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Patient risk factor profiles associated with the timing of goals-of-care consultation before death - a classification and regression tree analysis

STARR, Lauren T. ; ULRICH, Connie M. ; JUNKER, Paul ; HUANG, Liming ; O'CONNOR, Nina R. ; MEGHANI, Salimah H.
The American journal of hospice and palliative care, 10/2020, vol.37, n°10, p. 767-778

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Palliative care for the Asian American adult population - a scoping review

LA, In Seo ; LEE, Mei Ching ; HINDERER, Katherine A. ; CHI, Iris ; LIU, Ruotong ; LIU, Mandong ; FU, Yunting
American journal of hospice and palliative medicine, 03/06/2020, Pagination inconnue

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Racial differences in do-not-resuscitate orders among pediatric surgical patients in the United States

MPODY, Christian ; HUMPHREY, Lisa ; KIM, Stephani ; TOBIAS, Joseph D. ; NAFIU, Olubukola O.
JOURNAL OF PALLIATIVE MEDICINE, 15/06/2020, Pagination inconnue

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My life, my way - a quality improvement program to increase advance care planning in a racially and ethnically diverse patient population

ROTH, Alan R. ; CANEDO, Angelo ; BALABANOVA, Raisa ; CHAUHAN, Vandana
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/2020, vol.59, n°1, p. 147-151

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Families' decision making at end of life in rural Appalachia

CLARK FORNEHED ; MIXER, Sandra J. ; LINDLEY, Lisa C.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2020, vol.22, n°3, p. 188-195

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Understanding end of life preferences - predicting life prolonging treatment preferences among community dwelling older Americans

BRENNER, Allison B. ; SKOLARUS, Lesli E. ; PERUMALSWAMI, Chithra R. ; BURKE, James F.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 03/05/2020, p. 1-10

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Decisional control preferences in the Hispanic population in the Bronx

CARDENAS, Jhosselini ; INFANTE, Pamela ; INFANTE, Abel ; CHUANG, Elizabeth ; SELWYN, Peter
Journal of cancer education, 01/01/2019, vol.34, n°3, p. 472-477

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Association of participation in an end-of-life conversation game with advance care planning behavior and perspectives among African American individuals

VAN SCOY, Lauren Jodi ; LEVI, Benjamin H. ; WITT, Pamela ; BRAMBLE, Cindy ; RICHARDSON, Christopher ; PUTZIG, Irene ; LEVI, A. Rose ; WASSERMAN, Emily ; CHINCHILLI, Vernon ; TUCCI, Amy ; GREEN, Michael J.
JAMA network open, 01/05/2020, vol.3, n°5, p. 1-14

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Racial disparities in utilization of palliative care among patients admitted with advanced solid organ malignancies

LEE, Kimberley ; GANI, Faiz ; CANNER, Joseph K. ; JOHNSTON, Fabian M.
The American journal of hospice and palliative care, 06/05/2020, Pagination inconnue

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Live discharge from hospice due to acute hospitalization - the role of neighborhood socioeconomic characteristics and race/ethnicity

RUSSELL, David ; LUTH, Elizabeth A. ; RYVICKER, Miriam ; BOWLES, Kathryn H. ; PRIGERSON, Holly G.
Medical Care, 01/01/2020, vol.58, n°4, p. 320-328

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Passing on wisdom - exploring the end-of-life wishes of Aboriginal people from the midwest of Western Australia

THOMPSON, Sandra ; LYFORD, Marilyn ; PAPERTALK, Lennelle ; HOLLOWAY, Michele
Rural and remote health, 01/01/2019, vol.19, n°4, p. 1-9

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Thème : Soins. Cote : eD02.03

