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Fins de vie, éthique et société

HIRSCH, Emmanuel
Erès , 2016 , 856 p.

Le terrain en philosophie, quelles méthodes pour quelle éthique ?

DEKEUWER, Catherine
Ethique, potilique, religions, Classiques Garnier , 2020 , n°15, 151 p.

Care homes as hospices for the prevalent form of dying - an analysis of long-term care provision towards the end of life in England

TEGGI, Diana
Social science and medicine, 01/07/2020, vol.260, Pagination inconnue

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Quality assessments of end-of-life care by medical record review for patients dying in intensive care units in Taiwan

LO, Mei-Ling ; HUANG, Chung-Chi ; HU, Tsung-Hui ; CHOU, Wen-Chi ; CHUANG, Li-Pang ; CHIANG, Ming Chu ; WEN, Fur-Hsing ; TANG, Siew Tzuh
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 07/07/2020, Pagination inconnue

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Effectiveness of a traditional training method in increasing long-term end-of-life care perception and clinical competency among oncology nurses - a pilot clinical trial

OMIDI, Khaled ; DEHGHAN, Mahlagha ; SHAHRBABAKI, Parvin Mangolian
Asia-Pacific journal of oncology nursing, 09/2020, vol.7, n°3, p. 287-294

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Experience of caregivers supporting a patient through voluntarily stopping eating and drinking

LOWERS, Jane ; HUGHES, Sean ; PRESTON, Nancy
JOURNAL OF PALLIATIVE MEDICINE, 09/07/2020, Pagination inconnue

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Healthcare interventions improving and reducing quality of life in children at the end of life - a systematic review

PIETTE, Veerle ; BEERNAERT, Kim ; COHEN, Joachim ; PAUWELS, Nele S. ; SCHERRENS, Anne-Lore ; VAN DER WERFF TEN BOSCH, Jutte ; DELIENS, Luc
Pediatric research, 09/07/2020, Pagination inconnue

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Thème : Soins.

BELGIQUE ; ENFANT ; QUALITE VIE ; FIN VIE ; REVUE SYSTEMATIQUE

BACKGROUND: Children with serious illness suffer from symptoms at the end of life that often fail to be relieved. An overview is required of healthcare interventions improving and decreasing quality of life (QOL) for children with serious illness at the end of life.
METHODS: A systematic review was performed in five databases, January 2000 to July 2018 without language limit. Reviewers selected quantitative studies with a healthcare intervention, for example, medication or treatment, and QOL outcomes or QOL-related measures, for example, symptoms, for children aged 1-17 years with serious illness. One author assessed outcomes with the QualSyst and GRADE (Grades of Recommendation, Assessment, Development, and Evaluation) Framework; two authors checked a 25% sample. QOL improvement or reduction was categorized.
RESULTS: Thirty-six studies met the eligibility criteria studying 20 unique interventions. Designs included 1 randomized controlled trial, 1 cross-sectional study, and 34 cohort studies. Patient-reported symptom monitoring increased QOL significantly in cancer patients in a randomized controlled trial. Dexmedetomidine, methadone, ventilation, pleurodesis, and palliative care were significantly associated with improved QOL, and chemotherapy, stem cell transplant, and hospitalization with reduced QOL, in cohort studies.
CONCLUSIONS: Use of patient-controlled symptom feedback, multidisciplinary palliative care teams with full-time practical support, inhalation therapy, and off-label sedative medication may improve QOL. Curative therapy may reduce QOL.
IMPACT: QOL for children at the end of life may be improved with patient-controlled symptom feedback, multidisciplinary palliative care teams with full-time practical support, inhalation therapy, and off-label sedative medication.QOL for children at the end of life may be reduced with therapy with a curative intent, such as curative chemotherapy or stem cell transplant.A comprehensive overview of current evidence to elevate currently often-failing QOL management for children at the end of life.New paradigm-level indicators for appropriate and inappropriate QOL management in children at the end of life.New hypotheses for future research, guided by the current knowledge within the field.Various healthcare interventions (as described above) could or might be employed as tools to provide relief in QOL management for children with serious illness, such as cancer, at the end of life, and therefore could be discussed in pediatrician end-of-life training to limit the often failed QOL management in this population, cave the one-size-fits-all approach for individual cases.Multidisciplinary team efforts and 24/7 presence, especially practical support for parents, might characterize effective palliative care team interventions for children with serious illness at the end of life, suggesting a co-regulating link between well-being of the child partly to that of the parentsHypothesis-oriented research is needed, especially for children with nonmalignant disorders, such as genetic or neurological disorders at the end of life, as well as QOL outcomes for intervention research and psychosocial or spiritual outcomes.

