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NEONATALOGIE

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What children wished they had/had not done and their coping in the first 13 months after their sibling's neonatal/pediatric intensive care unit/emergency department death

YOUNGBLUT, JoAnne M. ; BROOTEN, Dorothy
JOURNAL OF PALLIATIVE MEDICINE, 08/07/2020, Pagination inconnue

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Expressivism at the beginning and end of life

REED, Philip
Journal of medical ethics, 08/2020, vol.46, n°8, p. 538-544

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La place des parents dans les décisions de LAT en néonatologie - témoignage argumenté et proposition

SPRANZI, Marta ; SENTEUR, Amélie
MEDECINE PALLIATIVE, 06/2020, vol.19, n°3, p. 168-171

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Physicians’ and nurses’ decision making to encounter neonates with poor prognosis in the neonatal intensive care unit

RAFIEE, Zahra ; RABIEE, Maryam ; RAFATI, Shiva ; REJEH, Nahid ; BORNA, Hajieh ; VAISMORADI, Mojtaba
Clinical ethics, 03/06/2020, Pagination inconnue

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Bereaved parents' perceptions of infant suffering in the NICU

FORTNEY, Christine A. ; BAUGHCUM, Amy E. ; MOSCATO, Emily L. ; WINNING, Adrien M. ; KEIM, Madelaine C. ; GERHARDT, Cynthia A.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1001-1008

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A review of approaches for resolving disputes between physicians and families on end-of-life care for newborns

CUMMINGS, Brian M. ; MERCURIO, Mark R. ; PARIS, John J.
Journal of perinatology, 11/05/2020, p. 1-5

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Close to home - perinatal palliative care in a community hospital

ZIEGLER, Tammy Ruiz ; KUEBELBECK, Amy
Advances in neonatal care, 06/2020, vol.20, n°3, p. 196-203

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

NEONATALOGIE ; DEMARCHE PALLIATIVE ; ETATS-UNIS

BACKGROUND: Advances in prenatal testing and diagnosis have resulted in more parents learning during pregnancy that their child may die before or shortly after birth. These advances in testing and diagnosis have also resulted in more parents choosing, despite the diagnosis, to continue their pregnancies and pursue a palliative approach to their infant's short life. Perinatal hospice and palliative care is a growing model of care developed in response to these parents' previously unmet needs. A seldom-discussed opportunity to provide this care exists in outlying community hospitals, which are ideally placed to provide care close to home for families who have chosen comfort measures and time with their child.
PURPOSE: This article reviews the definition and utility of perinatal palliative care, the population it serves, attempts to support a rational for development of community-based programs, and describes one community hospital's experience with perinatal palliative care in their community.*
METHODS/SEARCH STRATEGY: This article describes the development and processes of a perinatal palliative care program at a community hospital in Fredericksburg, Virginia.
IMPLICATIONS FOR PRACTICE: Perinatal palliative care can be developed with the assistance of already existing training materials, resources, and staff. While the cohort of patients may be small, implementing perinatal palliative care in a community setting may result in wider availability of this care and more accessible options for these families.
IMPLICATIONS FOR RESEARCH: Research possibilities include developing a template for creating a perinatal palliative care program at community hospitals that could be replicated elsewhere; assessing parental satisfaction and quality indicators of perinatal palliative care at community hospitals and at referral hospitals; and assessing outcomes in various settings.

Origine : PubMed

Conceptually redefining neonatal palliative care

KAIN, Victoria J. ; CHIN, Susan D.
Advances in neonatal care, 06/2020, vol.20, n°3, p. 187-196

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Ethical dilemmas at the beginning and end of life - a needs-based, experience-informed, small-group, case-based curriculum for pediatric residents

HERBST, Lori A. ; DESANTE-BERTKAU, Jennifer
MedEdPORTAL, 03/04/2020, vol.16, p. 1-7

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Specialized pediatric palliative care in neonates with life-limiting illness - a systematic review

ZUNIGA-VILLANUEVA, Gregorio ; WIDGER, Kimberley ; MEDEIROS, Christina ; TRENHOLM, Madeline ; STREULI, Jürg C.
American journal of perinatology, 24/04/2020, Pagination inconnue

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Use of palliative care consultation services for infants with life-threatening conditions in a metropolitan hospital

MCLAUGHLIN, S. Nicole ; SONG, Mi-Kyung ; HERTZBERG, Vicki ; PIAZZA, Anthony J.
Advances in neonatal care, 04/2020, vol.20, n°2, p. 136-141

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Neonatal resuscitation and postresuscitation care of infants born to mothers with suspected or confirmed SARS-CoV-2 infection

CHANDRASEKHARAN, Praveen ; VENTO, Maximo ; TREVISANUTO, Daniele ; PARTRIDGE, Elizabeth ; UNDERWOOD, Mark A. ; WIEDEMAN, Jean ; KATHERIA, Anup ; LAKSHMINRUSIMHA, Satyan
American journal of perinatology, 08/04/2020, vol.37, n°S01, p. 1-12

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Palliative care and grief counseling in peri- and neonatology - recommendations from the German PaluTiN group

