INTRODUCTION: Significant number of women present with advanced-stage breast cancer in Ghana. These women usually depend on family caregivers for their multi-dimensional needs. Yet, there are gaps in research about what motivates family caregivers to assume the caring role and their experiences with caregiving within the Ghanaian context.
AIM: To explore and describe the caregiving motivations and experiences among family caregivers of patients living with advanced breast cancer.
METHODS: In-depth, semi-structured qualitative interviews were conducted with 15 family caregivers who were providing unpaid care for women living with advanced breast cancer. Colaizzi's thematic analysis was used to analyze the data.
RESULTS: Family relationship normally prescribed the caregiving role among family caregivers. Due to the lack of home-based palliative services in Ghana, findings suggest that family caregivers are the main managers of advanced breast cancer-related symptoms in the home. These findings are discussed under three major themes: (i) motivation for assuming the caregiving role; (ii) meeting self-care and psychosocial needs of the patient; and (iii) symptom management and monitoring.
CONCLUSION: Socio-cultural values influence the role of family caregivers in Ghana. This presents opportunities for health professionals and relevant stakeholders to develop a culturally-appropriate intervention to support informal caregivers in their home-based care for women living with advanced breast cancer in Ghana.
BACKGROUND: Breast cancer is common among Ghanaian women. Late stage presentation has been credited to knowledge deficit and lack of breast cancer prevention and early detection services for women.
OBJECTIVE: This study aimed to develop a model to facilitate the integration of breast cancer prevention and early detection into cancer palliative care.
METHOD: This study used synthesized concepts emerging from a single case study research. The case was a tertiary health care facility, embedded with sub-units of analysis. Mixed-method approach was used to collect data from 102 participants. The study examined the experiences and views of the participants on breast cancer and screening pathways in Ghana. Thematic analysis and descriptive statistics ware used to analyze the qualitative and quantitative data respectively. This was followed with a cross-case analysis across the sub-units of analysis. A theory development approach was further used towards the development of a model, following three steps: concept analysis, statement synthesis and theory synthesis.
RESULTS: Six key concepts synthesized from the data were used to develop the model: initiate and sustain breast cancer prevention and early detection program, collaboration of health professionals, patients, families and micro-communities, conducive environment of the health care facility and needed resources, actions, services, and lastly diffusing innovation into the community through agents.
CONCLUSION: A model has been developed based on the experiences shared by women diagnosed with advanced breast cancer, their first degree relatives, micro-communities as well as clinicians working in a palliative care setting. This model will aid clinicians to provide breast cancer education, teach breast self-examination and offer clinical breast examination to families and micro-communities of advanced breast cancer patients receiving supportive care in a resource-limited setting.
Despite the high rate of infant mortality in Ghana, few studies have explored the maternal experience of infant loss and the perinatal grieving process. As part of a larger study that interviewed 153 mothers with a sick infant, this 1-year follow-up study reinterviewed eight mothers from the original cohort whose infant died since the study began. Mothers were queried about mental health, coping, and cultural issues related to the loss. Mothers were often discouraged from speaking or thinking about the death due to fear of psychological harm and impact on fertility. Primary coping mechanisms involved seeking support within the community and accepting the loss as God’s will. Mothers desired more communication from health-care providers at the time of death. Despite the cultural norm of silent acceptance in the face of perinatal loss, intense maternal grief and desire to mourn may allow more opportunities for health-care workers to support bereaved mothers.
A major gap in the extant research literature on suicide in Ghana is lack of a systematic study of patterns and trends in elderly suicides. To address the lack of scholarship on the topic, this exploratory, descriptive study presents the results of an epidemiological analysis of 40 media-reported suicides involving persons aged 60 years and older during the 2005-2016 period. Key findings are that the vast bulk of elderly persons who died by suicide were male, aged 60 to 65 years old, and of low income. The most common suicide methods were hanging and shooting with a firearm. Reasons for dying by suicide included lack of financial wherewithal, indebtedness, cuckoldry, sexual dysfunction, grief after the death of a spouse, and marital breakdown. A secondary aim of the research was to sensitize the Ghanaian public, medical services, and government about the extent, nature, and patterns of suicidal behavior in the elderly population. At present, many people in Ghana are not aware of elderly suicides as a social problem. For stakeholders, the findings of this study can assist in the design and implementation of policies and programs to alleviate the problem.
