VigiPallia : Résultats

BESOIN FONDAMENTAL

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Addressing palliative care needs of covid-19 patients in New Orleans, LA - a team-based reflective analysis

BURKE, Rebecca V. ; ROME, Robin ; CONSTANZA, Kelly ; AMEDEE, Malaika ; SANTOS, Charles ; LEIGH, Alexandra
Palliative medicine reports, 2020, vol.1, n°1, p. 124-128

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End-of-life care for Aboriginal and Torres Strait Islander people with cancer - an exploratory study of service utilisation and unmet supportive care needs

BERNARDES, Christina M. ; BEESLEY, Vanessa ; SHAHID, Shaouli ; MEDLIN, Linda ; GARVEY, Gail ; VALERY, Patricia C.
Supportive care in cancer, 29/08/2020, Pagination inconnue

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Attitudes on palliative care for adults with developmental disabilities

SUE, Kyle ; MAR, Nicole
JOURNAL OF PALLIATIVE MEDICINE, 28/07/2020, Pagination inconnue

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Thème : Soins.

DEMARCHE PALLIATIVE ; PSYCHIATRIE ; FIN VIE ; CANADA ; BESOIN FONDAMENTAL

Background: Intellectual and Developmental Disabilities (IDD) are defined as physical/mental impairments before age 18. Not only are many IDD patients living into adulthood, but deinstitutionalization has also led to most living in community settings. Little is known about end-of-life needs in these adults, and existing literature does not examine attitudes of Canadian providers.
Objective: Thematic and content analysis examined attitudes of Canadian Pediatric Palliative Care (PPC) practitioners on caring for adults with IDD to identify components of care, which could be improved.
Design: An anonymized survey was created (Surveymonkey.com) using open-ended and Likert-scale questions, with thematic/subthematic coding on NVivo11. Initial coding included a codebook, which was refined. Independent coding was compared with initial coding. Coded data were reanalyzed after demographic stratification, results discussed, and consensus reached.
Settings/Subjects: All Canadian PPC centers responded through snowball sampling (25 of 36 [70%] practitioners).
Measurements/Results: Major themes covered communication and decision making, lack of resources (including access to appropriate services), and knowledge/skill/experience gaps among adult palliative care and generalist practitioners. Gaps included complex medical conditions of IDD patients, trajectories, and related management. Knowledge ratings of adult palliative care and generalist practitioners by respondents were evenly distributed, but only pediatricians gave ratings of poor or worse. PPC practitioners are comfortable being consulted by adult palliative care and generalist colleagues. However, frequency of consults varied dramatically, from one to two times/month in British Columbia to never.
Conclusions: PPC practitioners across Canada identified several major issues and barriers to optimal palliative care for adults with IDD.

Origine : PubMed

Palliative care needs-assessment and measurement tools used in patients with heart failure - a systematic mixed-studies review with narrative synthesis

REMAWI, Bader Nael ; GADOUD, Amy ; MURPHY, Iain Malcolm James ; PRESTON, Nancy
Heart failure reviews, 03/08/2020, p. 1-19

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Measure scan and synthesis of palliative and end-of-life process quality measures for advanced cancer

O'HANLON, Claire E. ; LINDVALL, Charlotta ; LORENZ, Karl A. ; GIANNITRAPANI, Karleen F. ; GARRIDO, Melissa ; ASCH, Steven M. ; WENGER, Neil ; MALIN, Jennifer ; DY, Sydney Morss ; CANNING, Mark ; GAMBOA, Raziel C. ; WALLING, Anne M.
JCO oncology practice, 06/08/2020, Pagination inconnue

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Prevalence and correlates of unmet palliative care needs in dyads of Chinese patients with advanced cancer and their informal caregivers - a cross-sectional survey

WANG, Tao ; MOLASSIOTIS, Alex ; TAN, Jing-Yu ; CHUNG, Betty Pui Man ; HUANG, Hou-Qiang
Supportive care in cancer, 10/08/2020, Pagination inconnue

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The content validity of the items related to the social and spiritual dimensions of the Utrecht Symptom Diary: 4 dimensional from a patient's perspective - a qualitative study

DE VRIES, Sita ; LORMANS, Tom ; DE GRAAF, Everlien ; LEGET, Carlo ; TEUNISSEN, Saskia
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 07/08/2020, p. 1-10

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Clinical care conditions and needs of palliative care patients from five Italian regions - preliminary data of the DEMETRA project

