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General practice nurses and physicians and end of life - a systematic review of models of care

MITCHELL, Geoffrey ; AUBIN, Michèle ; SENIOR, Hugh ; JOHNSON, Claire ; FALLON-FERGUSON, Julia ; WILLIAMS, Briony ; MONTEROSSO, Leanne ; RHEE, Joel J. ; MAC VEY, Peta ; GRANT, Matthew ; NWACHUKWU, Harriet ; YATES, Patsy
BMJ supportive and palliative care, 27/07/2020, Pagination inconnue

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Euthanasia and assisted suicide in patients with personality disorders - a review of current practice and challenges

MEHLUM, Lars ; SCHMAHL, Christian ; BERENS, Ann ; DOERING, Stephan ; HUTSEBAUT, Joost ; KAERA, Andres ; KRAMER, Ueli ; MORAN, Paul Anthony ; RENNEBERG, Babette ; RIBAUDI, Joaquim Soler ; SIMONSEN, Sebastian ; SWALES, Michaela ; TAUBNER, Svenja ; DI GIACOMO, Ester
Borderline personality disorder and emotion dysregulation, 2020, vol.7, p. 1-7

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Thème : Ethique et déontologie. Cote : eD13

EUTHANASIE ; SUICIDE MEDICALEMENT ASSISTE ; REVUE LITTÉRATURE ; PSYCHIATRIE

Background: Over the last two decades an increasing number of countries have legalized euthanasia and physician-assisted suicide (EAS) leading to considerable debate over the inherent ethical dilemmas. Increasing numbers of people with personality disorders, faced with unbearable suffering, have requested and received assistance in terminating their lives. EAS in people with personality disorders has, however, received very sparse attention from clinicians and researchers. In this paper, we examine the literature on the practice and prevalence of EAS in people with personality disorders to date and discuss the associated challenges for research and practice.
Methods: Narrative review of the literature combined with the authors' collective experience and knowledge of personality disorders.
Results: In six of the eight countries where EAS is currently legal, mental disorders are accepted as disorders for which EAS may be granted. In four of these countries, EAS in minors with mental disorders is also accepted. Our literature search resulted in 9 papers on the subject of EAS in people with personality disorders. These studies suggest that most clinicians who grant EAS have indeed perceived their patients' suffering as chronic, unbearable and untreatable without prospect of improvement. The majority of patients with personality disorders had tried some form of psychotherapy, but very few had received any of the relevant evidence-based treatments. The decision to grant EAS based on a perception of the patient's illness as being untreatable with no prospect of improvement, could, thus, in many cases fail to meet the due care criteria listed in EAS laws. People with personality disorders more often wish for death for extended periods of time than people without these disorders. However, there is ample empirical data to show that suicidal tendencies and behaviour can be treated and that they fluctuate rapidly over time.
Conclusions: In light of our findings, we believe that the current legislation and practice of EAS for people with personality disorders is based on an inadequate understanding of underlying psychopathology and a lack of awareness about the contemporary treatment literature. Moreover, we assert that this practice neglects the individual's potential for having a life worth living.

Origine : PubMed

The role and response of primary healthcare services in the delivery of palliative care in epidemics and pandemics - a rapid review to inform practice and service delivery during the covid-19 pandemic

MITCHELL, Sarah ; MAYNARD, Victoria ; LYONS, Victoria ; JONES, Nicholas ; GARDINER, Clare
PALLIATIVE MEDICINE, 10/2020, vol.34, n°9, p. 1182-1192

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Barriers to palliative care in sexual and gender minority patients with cancer - a scoping review of the literature

HAVILAND, Kelly ; BURROWS WALTERS, Chasity ; NEWMAN, Susan
Health and social care in the community, 07/08/2020, p. 1-14

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Measure scan and synthesis of palliative and end-of-life process quality measures for advanced cancer

O'HANLON, Claire E. ; LINDVALL, Charlotta ; LORENZ, Karl A. ; GIANNITRAPANI, Karleen F. ; GARRIDO, Melissa ; ASCH, Steven M. ; WENGER, Neil ; MALIN, Jennifer ; DY, Sydney Morss ; CANNING, Mark ; GAMBOA, Raziel C. ; WALLING, Anne M.
JCO oncology practice, 06/08/2020, Pagination inconnue

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Experiences of palliative and end-of-life care among older LGBTQ women - a review of current literature

VALENTI, Korijna G. ; JEN, Sarah ; PARAJULI, Jyotsana ; ARBOGAST, Annabelle ; JACOBSEN, Anna Liss ; KUNKEL, Suzanne
JOURNAL OF PALLIATIVE MEDICINE, 24/08/2020, Pagination inconnue

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Nurses' early and ongoing encounters with the dying and the dead - a scoping review of the international literature

JONES, Kerry ; DRAPER, Jan ; DAVIES, Alison
International Journal of Palliative Nursing, 02/08/2020, vol.26, n°6, p. 310-324

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Thème : Soins.

