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Randomized trial of a hospice video educational tool for patients with advanced cancer and their caregivers - hospice video in advanced cancer

EL-JAWAHRI, Areej ; TRAEGER, Lara ; GREER, Joseph A. ; VANBENSCHOTEN, Olivia ; MARKOVITZ, Netana ; CASHAVELLY, Barbara ; TATA, Lee Ann ; NIPP, Ryan D. ; REYNOLDS, Kerry L. ; GOYAL, Lipika ; BHATT, Sunil ; FISHMAN, Sarah ; HORICK, Nora ; LI, Zhigang ; VOLANDES, Angelo ; TEMEL, Jennifer S.
Cancer, 08/06/2020, Pagination inconnue

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Critical analysis of communication strategies in public health promotion - an empirical-ethical study on organ donation in Germany

HANSEN, Solveig Lena ; PFALLER, Larissa ; SCHICKTANZ, Silke
Bioethics, 18/06/2020, p. 1-12

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A randomised phase II trial testing the acceptability and feasibility of a narrative approach to public health communication to increase community engagement with palliative care

COLLINS, Anna ; MCLACHLAN, Sue-Anne ; HILL, Mike ; COLLINS, Sue ; PHILIP, Jennifer
PALLIATIVE MEDICINE, 19/06/2020, Pagination inconnue

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Does the public feel prepared to be substitute decision-makers? Gaps in preparedness and support for a high school curriculum - a national survey

WONG, Michael K Y ; JIANG, Mengzhu ; MEDOR, Maria Cassandre ; LABRE, Katerina Yelle ; FRANK, Jason R ; FISCHER, Lisa M ; CHEUNG, Warren J
Age and ageing, 27/05/2020, Pagination inconnue

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Death, loss and community-perspectives from children, their parents and older adults on intergenerational community-based arts initiatives in Sweden

KLEIJBERG, Max ; AHLBERG, Beth Maina ; HILTON, Rebecca ; TISHELMAN, Carol
Health and social care in the community, 15/05/2020, p. 1-12

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Associations between the intention to use early palliative care, sources of information, and attitudes toward a good death in Korean adults

KYE, Su Yeon ; HAN, Kyu-Tae ; CHOI, Jinyoung ; JHO, Hyun Jung ; PARK, So Jung ; SONG, In Gyu ; NAM, Eun Jung ; CHANG, Yoon Jung
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 23/04/2020, p. 1-9

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Impact of a community health conversation upon advance care planning attitudes and preparation intentions

CARNEY, Maria T. ; WILLIAMS, Myia ; ZHANG, Meng ; KOZIKOWSKI, Andrzej ; DOLGIN, Janet ; KAHN, Adam ; WALERSTEIN, Steve ; KESSLER, Melissa ; PEKMEZARIS, Renee
Gerontology and geriatrics education, 29/03/2020, p. 1-14

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Integrating palliative care into the community - the role of hospices and schools

PAUL, Sally ; CREE, Viviene E. ; MURRAY, Scott A.
BMJ supportive and palliative care, 12/2019, vol.9, n°4, Pagination inconnue

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Développer la culture palliative en Ouganda

DIVE, Sylvie ; FAROTA-ROMEJKO, Idriss
REVUE DE L'INFIRMIERE, 01/2020, vol.69, n°257, p. 38-39

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The effects of teaching methods of palliative care on life pattern of old women with chronic pain

HESARI, Elham ; SABZI, Zahra ; KOLAGARI, Shohreh
European journal of translational myology, 29/10/2019, vol.29, n°4, p. 313-319

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A retrospective study reviewing interprofessional advance care planning group discussions in pulmonary rehabilitation - a proof-of-concept and feasibility study

GROSSMAN, Daphna ; KATZ, Amanda ; LOCK, Karen ; CARAISCOS, Valerie B.
JOURNAL OF PALLIATIVE CARE, 30/12/2019, Pagination inconnue

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Thème : Soins.

