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ETUDE LONGITUDINALE

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Advanced cancer patients' changes in accurate prognostic understanding and their psychological well-being

GEORGE, Login S. ; MACIEJEWSKI, Paul K. ; EPSTEIN, Andrew S. ; SHEN, Megan ; PRIGERSON, Holly G.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 983-989

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Congruence between preferred and actual place of death for those in receipt of home-based palliative care

CAI, Jiaoli ; ZHANG, Li ; GUERRIERE, Denise ; COYTE, Peter C.
JOURNAL OF PALLIATIVE MEDICINE, 15/04/2020, Pagination inconnue

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Effectiveness of palliative care consultation service on caregiver burden over time between terminally ill cancer and non-cancer family caregivers

WU, Li-Fen ; LIN, Chin ; HUNG, Yu-Chun ; CHANG, Li-Fang ; HO, Ching-Liang ; PAN, Hsueh-Hsing
Supportive care in cancer, 15/04/2020, Pagination inconnue

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High c-reactive protein to albumin ratio and the short-term survival prognosis within 30 days in terminal cancer patients receiving palliative care in a hospital setting - a retrospective analysis

JU, Sang-Yhun ; MA, Soo-Jin
Medicine, 02/2020, vol.99, n°9, p. 1-7

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Prospective evaluation of intensity of symptoms, therapeutic procedures and treatment in palliative care patients in nursing homes

PUENTE-FERNANDEZ, Daniel ; ROLDAN-LOPEZ, Concepción B. ; CAMPOS-CALDERON, Concepción P. ; HUESO-MONTORO, Cesar ; GARCIA-CARO, María P. ; MONTOYA-JUAREZ, Rafael
Journal of clinical medicine, 10/03/2020, vol.9, n°3, p. 1-11

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End-of-life experience for older adults in Ireland - results from the Irish longitudinal study on ageing (TILDA)

MAY, Peter ; ROE, Lorna ; MCGARRIGLE, Christine A. ; KENNY, Rose Anne ; NORMAND, Charles E.
BMC health services research, 14/02/2020, vol.20, n°1, p. 1-10

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Changing attitudes toward euthanasia and suicide for terminally ill persons, 1977 to 2016 - an age-period-cohort analysis

ATTELL, Brandon K.
OMEGA JOURNAL OF DEATH AND DYING, 02/2020, vol.80, n°3, p. 355-379

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"Hospice inpatient deep vein thrombosis detection (hidden) in advanced non-malignant diseases" - a longitudinal pilot study

WHITE, Clare ; NOBLE, Simon ; SWAN, Flavia ; WATSON, Max ; ALLGAR, Victoria ; NAPIER, Eoin ; NELSON, Annmarie ; JOHNSON, Miriam J.
BMJ supportive and palliative care, 11/02/2020, Pagination inconnue

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Sustainability of palliative care in a rural hospital in Tanzania - a longitudinal and prospective 4-year study

POYHIA, Reino Torsti Ilmari ; MWALUMULI, Emmanuel Owden ; MTEGA, Aida Charles ; VEGULA, Jackson John
JOURNAL OF PALLIATIVE CARE, 23/01/2020, Pagination inconnue

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Do longitudinally-collected symptom scores predict time to death in advanced breast cancer - a joint modelling analysis

BUDHWANI, Suman ; MOINEDDIN, Rahim ; WODCHIS, Walter P. ; ZIMMERMANN, Camilla ; HOWELL, Doris
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1009-1018

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Prevalence and severity of sleep difficulty in patients with a CNS cancer receiving palliative care in Australia

JEON, Megan S. ; DHILLON, Haryana M. ; DESCALLAR, Joseph ; LAM, Lawrence ; ALLINGHAM, Samuel ; KOH, Eng-Siew ; CURROW, David ; AGAR, Meera R.
Neuro-oncology practice, 12/2019, vol.6, n°6, p. 499-507

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Medication use in older, terminally ill cancer patients - are all medications appropriate? A longitudinal audit

POUDEL, Arjun ; BERRY, Robyn ; McCARTHY, Alexandra ; WALPOLE, Euan ; YATES, Patsy ; NISSEN, Lisa
PALLIATIVE MEDICINE, 10/2019, vol.33, n°9, p. 1232-1235

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Predictive factors of mortality in older adult residents of long-term care facilities

MOON, SeolHwa ; HONG, Gwi-Ryung Son
The journal of nursing research, 30/10/2019, p. 1-8

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Effect of caregiving at end of life on grief, quality of life and general health - a prospective, longitudinal, comparative study

BREEN, Lauren J. ; AOUN, Samar M. ; O'CONNOR, Moira ; JOHNSON, Andrew R. ; HOWTING, Denise
PALLIATIVE MEDICINE, 29/10/2019, Pagination inconnue

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Associations between home deaths and end-of-life nursing care trajectories for community-dwelling people - a population-based registry study

KJELLSTADLI, Camilla ; HAN, Ling ; ALLORE, Heather ; FLO, Elisabeth ; HUSEBO, Bettina S. ; HUNSKAAR, Steinar
BMC health services research, 15/10/2019, vol.19, n°1, p. 1-9

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Change in death metaphors among university students in Hong Kong from 2004 to 2016

CHAU, Lok Yung ; CHEUNG, Wing Shan ; HO, Samuel M. Y.
DEATH STUDIES, 2019, vol.43, n°1, p. 32-40

Does palliative chemotherapy really palliate and are we measuring it correctly? - a mixed methods longitudinal study of health related quality of life in advanced soft tissue sarcoma