INFIRMIERE ; REPRESENTATION MORT ; PRATIQUE PROFESSIONNELLE ; REVUE LITTÉRATURE ; ACCOMPAGNEMENT

BACKGROUND: End-of-life care is high on policy and political agendas in the UK and internationally. Nurses are at the forefront of this, caring for dying patients, 'managing' the dead body, and dealing with the corporeal, emotional and relational dimensions of death. Little is known about nurses' prior or early professional experiences of and reactions to death, dying and the corpse and how these might influence practice.
AIMS: To appraise the international literature on nurses' early experiences of death, dying and the dead body, to better understand how these might influence subsequent practice, and how this might inform our teaching of death, dying and last offices.
METHODS: A scoping review was undertaken of peer-reviewed publications between, 2000 and 2019, which included nurses working in hospital, care homes and the community. Medline, PubMed, PsychINFO and CINAHL databases were searched and 23 papers meeting the inclusion criteria were read. Arksey and O'Malley's (2005) five-stage approach was adopted to scope the relevant international literature, using where relevant the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. Selected papers were independently reviewed and subjected to thematic analysis, leading to the generation of five overarching themes.
RESULTS: The five themes were: different philosophies of care; relationships; knowledge; impact of death; and giving care. The studies came from diverse geographical locations across different settings and were primarily qualitative in design.
CONCLUSIONS: Students and registered nurses are impacted both positively and negatively by their early encounters with death and dying. Good communication with patients, families and between professionals, understanding of what constitutes a 'good' death, and high-quality mentorship and support were of particular importance.

Origine : PubMed

Impact of caring for terminally ill children on physicians - a systematic scoping review

NGIAM, Lisa Xin Ling ; ONG, Yun Ting ; NG, Jun Xuan ; KUEK, Joshua Tze Yin ; CHIA, Jeng Long ; CHAN, Natalie Pei Xin ; HO, Chong Yao ; ABDURRAHMAN, Ahmad Bin Hanifah Marican ; KAMAL, Nur Haidah Ahmad ; CHEONG, Clarissa Wei Shuen ; NG, Cheng Han ; TAN, Xiu Hui ; TAN, Lorraine Hui En ; CHIN, Annelissa Mien Chew ; MASON, Stephen ; JUMAT, Muhammad Raihan ; CHIAM, Min ; KRISHNA, Lalit Kumar Radha
The American journal of hospice and palliative care, 20/08/2020, Pagination inconnue

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Accuracy in surrogate end-of-life medical decision-making - a critical review

SPALDING, Rachael
Applied psychology. Health and well-being, 23/08/2020, Pagination inconnue

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How is early palliative care defined and implemented for persons diagnosed with a life-limiting chronic illness - a scoping review protocol

KIRCHER, Colleen ; HANNA, Timothy ; TRANMER, Joan ; GOLDIE, Craig ; ROSS-WHITE, Amanda ; GOLDIE, Catherine
JBI evidence synthesis, 06/07/2020, Pagination inconnue

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The roles and responsibilities of community pharmacists supporting older people with palliative care needs - a rapid review of the literature

TAIT, Paul ; CHAKRABORTY, Amal ; TIEMAN, Jennifer
Pharmacy, 12/08/2020, vol.8, n°3, p. 1-15

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Family meetings in paediatric palliative care - an integrative review

BRADFORD, Natalie ; ROLFE, Melanie ; EKBERG, Stuart ; MITCHELL, Geoffrey ; BEANE, Theresa ; FERRANTI, Kahli ; HERBERT, Anthony
BMJ supportive and palliative care, 17/07/2020, Pagination inconnue

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Implementing advance directives - an international literature review of important considerations for nurses

DOWLING, Teresa ; KENNEDY, Sara ; FORAN, Sinead
Journal of nursing management, 14/07/2020, Pagination inconnue

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Advance care planning and decision-making in dementia care - a literature review

MOUNTFORD, Wendy ; HARRISON DENING, Karen ; GREEN, Julie
Nursing older people, 15/07/2020, p. 1-5

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Primary palliative care education for trainees in u.s. medical residencies and fellowships - a scoping review

PAULSEN, Kate ; WU, David S. ; MEHTA, Ambereen K.
JOURNAL OF PALLIATIVE MEDICINE, 08/07/2020, Pagination inconnue

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Provision of medical assistance in dying - a scoping review

ZWORTH, Max ; SALEH, Carol ; BALL, Ian ; KALLES, Gaelen ; CHKAROUBO, Anatoli ; KEKEWICH, Mike ; MILLER, Paul Q. ; DEES, Marianne ; FROLIC, Andrea ; OCZKOWSKI, Simon
BMJ Open, 07/2020, vol.10, n°7, 8 p.

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Spiritual care provision to end of life patients - a systematic literature review

BATSTONE, Elizabeth ; BAILEY, Cara ; HALLETT, Nutmeg
Journal of clinical nursing, 09/07/2020, 16 p.

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Palliative care in primary health care: scoping review

TREMEA JUSTINO, Eveline ; KASPER, Maristel ; DA SILVA SANTOS, Karen ; DE CASSIA QUAGLIO, Rita ; FORTUNA, Cinira Magali
Revista latino-americana de enfermagem, 2020, vol.28, 11 p.

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Public perceptions of advance care planning, palliative care, and hospice - a scoping review

GRANT, Marian S. ; BACK, Anthony L. ; DETTMAR, Nicole S.
JOURNAL OF PALLIATIVE MEDICINE, 02/07/2020, Pagination inconnue

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Changing practices in the use of continuous sedation at the end of life - a systematic review of the literature

HEIJLTJES, Madelon ; VAN THIEL, Ghislaine ; RIETJENS, Judith ; VAN DER HEIDE, Agnes ; DE GRAEFF, Alexander ; VAN DELDEN, Johannes
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 26/06/2020, p. 1-43

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