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COPD at the end of life - predictors of the emotional distress of patients and their family caregivers

SOTO-RUBIO, Ana ; VALERO-MORENO, Selene ; DIAZ, José Luis ; ANDREU, Yolanda ; PEREZ-MARIN, Marián
Plos one, 2020, vol.15, n°10, p. 1-15

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Caregiver-reported quality measures and their correlates in home hospice care

PHONGTANKUEL, Veerawat ; REID, M. C. ; CZAJA, Sara J. ; TERESI, Jeanne ; EIMICKE, Joseph P. ; KONG, Jian X. ; PRIGERSON, Holly G. ; SHALEV, Ariel ; DIGNAM, Ritchell ; BAUGHN, Rosemary ; ADELMAN, Ronald D.
Palliative medicine reports, 2020, vol.1, n°1, p. 111-118

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Source of social support and caregiving self-efficacy on caregiver burden and patient's quality of life - a path analysis on patients with palliative care needs and their caregivers

LEUNG, Doris Y. P. ; CHAN, Helen Y. L. ; CHIU, Patrick K. C. ; LO, Raymond S. K. ; LEE, Larry L. Y.
International journal of environmental research and public health, 29/07/2020, vol.17, n°15, p. 1-13

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Benefits of a support programme for family caregivers of patients at the end of life - a randomised controlled trial

SOTO-RUBIO, Ana Lucila ; VALERO-MORENO, Selene ; PÉREZ-MARIN, Marian
Journal of health psychology, 10/08/2020, Pagination inconnue

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Constructing stability - a classic grounded theory of next-of-kin in palliative cancer care

WERKANDER HARSTADE, Carina ; SANDGREN, Anna
BMC palliative care, 05/06/2020, vol.19, n°1, p. 1-9

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Exploring family caregiver communication difficulties and caregiver quality of life and anxiety

WITTENBERG, Elaine ; KERR, Anna M. ; GOLDSMITH, Joy
American journal of hospice and palliative medicine, 26/06/2020, Pagination inconnue

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How short is too short? - a randomised controlled trial evaluating short-term existential behavioural therapy for informal caregivers of palliative patients

KUHNEL, Martina B. ; MARCHIORO, Linda ; DEFFNER, Veronika ; BAUSEWEIN, Claudia ; SEIDL, Hildegard ; SIEBERT, Sarah ; FEGG, Martin
PALLIATIVE MEDICINE, 2020, vol.34, n°6, p. 806-816

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Caregiving and bereavement in palliative care - a cross-cultural study between Brazil and Portugal

DELALIBERA, Mayra ; COELHO, Alexandra ; FRADE, Pedro ; BARBOSA, Antonio ; LEAL, Isabel
Transcultural Psychiatry, 26/03/2020, Pagination inconnue

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Effectiveness of palliative care consultation service on caregiver burden over time between terminally ill cancer and non-cancer family caregivers

WU, Li-Fen ; LIN, Chin ; HUNG, Yu-Chun ; CHANG, Li-Fang ; HO, Ching-Liang ; PAN, Hsueh-Hsing
Supportive care in cancer, 15/04/2020, Pagination inconnue

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The lived experiences of family caregivers of persons dying in home hospice - support, advocacy, and information urgently needed

MCFARLANE, Judith ; LIU, Fuqin
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 04/2020, vol.22, n°2, p. 145-151

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Palliative care needs in Parkinson's disease - focus on anticipatory grief in family carers

FOX, Siobhán ; AZMAN, Atheerah ; TIMMONS, Suzanne
Annals of palliative medicine, 02/2020, vol.9, n°Suppl 1, p. S34-S43

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Everyday life experiences of close relatives of people with amyotrophic lateral sclerosis (ALS) receiving home mechanical ventilation - a qualitative study

WINTHER, Dorte ; LORENZEN, Charlotte Kirkegaard ; DREYER, Pia
Journal of clinical nursing, 11/03/2020, Pagination inconnue

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Validation of two short versions of the Zarit Burden Interview in the palliative care setting - a questionnaire to assess the burden of informal caregivers

KUHNEL, Martina B. ; RAMSENTHALER, Christina ; BAUSEWEIN, Claudia ; FEGG, Martin ; HODIAMONT, Farina
Supportive care in cancer, 15/02/2020, Pagination inconnue

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Effect of instrumental support on distress among family caregivers - findings from a nationally representative study

KENT, Erin E. ; MOLLICA, Michelle A. ; DIONNE-ODOM, J. Nicholas ; FERRER, Rebecca A. ; JENSEN, Roxanne E. ; ORNSTEIN, Katherine A. ; SMITH, Ashley Wilder
Palliative and supportive care, 24/02/2020, p. 1-9

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Thème : Soins.