GOUGH, Nicholas ; KOFFMAN, Jonathan ; ROSS, Joy R. ; RILEY, Julia ; JUDSON, Ian
Plos one, 2019, vol.14, n°9, p. 1-24

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Thème : Médecine. Cote : eD03.05.01

CHIMIOTHERAPIE ; QUALITE VIE ; ETUDE LONGITUDINALE

OBJECTIVE: Soft tissue sarcoma (STS) is a rare cancer type that when locally advanced or metastatic, is predominantly treated with palliative chemotherapy with the aim of improving both quantity and quality of life. Given modest survival data after commencing first line chemotherapy, this study examines (i) what constitutes health related quality of life (HRQoL), (ii) whether the most commonly used HRQoL assessment tool measures this and (iii) to what extent HRQoL, and its components, change during and after treatment.
DESIGN: Mixed-methods longitudinal study of 66 sarcoma patients living with STS (42 commencing chemotherapy, 24 under surveillance after completing chemotherapy) involving serial EORTC QLQ-C30 questionnaires and nested-qualitative semi-structured interviews with a sub-sample of participants. EORTC QLQ-C30 score change from baseline to primary evaluation point was examined using a paired t-test. Interviews were analysed using the framework approach before both datasets were integrated.
RESULTS: Five main factors, including control of pain, were identified by study participants as important components of HRQoL; these are examined within the EORTC QLQ-C30. However, others e.g. independence loss and common causes of anxiety, are not. Whilst social and psychological domains are addressed by the EORTC QLQ-C30, the quantitative change over time did reflect qualitative descriptions of decline. The mean overall EORTC QLQ-C30 HRQoL score deteriorated from baseline (60.4) to the primary evaluation point (50.2) [change of -10.2, t-test: -2.70, p = 0.01] for those receiving chemotherapy; this was in concordance with patients' qualitative accounts. Baseline overall HRQoL scores were higher in the surveillance group suggesting a correlation with chemotherapy response and longer-term improvement in HRQoL. The evidence from both HRQoL scores and qualitative accounts indicated that the presence and control of physical symptoms were particularly important in maintaining HRQoL. Whilst fatigue deteriorated on chemotherapy (baseline 41.7 to 52.8; change of +11.1, t-test +2.51, p<0.05), pain (baseline 41.5 to 32.1; change -9.4, t-test -2.06 p<0.05) and sleep disturbance (43.1 to 28.5; change -14.6, t-test -3.05, p<0.05) both improved.
CONCLUSION: A key finding was that the EORTC QLQ-C30 assesses some but not all of the patient-reported components of HRQoL in sarcoma patients highlighting the need for either STS specific modules within the EORTC QLQ-C30 or a completely new STS specific HRQoL tool. First line palliative chemotherapy improves specific symptoms known to be prevalent and to influence HRQoL in this patient group which in some patients may translate to sustained improvement in HRQoL: further exploration and validation of these findings in larger prospective studies are warranted.

Origine : PubMed

After the burden is lifted - caregivers' recovery of life satisfaction after the death or recovery of a spouse

LANGNER, Laura A. ; FURSTENBERG, Frank F.
The Journals of gerontology. Series B, psychological sciences and social sciences, 10/09/2019, p. 1-26

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A longitudinal investigation of protective factors for bereaved maltreated youth

SASSER, Jeri ; BERNSTEIN DUPREY, Erinn ; OSHRI, Assaf
CHILD ABUSE AND NEGLECT, 26/08/2019, vol.96, Pagination inconnue

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Thème : Deuil et travail du deuil.

PERSONNE ENDEUILLEE ; MALTRAITANCE ; ETUDE LONGITUDINALE ; ADOLESCENT ; SOUTIEN DEUIL

BACKGROUND: Maltreated youth are at an elevated risk for the development of problem behaviors. Coping with the death of a family member or close friend during adolescence, referred to as bereavement, is a stressful event that could potentiate risk linked to maltreatment. However, developmental research suggests that youth adjustment is a product of multiple risk and protective factors. Although maltreated youth who experience loss may be particularly vulnerable to behavior problems, personal and contextual factors may attenuate or exacerbate youths' risk for internalizing and externalizing psychopathology.
OBJECTIVE: The overarching goal of this study is to examine individual, family, and community-level protective factors for maltreated youth who experience bereavement. Specifically, we aim to examine the effect of age 12 bereavement on age 16 internalizing and externalizing psychopathology, and to investigate the moderating role of multi-level protective factors at ages 14 and 16.
METHODS: The study consisted of a sample of 800 youth (52.4% female, 45.1% African-American) drawn from the Longitudinal Studies of Child Abuse and Neglect (LONGSCAN), collected from 1998 to 2011.
RESULTS: Maltreated youth who experienced significant loss were at increased risk for externalizing symptoms, compared to non-bereaved maltreated youth (ß = 0.085, p < .05). Individual future orientation (ß = 0.103, p < .05) family future orientation (ß = -0.120, p < .05), parental monitoring (ß = -0.123, p< .01), and neighborhood collective efficacy (ß = -0.126, p < .01) each significantly moderated the association between bereavement and externalizing symptoms.
CONCLUSIONS: These results have implications for future interventions aimed towards reducing problem behaviors in adolescents with a history of child maltreatment and who experience bereavement.

Origine : PubMed

Use of time in people with a life-limiting illness - a longitudinal cohort feasibility pilot study

JONES, Terry A. ; OLDS, Timothy S. ; CURROW, David ; WILLIAMS, Marie T.
PALLIATIVE MEDICINE, 01/08/2019, Pagination inconnue

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