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PEDIATRIE

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HIRSCH, Emmanuel
Erès , 2016 , 856 p.

Investigation of modifiable variables to increase hospice nurse comfort with care provision to children and families in the community - a population-level study across Tennessee, Mississippi, and Arkansas

KAYE, Erica C. ; GATTAS, Melanie ; KIEFER, Ashley ; REYNOLDS, Jason ; ZALUD, Kristina ; LI, Chen ; LU, Zhaohua ; BAKER, Justin N.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 07/2020, 10 p.

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A novel narrative e-writing intervention for parents of children with chronic life-threatening illnesses - protocol for a pilot, open-label randomized controlled trial

HO, Andy Hau Yan ; DUTTA, Oindrila ; TAN-HO, Geraldine ; TAN, Toh Hsiang Benny ; LOW, Casuarine Xinyi ; GANAPATHY, Sashikumar ; CAR, Josip ; HO, Ringo Moon-Ho ; MIAO, Chun Yan
JMIR research protocols, 07/2020, vol.9, n°7, 14 p.

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Barriers in care for children with life-threatening conditions - a qualitative interview study in the Netherlands

BROUWER, Marije ; MAECKELBERGHE, Els L. M. ; VAN DER HEIDE, Agnes ; HEIN, Irma ; VERHAGEN, Eduard
BMJ Open, 06/2020, vol.10, n°6, 9 p.

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Primary palliative care - skills for all clinicians

SREEDHAR, Sue S. ; KRAFT, Colleen ; FRIEBERT, Sarah
Current problems in pediatric and adolescent health care, 29/06/2020, Pagination inconnue

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End-of-life care in a pediatric intensive care unit - the impact of the development of a palliative care unit

BOBILLO-PEREZ, Sara ; SEGURA, Susana ; GIRONA-ALARCON, Monica ; FELIPE, Aida ; BALAGUER, Monica ; HERNANDEZ-PLATERO, Lluisa ; SOLE-RIBALTA, Anna ; GUITART, Carmina ; JORDAN, Iolanda ; CAMBRA, Francisco Jose
BMC palliative care, 28/05/2020, vol.19, n°1, p. 1-8

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Palliative and end of life care for a child - understanding parents’ coping strategies

DARLINGTON, As. ; RANDALL, D. ; LEPPARD, L. ; KOH, M.
Acta paediatrica, 21/06/2020, Pagination inconnue

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Social work in a time of social distance

CRAWFORD, Claire
Journal of social work in end-of-life and palliative care, 31/05/2020, p. 1-3

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Development of an instrument to measure stress in Korean nurses performing end-of-life care for children

PARK, So Yeon ; JU, Hyeon Ok
Journal of pediatric nursing, 06/2020, Pagination inconnue

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Lessons learned - identifying items felt to be critical to leading a pediatric palliative care program in the current era of program development

MILLER, Elissa G. ; WEAVER, Meaghann S. ; RAGSDALE, Lindsay ; HILLS, Tracy ; HUMPHREY, Lisa ; WILLIAMS, Conrad S.P. ; MORVANT, Alexis ; PITTS, Blaine ; WALDMAN, Elisha ; LOTSTEIN, Debra ; LINEBARGER, Jennifer ; FEUDTNER, Chris ; KLICK, Jeffrey C.
JOURNAL OF PALLIATIVE MEDICINE, 16/06/2020, Pagination inconnue

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Customized pediatric palliative care - integrating oncological and palliative care priorities

PODDA, Marta ; SCHIAVELLO, Elisabetta ; VISCONTI, Giovanna ; CLERICI, Carlo ; ARMIRAGLIO, Mariangela ; CASIRAGHI, Giovanna ; AMBROSET, Sonia ; GROSSI, Alberto ; RIZZI, Barbara ; LONATI, Giada ; MASSIMINO, Maura
Acta paediatrica, 16/06/2020, Pagination inconnue

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Racial differences in do-not-resuscitate orders among pediatric surgical patients in the United States

MPODY, Christian ; HUMPHREY, Lisa ; KIM, Stephani ; TOBIAS, Joseph D. ; NAFIU, Olubukola O.
JOURNAL OF PALLIATIVE MEDICINE, 15/06/2020, Pagination inconnue

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Management strategies adopted by a pediatric palliative care network in northern Italy during the Covid-19 pandemic

LAZZARIN, Pierina ; AVAGNINA, Irene ; DIVISIC, Antuan ; AGOSTO, Caterina ; GIACOMELLI, Luca ; BENINI, Franca
Acta paediatrica, 13/06/2020, p. 1-2

