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ETUDE PROSPECTIVE

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Supportive care needs and service use during palliative care in family caregivers of patients with advanced cancer - a prospective longitudinal study

ULLRICH, Anneke ; MARX, Gabriella ; BERGELT, Corinna ; BENZE, Gesine ; ZHANG, Youyou ; WOWRETZKO, Feline ; HEINE, Julia ; DICKEL, Lisa-Marie ; NAUCK, Friedemann ; BOKEMEYER, Carsten ; OECHSLE, Karin
Supportive care in cancer, 06/07/2020, 13 p.

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Determining the impact of timing and of clinical factors during end-of-life decision-making in potential controlled donation after circulatory death donors

KOTSOPOULOS, Angela M. ; JANSEN, Nichon E. ; VOS, Piet ; WITJES, Marloes ; VOLBEDA, Meint ; EPKER, Jelle L. ; SONNEVELD, Hans P.C. ; SIMONS, Koen S. ; BRONKHORST, Ewald M. ; VAN DER HOEVEN, Hans G. ; ABDO, Wilson F.
American journal of transplantation, 07/06/2020, p. 1-19

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Surrogate satisfaction with decision making after intracerebral hemorrhage

SAHGAL, Savina ; YANDE, Aneesha ; THOMPSON, Bradford B. ; CHEN, Emily P. ; FAGERLIN, Angela ; MORGENSTERN, Lewis B. ; ZAHURANEC, Darin B.
Neurocritical care, 15/06/2020, Pagination inconnue

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Thème : Soins.

PRISE DECISION ; PERSONNE CONFIANCE ; RESSENTI ; ETUDE PROSPECTIVE ; SATISFACTION

Background/Objective: Surrogate decision makers for patients with intracerebral hemorrhage (ICH) are frequently asked to make difficult decisions on use of life-sustaining treatments. We explored ICH surrogate satisfaction with decision making and experience of decision regret using validated measures in a prospective multicenter study.
Methods: Cases of non-traumatic ICH were enrolled from three hospitals (September 2015–December 2016), and surrogate decision makers were invited to complete a self-administered survey. The primary outcome was the 10-item decision-making subscale of the Family Satisfaction in the Intensive Care Unit scale (FSICU-DM, range 0–100, higher is greater satisfaction), and the secondary outcome was the decision regret scale (range 0–100, higher is greater regret). Linear regression models were used to assess the association between satisfaction with decision making and pre-specified covariates using manual backward selection.
Results: A total of 73 surrogates were approached for participation (in person or mail), with 48 surrogates returning a completed survey (median surrogate age 60.5 years, 63% female, 77% white). Patients had a median age of 72.5, 54% were female, with a median admission Glasgow coma scale of 10, in-hospital mortality of 31%, and 56% with an in-hospital DNR order. Physicians commonly made treatment recommendation (> 50%) regarding brain surgery or transitions to comfort measures, but rarely made recommendations (< 20%) regarding DNR orders. Surrogate satisfaction with decision making was generally high (median FSICU-DM 85, IQR 57.5–95). Factors associated with higher satisfaction on multivariable analysis included greater use of shared decision making (P < 0.0001), younger patient age (p = 0.02), ICH score of 3 or higher (p = 0.03), and surrogate relationship (spouse vs. other, p = 0.02). Timing of DNR orders was not associated with satisfaction (P > 0.25). Decision regret scores were generally low (median 12.5, IQR 0–31.3).
Conclusions: Considering the severity and abruptness of ICH, it is reassuring that surrogate satisfaction with decision making was generally high and regret was generally low. However, more work is needed to define the appropriate outcome measures and optimal methods of recruitment for studies of surrogate decision makers of ICH patients.

Origine : DOI.org (Crossref

Characteristics and health related quality of life in a population with advanced chronic obstructive pulmonary disease, a cross-sectional study

BOVE, D. G. ; LAVESEN, M. ; LINDEGAARD, B.
BMC palliative care, 18/06//2020, vol.19, n°1, p. 1-9

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Supportive care for superutilizers of a managed care organization

FERNANDES, Ritabelle ; FESS, Ed G. ; SULLIVAN, Sandy ; BRACK, Mona ; DEMARCO, Tara ; LI, Dongmei
JOURNAL OF PALLIATIVE MEDICINE, 26/05/2020, p. 1-8

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Prediction model for timing of death in potential donors after circulatory death (DCD III) - protocol for a multicenter prospective observational cohort study

KOTSOPOULOS, Angela M M ; VOS, Piet ; JANSEN, Nichon E ; BRONKHORST, Ewald M ; VAN DER HOEVEN, Johannes G ; ABDO, Wilson F
JMIR research protocols, 23/06/2020, vol.9, n°6, p. 1-7

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Limiting treatment in prehospital care - a prospective, observational multicentre study

KANGASNIEMI, Heidi ; SETALA, Piritta ; OLKINUORA, Anna ; HUHTALA, Heini ; TIRKKONEN, Joonas ; KAMARAINEN, Antti ; VIRKKUNEN, Ilkka ; YLI-HANKALA, Arvi ; JAMSEN, Esa ; HOPPU, Sanna
Acta anaesthesiologica Scandinavica, 10/06/2020, Pagination inconnue

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Early palliative care - the surprise question and the palliative care screening tool-better together

YEN, Yung-Feng ; LEE, Ya-Ling ; HU, Hsiao-Yun ; SUN, Wen-Jung ; KO, Ming-Chung ; CHEN, Chu-Chieh ; WONG, Weng Kee ; MORISKY, Donald E ; HUANG, Sheng-Jean ; CHU, Dachen
BMJ supportive and palliative care, 25/05/2020, Pagination inconnue

