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Les proches aidants ou des solidarités en action

ACTUALITE ET DOSSIER EN SANTE PUBLIQUE, Haut Conseil de la Santé Publique , 12/2019 , n°109, 64 p.

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Santé - le grand bouleversement

MATTEI, Jean-François
Les liens qui libèrent , 03/2020 , 272 p.

The emergence and utilisation of frailty in the United Kingdom - a contemporary biopolitical practice

TOMKOW, Louise
Ageing and society, 04/2020, vol.40, n°4, p. 695-712

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Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.04

VULNERABILITE ; ROYAUME UNI ; SANTE PUBLIQUE ; GERIATRIE

Frailty has recently emerged as a dominant concept against a backdrop of media and governmental narratives that frame the growing ageing population as an economic threat to the current configuration of health care in the United Kingdom (UK). Despite frailty's popularity amongst geriatricians and policy makers, the concept faces resistance from other health-care professionals and older people themselves. This paper draws on the Foucauldian idea of biopower; by suggesting that the contemporary emergence and utilisation of frailty represents a biopolitical practice a number or critical observations are made. First, despite biomedical experts acknowledging ambiguities in the definition of frailty, the concept is presented as a truth discourse. This is driven by the ability of frailty measurements to predict risk of costly adverse outcomes; the capability of frailty scores to enumerate complex needs; and the scientific legitimacy frailty affords to geriatric medicine. Consequently, frailty has become pervasive, knowable and measurable. Second, the routine delineation between frail and robust objectifies older people, and can be said to benefit those making the diagnosis over those being labelled frail, with the latter becoming disempowered. Last, studies show that frailty is associated with increasing wealth inequalities in the UK; however, experts’ suggested management of frailty shifts the focus of responsibility away from ideologically driven structural inequalities towards the frail older person, attempting to encourage individuals to modify lifestyle choices. This neglects the association between lifestyle opportunities and socio-economic deprivation, and the impact of long-term poverty on health. These observations, set against the contemporary political climate of economic austerity, cuts to public services and rationalisation of health resources, bring the urgency of a critical consideration of frailty to the fore.

Origine : Cambridge Core

Top ten tips palliative care clinicians should know about integrating population health principles into practice

CHECK, Devon K. ; KAUFMAN, Brystana G. ; KAMAL, Arif H. ; CASARETT, David J.
JOURNAL OF PALLIATIVE MEDICINE, 13/03/2020, p. 568-572

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Early impact of the 2014 world health assembly resolution on palliative care - a qualitative study using semistructured interviews with key experts

CARRASCO, José Miguel ; INBADAS, Hamilton ; WHITELAW, Alexander ; CLARK, David
JOURNAL OF PALLIATIVE MEDICINE, 19/03/2020, p. 1-4

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Integrating palliative care into the community - the role of hospices and schools

PAUL, Sally ; CREE, Viviene E. ; MURRAY, Scott A.
BMJ supportive and palliative care, 12/2019, vol.9, n°4, Pagination inconnue

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Choice depends on options - a public health framework incorporating the social determinants of dying to create options at end of life

GRINDROD, Andrea
PROGRESS IN PALLIATIVE CARE, 05/01/2020, p. 1-7

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Les communautés compatissantes - une vision d'avenir pour la mort et les soins palliatifs

VACHON, Mélanie
Cahiers francophones de soins palliatifs, Publications Michel Sarrazin, 2019, vol.19, n°2, p. 71-81

The impact of population ageing on end-of-life care in Scotland - projections of place of death and recommendations for future service provision

FINUCANE, Anne M. ; BONE, Anna E. ; EVANS, Catherine J. ; GOMES, Barbara ; MEADE, Richard ; HIGGINSON, Irene J. ; MURRAY, Scott A.
BMC palliative care, 12/12/2019, vol.18, n°1, p. 1-11

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Social networks, social capital and end-of-life care for people with dementia - a realist review

SAWYER, Joseph M. ; SALLNOW, Libby ; KUPELI, Nuriye ; STONE, Patrick ; SAMPSON, Elizabeth L.
BMJ Open, 09/12/2019, vol.9, n°12, p. 1-17

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Thème : Aspects sociologiques. Cote : eD08

