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A randomized, placebo-controlled, double-blind study of mocycline for reducing the symptom burden experienced by patients with advanced pancreatic cancer

KAMAL, Mona ; WANG, Xin Shelley ; SHI, Qiuling ; MENDOZA, Tito ; GARCIA-GONZALEZ, Araceli ; BOKHARI, Raza H. ; CLEELAND, Charles S. ; FOGELMAN, David R.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1052-1058

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Advance directive preferences of patients with chronic and terminal illness towards end of life decisions - a sample from Saudi Arabia

BAHAROON, Salim ; ALZAHRANI, Mohsen ; ALSAFI, Eiman ; LAYQAH, Laila ; AL-JAHDALI, Hamdan ; AHMED, Anwar
Eastern Mediterranean health journal, 25/11/2019, vol.25, n°11, p. 791-797

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Worry as a mechanism to motivate information seeking about protective end-of-life communication behaviors

SEITER, Christian R. ; BROPHY, Nate S.
JOURNAL OF HEALTH COMMUNICATION, 18/05/2020, p. 1-8

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Association between perceived threat and the development of posttraumatic stress disorder symptoms in patients with life-threatening medical emergencies

MOSS, Jeena ; ROBERTS, Michael B. ; SHEA, Lisa ; JONES, Christopher W. ; KILGANNON, Hope ; EDMONDSON, Donald E. ; TRZECIAK, Stephen ; ROBERTS, Brian W.
Academic emergency medicine, 01/01/2020, vol.27, n°2, p. 109-116

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Effect of family centered (FACE®) advance care planning on longitudinal congruence in end-of-life treatment preferences - a randomized clinical trial

LYON, Maureen E. ; SQUIRES, Leah ; SCOTT, Rachel K. ; BENATOR, Debra ; BRIGGS, Linda ; GREENBERG, Isabella ; D'ANGELO, Lawrence J. ; CHENG, Yao Iris ; WANG, Jichuan
AIDS and behavior, 12/05/2020, Pagination inconnue

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Feasibility of delivering a tailored intervention for advance care planning in primary care practice

PAIVA, Andrea ; REDDING, Colleen A. ; IANNONE, Lynne ; ZENONI, Maria ; O'LEARY, John R. ; FRIED, Terri R.
Journal of the American Geriatrics Society, 01/01/2019, vol.67, n°9, p. 1917-1921

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Decisional control preferences in the Hispanic population in the Bronx

CARDENAS, Jhosselini ; INFANTE, Pamela ; INFANTE, Abel ; CHUANG, Elizabeth ; SELWYN, Peter
Journal of cancer education, 01/01/2019, vol.34, n°3, p. 472-477

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Preferred and actual place of death in haematological malignancies - a report from the UK haematological malignancy research network

SHERIDAN, Rebecca ; ROMAN, Eve ; SMITH, Alex G. ; TURNER, Andrew ; GARRY, Anne C. ; PATMORE, Russell ; HOWARD, Martin R. ; HOWELL, Debra A.
BMJ supportive and palliative care, 11/05/2020, p. 1-10

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A mixed-methods pilot study of "LIFEView" audiovisual technology - virtual travel to support well-being and quality of life in palliative and end-of-life care patients

KABIR, Monisha ; RICE, Jill L. ; BUSH, Shirley H. ; LAWLOR, Peter G. ; WEBBER, Colleen ; GRASSAU, Pamela A. ; GHAEDI, Bahareh ; DHUPER, Misha ; HACKBUSCH, Rebekah
PALLIATIVE MEDICINE, 08/05/2020, p. 1-12

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Palliative care skills in cf - perspectives of adults with cf, caregivers, and cf care team members

TRANDEL, Elizabeth T. ; KAVALIERATOS, Dio ; BASILE, Melissa ; HOBLER, Mara R. ; GEORGIOPOULOS, Anna M. ; CHEN, Elaine ; GOGGIN, Jessica L. ; GOSS, Christopher H. ; HEMPSTEAD, Sarah E. ; FARO, Albert ; DELLON, Elisabeth P.
Pediatric pulmonology, 08/05/2020, Pagination inconnue

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Advance directives for dementia can elicit preferences to improve patient care

MEREL, Susan E. ; GASTER, Barak
Journal of the American Geriatrics Society, 06/05/2020, Pagination inconnue

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Managing death - navigating divergent logics in end-of-life care

BAILEY, Simon ; HODGSON, Damian ; LENNIE, Sarah-Jane ; BRESNEN, Mike ; HYDE, Paula
Sociology of health and illness, 06/05/2020, p. 1-19

