VigiPallia : Résultats

TELEMEDECINE

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Pandemic palliative care consultations spanning state and institutional borders

NAKAGAWA, Shunichi ; BERLIN, Ana ; WIDERA, Eric ; PERIYAKOIL, Vyjeyanthi S. ; SMITH, Alexander K. ; BLINDERMAN, Craig D.
Journal of the American Geriatrics Society, 22/05/2020, p. 1-5

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A virtual children's hospice in response to Covid-19 - the Scottish experience

ELLIS, Kirsteen ; LINDLEY, Lisa C.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 13/05/2020, p. 1-4

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Patients' experiences of telehealth in palliative home care - scoping review

STEINDAL, Simen A. ; GONCALVES NES, Andrea Aparecida ; GODSKESEN, Tove E. ; DIHLE, Alfhild ; LIND, Susanne ; WINGER, Anette ; KLARARE, Anna
Journal of medical internet research, 05/05/2020, vol.22, n°5, p. 1-11

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Thème : Santé. Cote : eD01.03

TELEMEDECINE ; HOSPITALISATION DOMICILE SOINS PALLIATIFS ; REVUE LITTÉRATURE

BACKGROUND: Telehealth is increasingly being used in home care and could be one measure to support the needs of home-based patients receiving palliative care. However, no previous scoping review has mapped existing studies on the use of telehealth for patients in palliative home care.
OBJECTIVE: The aim of this study was to map and assess published studies on the use of telehealth for patients in palliative home care.
METHODS: A scoping review was conducted using the methodological framework of Arksey and O'Malley. Reporting was guided by Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. A systematic and comprehensive search of Medical Literature Analysis and Retrieval System Online, EMBASE, PsycINFO, and Cumulative Index to Nursing and Allied Health was performed for studies published between January 2000 and October 2018. Two authors independently assessed eligibility and extracted data.
RESULTS: The review included 22 papers from 19 studies. Four thematic groupings were identified among the included papers: easy and effortless use of telehealth regardless of the current health condition, visual features that enhance communication and care via telehealth, symptom management and self-management promotion by telehealth, and perceptions of improved palliative care at home.
CONCLUSIONS: The use of telehealth in palliative home care seems to be feasible, improving access to health care professionals at home and enhancing feelings of security and safety. The visual features of telehealth seem to allow a genuine relationship with health care professionals. However, there are contradicting results on whether the use of telehealth improves burdensome symptoms and quality of life. Future research should investigate the experiences of using telehealth among patients with life-limiting illness other than cancer and patients aged 85 years or older. More research is needed to increase the body of knowledge regarding the effectiveness of telehealth on symptoms and quality of life.

Origine : PubMed

Palliative care benefits patients with Parkinson disease

SLOMSKI, Anita
JAMA, 28/04/2020, vol.323, n°16, p. 1543

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Palliative care via telemedicine - a qualitative study of caregiver and provider perceptions

SALEM, Rana ; EL ZAKHEM, Aline ; GHARAMTI, Amal ; TFAYLI, Arafat ; OSMAN, Hibah
JOURNAL OF PALLIATIVE MEDICINE, 23/04/2020, Pagination inconnue

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Developing and testing the feasibility of a culturally based tele-palliative care consult based on the cultural values and preferences of Southern, rural African American and white community members - a program by and for the community

ELK, Ronit ; EMANUEL, Linda ; HAUSER, Joshua ; BAKITAS, Marie ; LEVKOFF, Sue
Health equity, 01/03/2020, vol.4, n°1, p. 52-83

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Telemedicine in the time of coronavirus

CALTON, Brook ; ABEDINI, Nauzley ; FRATKIN, Michael
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 31/03/2020, p. 1-3

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The need for a serious illness digital ecosystem (SIDE) to improve outcomes for patients receiving palliative and hospice care

NICOLLA, Jonathan ; BOSWORTH, Hayden B. ; DOCHERTY, Sharron L. ; POLLAK, Kathryn I. ; POWELL, Jeremy ; SELLERS, Nichole ; REEVE, Bryce ; SAMSA, Greg ; SUTTON, Linda ; KAMAL, Arif H.
The American journal of managed care, 01/04/2020, vol.26, n°S4, p. SP124-SP126