SCACCABAROZZI, Gianlorenzo ; AMODIO, Emanuele ; RIVA, Luca ; CORLI, Oscar ; MALTONI, Marco ; DI SILVESTRE, Grazia ; TURRIZIANI, Adriana ; MORINO, Piero ; PELLEGRINI, Giacomo ; CRIPPA, Matteo
Healthcare, 20/07/2020, vol.8, n°3, p. 1-9

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Screening patients with cancer admitted to Hanoi medical university hospital for palliative care needs

LE, Quang V. ; TRINH, Huy L. ; MAI, Kim Ngan T. ; PHAM, Manh D. ; GLARE, Paul A.
JCO global oncology, 08/2020, vol.6, p. 1321-1327

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Essential case management practices amidst the novel coronavirus Disease 2019 (COVID-19) crisis - part 2: end-of-life care, workers' compensation case management, legal and ethical obligations, remote practice, and resilience

TAHAN, Hussein M.
Professional case management, 10/2020, vol.25, n°5, p. 267-284

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Adult palliative care 2004-2030 population study - estimates and projections in Malaysia

YANG, Su Lan ; WOON, Yuan Liang ; TEOH, Cindy Cy Oun ; LEONG, Chin Tho ; LIM, Richard Boon Leong
BMJ supportive and palliative care, 21/08/2020, p. 1-8

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How is early palliative care defined and implemented for persons diagnosed with a life-limiting chronic illness - a scoping review protocol

KIRCHER, Colleen ; HANNA, Timothy ; TRANMER, Joan ; GOLDIE, Craig ; ROSS-WHITE, Amanda ; GOLDIE, Catherine
JBI evidence synthesis, 06/07/2020, Pagination inconnue

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Supporting the patients with advanced cancer and their family caregivers - what are their palliative care needs?

CHUA, Gek Phin ; PANG, Grace Su Yin ; YEE, Alethlea Chung Pheng ; NEO, Patricia Soek Hui ; ZHOU, Siqin ; LIM, Cindy ; WONG, Yin Yee ; QU, Debra Limin ; PAN, Fang Ting ; YANG, Grace Meijuan
BMC Cancer, 15/08/2020, vol.20, n°1, p. 1-15

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A view from the frontline - palliative and ethical considerations of the covid-19 pandemic

SULLIVAN, Donald R. ; CURTIS, J. Randall
JOURNAL OF PALLIATIVE MEDICINE, 13/07/2020, p. 1-3

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Identification of patients with potential palliative care needs - a systematic review of screening tools in primary care

ELMOKHALLALATI, Yousuf ; BRADLEY, Stephen H ; CHAPMAN, Emma ; ZIEGLER, Lucy ; MURTAGH, Fliss Em ; JOHNSON, Miriam J ; BENNETT, Michael I
PALLIATIVE MEDICINE, 07/06/2020, p. 1-17

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Outcomes associated with a nurse-driven palliative care screening tool in the intensive care unit

MARTZ, Kim ; ALDERDEN, Jenny ; BASSETT, Rick ; SWICK, Dawn
Critical care nurse, 01/06/2020, vol.40, n°3, p. 23-29

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Palliative care needs and utilization of specialist services for people imminently dying with dementia - a national population-based study

DING, Jinfeng ; COOK, Angus ; QIN, Xiwen ; HO, Stephen C.H. ; JOHNSON, Claire E
International journal of nursing studies, 09/2020, vol.109, Pagination inconnue

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The palliative care needs of adults with intellectual disabilities and their access to palliative care services - a systematic review

ADAM, Emily ; SLEEMAN, Katherine E ; BREARLEY, Sarah ; HUNT, Katherine ; TUFFREY-WIJNE, Irene
PALLIATIVE MEDICINE, 17/06/2020, Pagination inconnue

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Proactive identification of palliative care needs among patients with Covid-19 in the ICU

SCHOENHERR, Laura A. ; COOK, Allyson ; PECK, Sarah ; HUMPHREYS, Jessica ; GOTO, Yuika ; SAKS, Naomi T. ; HUDDLESTON, Lindsey ; ELIA, Giovanni ; PANTILAT, Steven Z.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 06/2020, p. 1-5

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Investigation burden for patients with fibrotic interstitial lung disease at the end of life

GUO, Hui ; MANN, Jennifer ; GOH, Nicole ; SMALLWOOD, Natasha
Internal medicine journal, 06/2020, vol.50, n°6, p. 748-752

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