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"Sédation" ou "pratiques sédatives à visée palliative en fin de vie" ? - une étude linguistique des recommandations francophones en matière de sédation en soins palliatifs chez l’adulte

TOMCZYK, Martyna ; VIALLARD, Marcel-Louis ; BELOUCIF, Sadek
RECHERCHE EN SOINS INFIRMIERS, 2020, vol.143, n°4, p. 106-117

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What should we report? - lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care

DUNLEAVY, Lesley ; COLLINGRIDGE MOORE, Danni ; KORFAGE, Ida ; PAYNE, Sheila ; WALSHE, Catherine ; PRESTON, Nancy
BMC palliative care, 20/01/2021, vol.20, n°1, p. 1-8

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Thème : Médecine. Cote : eD03.06

RECOMMANDATION ; EFFET SECONDAIRE ; ESSAI CLINIQUE ; MEDECINE PALLIATIVE

BACKGROUND/AIMS: Serious adverse event reporting guidelines have largely been developed for pharmaceutical trials. There is evidence that serious adverse events, such as psychological distress, can also occur in non-pharmaceutical trials. Managing serious adverse event reporting and monitoring in palliative care non-pharmaceutical trials can be particularly challenging. This is because patients living with advanced malignant or non-malignant disease have a high risk of hospitalisation and/or death as a result of progression of their disease rather than due to the trial intervention or procedures. This paper presents a number of recommendations for managing serious adverse event reporting that are drawn from two palliative care non-pharmacological trials.
METHODS: The recommendations were iteratively developed across a number of exemplar trials. This included examining national and international safety reporting guidance, reviewing serious adverse event reporting procedures from other pharmacological and non-pharmacological trials, a review of the literature and collaboration between the ACTION study team and Data Safety Monitoring Committee. These two groups included expertise in oncology, palliative care, statistics and medical ethics and this collaboration led to the development of serious adverse event reporting procedures.
RESULTS: The recommendations included; allowing adequate time at the study planning stage to develop serious adverse event reporting procedures, especially in multi-national studies or research naïve settings; reviewing the level of trial oversight required; defining what a serious adverse event is in your trial based on your study population; development and implementation of standard operating procedures and training; refining the reporting procedures during the trial if necessary and publishing serious adverse events in findings papers.
CONCLUSIONS: There is a need for researchers to share their experiences of managing this challenging aspect of trial conduct. This will ensure that the processes for managing serious adverse event reporting are continually refined and improved so optimising patient safety.
TRIAL REGISTRATION: ACTION trial registration number: ISRCTN63110516 (date of registration 03/10/2014). Namaste trial registration number: ISRCTN14948133 (date of registration 04/10/2017).

Origine : PubMed

Antibiotic use towards the end of life - development of good practice recommendations

SEATON, R. Andrew ; COOPER, Lesley ; FAIRWEATHER, Jack ; FENNING, Stephen ; FERGUSON, Libby ; GALBRAITH, Susan ; DUFFY, Tony ; SNEDDON, Jacqueline
BMJ supportive and palliative care, 19/01/2021, Pagination inconnue

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Etat des lieux des recommandations sur la sédation palliative chez l’adulte dans les pays francophones

TOMCZYK, Martyna ; VIALLARD, Marcel-Louis ; BELOUCIF, Sadek
Bulletin du cancer, 15/01/2021, p. 1-11

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Multimorbidity through the lens of life-limiting illness - how helpful are Australian clinical practice guidelines to its management in primary care?

DAMARELL, Raechel A. ; MORGAN, Deidre D. ; TIEMAN, Jennifer J. ; HEALEY, David F.
Australian journal of primary health, 19/01/2021, Pagination inconnue

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"Desire to die" in palliative care patients - legal framework and recommendations of the national evidence-based guideline on palliative care in Germany

KREMEIKE, Kerstin ; PRALONG, Anne ; BOSTRÖM, Kathleen ; BAUSEWEIN, Claudia ; SIMON, Steffen T. ; LINDNER, Reinhard ; VOLTZ, Raymond ; WORKING GROUP ON DESIRE TO DIE OF THE GERMAN PALLIATIVE CARE GUIDELINE
Annals of palliative medicine, 05/01/2021, p. 1-18

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Inconsistency in brain death determination should not be tolerated

BARNES, Erin ; GREER, David
AMA journal of ethics, 01/12/2020, vol.22, n°12, p. 1027-1032

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Palliative radiotherapy during the last month of life - have Covid-19 recommendations led to reduced utilization?