AIDANT ; SOUTIEN ; EPUISEMENT ENTOURAGE ; OUTIL ; DETRESSE PSYCHOLOGIQUE

BACKGROUND AND OBJECTIVE: A priority focus on palliative and supportive care is helping the 43.5 million caregivers who care for individuals with serious illness. Lacking support may lead to caregiver distress and poorer care delivery to patients with serious illness. We examined the potential of instrumental support (assistance with material and task performance) to mitigate distress among caregivers.
METHOD: We analyzed data from the nationally representative Health Information National Trends Survey (HINTS V2, 2018). Informal/family caregivers were identified in HINTS V2 if they indicated they were caring for or making healthcare decisions for another adult with a health problem. We used the PROMIS® instrumental support four-item short-form T-scores and the Patient Health Questionnaire (PHQ-4) for distress. We examined multivariable linear regression models for associations between distress and instrumental support, adjusted for sampling weights, socio-demographics, and caregiving variables (care recipient health condition(s), years caregiving (=2), relationship to care recipient, and caregiver burden). We examined interactions between burden and instrumental support on caregiver distress level.
RESULTS: Our analyses included 311 caregivers (64.8% female, 64.9% non-Hispanic White). The unweighted mean instrumental support T-score was 50.4 (SD = 10.6, range = 29.3-63.3); weighted mean was 51.2 (SE = 1.00). Lower instrumental support (p < 0.01), younger caregiver age (p < 0.04), higher caregiving duration (p = 0.008), and caregiver unemployment (p = 0.006) were significantly associated with higher caregiver distress. Mean instrumental support scores by distress levels were 52.3 (within normal limits), 49.4 (mild), 48.9 (moderate), and 39.7 (severe). The association between instrumental support and distress did not differ by caregiver burden level.
CONCLUSIONS: Poor instrumental support is associated with high distress among caregivers, suggesting the need for palliative and supportive care interventions to help caregivers leverage instrumental support.

Origine : PubMed

Usage de la consultation dédiée à l’aidant naturel de patients atteints de la maladie d’Alzheimer ou maladies apparentées par le médecin généraliste

VAYSSIERE, Amandine ; MOYET, Julien ; PELTIER, Johann ; LALAU, Jean-Daniel ; MACRON, Jean-Michel ; DERVAUX, Alain ; BLOCH, Frédéric
LA REVUE DE GERIATRIE, 2019, vol.44, n°10, p. 583-589

Patient and caregiver characteristics associated with caregiver burden in Parkinson's disease - a palliative care approach

MACCHI, Zachary A. ; KOLJACK, Claire E. ; MIYASAKI, Janis M. ; KATZ, Maya ; GALIFIANAKIS, Nick ; PRIZER, Lindsay P. ; SILLAU, Stefan H. ; KLUGER, Benzi M.
Annals of palliative medicine, 14/11/2019, p. 1-10

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Perceptions of a home hospice crisis - an exploratory study of family caregivers

PHONGTANKUEL, Veerawat ; BURCHETT, Chelsie O. ; SHALEV, Ariel ; ADELMAN, Ronald D. ; PRIGERSON, Holly G. ; CZAJA, Sara J. ; DIGNAM, Ritchell ; BAUGHN, Rosemary ; REID, M. Cary
JOURNAL OF PALLIATIVE MEDICINE, 28/03/2019, vol.22, n°9, p. 1046-1051

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La sortie d’unités de soins palliatifs au Brésil et en France - expériences de patients atteints d’un cancer avancé et de leurs familles

CORDEIRO, Franciele Roberta ; KRUSE, Maria Henriqueta Luce ; CARLIN, Noëlle
MEDECINE PALLIATIVE, 01/06/2018, vol.17, n°3, p. 139-147

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L'épuisement des familles soutien de personnes âgées - pistes d'intervention pour les professionnels

PAQUET, Mario ; Centre hospitalier régional de Lanaudière
Département de santé communautaire de Lanaudière , 1990 , 21 p.

Accompagner des personnes malades ou en fin de vie - vers une relation à double sens

ROUMANOFF, Colette
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 06/2018, n°133, p. 47-52

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