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DEUIL PERINATAL

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Juliette - une maman face au deuil périnatal

LOMBARD, Aude
Olivétan , 06/2020 , 128 p.

Bereaved parents' perceptions of infant suffering in the NICU

FORTNEY, Christine A. ; BAUGHCUM, Amy E. ; MOSCATO, Emily L. ; WINNING, Adrien M. ; KEIM, Madelaine C. ; GERHARDT, Cynthia A.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1001-1008

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Education priorities for voluntary organisations supporting parents experiencing perinatal loss - a Delphi survey

POWER, Stacey ; MEANEY, Sarah ; COTTER, Riona ; O'DONOGHUE, Keelin
International Journal of Palliative Nursing, 02/04/2020, vol.26, n°4, p. 156-166

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Grief and bereavement in parents after the death of a child in low- and middle-income countries

MCNEIL, Michael J. ; NAMISANGO, Eve ; HUNT, Jennifer ; POWELL, Richard A. ; BAKER, Justin N.
Children, 01/05/2020, vol.7, n°5, p. 1-12

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Creating evidence - findings from a grounded theory of memory-making in neonatal bereavement care in Australia

THORNTON, Rebecca ; NICHOLSON, Patricia ; HARMS, Louise
Journal of pediatric nursing, 25/04/2020, vol.53, p. 29-35

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Entre convergences et complémentarité - revue de la littérature en sciences sociales et psychologie/psychanalyse sur le décès et le deuil périnatal

ZEGHICHE, Sabrina
ETUDES SUR LA MORT, 2019, n°152, p. 125-142

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Un petit bout de route pour un p'tit bout d'chou - comment parler en famille de la mort d'un bébé avant sa naissance

LATROLLIERE, Albane de ; VYVEY, Colette ; VILLEDEY, Anne
Editions des Béatitudes , 2018 , 35 p.

Dans ces moments-là - plus de 130 idées pour offrir du soutien aux parents endeuillés de leur bébé ou pour en recevoir de ses proches

GERIN, Hélène
Bookelis , 2019 , 324 p.

Pregnancy and infant loss - a survey of families' experiences in Ontario Canada

WATSON, Jo ; SIMMONDS, Anne ; LA FONTAINE, Michelle ; FOCKLER, Megan E.
BMC pregnancy and childbirth, 16/04/2019, vol.19, n°1, p. 1-14

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Thème : Deuil et travail du deuil. Cote : eD10.00

CANADA ; DEUIL PARENTAL ; SOUTIEN DEUIL ; DEUIL PERINATAL

BACKGROUND: Pregnancy and infant loss has a pervasive impact on families, health systems, and communities. During and after loss, compassionate, individualized, and skilled support from professionals and organizations is important, but often lacking. Historically, little has been known about how families in Ontario access existing care and supports around the time of their loss and their experiences of receiving such care.
METHODS: An online cross-sectional survey, including both closed-ended multiple choice questions and one open-ended question, was completed by 596 people in Ontario, Canada relating to their experiences of care and support following pregnancy loss and infant death. Quantitative data were analyzed descriptively using frequency distributions. Responses to the one open-ended question were thematically analyzed using a qualitative inductive approach.
RESULTS: The majority of families told us that around the time of their loss, they felt they were not adequately informed, supported and cared for by healthcare professionals, and that their healthcare provider lacked the skills needed to care for them. Almost half of respondents reported experiencing stigma from providers, exacerbating their experience of loss. Positive encounters with care providers were marked by timely, individualized, and compassionate care. Families indicated that improvements in care could be made by providing information and explanations, discharge and follow-up instructions, and through discussions about available supports.
CONCLUSIONS: Healthcare professionals can make a positive difference in how loss is experienced and in overall well-being by recognizing the impact of the loss, minimizing uncertainty and isolation, and by thoughtfully working within physical environments often not designed for the experience of loss. Ongoing supports are needed and should be tailored to parents' changing needs. Prioritizing access to specialized education for professionals providing services and care to this population may help to reduce the stigma experienced by bereaved families.

Origine : PubMed

New understandings of fathers' experiences of grief and loss following stillbirth and neonatal death - a scoping review

JONES, Kerry ; ROBB, Martin ; MURPHY, Sam ; DAVIES, Alison
Midwifery, 23/08/2019, vol.79, Pagination inconnue

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Evaluation of an occupation-based retreat for women after pregnancy or infant loss

HANISH, Kiley Krekorian ; MARGULIES, Ivy ; COGAN, Alison M.
The American journal of occupational therapy, 10/2019, vol.73, n°5, Pagination inconnue

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Momsonline - lessons learned from a feasibility RCT of online support for mothers bereaved by perinatal loss

GOLD, Katherine J. ; BOGGS, Martha E. ; KAVANAUGH, Karen L.
OMEGA JOURNAL OF DEATH AND DYING, 10/07/2019, Pagination inconnue

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Perinatal grief following neonatal comfort care for lethal fetal condition

DEPOERS-BEAL, C. ; LE BACCON, F. A. ; LE BOUAR, G. ; PROISY, M. ; ARNAUD, A. ; LEGENDRE, G. ; DAYAN, J. ; BETREMIEUX, P. ; LE LOUS, M.
Journal of neonatal-perinatal medicine, 04/07/2019, Pagination inconnue

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Understanding stillbirth stigma - a scoping literature review

POLLOCK, Danielle ; ZIAIAN, Tahereh ; PEARSON, Elissa ; COOPER, Megan ; WARLAND, Jane
Women and birth, 08/07/2019, Pagination inconnue

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Development, validation and reliability testing of "perinatal bereavement care confidence scale (PBCCS)"

KALU, Felicity Agwu ; LARKIN, Philip J. ; COUGHLAN, Barbara
Women and birth, 16/07/2019, Pagination inconnue

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Thème : Recherche - Evaluation - Méthodologie.