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Mouthpiece ventilation in the management of dyspnea - a single-arm pilot study

LEHTO, Juho T ; LEIVO-KORPELA, Sirpa ; KORHONEN, Tarja ; RANTALA, Heidi A ; RAUNIO, Hanna ; LYLY-YRJANAINEN, Tiina ; LEHTIMAKI, Lauri
PALLIATIVE MEDICINE, 24/06/2020, p. 1-5

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Prehospital frailty and screening criteria for palliative care services in critically ill older adults - an observational cohort study

HOPE, Aluko A. ; ENILARI, Oladunni M. ; CHUANG, Elizabeth ; NAIR, Rahul ; GONG, Michelle Ng
JOURNAL OF PALLIATIVE MEDICINE, 23/06/2020, Pagination inconnue

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The ACS-TQIP palliative care guidelines at two level I trauma centres - a prospective study of patient and caregiver satisfaction

VOGEL, Rebecca ; MCGRAW, Constance ; REDMOND, Diane ; BOURG, Pamela ; DREIMAN, Chester ; TANNER, Allen ; LYNCH, Neal ; BAR-OR, David
BMJ supportive and palliative care, 24/06/2020, Pagination inconnue

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Off-label and unlicensed drugs in pediatric palliative care - a prospective observational study

GARCIA-LOPEZ, Isabel ; CUERVAS-MONS VENDRELL, Margarita ; ROMERO, Irene Martin ; DE NORIEGA, Iñigo ; GONZALEZ, Juana Benedí ; MARTINO-ALBA, Ricardo
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 06/2020, p. 1-26

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Association between perceived threat and the development of posttraumatic stress disorder symptoms in patients with life-threatening medical emergencies

MOSS, Jeena ; ROBERTS, Michael B. ; SHEA, Lisa ; JONES, Christopher W. ; KILGANNON, Hope ; EDMONDSON, Donald E. ; TRZECIAK, Stephen ; ROBERTS, Brian W.
Academic emergency medicine, 01/01/2020, vol.27, n°2, p. 109-116

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Reasons for chemotherapy discontinuation and end-of-life in patients with gastrointestinal cancer - a multicenter prospective AGEO study

PALMIERI, Lola-Jade ; DUBREUIL, Olivier ; BACHET, Jean-Baptiste ; TROUILLOUD, Isabelle ; LOCHER, Christophe ; CORIAT, Romain ; MORYOUSSEF, Frederick ; LANDI, Bruno ; PERKINS, Géraldine ; HAUTEFEUILLE, Vincent ; DOAT, Solène
Clinics and research in hepatology and gastroenterology, 11/05/2020, p. 1-8

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Factors associated with quality of death in Korean ICUs as perceived by medical staff - a multicenter cross-sectional survey

CHO, Jun Yeun ; PARK, Ju-Hee ; KIM, Junghyun ; LEE, Jinwoo ; PARK, Jong Sun ; CHO, Young-Jae ; YOON, Ho Il ; LEE, Sang-Min ; LEE, Jae-Ho ; LEE, Choon-Taek ; LEE, Yeon Joo
Critical care medicine, 01/01/2019, vol.47, n°9, p. 1208-1215

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Comparing the predictive ability of the Revised Minimum Dataset Mortality Risk Index (MMRI-R) with nurses’ predictions of mortality among frail older people - a cohort study

COLE, Andy ; ARTHUR, Antony ; SEYMOUR, Jane Elizabeth
Age and ageing, 01/01/2019, vol.48, n°3, p. 394-400

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Pilot of the life-sustaining treatment decisions initiative among veterans with serious illness

GIANNITRAPANI, Karleen F. ; WALLING, Anne M. ; GARCIA, Ariadna ; FOGLIA, Marybeth ; LOWERY, Jill S. ; LO, Natalie ; BEKELMAN, David ; BROWN-JOHNSON, Cati ; HAVERFIELD, Marie ; FESTA, Natalia ; SHREVE, Scott T. ; GALE, Randall C. ; LEHMANN, Lisa Soleymani ; LORENZ, Karl A.
The American journal of hospice and palliative care, 08/05/2020, Pagination inconnue

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Association of participation in an end-of-life conversation game with advance care planning behavior and perspectives among African American individuals

VAN SCOY, Lauren Jodi ; LEVI, Benjamin H. ; WITT, Pamela ; BRAMBLE, Cindy ; RICHARDSON, Christopher ; PUTZIG, Irene ; LEVI, A. Rose ; WASSERMAN, Emily ; CHINCHILLI, Vernon ; TUCCI, Amy ; GREEN, Michael J.
JAMA network open, 01/05/2020, vol.3, n°5, p. 1-14

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Withholding or withdrawing life support in long-term neurointensive care patients - a single-centre, prospective, observational pilot study

STEFANOU, Maria-Ioanna ; SULYOK, Mihaly ; KOEHNLEIN, Martin ; SCHEIBE, Franziska ; FLEISCHMANN, Robert ; HOFFMANN, Sarah ; HOTTER, Benjamin ; ZIEMANN, Ulf ; MEISEL, Andreas ; MENGEL, Annerose Maria
Journal of medical ethics, 05/05/2020, Pagination inconnue

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Racial and ethnic differences in communication and care for children with advanced cancer

MACK, Jennifer W. ; UNO, Hajime ; TWIST, Clare J. ; BAGATELL, Rochelle ; ROSENBERG, Abby R. ; MARACHELIAN, Araz ; GRANGER, M. Meaghan ; BENDER, Julia Glade ; BAKER, Justin N. ; PARK, Julie R. ; COHN, Susan L. ; FERNANDEZ, Jorge H. ; DILLER, Lisa R. ; SHUSTERMAN, Suzanne
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 30/04/2020, p. 1-8

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