VigiPallia : Résultats

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Theoretical and philosophical assumptions behind the concept of anticipatory grief

ALLARD, Emilie ; GENEST, Christine ; LEGAULT, Alain
International Journal of Palliative Nursing, 02/2020, vol.26, n°2, p. 56-63

Accompagner une personne en fin de vie - prendre soin de l'autre dans ses derniers moments

BRUYNEEL, Annick Danielle
Eyrolles , 02/2020 , 191 p.

Pourqu'il soit le dernier

LAMBERT, François
Robert Laffont , 03/2020 , 240 p.

L'affaire Vincent Lambert - enquête sur une tragédie familiale

DELAPORTE, Ixchel
Rouergue , 03/2020 , 207 p.

Documentation et pratiques documentaires en soins palliatifs

MEDECINE PALLIATIVE, 02/2020 , vol.19, n°1, 60 p.

Paulette - l'euthanasie racontée aux petits et aux grands

JAVAUX, Amélie ; HUQUE, Corinne ; POUMAY, Aurore ; WAXWEILER, Charline ; MASSON, Annick
Mijade , 2019 , 32 p.

Lisette - la fin de vie racontée aux petits et aux grands

JAVAUX, Amélie ; HUQUE, Corinne ; POUMAY, Aurore ; WAXWEILER, Charline ; MASSON, Annick
Mijade , 2019 , 32 p.

Quality of palliative care in identified palliative care beds

VIEL, Erika ; VANOLI, André ; TRUONG, David ; HARAMI, Djamel ; FILBET, Marilène ; CHAUMIER, François ; TRICOU, Colombe
International Journal of Palliative Nursing, 02/2020, vol.26, n°2, p. 64-69

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Impact of end-of-life planning on surrogate decision-maker anxiety in the US

ALOIAU, April ; BENTON, Melissa J. ; MOUCHAWAR, Alan ; SEGAL, Daniel L.
International Journal of Palliative Nursing, 02/2020, vol.26, n°2, p. 75-82

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Negotiating the "buffet" of choice - advances in technology and end-of-life decision-making in the intensive care unit setting

BANDINI, Julia I.
Sociology of health and illness, 05/03/2020, Pagination inconnue

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Parental experiences in end-of-life decision-making in allogeneic pediatric stem cell transplantation - "have I been a good parent?"

MEKELENKAMP, Hilda ; LANKESTER, Arjan C. ; BIERINGS, Marc B. ; SMIERS, Frans J. W. ; DE VRIES, Martine C. ; KARS, Marijke C.
Pediatric blood and cancer, 05/2020, vol.67, n°5, p. 1-8

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End-of-life medical decision-making for children in custody - a collaborative, multi-stakeholder practical approach

CARROLL, Ricki S. ; HIRST, Eliza ; HUDSON, Mark ; SHAW, Molly ; DEUTSCH, Stephanie A.
CHILD ABUSE AND NEGLECT, 03/03/2020, vol.103, Pagination inconnue

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Thème : Aspects juridiques.

FIN VIE ; DECISION MEDICALE ; PARENT ; DROIT FAMILLE ; VIOLENCE

BACKGROUND: Parents have a constitutionally-protected, fundamental right to make decisions concerning the health and well-being of their children, afforded by the Due Process Clause of the Fourteenth Amendment. However, parental rights are not absolute, and may be curtailed after a finding of parental "unfitness" including perpetration of egregious child abuse/neglect. Court intervention may be necessary to assert "parens patriae" authority to protect a child's well-being. Disagreements over medical care for a child (particularly when parent maltreatment resulted in life-altering clinical conditions and parents are suspected of perpetrating abusive injuries) often pose conflicts of interest. End-of-life decision-making involving abuse perpetrators may be influenced by self-interest, due to potential for escalation of criminal charges.
OBJECTIVE: Discuss medico-legal decision-making for children in child welfare custody using a detailed case example involving a child near-fatally, abusively injured by his parents; review of relevant case law/national legal precedents; and clinical policy statements guiding end-of-life decision-making for pediatric patients.
PARTICIPANTS/SETTING/METHODS: Using an exploratory, quasi-qualitative approach, perceived experiences of purposefully-selected taskforce members identified key themes that informed a care de-escalation protocol, implemented across the state.
RESULTS: Key themes included coordinated communication, expedited legal proceedings, and balancing child's best interest (the right not to suffer for a prolonged period of time or sustain complications) with parents' rights and due process concerns, and informed protocol development.
CONCLUSIONS: Practicable guidance established in the protocol can be theoretically adapted at the local level to address the complexity inherent in end-of-life decision-making for children in custody.

Origine : PubMed

Performance status and end-of-life care among adults with non-small cell lung cancer receiving immune checkpoint inhibitors

PETRILLO, Laura A. ; EL-JAWAHRI, Areej ; NIPP, Ryan D. ; LICHTENSTEIN, Morgan R. L. ; DURBIN, Sienna M. ; REYNOLDS, Kerry L. ; GREER, Joseph A. ; TEMEL, Jennifer S. ; GAINOR, Justin F.
Cancer, 06/03/2020, Pagination inconnue

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Underlying goals of advance care planning (ACP) - a qualitative analysis of the literature

FLEUREN, Nienke ; DEPLA, Marja F. I. A. ; JANSSEN, Daisy J. A. ; HUISMAN, Martijn ; HERTOGH, Cees M. P. M.
BMC palliative care, 06/03/2020, vol.19, n°1, p. 1-15

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Weaning continuous cardiac inotropes at end of life - case studies and institutional clinical guidelines

GRONINGER, Hunter ; RAO, Anirudh ; STEWART, Diana ; HOFMEYER, Mark
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 03/03/2020, Pagination inconnue

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Mucoviscidose, accompagnement et fin de vie des patients

VANNESTE, Johanne
REVUE DE L'INFIRMIERE, 01/2020, vol.69, n°257, p. 27-28

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Ten-year trends in end-of-life hospitalizations of nursing home residents in Germany, 2006-2015

HOFFMANN, Falk ; ALLERS, Katharina
Maturitas, 04/2020, vol.134, p. 47-53

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The dying parent and dependent children - a nationwide survey of hospice and community palliative care support services

COCKLE-HEARNE, Jane ; REED, Elizabeth ; TODD, Jennifer ; REAM, Emma
BMJ supportive and palliative care, 09/03/2020, p. 1-9

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Developing the ethical framework of end-stage kidney disease care - from practice to policy

LUYCKX, Valerie A. ; MARTIN, Dominique E. ; MOOSA, Mohammed Rafique ; BELLO, Aminu K. ; BELLORIN-FONT, Ezequiel ; CHAN, Tak Mao ; CLAURE-DEL GRANADO, Rolando ; DOUTHAT, Walter ; EIAM-ONG, Somchai ; EKE, Felicia U. ; GOH, Bak Leong ; JHA, Vivekanand ; KENDAL, Evie ; LIEW, Adrian ; MENGISTU, Yewondwossen Tadesse ; MULLER, Elmi ; OKPECHI, Ikechi G. ; RONDEAU, Eric ; SAHAY, Manisha ; TRASK, Michele ; VACHHARAJANI, Tushar
Kidney international supplements, 03/2020, vol.10, n°1, p. e72-e77

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Improving palliative and end-of-life care for rural and remote Australians

WENHAM, Sarah ; CUMMING, Melissa ; SAURMAN, Emily
Public health research and practice, 10/03/2020, vol.30, n°1, p. 1-4

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