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Effects of a telehealth early palliative care intervention for family caregivers of persons with advanced heart failure - the ENABLE CHF-PC randomized clinical trial

DIONNE-ODOM, J. Nicholas ; EJEM, Deborah B. ; WELLS, Rachel ; AZUERO, Andres ; STOCKDILL, Macy L. ; KEEBLER, Konda ; SOCKWELL, Elizabeth ; TIMS, Sheri ; ENGLER, Sally ; KVALE, Elizabeth ; DURANT, Raegan W. ; TUCKER, Rodney O. ; BURGIO, Kathryn L. ; TALLAJ, Jose ; PAMBOUKIAN, Salpy V. ; SWETZ, Keith M. ; BAKITAS, Marie A.
JAMA network open, 13/04/2020, vol.3, n°4, Pagination inconnue

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Rapid implementation of inpatient telepalliative medicine consultations during Covid-19 pandemic

HUMPHREYS, Jessi ; SCHOENHERR, Laura ; ELIA, Giovanni ; SAKS, Naomi Tzril ; BROWN, Chelsea ; BARBOUR, Susan ; PANTILAT, Steven Z.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/2020, p. 1-6

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Home-based pediatric palliative care and electronic health - systematic mixed methods review

HOLMEN, Heidi ; RIISER, Kirsti ; WINGER, Anette
Journal of medical internet research, 28/02/2020, vol.22, n°2, p. 1-13

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Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.01.00

HOSPITALISATION DOMICILE SOINS PALLIATIFS ; PEDIATRIE ; TELEMEDECINE ; REVUE SYSTEMATIQUE

BACKGROUND: Children and families in pediatric palliative care depend on close contact with health care personnel, and electronic health (eHealth) is suggested to support care at home by facilitating their remote interactions.
OBJECTIVE: This study aimed to identify and review the use of eHealth to communicate and support home-based pediatric palliative care and appraise the methodological quality of the published research.
METHODS: We conducted a convergent, systematic mixed methods review and searched Medical Literature Analysis and Retrieval System Online (Medline), EMBASE, PsycINFO, Cochrane Library, Cumulative Index to Nursing and Allied Health Literature (CINAHL), Web of Science, and Scopus for eligible papers. Studies evaluating 2-way communication technology for palliative care for children aged = 18 years and applying quantitative, qualitative, or mixed methods from 2012 to 2018 were eligible for inclusion. Quantitative and qualitative studies were equally valued during the search, screening, extraction, and analysis. Quantitative data were transformed into qualitative data and analyzed using a thematic analysis. Overall, 2 independent researchers methodologically appraised all included studies.
RESULTS: We identified 1277 citations. Only 7 papers were eligible for review. Evaluating eHealth interventions in pediatric palliative care poses specific methodological and ethical challenges. eHealth to facilitate remote pediatric palliative care was acknowledged both as an intrusion and as a support at home. Reluctance toward eHealth was mainly identified among professionals.
CONCLUSIONS: The strengths of the conclusions are limited by the studies' methodological challenges. Despite the limitless possibilities held by new technologies, research on eHealth in home-based pediatric palliative care is scarce. The affected children and families appeared to hold positive attitudes toward eHealth, although their views were less apparent compared with those of the professionals.
TRIAL REGISTRATION: PROSPERO CRD42018119051; https://tinyurl.com/rtsw5ky.

Origine : PubMed

"A friend in the corner" - supporting people at home in the last year of life via telephone and video consultation-an evaluation

MIDDLETON-GREEN, L. ; GADOUD, A. ; NORRIS, B. ; SARGEANT, A. ; NAIR, S. ; WILSON, L. ; LIVINGSTONE, H. ; SMALL, N.
BMJ supportive and palliative care, 12/2019, vol.9, n°4, Pagination inconnue

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Early integration of palliative care in a long-term care home - a telemedicine feasibility pilot study

PERRI, Giulia-Anna ; ABDEL-MALEK, Nada ; BANDALI, Aysha ; GROSBEIN, Haddas ; GARDNER, Sandra
Palliative and supportive care, 18/02/2020, p. 1-8

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Thème : Santé.