AUSTRALIE ; FIN VIE ; ETHNICITE ; PREFERENCE

INTRODUCTION: Indigenous patients with life-limiting conditions have complex needs, experience reduced access to and uptake of treatment, and have lower utilisation of palliative care services than the general population. Lack of understanding of the role of palliative care and poor availability of culturally safe specialist palliative care services impact on Indigenous people's end-of-life decision-making.
METHODS: To understand Aboriginal people's perspectives and experiences at the end of life, an exploratory study using facilitated group discussions in community settings in a region of Western Australia was undertaken. Local Aboriginal people were engaged to talk frankly about their wishes and concerns around end of life. The community consultations included two meetings at the local Aboriginal corporation, an evening meeting for invited community members, a meeting at the local Aboriginal community controlled health service and two further meetings of community members at local gathering places. These were supplemented by the analysis of previous in-depth video-recorded interviews that were undertaken with Aboriginal people with cancer reporting on their concerns and wishes.
RESULTS: The community consultations raised considerable discussion about wills, where to die, burial versus cremation, and the cost of funerals. Possibilities emerging from participants' reflections on the issue were public celebrations to honour someone's life, the potential use of sorting cards to help discussions about end-of-life personal wishes, and interest in making and decorating coffins. Aboriginal people with cancer raised similar issues, and focused on avoiding family disharmony by ensuring their family were aware of their end-of-life wishes.
CONCLUSION: Within a safe space, Aboriginal people were happy to talk about end-of-life wishes, although certain aspects of death remain contentious. Sorting cards, ceremonies, education and care roles involving Aboriginal people offer potential means for effectively engaging Aboriginal people in preparing for death and dealing with grief.

Origine : PubMed

WOODS, John A. ; JOHNSON, Claire E. ; NGO, Hanh T. ; KATZENELLENBOGEN, Judith M. ; MURRAY, Kevin ; THOMPSON, Sandra C.
International journal of environmental research and public health, 30/04/2020, vol.17, n°9, p. 1-13

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Goals-of-care consultations are associated with lower costs and less acute care use among propensity-matched cohorts of African Americans and whites with serious illness

STARR, Lauren T. ; ULRICH, Connie M. ; APPEL, Scott M. ; JUNKER, Paul ; O'CONNOR, Nina R. ; MEGHANI, Salimah H.
JOURNAL OF PALLIATIVE MEDICINE, 27/04/2020, Pagination inconnue

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Racial and ethnic differences in communication and care for children with advanced cancer

MACK, Jennifer W. ; UNO, Hajime ; TWIST, Clare J. ; BAGATELL, Rochelle ; ROSENBERG, Abby R. ; MARACHELIAN, Araz ; GRANGER, M. Meaghan ; BENDER, Julia Glade ; BAKER, Justin N. ; PARK, Julie R. ; COHN, Susan L. ; FERNANDEZ, Jorge H. ; DILLER, Lisa R. ; SHUSTERMAN, Suzanne
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 30/04/2020, p. 1-8

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Collaborative data familiarisation and quality assessment - reflections from use of a national dataset to investigate palliative care for indigenous Australians

WOODS, John A ; JOHNSON, Claire E ; ALLINGHAM, Samuel F ; NGO, Hanh T ; KATZENELLENBOGEN, Judith M ; THOMPSON, Sandra C
Health information management journal, 27/03/2020, Pagination inconnue

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Race and ethnicity and satisfaction with communication in the intensive care unit

CHUANG, Elizabeth ; FITER, Ryan J. ; SANON, Omar C. ; WANG, Ann ; HOPE, Aluko A. ; SCHECHTER, Clyde B. ; GONG, Michelle N.
American journal of hospice and palliative medicine, 02/04/2020, Pagination inconnue

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Palliative care for rare advanced lung diseases in underserved Appalachia - study protocol for a randomized controlled trial

PIAMJARIYAKUL, Ubolrat ; SMOTHERS, Angel ; YOUNG, Stephanie ; PETITTE, Trisha ; WEN, Sijin ; MORRISSEY, Elizabeth ; SHAFIQUE, Saima ; ZULFIKAR, Rafia ; SANGANI, Rahul ; SMITH, Carol E.
Journal of advanced nursing, 16/04/2020, Pagination inconnue

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Association between Chinese or South Asian ethnicity and end-of-life care in Ontario, Canada

YARNELL, Christopher J. ; FU, Longdi ; BONARES, Michael J. ; NAYFEH, Ayah ; FOWLER, Robert A.
CMAJ, 16/03/2020, vol.192, n°11, p. E266-E274

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Evaluation of measurement equivalence of the family satisfaction with the end-of-life care (FAMCARE) - tests of differential item functioning between hispanic and non-hispanic white caregivers

TERESI, Jeanne A. ; OCEPEK-WELIKSON, Katja ; RAMIREZ, Mildred ; KLEINMAN, Marjorie ; ORNSTEIN, Katherine ; SIU, Albert ; LUCHSINGER, Jose
Palliative and supportive care, 19/03/2020, p. 1-13

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Advance care planning among ethnic/racial minority older adults - prevalence of and factors associated with informal talks, durable power of attorney for health care, and living will

HONG, Michin ; KIM, Kyeongmo
Ethnicity and health, 04/03/2020, p. 1-10

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