GARTEN, Lars ; GLOBISCH, Marcel ; VON DER HUDE, Kerstin ; JÄKEL, Karin ; KNOCHEL, Kathrin ; KRONES, Tanja ; NICIN, Tatjana ; OFFERMANN, Franziska ; SCHINDLER, Monika ; SCHNEIDER, Uwe ; SCHUBERT, Beatrix ; STRAHLECK, Thomas ; PALUTIN GROUP
Frontiers in pediatrics, 2020, vol.8, p. 1-11

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Nurses' perceptions of the palliative care needs of neonates with multiple congenital anomalies

SENER TAPLAK, Ayse ; GUROL, Ayse ; POLAT, Sevinc
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 04/2020, vol.22, n°2, p. 137-144

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Initiating end-of-life decisions with parents of infants receiving neonatal intensive care

SHAW, Chloe ; CONNABEER, Kathrina ; DREW, Paul ; GALLAGHER, Katie ; ALADANGADY, Narendra ; MARLOW, Neil
Patient education and counseling, 10/02/2020, Pagination inconnue

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Neonatal end-of-life decision-making almost 20 years after the EURONIC study - a French survey

BOIZE, P. ; BORRHOMEE, S. ; MICHEL, P. ; BETREMIEUX, P. ; HUBERT, P. ; MORIETTE, G.
Archives de pédiatrie, 09/2019, vol.26, n°6, p. 330-336

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Translation, cultural, and age-related adaptation and psychometric properties of Persian version of "quality of dying and death" in nurses working in neonatal intensive care units

MOSLEMI, Mahsa ; NIKFARID, Lida ; NOURIAN, Manijeh ; NASIRI, Maliheh ; REZAYI, Ferershteh
Indian journal of palliative care, 03/2020, vol.26, n°1, p. 34-39

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Developing a perinatal palliative care service package for women with fetal anomaly diagnosis - protocol for mixed methods study

RAISI DEHKORDI, Ziba ; KOHAN, Shahnaz ; RASSOULI, Maryam ; ZAREAN, Elahe ; MALEKIAN, Azadeh
Reproductive health, 04/03/2020, vol.17, n°1, p. 1-6

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Comparison of end-of-life care practices between children with complex chronic conditions and neonates dying in an ICU Versus Non-ICUs - a substudy of the pediatric end-of-life care needs in Switzerland (PELICAN) project

RAMELET, Anne-Sylvie ; BERGSTRAESSER, Eva ; GRANDJEAN, Chantal ; DORSAZ, Anouk ; FAHRNI-NATER, Patricia ; CIGNACCO, Eva ; ZIMMERMAN, Karin ; PEDIATRIC END-OF-LIFE CARE NEEDS IN SWITZERLAND (PELICAN) CONSORTIUM
Pediatric critical care medicine, 21/02/2020, Pagination inconnue

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Early palliative balloon pulmonary valvuloplasty in neonates and young infants with tetralogy of Fallot

MUNEUCHI, Jun ; WATANABE, Mamie ; SUGITANI, Yuichiro ; KAWAGUCHI, Naoki ; MATSUOKA, Ryohei ; ANDO, Yusuke ; OCHIAI, Yoshie
Heart and vessels, 02/2020, vol.35, n°2, p. 252-258

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

NEONATALOGIE ; CARDIOLOGIE ; PRISE EN CHARGE

We aim to clarify the efficacy of early palliative balloon pulmonary valvuloplasty (BPV) in neonates and young infants (< 60 days) with tetralogy of Fallot (TOF). We performed palliative BPV in 31 subjects, regardless of the presence of cyanosis, with Z score of the pulmonary valve diameter (PVD) less than - 2.00. Primary and secondary endpoints were to avoid early surgical interventions for subjects within 6 months of age and to undergo the pulmonary valve-sparing procedure at corrective surgery, respectively. We studied factors associated with these outcomes among them. BPV was performed at 19 days (14–33) of age and with a weight of 3.34 kg (3.02–3.65). Systemic oxygen saturation, Z score of the PVD, and pulmonary arterial index (PAI) were 87% (81–91), - 3.56 (- 4.15 to - 2.62), and 128 mm2/m2 (102–157), respectively. There were 16 and 13 subjects who avoided early surgical interventions and transannular repair, respectively. At the primary endpoint, there was no significant difference in age, weight, systemic oxygen saturation, and Z score of the PVD and PAI between the groups. However, there was a significant difference in the infundibular morphology (severe: mild-to-moderate, 8:8 vs 13:2, P = 0.029) between the groups. We performed prophylactic BPV within 30 days after birth in 7 acyanotic TOF patients with severe infundibular obstruction, among whom 5 avoided early surgical intervention. At the secondary endpoint, there were no significant difference in weight, systemic oxygen saturation, but in sex, age at BPV, and Z score of the PVD. Early palliative BPV prevented early surgical intervention in half of the neonates and young infants with TOF, which depended upon the degree of infundibular obstruction. However, early palliative BPV did not contribute to avoid transanular patch right-ventricular outflow repair among them.

Origine : PubMed

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