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MILIEU RURAL

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Families' decision making at end of life in rural Appalachia

CLARK FORNEHED ; MIXER, Sandra J. ; LINDLEY, Lisa C.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2020, vol.22, n°3, p. 188-195

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Voices of home-based palliative care community health workers in rural Malawi - a mixed methods study on factors affecting role and sustainability

WANG, Grace H. ; NESBIT, Casey ; RANKIN, Sally
PROGRESS IN PALLIATIVE CARE, 14/05/2020, p. 1-8

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Present at bedside at time of death

LYCETTE, Jennifer L.
Journal of clinical oncology, 30/04/2020, p. 1-4

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Adapting and going the extra mile - a qualitative study of palliative care in rural Northern Norway from the perspective of healthcare providers

ERVIK, Bente ; BRONDBO, Birgit ; JOHANSEN, May-Lill
Cancer nursing, 03/2020, Pagination inconnue

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Developing and testing the feasibility of a culturally based tele-palliative care consult based on the cultural values and preferences of Southern, rural African American and white community members - a program by and for the community

ELK, Ronit ; EMANUEL, Linda ; HAUSER, Joshua ; BAKITAS, Marie ; LEVKOFF, Sue
Health equity, 01/03/2020, vol.4, n°1, p. 52-83

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Fully integrated oncology and palliative care services at a local hospital in mid-Norway - development and operation of an innovative care delivery model

BRENNE, Anne-Tove ; KNUDSEN, Anne Kari ; RAJ, Sunil Xavier ; SKJELVAN, Laila ; LUND, Jo-Åsmund ; THRONÆS, Morten ; LOHRE, Erik Torbjørn ; HAGENSEN, Liv Agot ; BRUNELLI, Cinzia ; KAASA, Stein
Pain and therapy, 09/04/2020, p. 1-22

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Where to enhance rural palliative care? - developing a spatial model to identify suitable communities most in need of service enhancement

SCHUURMAN, Nadine ; MARTIN, Michael E. ; CROOKS, Valorie A. ; RANDALL, Ellen
BMC health services research, 04/03/2020, vol.20, n°1, p. 1-8

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Rural elderly and access to palliative care - a public health perspective

JADHAV, Abhijeet Vasant
Indian journal of palliative care, 03/2020, vol.26, n°1, p. 116-119

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Improving palliative and end-of-life care for rural and remote Australians

WENHAM, Sarah ; CUMMING, Melissa ; SAURMAN, Emily
Public health research and practice, 10/03/2020, vol.30, n°1, p. 1-4

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Women's work at end of life - the intersecting gendered vulnerabilities of patients and caregivers in rural Malawi

MKANDAWIRE-VALHMU, Lucy ; KENDALL, Nancy ; DRESSEL, Anne ; WENDLAND, Claire ; SCHEER, Victoria L. ; KAKO, Peninnah ; NEIMAN, Tammy ; VALHMU, Wilmot ; RUIZ, Ashley ; LUEBKE, Jeneile ; MINJALE, Peter ; MERRIMAN, Anne ; FINCH, Lucy ; EGEDE, Leonard
Global public health, 21/02/2020, p. 1-11

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Forging a new frontier - providing palliative care to people with cancer in rural and remote areas

BAKITAS, Marie ; ALLEN WATTS, Kristen ; MALONE, Emily ; DIONNE-ODOM, J. Nicholas ; MCCAMMON, Susan ; TAYLOR, Richard ; TUCKER, Rodney ; ELK, Ronit
Journal of clinical oncology, 05/02/2020, Pagination inconnue

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Sustainability of palliative care in a rural hospital in Tanzania - a longitudinal and prospective 4-year study

POYHIA, Reino Torsti Ilmari ; MWALUMULI, Emmanuel Owden ; MTEGA, Aida Charles ; VEGULA, Jackson John
JOURNAL OF PALLIATIVE CARE, 23/01/2020, Pagination inconnue

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Palliative care needs rounds in rural residential aged care - a mixed-methods study exploring experiences and perceptions of staff and general practitioners

RAINSFORD, Suzanne ; JOHNSTON, Nikki ; LIU, Wai-Man ; GLASGOW, Nicholas ; FORBAT, Liz
PROGRESS IN PALLIATIVE CARE, 04/12/2019, p. 1-10