Origine : PubMed

Spiritual care provision to end of life patients - a systematic literature review

BATSTONE, Elizabeth ; BAILEY, Cara ; HALLETT, Nutmeg
Journal of clinical nursing, 09/07/2020, 16 p.

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Conflict before the courtroom - challenging cognitive biases in critical decision-making

JOHAL, Harleen Kaur ; DANBURY, Christopher
Journal of medical ethics, 06/07/2020, 5 p.

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What is a good death? A critical discourse policy analysis

BORGSTROM, Erica
BMJ supportive and palliative care, 06/07/2020, Pagination inconnue

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Care of the spirit - effects of an interdisciplinary undergraduate end-of-life course on knowledge, competence, and response empathy

PETERSEN, Cheryl L. ; SCHILTZ, Sarah
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2020, vol.22, n°4, p. 298-304

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Communication and cultural sensitivity for families and children with life-limiting diseases - an informed decision-making ethical case in community-based palliative care

KOCH, Amie ; GRIER, Kimberlee
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2020, vol.22, n°4, p. 270-275

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Comparing underlying and contributory cause of death in registry data with end-of-life proxy interviews - findings from the Irish longitudinal study on ageing (TILDA)

WARD, Mark ; MAY, Peter ; NORMAND, Charles E. ; KENNY, Rose Anne ; NOLAN, Anne
Journal of applied gerontology, 07/07/2020, Pagination inconnue

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Determinants of physicians' attitudes toward the management of infectious diseases in terminally-ill patients with cancer

MORIOKA, Shinichiro ; MORI, Masanori ; SUZUKI, Tomomi ; YOKOMICHI, Marika ; HAMANO, Jun ; MORITA, Tatsuya
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/07/2020, 40 p.

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End-of-life care in schizophrenia - a systematic review

BARUTH, Joshua M. ; HO, Jacqueline B. ; MOHAMMAD, Sohail I. ; LAPID, Maria I.
International psychogeriatrics, 19/06/2020, p. 1-19

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Health and well-being in the year before death - the association with quality of life and care at the end-of-life

LEE, Hyo Jung ; SMALL, Brent J. ; HALEY, William E.
Journal of aging and health, 03/07/2020, Pagination inconnue

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"I could never prepare for something like the death of my own child" - parental perspectives on preparedness at end of life for children with complex chronic conditions

BOGETZ, Jori F. ; REVETTE, Anna ; ROSENBERG, Abby R. ; DECOURCEY, Danielle
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 03/07/2020, 10 p.

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A novel narrative e-writing intervention for parents of children with chronic life-threatening illnesses - protocol for a pilot, open-label randomized controlled trial

HO, Andy Hau Yan ; DUTTA, Oindrila ; TAN-HO, Geraldine ; TAN, Toh Hsiang Benny ; LOW, Casuarine Xinyi ; GANAPATHY, Sashikumar ; CAR, Josip ; HO, Ringo Moon-Ho ; MIAO, Chun Yan
JMIR research protocols, 07/2020, vol.9, n°7, 14 p.

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Nurses' decision-making about cancer patients' end-of-life skin care in Wales - an exploratory mixed-method vignette study protocol

SAMURIWO, Ray ; LOVELL-SMITH, Candida ; ANSTEY, Sally ; JOB, Claire ; HOPKINSON, Jane
BMJ Open, 05/07/2020, vol.10, n°7, 8 p.

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Palliative care in hepatocellular carcinoma

LAUBE, Robyn ; SABIH, Abdul-Hamid ; STRASSER, Simone I. ; LIM, Lynn ; CIGOLINI, Maria ; LIU, Ken
Journal of gastroenterology and hepatology, 06/07/2020, 11 p.

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