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Models of non-hospice palliative care - a review

BEASLEY, Amy ; BAKITAS, Marie A. ; EDWARDS, Rebecca ; KAVALIERATOS, Dio
Annals of palliative medicine, 02/2019, vol.8, n°Suppl 1, p. S15-S21

Document en ligne

Thème : Soins. Cote : eD02.00

DEMARCHE PALLIATIVE ; ESSAI CONTROLE RANDOMISE ; UNITE SOINS PALLIATIFS ; ADOLESCENT ; JEUNE ADULTE ; ADULTE ; HOSPITALISATION ; SERVICE URGENCES ; HOSPITALISATION JOUR

Palliative care offers patients with a serious illness and their families access to services that can improve quality of life, mood, and symptoms. However, the term palliative care is often confused with end of life or hospice services limiting its application to persons with chronic illnesses who might benefit. Non-hospice palliative care is a term that is emerging to more accurately reflect the broader care model that palliative care represents. The aim of this review was to identify the characteristics of published nonhospice palliative care interventions. We derived our sample predominantly from a recently published systematic review and meta-analysis and selected studies published since the review. Inclusion criteria were: self-described palliative care intervention studies using randomized designs for participants with lifelimiting illnesses aged 18 years or older. These 38 studies fell into 3 broad categories: primary, specialty, and hybrid models. Common challenges among these models include limited education of generalists, limited reimbursement, and limited access in certain areas. However, increasing palliative care usage has also been associated with increased hospice use and appropriate timing of referrals.

Origine : PubMed

Family members' opinions about bereavement care after cardiac intensive care unit patients' deaths

ERIKSON, Alyssa ; PUNTILLO, Kathleen ; MCADAM, Jennifer
Nursing in critical care, 18/06/2019, Pagination inconnue

Document en ligne

Thème : Deuil et travail du deuil.

DEUIL ; CHAGRIN ; FAMILLE ; ADULTE ; SOIN INTENSIF ; OPINION

Background: Critical care consensus groups recommend providing bereavement support; however, little is known about what cardiac intensive care patients' families would find useful and beneficial in their grieving process.
Aim and objectives: To describe cardiac intensive care unit (ICU) patients' families' opinions on six common components of a bereavement programme.
Design: Qualitative, exploratory and descriptive.
Methods: Families were recruited from a cardiac ICU 13-15 months after their loved one's death. Families were interviewed using a semi-structured questionnaire. The research team analysed interview transcripts to assess and categorize families' opinions on six bereavement components.
RESULTS: Twelve family members were interviewed. Most were female (n = 8, 67%), spouses (n = 10, 83%) and white (n = 10, 83%), with a mean age (SD) of 58.4 years (16.7). Families' overall opinions of the bereavement brochure were positive, stating it was helpful in providing information about the grieving process. Families described the sympathy card as "meaningful" and "touching," although they rated it neutral in providing comfort. Most participants felt that a follow-up telephone call was unnecessary except to answer lingering questions they had. Many participants favoured the unit offering counselling services because they found therapy helpful in their grieving process. Participants had mixed feelings about a memory box; they believed it was an individual preference and should be handled in a sensitive manner. Most would not have attended a memorial service if offered because of traffic, distance, concerns about stressful feelings on returning to the hospital or because they already honoured their loved ones through a personalized memorial service.
Conclusions: Participants varied in their opinions about what bereavement services may be useful; however, this study provides insight about services that cardiac critical care units may consider when adding bereavement support.
Relevance to clinical practice: Family perspectives about bereavement needs can help structure services offered by critical care units.

Origine : PubMed

How to conserve dignity in palliative care - suggestions from older patients, significant others, and healthcare professionals in Swedish municipal care

OSTLUND, Ulrika ; BLOMBERG, Karin ; SODERMAN, Annika ; WERKANDER HARSTADE, Carina
BMC palliative care, 24/01/2019, vol.18, n°1, 12 p.