SEJOUR LONGUE DUREE ; DEMARCHE PALLIATIVE ; TELEMEDECINE

OBJECTIVE: Palliative care plays an essential role in enhancing the quality of life and quality of death for residents in long-term care homes (LTCHs). Access to palliative care specialists is one barrier to providing palliative care to LTCHs. This project focused on palliative telemedicine, specifically evaluating whether integration of early palliative care specialist consultation into an LTCH would be feasible through the implementation of videoconferencing during routine interdisciplinary care conferences.
METHOD: This was a mixed-methods evaluation of a pilot program implementation over 6 months, to integrate early palliative care into an LTCH. There were two pilot communities with a total of 61 residents. Resident demographics were collected by a chart review, and palliative telemedicine feasibility was evaluated using staff and family member surveys.
RESULTS: For the 61 residents, the average age of the residents was 87 years, with 61% being female and 69% having dementia as the primary diagnosis. The mean CHESS (Change in Health, End-Stage Disease, Signs, and Symptoms) and ADL (Activities of Daily Living) scores were 0.8 and 4.0, respectively, with 54% having a Palliative Performance Scale score of 40. Seventeen clinical staff surveys on palliative teleconferences were completed with the majority rating their experience as high. Ten out of the 20 family members completed the palliative teleconference surveys, and the majority were generally satisfied with the experience and were willing to use it again. Clinical staff confidence in delivering palliative care through telemedicine significantly increased (P = 0.0021).
SIGNIFICANCE OF RESULTS: The results support the feasibility of videoconferencing as a means of palliative care provision. Despite technical issues, most clinical staff and families were satisfied with the videoconference and were willing to use it again. Early integration of palliative care specialist services into an LTCH through videoconferencing also led to improved self-rated confidence in the palliative approach to care by clinical staff.

Origine : PubMed

Innovative tools to support family caregivers of persons with cancer - the role of information technology

DEMIRIS, George ; WASHINGTON, Karla ; ULRICH, Connie M. ; POPESCU, Mihail ; PARKER OLIVER, Debra
Seminars in oncology nursing, 01/08/2019, vol.35, n°4, p. 384-388

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Elements of social convoy theory in mobile health for palliative care - scoping review

PORTZ, Jennifer D. ; ELSBERND, Kira ; PLYS, Evan ; FORD, Kelsey Lynett ; ZHANG, Xuhong ; GORE, M. Odette ; MOORE, Susan L. ; ZHOU, Shuo ; BULL, Sheana
JMIR mhealth and uhealth, 06/01/2020, vol.8, n°1, p. 1-11

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Thème : Soins. Cote : eD02.04.01

DEMARCHE PALLIATIVE ; TELEMEDECINE ; REVUE LITTÉRATURE ; TELEPHONE

BACKGROUND: Mobile health (mHealth) provides a unique modality for improving access to and awareness of palliative care among patients, families, and caregivers from diverse backgrounds. Some mHealth palliative care apps exist, both commercially available and established by academic researchers. However, the elements of family support and family caregiving tools offered by these early apps is unknown.
OBJECTIVE: The objective of this scoping review was to use social convoy theory to describe the inclusion and functionality of family, social relationships, and caregivers in palliative care mobile apps.
METHODS: Using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Review guidelines, a systematic search of palliative care mHealth included (1) research-based mobile apps identified from academic searches published between January 1, 2010, and March 31, 2019 and (2) commercially available apps for app stores in April 2019. Two reviewers independently assessed abstracts, app titles, and descriptions against the inclusion and exclusion criteria. Abstracted data covered app name, research team or developer, palliative care element, target audience, and features for family support and caregiving functionality as defined by social convoy theory.
RESULTS: Overall, 10 articles describing 9 individual research-based apps and 22 commercially available apps were identified. Commercially available apps were most commonly designed for both patients and social convoys, whereas the majority of research apps were designed for patient use only.
CONCLUSIONS: Results suggest there is an emerging presence of apps for patients and social convoys receiving palliative care; however, there are many needs for developers and researchers to address in the future. Although palliative care mHealth is a growing field, additional research is needed for apps that embrace a team approach to information sharing, target family- and caregiver-specific issues, promote access to palliative care, and are comprehensive of palliative needs.