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Patterns of hospice and home-based palliative care in children - an Ohio pediatric palliative care and end-of life network study

GROSSOEHME, Daniel H. ; HUMPHREY, Lisa ; FRIEBERT, Sarah ; DING, Lili ; YANG, Gang ; ALLMENDINGER-GOERTZ, Kristine ; FRYDA, Zachary ; FOSSELMAN, David ; THIENPRAYOON, Rachel
The journal of pediatrics, 06/2020, Pagination inconnue

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Human touch via touchscreen - rural nurses’ experiential perspectives on telehealth use in pediatric hospice care

WEAVER, Meaghann S. ; NEUMANN, Marie L. ; NAVANEETHAN, Hema ; ROBINSON, Jacob E. ; HINDS, Pamela S.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 06/2020, p. 1-14

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Pediatric cardiac critical care transport and palliative care - a case series

GARCIA, Xiomara ; FRAZIER, Elizabeth ; KANE, Janie ; JONES, Amber ; BROWN, Carrie ; BRYANT, Tonja ; PRODHAN, Parthak
American journal of hospice and palliative medicine, 28/05/2020, Pagination inconnue

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Perceptions of adolescents with cancer undergoing palliative care about their illness process

GUIMARAES, Tuani Magalhães ; PACHECO, Sandra Teixeira de Araújo ; NUNES, Michelle Darezzo Rodrigues ; SILVA, Liliane Faria da
Revista gaúcha de enfermagem, 2020, vol.41, p. 1-9

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Use of subcutaneous fluids in palliative care with children - a case study

SMITH, A. ; BRIMBLE, M.J.
Nursing children and young people, 15/06/2020, Pagination inconnue

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Conceptions of dignity in the Charlie Gard, Alfie Evans and Isaiah Haastrup cases

JONAS, Monique ; EVANS, Amanda
Bioethics, 19/06/2020, Pagination inconnue

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Perspectives of speech and language therapists in paediatric palliative care - an international exploratory study

KRIKHELI, Lillian ; ERICKSON, Shane ; CAREY, Lindsay B. ; CAREY‐SARGEANT, Christa L. ; MATHISEN, Bernice A.
International journal of language and communication disorders, 25/05/2020, Pagination inconnue

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Thème : Soins.

ORTHOPHONISTE ; DEMARCHE PALLIATIVE ; PEDIATRIE ; ROLE

Background: The involvement of speech and language therapists (SLTs) within paediatric palliative care (PPC) settings has been recognized within the extant literature. However, there is little understanding of SLT's specific roles and practices when working with this vulnerable cohort of children and their families. As part of a larger body of work to develop consensus-based recommendations for SLTs working in PPC, it is important to investigate demographic and caseload characteristics.
Aims: This exploratory study aimed to gather previously undocumented international demographic data pertaining to SLT service provision, caseload and training in PPC. Additionally, it sought to ascertain the current treatment and assessment approaches of SLTs, and if variations exist in beliefs and practices.
Methods & Procedures: An anonymous cross-sectional survey was designed and reported according to the Checklist for Reporting Results of Internet E-Surveys (CHERRIES). The online survey consisted of 40 items spanning four domains: (1) demographic information, (2) caseload information, (3) service provision and (4) training and education. SLTs from Australia, Canada, New Zealand, the UK, Ireland and the United States were recruited using a purposive snowball sampling approach. Descriptive analysis of closed-ended survey responses and content analysis of open-ended responses are presented.
Outcomes & Results: A total of 52 respondents completed the survey. SLTs worked in a variety of PPC settings, with patients of varying age and disease groups. Over 50% of participants reported working in PPC for = 4 years. Genetic disorders (34%), oncology (27%) and neurological conditions (21%) made up a significant portion of respondents’ caseloads. Reported treatments and assessment approaches used by SLTs are not unique to a PPC population. Barriers and enablers for practice were identified. A portion of participants did not feel trained and prepared to assess (19.2%) or treat (15.4%) PPC clients.
Conclusions & Implications: This study confirms that SLTs internationally have a role in the management of communication and swallowing impairments in a PPC context. However, whether current training and resources adequately support SLTs in this role remains questionable. This paper helps to provide SLTs, administrators, professional associations and tertiary institutions with foundational data to help inform workforce planning, advocacy efforts and training priorities.

Origine : DOI.org (Crossref

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