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Exploring patients' experience with clinicians who recognize their unmet palliative needs - an inpatient study

GACE, Denisa ; SOMMER, Robert K. ; DAUBMAN, Bethany-Rose ; GREER, Joseph A. ; JACOBSEN, Juliet ; LASALA, Cynthia ; ROSENBERG, Leah B. ; GREENWALD, Jeffrey L.
JOURNAL OF PALLIATIVE MEDICINE, 04/05/2020, Pagination inconnue

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Perioperative do-not-resuscitate suspension - the patient's perspective

HIESTAND, Debbie ; BEAMAN, Margaret
AORN journal, 01/01/2019, vol.109, n°3, p. 326-334

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Complementary music therapy for cancer patients in at-home palliative care and their caregivers - protocol for a multicentre randomised controlled trial

VALERO-CANTERO, Inmaculada ; MARTINEZ-VALERO, Francisco Javier ; ESPINAR-TOLEDO, Milagrosa ; CASALS, Cristina ; BARON-LOPEZ, Francisco Javier ; VAZQUEZ-SANCHEZ, Maria Angeles
BMC palliative care, 02/05/2020, vol.19, n°1, p. 1-11

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Terminally ill cancer patients' emotional preparedness for death is distinct from their accurate prognostic awareness

TANG, Siew Tzuh ; CHOU, Wen-Chi ; HSIEH, Chia-Hsun ; CHANG, Wen-Cheng ; CHEN, Jen-Shi ; WEN, Fur-Hsing
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 30/04/2020, p. 1-9

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Life and priorities before death - a narrative inquiry of uncertainty and end of life in people with heart failure and their family members

MOLZAHN, Anita E. ; SHEILDS, Laurene ; BRUCE, Anne ; SCHICK-MAKAROFF, Kara ; ANTONIO, Marcy ; CLARK, Alexander M.
European journal of cardiovascular nursing, 27/04/2020, Pagination inconnue

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Battle, journey, imprisonment and burden - patterns of metaphor use in blogs about living with advanced cancer

HOMMERBERG, Charlotte ; GUSTAFSSON, Anna W. ; SANDGREN, Anna
BMC palliative care, 25/04/2020, vol.19, n°1, p. 1-10

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Crisis hits end-of-life care

WILSON, Clare
New scientist, 25/04/2020, vol.246, n°3279, p. 10

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Evaluation of a collaborative advance care planning intervention among older adult home health patients and their caregivers

TAY, Djin L. ; ELLINGTON, Lee ; TOWSLEY, Gail L. ; SUPIANO, Katherine ; BERG, Cynthia A.
JOURNAL OF PALLIATIVE MEDICINE, 27/03/2020, Pagination inconnue

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Thème : Soins.

PROJET SOIN ANTICIPE ; PATIENT ; AIDANT ; COOPERATION ; PERSONNE AGEE

Background: Caregivers are decision stakeholders; yet, few interventions have been developed to help patients and caregivers collaborate on advance care planning (ACP).
Objective: To evaluate a theory-based ACP pilot intervention, Deciding Together, to improve decisional quality, readiness, collaboration, and concordance in ACP decisions for older adult home health (HH) patients and caregivers.
Design: A one-group, pre- and posttest study using matched questionnaires was conducted. The intervention consisted of a clinical vignette, theoretically guided conversation prompts, and a shared decision-making activity.
Setting/Subjects:N = 36 participants (n = 18 HH patients; n = 18 family and nonfamily caregivers) were purposively recruited from a HH agency to participate in the intervention at patients' homes.
Measurements: Demographic and baseline measures were collected for relationship quality, health status, and previous ACP engagement. Outcome measures included perceptions of collaboration, readiness for ACP, concordance in life-sustaining treatment preferences (cardiopulmonary resuscitation, antibiotics, artificial nutrition and hydration, and mechanical ventilation), and decisional conflict. Descriptive statistics, Cohen's coefficients, paired t tests, McNemar's tests, and Wilcoxon signed-rank tests (and effect size estimates, r = z/vN) were calculated using R-3.5.1 (p < 0.05). Single value imputation was used for missing values.
Results: While no significant differences were found for perceptions of collaboration, and readiness for ACP, patients (r = 0.38, p = 0.02) and caregivers (r = 0.38, p = 0.02) had reduced decisional conflict at posttest. Patients' and caregivers' agreement increased by 27.7% for an item assessing patients' preference for artificial nutrition and hydration (p = 0.03).
Conclusions: This study suggests that collaborative ACP decision making may improve decisional conflict for older adult HH patients and their caregivers.

Origine : DOI.org (Crossref

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