Origine : PubMed

Telehealth increases access to palliative care for people with Parkinson's disease and related disorders

KATZ, Maya
Annals of palliative medicine, 27/11/2019, Pagination inconnue

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Mobile health technologies for continuous monitoring of cancer patients in palliative care aiming to predict health status deterioration - a feasibility study

PAVIC, Matea ; KLAAS, Vanessa ; THEILE, Gudrun ; KRAFT, Johannes ; TROSTER, Gerhard ; BLUM, David ; GUCKENBERGER, Matthias
JOURNAL OF PALLIATIVE MEDICINE, 23/12/2019, p. 1-8

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Telehealth in palliative care is being described but not evaluated - a systematic review

HANCOCK, Sophie ; PRESTON, Nancy ; JONES, Helen ; GADOUD, Amy
BMC palliative care, 13/12/2019, vol.18, n°1, p. 1-15

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Telehealth acceptability for children, family, and adult hospice nurses when integrating the pediatric palliative inpatient provider during sequential rural home hospice visits

WEAVER, Meaghann S. ; ROBINSON, Jacob E. ; SHOSTROM, Valerie K. ; HINDS, Pamela S.
JOURNAL OF PALLIATIVE MEDICINE, 05/12/2019, Pagination inconnue

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

TELEMEDECINE ; PEDIATRIE ; MILIEU RURAL ; HOSPITALISATION DOMICILE SOINS PALLIATIFS

Background: Children in rural geographies are not universally able to access pediatric-trained palliative or hospice providers.
Objective: Determine whether telehealth inclusion of a familiar pediatric palliative care provider during the first two home-based hospice visits was acceptable to children, families, and adult-trained home hospice nurses in rural settings.
Design: Case series.
Setting: Home hospice in rural Midwest.
articipants: Patients <18 years of age enrolling in home hospice for end-of-life care.
Measurements: The acceptability of telehealth inclusion of a hospital-based pediatric palliative care provider in home hospice visits to the family caregiver and home hospice nurse was measured using the Technology Acceptance Model Questionnaires with the inclusion of the child perspective when possible.
Results: Fifteen patients mean age of seven years enrolled. Family caregiver included 11 mothers (73%), 2 grandmothers (13%), and 2 fathers (13%). Fifteen nurses from nine hospice agencies participated. Twelve families (80%) included additional relatives by telehealth modality. Home distance averaged 172 miles with mean eight hours saved by accessing telehealth encounter. Visit content was primarily caregiver support, quality of life, goals of care, symptom management, and medication review. Telehealth acceptability improved between time points and was higher in family caregivers (4.3–4.9 on 5-point scale; p = 0.001) than hospice nurses (3.2–3.8 on 5-point scale; p = 0.05). All children able to self-report stated a “like” for telehealth, citing six reasons such as “being remembered” and “medical knowledge and care planning.”
Conclusions: Pediatric palliative telehealth visits partnered with in-person hospice nurse offer acceptable access to services, while extending support.

Origine : PubMed

A stepped-wedge randomized controlled trial - effects of ehealth interventions for pain control among adults with cancer in hospice

WILKIE, Diana J. ; YAO, Yingwei ; EZENWA, Miriam O. ; SUAREZ, Marie L. ; DYAL, Brenda W. ; GILL, Anayza ; HIPP, Theresa ; SHEA, Robert ; MILLER, Jacob ; FRANK, Karen ; NARDI, Nargis ; MURRAY, Michael ; GLENDENNING, Julie ; PEREZ, Jessica ; CARRASCO, Jesus D. ; SHUEY, David ; ANGULO, Veronica ; MCCURRY, Timothy ; MARTIN, Joanna ; BUTLER, Adrienne ; WANG, Zaijie Jim ; MOLOKIE, Robert E.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 03/2020, vol.59, n°3, p. 626-636

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