NIEDER, Carsten ; HAUKLAND, Ellinor C. ; MANNSAKER, Bard ; YOBUTA, Rosalba
In vivo, 02/2021, vol.35, n°1, p. 649-652

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Palliative care needs among patients with advanced illnesses in Bhutan

LAABAR, Tara Devi ; SAUNDERS, Christobel ; AURET, Kirsten ; JOHNSON, Claire E.
BMC palliative care, 09/01/2021, vol.20, n°1, 10 p.

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Bolstering general practitioner palliative care - a critical review of support provided by Australian guidelines for life-limiting chronic conditions

DAMARELL, Raechel A. ; MORGAN, Deidre D. ; TIEMAN, Jennifer J. ; HEALEY, David
Healthcare, 11/12/2020, vol.8, n°4, p. 1-15

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Summary of the key concepts on how to develop a perinatal palliative care program

LAGO, Paola ; CAVICCHIOLO, Maria Elena ; RUSALEN, Francesca ; BENINI, Franca
Frontiers in pediatrics, 2020, vol.8, p. 1-9

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Decision making for patients with advanced dementia and a hip fracture #388

BUKOWY, Elizabeth A. ; THIEL, Elizabeth
JOURNAL OF PALLIATIVE MEDICINE, 03/2020, vol.23, n°3, p. 422-423

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Maternal grief - analysis and therapeutic recommendations

MEISENHELDER, Janice Bell
BMJ supportive and palliative care, 25/11/2020, Pagination inconnue

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Advancing palliative care in patients with CKD - from ideas to practice

CHIU, Helen H.-L. ; MURPHY-BURKE, Donna M. ; THOMAS, Sarah A. ; MELNYK, Yuriy ; KRUTHAUP-HARPER, Alexandra L. ; DONG, Janghu James ; DJURDJEV, Ognjenka ; SAUNDERS, Sushila ; LEVIN, Adeera ; KARIM, Mohamud ; HARGROVE, Gaylene M. ; BC RENAL PALLIATIVE CARE COMMITTEE
American journal of kidney diseases, 09/11/2020, p. 1-7

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Collateral damage - how the Covid-19 pandemic has affected the dying process of palliative care patients in hospitals-our experience and recommendations

ONG, King Jane ; LIM, Michelle Yin Yin ; CHNG, Jan Xue Ren ; WONG, Yoke Ping ; KOH, Lip Hoe
Annals of the Academy of Medicine, Singapore, 08/2020, vol.49, n°8, p. 618-622

Death and grieving for family caregivers of loved ones with life-limiting illnesses in the era of Covid-19 - considerations for case managers

HOLLAND, Diane E. ; VANDERBOOM, Catherine E. ; DOSE, Ann Marie ; MOORE, Derek ; ROBINSON, Kelly V. ; WILD, Ellen ; STILES, Carole ; INGRAM, Cory ; MANDREKAR, Jay ; BORAH, Bijan ; TAYLOR, Erin ; GRIFFIN, Joan M.
Professional case management, 10/11/2020, Pagination inconnue

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Childhood cancer in Latin America - from detection to palliative care and survivorship

GUZMAN C, Paula Carolina ; CORDOBA, Maria Adelaida ; GODOY, Natalia ; CASTAÑO, Alexandra ; BRAGA RIBEIRO, Karina ; MORENO, Florencia ; DE VRIES, Esther
Cancer epidemiology, 26/10/2020, Pagination inconnue

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Deep brain stimulation at end of life - clinical and ethical considerations

SANKARY, Lauren R. ; FORD, Paul J. ; MACHADO, Andre G. ; HOEKSEMA, Laura J. ; SAMALA, Renato V. ; HARRIS, David J.
JOURNAL OF PALLIATIVE MEDICINE, 04/2020, vol.23, n°4, p. 582-585

Recommendations on covid-19 triage - international comparison and ethical analysis

JOBGES, Susanne ; VINAY, Rasita ; LUYCKX, Valerie A. ; BILLER-ANDORNO, Nikola
Bioethics, 25/09/2020, p. 1-12

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Japan Geriatrics Society "recommendations for the promotion of advance care planning" - end-of-life issues subcommittee consensus statement

JAPAN GERIATRICS SOCIETY SUBCOMMITTEE ON END-OF-LIFE ISSUES ; KUZUYA, Masafumi ; AITA, Kaoruko ; KATAYAMA, Yoko ; KATSUYA, Tomohiro ; NISHIKAWA, Mitsunori ; HIRAHARA, Satoshi ; MIURA, Hisayuki ; RAKUGI, Hiromi ; AKISHITA, Masahiro
Geriatrics and gerontology international, 23/09/2020, p. 1-5

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