VigiPallia : Résultats

NEONATALOGIE

0 sélectionnée(s) / 261 réponse(s)

(1) 2 3 4 ... 14 > »

Physicians' attitudes in relation to end-of-life decisions in neonatal intensive care units - a national multicenter survey

CHATZIIOANNIDIS, Ilias ; ILIODROMITI, Zoi ; BOUTSIKOU, Theodora ; POULIAKIS, Abraham ; GIOUGI, Evangelia ; SOKOU, Rozeta ; VIDALIS, Takis ; XANTHOS, Theodoros ; MARINA, Cuttini ; IACOVIDOU, Nicoletta
BMC medical ethics, 23/11/2020, vol.21, n°1, p. 1-10

Document en ligne

Decisions parents make when faced with potentially life-limiting fetal diagnoses and the importance of perinatal palliative care

MARC-AURELE, Krishelle L.
Frontiers in pediatrics, 2020, vol.8, p. 1-5

Document en ligne

Fostering vicarious resilience for perinatal palliative care professionals

GRAUERHOLZ, Kathryn R. ; FREDENBURG, Michaelene ; JONES, Premala Tara ; JENKINS, Kristy N.
Frontiers in pediatrics, 2020, vol.8, p. 1-15

Document en ligne

Caring for dying infants - a systematic review of healthcare providers' perspectives of neonatal palliative care

BELTRAN, Susanny J. ; HAMEL, Marie Nicole
The American journal of hospice and palliative care, 15/10/2020, Pagination inconnue

Document en ligne

Withholding or withdrawing life-sustaining treatment in extremely low gestational age neonates

DWORETZ, April R. ; NATARAJAN, Girija ; LANGER, John ; KINLAW, Kathy ; JAMES, Jennifer R. ; BIDEGAIN, Margarita ; DAS, Abhik ; POINDEXTER, Brenda ; BELL, Edward F. ; COTTEN, C. M. ; KIRPALANI, Haresh ; SHANKARAN, Seetha ; STOLL, Barbara J. ; EUNICE KENNEDY SHRIVER NATIONAL INSTITUTE OF CHILD HEALTH ; HUMAN DEVELOPMENT NEONATAL RESEARCH NETWORK
Archives of disease in childhood. Fetal and neonatal edition, 20/10/2020, Pagination inconnue

Document en ligne

Italian nurses' attitudes towards neonatal palliative care - a cross-sectional survey

CERRATTI, Francesca ; TOMIETTO, Marco ; DELLA PELLE, Carlo ; KAIN, Victoria ; DI GIOVANNI, Pamela ; RASERO, Laura ; CICOLINI, Giancarlo
Journal of nursing scholarship, 18/09/2020, Pagination inconnue

Document en ligne

My child's legacy - a mixed methods study of bereaved parents and providers' opinions about collaboration with NICU teams in quality improvement initiatives

BOURQUE, Claude Julie ; DAHAN, Sonia ; MANTHA, Ginette ; REICHHERZER, Martin ; JANVIER, Annie
BMJ Open, 06/09/2020, vol.10, n°9, p. 1-9

Document en ligne

Providing support for neonatal intensive care unit health care professionals - a bereavement debriefing program

HAWES, Katheleen ; GOLDSTEIN, Justin ; VESSELLA, Sharon ; TUCKER, Richard ; LECHNER, Beatrice E.
American journal of perinatology, 07/09/2020, Pagination inconnue

Document en ligne

Place du pédiatre en anténatal dans les situations d’anomalies fœtales sévères conduisant à la prise en charge palliative de l’enfant à la naissance

BETREMIEUX, P. ; DONNER, C.
Périnatalité, 01/06/2020, vol.12, n°2, p. 89-96

Document en ligne

A concept analysis of neonatal palliative care in nursing - introducing a dimensional analysis

BANAZADEH, Marjan ; RAFII, Forough
Comprehensive child and adolescent nursing, 13/08/2020, p. 1-26

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie.

NEONATALOGIE ; MEDECINE PALLIATIVE ; CONCEPT

Despite the increasing need for neonatal palliative care, it is not adequately implemented in practice. This analysis aimed to clarify the dimension of the neonatal palliative care concept to increase understanding of the concept to give more insight into clinical practice. Using dimensional analysis methodology, 46 English language papers from 2001-2018 were analyzed. The coding of the literature for the perspective, context, conditions, process, and consequences of the concept was completed. Five dimensions informed the conceptualization of this concept and interrelationships among their themes/sub-themes were presented in the matrix named, "improving quality of life and death". Within the family-centered care perspective and under different conditions/contexts through the processes of neonate's comfort and providing holistic care, the consequences of this care were improving quality of life/a good death. Family-centered care was the fundamental dimension and essential to achieving the consequences. The other dimensions of context, conditions, and processes were also affected by the family's needs, preferences, culture, and expectations. This analysis reinforces that neonatal palliative care is a multidimensional concept. To provide the standard of neonatal palliative care an integrated plan to get together many stakeholders including community, parents, clinical staff, policymakers, insurance authorities, health care systems, and education system is required. All NICUs should have neonatal palliative care-trained nurses and protocols with a family-centered care approach to focus on the quality of life of neonates with life-threatening conditions from diagnosis of disease to death. Regular training and educational courses on neonatal palliative care and family-centered care principles can make nurses more sensitive to their advocacy role.