DEUIL PERINATAL ; ECHELLE MESURE ; CONFIANCE ; INFIRMIERE ; SOUTIEN DEUIL

BACKGROUND: Equipping midwives and nurses with confidence to provide bereavement care to parents who have experienced a perinatal loss is vital and impacts on the efficacy of the care received by grieving parents. In education and clinical practice environments there are shortages of bereavement care questionnaires specifically designed to measure midwives' and nurses' confidence and psychosocial factors that impact on their confidence to provide bereavement care.
AIM: The purpose of the study was to develop a valid and reliable perinatal bereavement care confidence scale (PBCCS).
METHODS: The PBCCS was developed in 4 phases. Phase 1: Questionnaire development, 44 questions were formulated from the literature. Phase 2: Face and content validation of the PBCCS by an Expert Panel. Phase 3: A pilot study was conducted and included 10 cognitive pre-testing interviews and test-retest reliability assessment with a cohort of 26 midwives. Phase 4: Construct validity was assessed using factor analysis with 277 midwives and nurses. In order to avoid confusion with terminologies, the term midwife was used for both nurses and midwives who provided care to bereaved parents and participated in the study. Internal consistency reliability measurement was assessed with Cronbach's alpha. Ethical approval of the study was obtained from four maternity hospitals in Ireland.
RESULTS: The PBCCS has 43 items. Bereavement care knowledge (15 items, 3 sub-scales). Bereavement care skills (9 items, 2 sub-scales). Self-awareness (8 items, 2 sub-scales). Organisational support (11 items, 2 subscales). The internal consistency reliabilities ranged from 0.753 to 0.871 except for one subscale 0.663.
CONCLUSIONS: The PBCCS is a valid and reliable tool with good psychometric properties which can be used to measure midwives' confidence and the psychosocial factors thatimpact on their confidence to provide bereavement care.

Origine : PubMed

Professional bereavement photography in the setting of perinatal loss - a qualitative analysis

RAMIREZ, Faustine D. ; BOGETZ, Jori F. ; KUFELD, Megan ; YEE, Lynn M.
Global pediatric health, 2019, vol.6, 12 p.

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Le deuil périnatal - un deuil "infaisable" ?

HUCHE TEXIER-LORY, Nathalie ; BOURDET-LOUBERE, Sylvie
ETUDES SUR LA MORT THANATOLOGIE, 25/06/2019, n°151, p. 67-83

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Thème : Deuil et travail du deuil.

DEUIL PERINATAL ; TRAVAIL DEUIL ; PARENT ; PSYCHOLOGIE ; PERTE

Expérience unique de rencontre intime avec soi, la grossesse engage la future mère vers des remaniements psychiques importants : de la transparence psychique à la préoccupation maternelle primaire, dans un continuum entre l’ante et le postnatal, la relation d’objet virtuelle développant l’interface entre le devenir parents et le naître humain. La mort périnatale représente un insupportable télescopage entre vie et mort, survenant dans ce contexte de fragilité psychique et bousculant l’ordre des générations. Les couples sont ainsi contraints, au-delà de la douleur indicible, d’entreprendre un voyage psychique effrayant. D’ailleurs, qu’ont-ils perdu ? Comment peut s’engager le travail de deuil d’un objet pas encore véritablement objectalisé dans ce temps des remaniements psychiques liés à la grossesse ? Et au delà, quels sont les enjeux psychiques du deuil périnatal ? Le moment de l’annonce est un véritable traumatisme. Ce trauma entraîne un sentiment d’anéantissement de soi et l’effondrement des ressources de mentalisation et de symbolisation habituelles avec un tel effet de désorganisation sur le fonctionnement psychique que le sujet ne peut plus élaborer ce à quoi il est confronté. Les spécificités du deuil périnatal sont multiples et sous-tendent les remaniements psychiques liés à la perte. La représentation même de l’objet de la perte, du fait de l’absence de traces, de souvenirs, est particulière, demandant d’interroger la métapsychologie freudienne en réfléchissant sur le devenir objectal du bébé mort. La nature de l’investissement fœtal, entre narcissique et objectal, influence-t-elle l’élaboration du deuil ?
Plusieurs destins psychiques du fœtus ont été décrits, qui influencent l’évolution du deuil, eux-mêmes en lien avec l’histoire infantile de la femme. L’ensemble de ces facteurs semble déterminer une évolution favorable ou non à un deuil périnatal. C’est ce que nous proposons de questionner à partir de la rencontre avec Mme L.

Origine : www.cairn.info

Les enfants morts autour de leur naissance ont-ils réellement disparu ?

SANI, Livia ; BACQUE, Marie-Frédérique
ETUDES SUR LA MORT THANATOLOGIE, 25/06/2019, n°151, p. 49-65

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Perinatal palliative care after a stillbirth-midwives' experiences of using cubitus baby

HENLEY LISTERMAR, Karin ; SORMUNEN, Taina ; RADESTAD, Ingela
Women and birth, 12/06/2019, Pagination inconnue

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Psychosocial implications of stillborn babies on mother and family - a review from tertiary care infirmary in India

MARWAH, Sheeba ; GAIKWAD, Harsha Shailesh ; MITTAL, Pratima
Journal of obstetrics and gynaecology of India, 06/2019, vol.69, n°3, p. 232-238

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