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Le deuil périnatal - clinique, pratiques et dispositifs thérapeutiques

BEAUQUIER-MACCOTTA, Bérengère ; MERIOT, Marie-Emmanuelle ; MISSONNIER, Sylvain ; SHULZ, Jessica ; SOUBIEUX, Marie-José ; WAILLY, Diane de
Elsevier Masson , 09/2020 , 324 p.

A la vie, à l'amour - vivre après la mort d'un enfant

CLERMONT, Marie-Axelle ; LE GUERN, Clémentine ; CANARD, Camille
Editions Emmanuel , 08/2020 , 205 p.

La mort d'un proche - petit manuel pour aider à vivre cette épreuve

HANUS, Michel ; HANUS, Isabelle
Nathan , 09/2020 , 92 p.

Caring for children with life-limiting illness in Bloemfontein, South Africa - challenging the assumptions of the "good death"

DANIELS-HOWELL, Callie
OMEGA JOURNAL OF DEATH AND DYING, 23/07/2020, Pagination inconnue

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The experiences of bereaved parents after the loss of a child to cancer - a qualitative metasynthesis

POLITA, Naiara Barros ; DE MONTIGNY, Francine ; NERIS, Rhyquelle Rhibna ; DE ANDRADE ALVARENGA, Willyane ; MACHADO SILVA-RODRIGUES, Fernanda ; LEITE, Ana Carolina Andrade Biaggi ; NASCIMENTO, Lucila Castanheira
Journal of pediatric oncology nursing, 27/07/2020, Pagination inconnue

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Saturne

CHICHE, Sarah
Editions du Seuil , 08/2020 , 208 p.

Le deuil

BACQUE, Marie-Frédérique ; HANUS, Michel
Que sais-je ? , 2020 , 128 p.

Bereavement care interventions for children under the age of 18 following the death of a sibling - a systematic review

RIDLEY, Ashley ; FRACHE, Sandra
PALLIATIVE MEDICINE, 17/08/2020, Pagination inconnue

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Fins de vie, éthique et société

HIRSCH, Emmanuel
Erès , 2016 , 856 p.

Children's views are not taken into account in accordance with article 12 of the United Nations convention on the rights of the child in the family talk intervention when a parent is cared for in palliative care

EKLUND, Rakel ; KREICBERGS, Ulrika ; ALVARIZA, Anette ; LOVGREN, Malin
OMEGA JOURNAL OF DEATH AND DYING, 12/07/2020, Pagination inconnue

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Applying palliative care principles to communicate with children about covid-19

WEAVER, Meaghann S. ; WIENER, Lori
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 07/2020, vol.60, n°1, p. e8-e11

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Healthcare interventions improving and reducing quality of life in children at the end of life - a systematic review

PIETTE, Veerle ; BEERNAERT, Kim ; COHEN, Joachim ; PAUWELS, Nele S. ; SCHERRENS, Anne-Lore ; VAN DER WERFF TEN BOSCH, Jutte ; DELIENS, Luc
Pediatric research, 09/07/2020, Pagination inconnue

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Thème : Soins.