BACKGROUND: Cervical cancer is a very common disease among women in Ghana and in the world as a whole. However, there is a dearth of information on the mechanisms cervical cancer patients adopt to cope with the condition in Ghana. This study sought to explore the strategies adopted by cervical cancer patients in rural Ghana to cope with the disease.
METHODS: In-depth interviews were conducted to collect qualitative data from cervical cancer patients in a health facility in the Volta Region of Ghana. Data processing was done using the R software package for Qualitative Data Analysis (RQDA) and a thematic approach was used to analyse and present the results.
RESULTS: The results show that cervical cancer patients adopted personal and psychological strategies such as sexual abstinence, personal hygiene, and disease denial to cope with the condition. Respondents also described social, financial and non-material support services they received from family members and the church as critical resources, which helped them to manage the conditions of the disease. Respondents also reported that faith healing, herbal and orthodox medicines helped them to manage the symptoms of the disease.
CONCLUSIONS: Cervical cancer patients used a variety of coping strategies to manage the disease. Yet, it will be essential for interventions to focus on strengthening knowledge about the disease. This study underscores the need for financial, social and material support as well as an encouragement of the use of health services among cervical cancer patients.
CONTEXT: Factors contributing to and impeding palliative care (PC) development in Africa can provide insights into current strategies for advancing PC.
OBJECTIVES: To identify key factors affecting PC development in African countries from in-country PC experts' perspectives.
METHODS: Sixteen PC experts from seven African countries undertook semi-structured interviews on PC development in their respective countries. An interpretive description approach was adopted, with data analyzed using constant comparison.
RESULTS: Emerged themes included: drivers, strengths, challenges, and aspirations for PC development in Africa. Drivers included advocates and pioneering organizations, HIV/AIDS, culture of caregiving, and the World Health Assembly PC Resolution. Strengths included community health workers, the special role of nurses, diversity of services, and short training courses. Challenges included lack of PC education, lack of standardization in implementation, limited availability of and/or accessibility to morphine, poverty and disease burden, and lack of funding for PC. Aspirations included integration of PC, specialization in PC, nurse prescribing, and strong partnerships with Ministries of Health. Factors already highlighted in the literature were only briefly discussed.
CONCLUSION: The key factors underpinning PC development in the seven countries contributed to the beginnings of PC in Africa, fueled by advocates that built on existing strengths to maximize opportunities. However, the current approach is high-risk in terms of its sustainability and strategies for maximizing existing resources and growing infrastructure support are needed moving forward.
This article examines the views of persons living with AIDS about how they want to die and how they are planning for their deaths. Participants for the study were purposefully drawn from an HIV clinic in an urban town in Ghana. In-depth interviews were conducted with 25 persons living with AIDS. Three preferences of death were identified by the participants. These include the desire for a quick death, death at home, and death without emaciating. Planning for death involved attending church and taking care of children. Inherent in the responses of the participants is the concern for cost of care, dwindling network of family carers, and stigmatization and shame. The article concludes that the government needs to provide support for home-based care, establish a pension for AIDS patients, support families to pay for the funeral expenses of their relatives, and scale up effort to reduce HIV/AIDS-related stigma.
Les pays d'Afrique de l'Ouest sont classés comme n'ayant pas d'activités de soins palliatifs, exceptés la Gambie, le Ghana, le Mali et le Nigéria (fourniture de soins palliatifs isolés) et la Côte d'Ivoire (fourniture généralisée). Il y a donc une pénurie de la recherche en soins palliatifs, notamment au Nigéria.
Ce documentaire tourné au Kenya et au Ghana met en scène des enseignants informant leurs élèves sur le VIH/Sida et sur les moyens de se protéger. A travers le portrait de trois enseignants, le film montre l'impact des informations divulguées par les enseignants, qui touchent les élèves mais aussi les parents et l'ensemble de la communauté.
Origine : BDSP. Notice produite par CRIPS FCJR0xlp. Diffusion soumise à autorisation