Origine : PubMed

Manuel de soins palliatifs - clinique, psychologie, éthique

LE BERRE, Rozenn
Dunod , 08/2020 , 1260 p.

Neonatal palliative care - perception differences between providers

NIEHAUS, Jason Z. ; PALMER, Megan M. ; SLAVEN, James ; HATTON, Amy ; SCANLON, Caitlin ; HILL, Adam B.
Journal of perinatology, 13/07/2020, Pagination inconnue

Document en ligne

What children wished they had/had not done and their coping in the first 13 months after their sibling's neonatal/pediatric intensive care unit/emergency department death

YOUNGBLUT, JoAnne M. ; BROOTEN, Dorothy
JOURNAL OF PALLIATIVE MEDICINE, 08/07/2020, Pagination inconnue

Document en ligne

Expressivism at the beginning and end of life

REED, Philip
Journal of medical ethics, 08/2020, vol.46, n°8, p. 538-544

Document en ligne

La place des parents dans les décisions de LAT en néonatologie - témoignage argumenté et proposition

SPRANZI, Marta ; SENTEUR, Amélie
MEDECINE PALLIATIVE, 06/2020, vol.19, n°3, p. 168-171

Document en ligne

Physicians’ and nurses’ decision making to encounter neonates with poor prognosis in the neonatal intensive care unit

RAFIEE, Zahra ; RABIEE, Maryam ; RAFATI, Shiva ; REJEH, Nahid ; BORNA, Hajieh ; VAISMORADI, Mojtaba
Clinical ethics, 03/06/2020, Pagination inconnue

Document en ligne

Bereaved parents' perceptions of infant suffering in the NICU

FORTNEY, Christine A. ; BAUGHCUM, Amy E. ; MOSCATO, Emily L. ; WINNING, Adrien M. ; KEIM, Madelaine C. ; GERHARDT, Cynthia A.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1001-1008

Document en ligne

A review of approaches for resolving disputes between physicians and families on end-of-life care for newborns

CUMMINGS, Brian M. ; MERCURIO, Mark R. ; PARIS, John J.
Journal of perinatology, 11/05/2020, p. 1-5

Document en ligne

Close to home - perinatal palliative care in a community hospital

ZIEGLER, Tammy Ruiz ; KUEBELBECK, Amy
Advances in neonatal care, 06/2020, vol.20, n°3, p. 196-203

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie.

NEONATALOGIE ; DEMARCHE PALLIATIVE ; ETATS-UNIS

BACKGROUND: Advances in prenatal testing and diagnosis have resulted in more parents learning during pregnancy that their child may die before or shortly after birth. These advances in testing and diagnosis have also resulted in more parents choosing, despite the diagnosis, to continue their pregnancies and pursue a palliative approach to their infant's short life. Perinatal hospice and palliative care is a growing model of care developed in response to these parents' previously unmet needs. A seldom-discussed opportunity to provide this care exists in outlying community hospitals, which are ideally placed to provide care close to home for families who have chosen comfort measures and time with their child.
PURPOSE: This article reviews the definition and utility of perinatal palliative care, the population it serves, attempts to support a rational for development of community-based programs, and describes one community hospital's experience with perinatal palliative care in their community.*
METHODS/SEARCH STRATEGY: This article describes the development and processes of a perinatal palliative care program at a community hospital in Fredericksburg, Virginia.
IMPLICATIONS FOR PRACTICE: Perinatal palliative care can be developed with the assistance of already existing training materials, resources, and staff. While the cohort of patients may be small, implementing perinatal palliative care in a community setting may result in wider availability of this care and more accessible options for these families.
IMPLICATIONS FOR RESEARCH: Research possibilities include developing a template for creating a perinatal palliative care program at community hospitals that could be replicated elsewhere; assessing parental satisfaction and quality indicators of perinatal palliative care at community hospitals and at referral hospitals; and assessing outcomes in various settings.

Origine : PubMed

Conceptually redefining neonatal palliative care

KAIN, Victoria J. ; CHIN, Susan D.
Advances in neonatal care, 06/2020, vol.20, n°3, p. 187-196

Document en ligne

(1) 2 3 4 ... 14 > »

Actions

##titre_notice##