FIN VIE ; DEMENCE ; RESEAU SOCIAL ; SANTE PUBLIQUE

OBJECTIVES: (1) To develop an understanding of how social capital may be conceptualised within the context of end-of-life care and how it can influence outcomes for people with dementia and their families with specific reference to the context and mechanisms that explain observed outcomes. (2) To produce guidance for healthcare systems and researchers to better structure and design a public health approach to end-of-life care for people with dementia.
DESIGN: A realist review.
DATA SOURCES: MEDLINE, EMBASE, CINAHL and grey literature.
ANALYSIS: We conceptualised social capital as a complex intervention and, in order to understand how change is generated, used realist evaluation methods to create different configurations of context, mechanism and outcomes. We conducted an iterative search focusing on social capital, social networks and end-of-life care in dementia. All study designs and outcomes were screened and analysed to elicit explanations for a range of outcomes identified. Explanations were consolidated into an overarching programme theory that drew on substantive theory from the social sciences and a public health approach to palliative care.
RESULTS: We identified 118 articles from 16 countries ranging from 1992 to 2018. A total of 40 context-mechanism-outcome configurations help explain how social capital may influence end-of-life care for people with dementia. Such influence was identified within five key areas. These included: (1) socially orientating a person with dementia following diagnosis; (2) transitions in the physical environment of care; (3) how the caregiving experience is viewed by those directly involved with it; (4) transition of a person with dementia into the fourth age; (5) the decision making processes underpinning such processes.
CONCLUSION: This review contributes to the dispassionate understanding of how complex systems such as community and social capital might be viewed as a tool to improve end-of-life care for people with dementia.

Origine : PubMed

Understanding data and information needs for palliative cancer care to inform digital health intervention development in Nigeria, Uganda and Zimbabwe - protocol for a multicountry qualitative study

OKUNADE, Kehinde ; BASHAN NKHOMA, Kennedy ; SALAKO, Omolola ; AKEJU, David ; EBENSO, Bassey ; NAMISANGO, Eve ; SOYANNWO, Olaitan ; NAMUKWAYA, Elizabeth ; DANDADZI, Adlight ; NABIRYE, Elizabeth ; MUPAZA, Lovemore ; LUYIRIKA, Emmanuel ; DDUNGU, Henry ; CHIRENJE, Z. Mike ; BENNETT, Michael I. ; HARDING, Richard ; ALLSOP, Matthew J.
BMJ Open, 31/10/2019, vol.9, n°10, p. 1-9

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Current asbestos exposure and future need for palliative care in India

JADHAV, Abhijeet Vasant ; GAWDE, Nilesh C.
Indian journal of palliative care, 12/2019, vol.25, n°4, p. 587-591

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Le futur de la santé - pour une éthique de l'anticipation

COUTELLEC, Léo ; JOLIVET, Alexia ; MOSER, Sebastian J. ; WEIL-DUBUC, Paul-Loup
Maison des sciences de l'homme , 11/2019 , 144 p.

Frailty - implications for clinical practice and public health

HOOGENDIJK, Emiel O. ; AFILALO, Jonathan ; ENSRUD, Kristine E. ; KOWAL, Paul ; ONDER, Graziano ; FRIED, Linda P.
Lancet, 12/10/2019, vol.394, n°10206, p. 1365-1375

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Management of frailty - opportunities, challenges, and future directions

DENT, Elsa ; MARTIN, Finbarr C. ; BERGMAN, Howard ; WOO, Jean ; ROMERO-ORTUNO, Roman ; WALSTON, Jeremy D.
Lancet, 10/2019, vol.394, n°10206, p. 1376-1386

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Population-based pragmatic trial of advance care planning in primary care in the university of California health system

WALLING, Anne M. ; SUDORE, Rebecca L. ; BELL, Doug ; TSENG, Chi-Hong ; RITCHIE, Christine ; HAYS, Ron D. ; GIBBS, Lisa ; RAHIMI, Maryam ; SANZ, Javier ; WENGER, Neil S.
JOURNAL OF PALLIATIVE MEDICINE, 09/2019, vol.22, n°S1, p. S72-S81

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Distributive justice - an ethical priority in global palliative care

HADLER, Rachel A. ; ROSA, William E.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/01/2018, vol.55, n°4, p. 1237-1240

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"If you understand you cope better with it" - the role of education in building palliative care capacity in four First Nations communities in Canada

PRINCE, Holly ; NADIN, Shevaun ; CROW, Maxine ; MAKI, Luanne ; MONTURE, Lori ; SMITH, Jeroline ; KELLEY, Mary Lou
BMC public health, 17/06/2019, vol.19, n°1, 18 p.

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Consensus building on health indicators to assess PC global development with an international group of experts

ARIAS-CASAIS, Natalia ; GARRALDA, Eduardo ; LOPEZ-FIDALGO, Jesús ; RHEE, John Y. ; PONS, Juan José ; DE LIMA, Liliana ; CENTENO, Carlos
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/06/2019, Pagination inconnue

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Are we evolving towards greater and earlier use of palliative home care support? - a trend analysis using population-level data from 2010-2015

MAETENS, Arno ; DELIENS, Luc ; VAN DEN BLOCK, Lieve ; BEERNAERT, Kim ; COHEN, Joachim
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 17/04/2019, Pagination inconnue

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