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La symptomatologie physique et vécu psychologique dans le cancer du col utérin - interrogations à partir de trois cas cliniques au Cameroun

NGUEPY KEUBO, François Roger ; MUTARAMBIRWA, Henri Donald ; NCHANKOU TATEPONG, André Merlin ; NDFUBU SHEY, Delphine
REVUE INTERNATIONALE DE SOINS PALLIATIFS, septembre 2019, vol.34, n°3, p. 91-95

Study protocol of coaching end-of-life palliative care for advanced heart failure patients and their family caregivers in rural Appalachia - a randomized controlled trial

PIAMJARIYAKUL, Ubolrat ; PETITTE, Trisha ; SMOTHERS, Angel ; WEN, Sijin ; MORRISSEY, Elizabeth ; YOUNG, Stephanie ; SOKOS, George ; MOSS, Alvin H. ; SMITH, Carol E.
BMC palliative care, 29/12/2019, vol.18, n°1, p. 1-9

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Rural health services' relationships with patients - an enabler and a barrier to advance care planning

HARVEY, Pamela ; PANOZZO, Laura ; ADAMS, Meagan-Jane ; O'CONNOR, Dennis ; WARD, Bernadette
The Australian journal of rural health, 12/2019, vol.27, n°6, p. 563-567

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Telehealth acceptability for children, family, and adult hospice nurses when integrating the pediatric palliative inpatient provider during sequential rural home hospice visits

WEAVER, Meaghann S. ; ROBINSON, Jacob E. ; SHOSTROM, Valerie K. ; HINDS, Pamela S.
JOURNAL OF PALLIATIVE MEDICINE, 05/12/2019, Pagination inconnue

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

TELEMEDECINE ; PEDIATRIE ; MILIEU RURAL ; HOSPITALISATION DOMICILE SOINS PALLIATIFS

Background: Children in rural geographies are not universally able to access pediatric-trained palliative or hospice providers.
Objective: Determine whether telehealth inclusion of a familiar pediatric palliative care provider during the first two home-based hospice visits was acceptable to children, families, and adult-trained home hospice nurses in rural settings.
Design: Case series.
Setting: Home hospice in rural Midwest.
articipants: Patients <18 years of age enrolling in home hospice for end-of-life care.
Measurements: The acceptability of telehealth inclusion of a hospital-based pediatric palliative care provider in home hospice visits to the family caregiver and home hospice nurse was measured using the Technology Acceptance Model Questionnaires with the inclusion of the child perspective when possible.
Results: Fifteen patients mean age of seven years enrolled. Family caregiver included 11 mothers (73%), 2 grandmothers (13%), and 2 fathers (13%). Fifteen nurses from nine hospice agencies participated. Twelve families (80%) included additional relatives by telehealth modality. Home distance averaged 172 miles with mean eight hours saved by accessing telehealth encounter. Visit content was primarily caregiver support, quality of life, goals of care, symptom management, and medication review. Telehealth acceptability improved between time points and was higher in family caregivers (4.3–4.9 on 5-point scale; p = 0.001) than hospice nurses (3.2–3.8 on 5-point scale; p = 0.05). All children able to self-report stated a “like” for telehealth, citing six reasons such as “being remembered” and “medical knowledge and care planning.”
Conclusions: Pediatric palliative telehealth visits partnered with in-person hospice nurse offer acceptable access to services, while extending support.

Origine : PubMed

Sowing across a state - development and delivery of a grassroots pediatric palliative care nursing curriculum

WEAVER, Meaghann S. ; JENKINS, Rebecca ; WICHMAN, Christopher ; ROBINSON, Jacob E. ; POTTHOFF, Meghan R ; MENICUCCI, Traci ; VAIL, Catherine A.
JOURNAL OF PALLIATIVE CARE, 26/11/2019, Pagination inconnue

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Patient dignity question - feasible, dignity-conserving intervention in a rural hospice

MCDERMOTT, Pamela
Canadian family physician, 11/2019, vol.65, n°11, p. 812-819

Palliative care made visible - developing a rural model for the Western Cape province, South Africa

O'BRIEN, Victoria ; JENKINS, Louis S. ; MUNNINGS, Margie ; GREY, Hilary ; NORTH, Zilla ; SCHUMANN, Helise ; DE KLERK-GREEN, Elmari
African journal of primary health care and family medicine, 31/10/2019, vol.11, n°1, p. e1-e11

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