualitative studies and 47 quantitative studies were retained. With respect to care needs, nine themes were synthesised: pain control, reduced aggressive end-of-life care, truth telling, physical, emotional and spiritual support, and achieving preferred place of care/death. Informal caregivers expressed their needs for education and burden reduction. Healthcare professionals called for training and national policy support. Twenty-four studies evaluated interventions, mostly among advanced cancer patients. Positive effects were suggested for improvements in quality of life, pain, anxiety and depression, readmission rate, and costs. Models of care evaluated were mostly specialist palliative care delivered in various settings (hospitals, residential care and home). Outcome measures used were grouped into six categories of construct: quality of life, pain, physical assessment, psycho-spiritual assessment, quality of care, and implementation assessment. Limited rigorous randomised controlled trials is available to document intervention outcomes, and some problems (such as high attrition rates) reduced the strength of the evidence.
CONCLUSION: Palliative care services within Greater China should pay more attention to management of non-malignant disease, and to integration into primary services. Policy support is key to establishing culturally appropriate person-centred services.

Origine : PubMed

Who cares for the bereaved? - a national survey of family caregivers of people with motor neurone disease

AOUN, Samar M. ; CAFARELLA, Paul A. ; RUMBOLD, Bruce ; THOMAS, Geoff ; HOGDEN, Anne ; JIANG, Leanne ; GREGORY, Sonia ; KISSANE, David W.
Amyotrophic lateral sclerosis and frontotemporal degeneration, 10/09/2020, p. 1-11

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A systematic review exploring palliative care for families who are forced migrants

CLANCY, Marie ; TAYLOR, Julie ; BRADBURY-JONES, Caroline ; PHILLIMORE, Jenny
Journal of advanced nursing, 31/08/2020, p. 1-13

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Changing patterns of mortality during the covid-19 pandemic - population-based modelling to understand palliative care implications

BONE, Anna E. ; FINUCANE, Anne M. ; LENIZ, Javiera ; HIGGINSON, Irene J. ; SLEEMAN, Katherine E.
PALLIATIVE MEDICINE, 24/07/2020, p. 1193-1201

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Refining a taxonomy of goals for older adults with functional limitations and their caregivers to inform care planning

CLAIR, Catherine A. ; HENRY, Maureen ; JENNINGS, Lee A. ; REUBEN, David B. ; SANDBERG, Shana F. ; GIOVANNETTI, Erin R.
Journal of applied gerontology, 28/07/2020, Pagination inconnue

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Differing needs of mothers and fathers during their child's end-of-life care - secondary analysis of the "paediatric end-of-life care needs" (PELICAN) study

LEEMANN, Tanja ; BERGSTRAESSER, Eva ; CIGNACCO, Eva ; ZIMMERMANN, Karin
BMC palliative care, 04/08/2020, vol.19, n°1, p. 1-9

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