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HOSPITALISATION DOMICILE SOINS PALLIATIFS

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Hospitalisation à domicile - quel rôle en situation palliative ?

BALLADUR, Elisabeth
REVUE DU PRATICIEN MEDECINE GENERALE, 04/2020, vol.34, n°1039, p. 296-297

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The development and implementation of a cardiac home hospice program - results of a RE-AIM analysis

JORDAN, Lizeyka ; RUSSELL, David ; BAIK, Dawon ; DOOLEY, Frances ; MASTERSON CREBER, Ruth M.
The American journal of hospice and palliative care, 18/05/2020, Pagination inconnue

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Understanding the role of regulatory flexibility and context sensitivity in preventing burnout in a palliative home care team

LENZO, Vittorio ; BORDINO, Valentina ; BONANNO, George A. ; QUATTROPANI, Maria C.
Plos one, 2020, vol.15, n°5, p. 1-13

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Voices of home-based palliative care community health workers in rural Malawi - a mixed methods study on factors affecting role and sustainability

WANG, Grace H. ; NESBIT, Casey ; RANKIN, Sally
PROGRESS IN PALLIATIVE CARE, 14/05/2020, p. 1-8

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Building trust and facilitating goals of care conversations - a qualitative study in people with heart failure receiving home hospice care

BAIK, Dawon ; RUSSELL, David ; JORDAN, Lizeyka ; MATLOCK, Daniel D. ; DOOLEY, Frances ; MASTERSON CREBER, Ruth
PALLIATIVE MEDICINE, 06/05/2020, Pagination inconnue

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Patients' experiences of telehealth in palliative home care - scoping review

STEINDAL, Simen A. ; GONCALVES NES, Andrea Aparecida ; GODSKESEN, Tove E. ; DIHLE, Alfhild ; LIND, Susanne ; WINGER, Anette ; KLARARE, Anna
Journal of medical internet research, 05/05/2020, vol.22, n°5, p. 1-11

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Thème : Santé. Cote : eD01.03

TELEMEDECINE ; HOSPITALISATION DOMICILE SOINS PALLIATIFS ; REVUE LITTÉRATURE

BACKGROUND: Telehealth is increasingly being used in home care and could be one measure to support the needs of home-based patients receiving palliative care. However, no previous scoping review has mapped existing studies on the use of telehealth for patients in palliative home care.
OBJECTIVE: The aim of this study was to map and assess published studies on the use of telehealth for patients in palliative home care.
METHODS: A scoping review was conducted using the methodological framework of Arksey and O'Malley. Reporting was guided by Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. A systematic and comprehensive search of Medical Literature Analysis and Retrieval System Online, EMBASE, PsycINFO, and Cumulative Index to Nursing and Allied Health was performed for studies published between January 2000 and October 2018. Two authors independently assessed eligibility and extracted data.
RESULTS: The review included 22 papers from 19 studies. Four thematic groupings were identified among the included papers: easy and effortless use of telehealth regardless of the current health condition, visual features that enhance communication and care via telehealth, symptom management and self-management promotion by telehealth, and perceptions of improved palliative care at home.
CONCLUSIONS: The use of telehealth in palliative home care seems to be feasible, improving access to health care professionals at home and enhancing feelings of security and safety. The visual features of telehealth seem to allow a genuine relationship with health care professionals. However, there are contradicting results on whether the use of telehealth improves burdensome symptoms and quality of life. Future research should investigate the experiences of using telehealth among patients with life-limiting illness other than cancer and patients aged 85 years or older. More research is needed to increase the body of knowledge regarding the effectiveness of telehealth on symptoms and quality of life.

Origine : PubMed

Temporal trends in place of death for end-of-life patients - evidence from Toronto, Canada

SUN, Zhuolu ; GUERRIERE, Denise N. ; DE OLIVEIRA, Claire ; COYTE, Peter C.
Health and social care in the community, 04/05/2020, Pagination inconnue

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Complementary music therapy for cancer patients in at-home palliative care and their caregivers - protocol for a multicentre randomised controlled trial

VALERO-CANTERO, Inmaculada ; MARTINEZ-VALERO, Francisco Javier ; ESPINAR-TOLEDO, Milagrosa ; CASALS, Cristina ; BARON-LOPEZ, Francisco Javier ; VAZQUEZ-SANCHEZ, Maria Angeles
BMC palliative care, 02/05/2020, vol.19, n°1, p. 1-11

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Cross-sectional nutrition profile of palliative home care clients in Ontario and performance of the interRAI palliative care nutrition clinical assessment protocol

STEVENS, Tara ; KELLER, Heather ; WILLIAMS, Nicole ; DOWNAR, James ; GUTHRIE, Dawn M.
Journal of parenteral and enteral nutrition, 08/04/2020, Pagination inconnue

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Congruence between preferred and actual place of death for those in receipt of home-based palliative care

CAI, Jiaoli ; ZHANG, Li ; GUERRIERE, Denise ; COYTE, Peter C.
JOURNAL OF PALLIATIVE MEDICINE, 15/04/2020, Pagination inconnue

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Palliative care for rare advanced lung diseases in underserved Appalachia - study protocol for a randomized controlled trial