BELGIQUE ; ENFANT ; QUALITE VIE ; FIN VIE ; REVUE SYSTEMATIQUE

BACKGROUND: Children with serious illness suffer from symptoms at the end of life that often fail to be relieved. An overview is required of healthcare interventions improving and decreasing quality of life (QOL) for children with serious illness at the end of life.
METHODS: A systematic review was performed in five databases, January 2000 to July 2018 without language limit. Reviewers selected quantitative studies with a healthcare intervention, for example, medication or treatment, and QOL outcomes or QOL-related measures, for example, symptoms, for children aged 1-17 years with serious illness. One author assessed outcomes with the QualSyst and GRADE (Grades of Recommendation, Assessment, Development, and Evaluation) Framework; two authors checked a 25% sample. QOL improvement or reduction was categorized.
RESULTS: Thirty-six studies met the eligibility criteria studying 20 unique interventions. Designs included 1 randomized controlled trial, 1 cross-sectional study, and 34 cohort studies. Patient-reported symptom monitoring increased QOL significantly in cancer patients in a randomized controlled trial. Dexmedetomidine, methadone, ventilation, pleurodesis, and palliative care were significantly associated with improved QOL, and chemotherapy, stem cell transplant, and hospitalization with reduced QOL, in cohort studies.
CONCLUSIONS: Use of patient-controlled symptom feedback, multidisciplinary palliative care teams with full-time practical support, inhalation therapy, and off-label sedative medication may improve QOL. Curative therapy may reduce QOL.
IMPACT: QOL for children at the end of life may be improved with patient-controlled symptom feedback, multidisciplinary palliative care teams with full-time practical support, inhalation therapy, and off-label sedative medication.QOL for children at the end of life may be reduced with therapy with a curative intent, such as curative chemotherapy or stem cell transplant.A comprehensive overview of current evidence to elevate currently often-failing QOL management for children at the end of life.New paradigm-level indicators for appropriate and inappropriate QOL management in children at the end of life.New hypotheses for future research, guided by the current knowledge within the field.Various healthcare interventions (as described above) could or might be employed as tools to provide relief in QOL management for children with serious illness, such as cancer, at the end of life, and therefore could be discussed in pediatrician end-of-life training to limit the often failed QOL management in this population, cave the one-size-fits-all approach for individual cases.Multidisciplinary team efforts and 24/7 presence, especially practical support for parents, might characterize effective palliative care team interventions for children with serious illness at the end of life, suggesting a co-regulating link between well-being of the child partly to that of the parentsHypothesis-oriented research is needed, especially for children with nonmalignant disorders, such as genetic or neurological disorders at the end of life, as well as QOL outcomes for intervention research and psychosocial or spiritual outcomes.

Origine : PubMed

Communication and cultural sensitivity for families and children with life-limiting diseases - an informed decision-making ethical case in community-based palliative care

KOCH, Amie ; GRIER, Kimberlee
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2020, vol.22, n°4, p. 270-275

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"I could never prepare for something like the death of my own child" - parental perspectives on preparedness at end of life for children with complex chronic conditions

BOGETZ, Jori F. ; REVETTE, Anna ; ROSENBERG, Abby R. ; DECOURCEY, Danielle
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 03/07/2020, 10 p.

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Predictors for place of death among children - a systematic review and meta-analyses of recent literature

WOLFF, Sanne Lausen ; CHRISTIANSEN, Christian Fynbo ; NIELSEN, Mette Kjaergaard ; JOHNSEN, Soeren Paaske ; SCHROEDER, Henrik ; NEERGAARD, Mette Asbjoern
European journal of pediatrics, 30/06/2020, Pagination inconnue

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Mort et handicap chez le nouveau-né et l’enfant - représentation et enjeux dans la société Française

MOREL, Valentine ; CRETIN, Elodie ; FRACHE, Sandra ; VIEUX, Rachel
MEDECINE PALLIATIVE, 06/2020, vol.19, n°3, p. 134-141

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La protection juridique de l’enfant malade - Essai d'une approche comparative entre le droit français et le droit sénégalais

MBAYE, Philip Thierno
Saint Honoré , 05/2020 , 614 p.

Le deuil de l’enfant dans le contexte d’une attaque de masse

ASKENAZY, Florence ; BATTISTA, Michèle ; GINDT, Morgane
Médecine de catastrophe - Urgences collectives, 01/04/2020, vol.4, n°1, p. 39-42

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Considering medical assistance in dying for minors - the complexities of children's voices

SINGH, Harprit Kaur ; MACDONALD, Mary Ellen ; CARNEVALE, Franco A.
Journal of medical ethics, 2020, vol.46, n°6, p. 399-404

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Pediatric palliative care during end of life - a privilege of a few in a tertiary referral hospital from Colombia

CUERVO-SUAREZ, Maria Isabel ; CLAROS-HULBERT, Angélica ; MANZANO-NUNEZ, Ramiro ; MUNOZ, Mauricio ; GARCIA, Ximena
The American journal of hospice and palliative care, 08/2020, vol.37, n°8, p. 636-640

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