ETUDE RETROSPECTIVE ; PROJET SOIN ANTICIPE ; PNEUMOLOGIE ; EDUCATION SANTE ; COMMUNICATION

BACKGROUND: Advance care planning (ACP) is a process of reflection and discussion wherein a patient, in consultation with a health-care provider, family, and/or loved ones, clarifies values and treatment preferences and establishes goals, including a plan for end-of-life (EOL) care. Advance care planning encompasses appreciating and understanding illness and treatment options, elucidating patient values and beliefs, and identifying a substitute decision maker (SDM) or designating a power of attorney (POA) for personal care. These discussions have proven to be effective in improving patient-family satisfaction, reducing anxiety regarding EOL care in patients and family members, and improving patient-centered care by empowering patients to direct their care at EOL. However, ACP conversations are often difficult to have due to the sensitive nature of such discussions.
OBJECTIVE: The aim of this study was to determine whether group facilitation for teaching and discussing ACP enhances participants' understanding of ACP and allows them to feel comfortable and supported when discussing these sensitive issues.
METHODS: Patients who were registered in North York General Hospital's (NYGH) pulmonary rehabilitation program from June 2016 until August 2017 were given the opportunity to attend two 1-hour sessions related to ACP. The first session was dedicated to educating patients on ACP, explaining the hierarchy of the SDM and the role of the POA for personal care. The second session, provided a short time later, was devoted to discussions of values, wishes, fears, and trade-offs for future medical and EOL care. These discussions led by the supportive care nurse practitioner and a physician who are members of the NYGH Freeman Palliative Care Team were held in a group-facilitated format. Anonymous feedback forms, including both qualitative and quantitative feedback, were completed by the participants and analyzed.
PARTICIPANTS: Analysis of a sample of 30 participants who attended 1 or 2 of the ACP sessions revealed that 21 identified as female and 9 identified as male. The average age of the participants was 76 years.
FINDINGS: Participants felt the content was relevant to their needs and were comfortable asking questions with all feedback averages ranging from good to very good. Participants appreciated the opportunity to share their thoughts in an open and interactive format.
CONCLUSION: Discussing issues relevant to ACP, including providing information about ACP, sharing fears, wishes, and tradeoffs, were well-received in a group-support environment. Future studies should assess the impact of ACP group discussion on the individual, such as identifying a POA, having discussions regarding wishes and values with the SDM/POA, and examining the clinical impact of such sessions.

Origine : PubMed

Les communautés compatissantes - une vision d'avenir pour la mort et les soins palliatifs

VACHON, Mélanie
Cahiers francophones de soins palliatifs, Publications Michel Sarrazin, 2019, vol.19, n°2, p. 71-81

Study protocol of coaching end-of-life palliative care for advanced heart failure patients and their family caregivers in rural Appalachia - a randomized controlled trial

PIAMJARIYAKUL, Ubolrat ; PETITTE, Trisha ; SMOTHERS, Angel ; WEN, Sijin ; MORRISSEY, Elizabeth ; YOUNG, Stephanie ; SOKOS, George ; MOSS, Alvin H. ; SMITH, Carol E.
BMC palliative care, 29/12/2019, vol.18, n°1, p. 1-9

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The public's right to accurate and transparent information about brain death and organ transplantation

NAIR-COLLINS, Michael
Hastings center report, 11/2018, vol.48, n°Suppl 4, p. S43-S45

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Awareness-raising activities for community residents about decision-making regarding end-of-life care - a nationwide survey in Japan municipalities

KASHIWAGI, Masayo ; TAMIYA, Nanako
Geriatrics and gerontology international, 19/11/2019, Pagination inconnue

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Impact of maternal education on under-five mortality of children in India - insights from the national family health survey, 2005-2006 and 2015-2016

MANDAL, Salim ; PAUL, Pintu ; CHOUHAN, Pradip
DEATH STUDIES, 20/11/2019, p. 1-7

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Fin de vie et directives anticipées

AUGER, Sylvie ; COLIN, Marie ; GELIN, Yves ; PERRET, Julia ; PLASSARD, Claire
REVUE DE L'INFIRMIERE, 11/2019, vol.68, n°255, p. 34-36

Impact of an educational intervention on organ donation attitudes in college-aged students

RILEY, Kiernan ; EVANS, Michael M. ; HUPCEY, Judith ; SELLERS, Patrick Douglas ; MACHLUF, Karin
OMEGA JOURNAL OF DEATH AND DYING, 08/10/2019, Pagination inconnue

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When death with dementia is "a memory seared in my brain" - caregivers' recommendations to health care professionals

HOVLAND, Cynthia
Journal of applied gerontology, 23/10/2019, Pagination inconnue

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Improving advance care planning in a resident primary care clinic

NASSIKAS, Nicholas J. ; BAIRD, Grayson L. ; DUFFY, Christine M.
The American journal of hospice and palliative care, 03/2020, vol.37, n°3, p. 185-190

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