PIAMJARIYAKUL, Ubolrat ; SMOTHERS, Angel ; YOUNG, Stephanie ; PETITTE, Trisha ; WEN, Sijin ; MORRISSEY, Elizabeth ; SHAFIQUE, Saima ; ZULFIKAR, Rafia ; SANGANI, Rahul ; SMITH, Carol E.
Journal of advanced nursing, 16/04/2020, Pagination inconnue

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Emotional and cognitive barriers of bereavement care among clinical staff in hospice palliative care

LIN, Wei-Chun ; FAN, Sheng-Yu
Palliative and supportive care, 16/04/2020, p. 1-7

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Low socioeconomic status associated with lower utilization of hospice care services during end-of-life treatment in cancer patients - a population-based cohort study

LAI, Yun-Ju ; CHEN, Yu-Yen ; KO, Ming-Chung ; CHOU, Yi-Sheng ; HUANG, Li-Ying ; CHEN, Yi-Tui ; HUNG, Kuo-Chuan ; LIN, Yu-Kai ; WANG, Chun-Chieh ; CHEN, Chu-Chieh ; CHUANG, Pei-Hung ; YEN, Yung-Feng
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, Elsevier, 30/03/2020, pagination inconnue

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Soins palliatifs à domicile - attentes des proches envers le médecin généraliste

SAUSSAC, Camille ; MATHE, Amandine ; BURUCOA, Benoît ; DYL, Céline
REVUE INTERNATIONALE DE SOINS PALLIATIFS, 12/2019, vol.34, n°4, p. 109-116

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Home-based pediatric palliative care and electronic health - systematic mixed methods review

HOLMEN, Heidi ; RIISER, Kirsti ; WINGER, Anette
Journal of medical internet research, 28/02/2020, vol.22, n°2, p. 1-13

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Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.01.00

HOSPITALISATION DOMICILE SOINS PALLIATIFS ; PEDIATRIE ; TELEMEDECINE ; REVUE SYSTEMATIQUE

BACKGROUND: Children and families in pediatric palliative care depend on close contact with health care personnel, and electronic health (eHealth) is suggested to support care at home by facilitating their remote interactions.
OBJECTIVE: This study aimed to identify and review the use of eHealth to communicate and support home-based pediatric palliative care and appraise the methodological quality of the published research.
METHODS: We conducted a convergent, systematic mixed methods review and searched Medical Literature Analysis and Retrieval System Online (Medline), EMBASE, PsycINFO, Cochrane Library, Cumulative Index to Nursing and Allied Health Literature (CINAHL), Web of Science, and Scopus for eligible papers. Studies evaluating 2-way communication technology for palliative care for children aged = 18 years and applying quantitative, qualitative, or mixed methods from 2012 to 2018 were eligible for inclusion. Quantitative and qualitative studies were equally valued during the search, screening, extraction, and analysis. Quantitative data were transformed into qualitative data and analyzed using a thematic analysis. Overall, 2 independent researchers methodologically appraised all included studies.
RESULTS: We identified 1277 citations. Only 7 papers were eligible for review. Evaluating eHealth interventions in pediatric palliative care poses specific methodological and ethical challenges. eHealth to facilitate remote pediatric palliative care was acknowledged both as an intrusion and as a support at home. Reluctance toward eHealth was mainly identified among professionals.
CONCLUSIONS: The strengths of the conclusions are limited by the studies' methodological challenges. Despite the limitless possibilities held by new technologies, research on eHealth in home-based pediatric palliative care is scarce. The affected children and families appeared to hold positive attitudes toward eHealth, although their views were less apparent compared with those of the professionals.
TRIAL REGISTRATION: PROSPERO CRD42018119051; https://tinyurl.com/rtsw5ky.

Origine : PubMed

The lived experiences of family caregivers of persons dying in home hospice - support, advocacy, and information urgently needed

MCFARLANE, Judith ; LIU, Fuqin
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 04/2020, vol.22, n°2, p. 145-151

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Earlier palliative home care is associated with patient-centered medical resource utilisation and lower costs in the last 30 days before death in COPD - a population-level decedent cohort study

SCHEERENS, Charlotte ; FAES, Kristof ; PYPE, Peter ; BEERNAERT, Kim ; JOOS, Guy ; DEROM, Eric ; COHEN, Joachim ; DELIENS, Luc ; CHAMBAERE, Kenneth
The European respiratory journal, 27/02/2020, Pagination inconnue

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The life experiences among primary family caregivers of home-based palliative care

WU, Meng-Ping ; HUANG, Sheng-Jean ; TSAO, Lee-Ing
The American journal of hospice and palliative care, 01/03/2020, Pagination inconnue

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A scoping review of initiatives to reduce inappropriate or non-beneficial hospital admissions and bed days in people nearing the end of their life - much innovation, but limited supporting evidence

TAYLOR, Ros ; ELLIS, Jonathan ; GAO, Wei ; SEARLE, Liz ; HEAPS, Kate ; DAVIES, Robert ; HAWKSWORTH, Claire ; GARCIA-PEREZ, Angela ; COLCLOUGH, Giles ; WALKER, Steven ; WEE, Bee
BMC palliative care, 27/02/2020, vol.19, n°1, p. 1-25

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Home artificial nutrition in palliative care cancer patients - impact on survival and performance status

RUGGERI, Enrico ; GIANNANTONIO, Marilena ; AGOSTINI, Federica ; OSTAN, Rita ; PIRONI, Loris ; PANNUTI, Raffaella
Clinical nutrition, 22/02/2020, Pagination inconnue

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