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.04

DEMARCHE PALLIATIVE ; ADULTE ; ATTITUDE ; PERSONNEL SANTE ; ENTRETIEN ; DIGNITE ; PERSONNE AGEE ; FIN VIE ; SOIN ; RECHERCHE QUALITATIVE ; SUEDE ; SOIN INFIRMIER

Background: An essential aspect of palliative care nursing is to conserve the dignity of the patient. A Dignity Care Intervention (DCI) has been developed in Scotland to facilitate this role for nurses. The DCI is now being adapted to a Swedish context (DCI-SWE) and a central step is to identify culturally relevant, dignity-conserving care actions. These care actions will be incorporated into the DCI-SWE. Therefore, the aim of this study was to suggest care actions for conserving dignity in palliative care from the perspectives of the patients, significant others (SOs), and health care professionals (HPs) in municipality care in Sweden.
Methods: This study used a descriptive design with a qualitative approach. Data from 20 participants were collected through semi-structured individual interviews with patients (n = 3), SOs (n = 4), two focus groups with nurses (n = 9) and one focus group with physicians (n = 4) in two Swedish municipalities. These data were deductively analysed using qualitative content analysis with the Chochinov model of dignity as framework.
Results: With the Chochinov model of dignity as a framework, care actions based on suggestions from the participants were identified and presented under three themes: Illness related concerns, Dignity conserving repertoire, and Social dignity inventory. The study found both specific concrete care actions and more general approaches. Such general approaches were found to be relevant for several dignity related issues as all-embracing attitudes and behaviours. However, these general approaches could also be relevant as specific care actions to conserve dignity in relation to certain issues. Care actions were also found to be linked to each other, showing the importance of a holistic perspective in conserving dignity.
Conclusions: As part of the adaption of the DCI from a Scottish to a Swedish context, this study added relevant care actions for collaborative planning of individualised care in mutual dialogues between nurses and those they care for. The adapted intervention, DCI-SWE, has the potential to help the nurses in providing palliative care of evidence-based quality.

Origine : PubMed

Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting - a consensus paper

SIVELL, Stephanie ; PROUT, Hayley ; HOPEWELL-KELLY, Noreen ; BAILLIE, Jessica ; BYRNE, Anthony ; EDWARDS, Michelle ; HARROP, Emily ; NOBLE, Simon ; SAMPSON, Catherine ; NELSON, Annmarie
BMJ supportive and palliative care, 03/2019, vol.9, n°1, 7 p.

Document en ligne

Thème : Recherche - Evaluation - Méthodologie. Cote : eD15.01

DEMARCHE PALLIATIVE ; ADULTE ; PHASE TERMINALE ; RECHERCHE MEDICALE ; COMPORTEMENT ; DOMICILE ; SOIN DOMICILE ; ENTRETIEN ; RECOMMANDATION ; RECHERCHE QUALITATIVE ; METHODE

Objectives: To present and discuss the views of researchers at an academic palliative care research centre on research encounters with terminally ill patients in the home setting and to generate a list of recommendations for qualitative researchers working in palliative and end-of-life care.
Methods: Eight researchers took part in a consensus meeting to discuss their experiences of undertaking qualitative interviews. The researchers were of varying backgrounds and all reported having experience in interviewing terminally ill patients, and all but one had experience of interviewing patients in their home environment.
Results: The main areas discussed by researchers included: whether participation in end-of-life research unintentionally becomes a therapeutic experience or an ethical concern; power relationships between terminally ill patients and researchers; researcher reflexivity and reciprocity; researchers' training needs. Qualitative methods can complement the home environment; however, it can raise ethical and practical challenges, which can be more acute in the case of research undertaken with palliative and patients at the end-of-life.
Conclusions: The ethical and practical challenges researchers face in this context has the potential to place both participant and researcher at risk for their physical and psychological well-being. We present a set of recommendations for researchers to consider prior to embarking on qualitative research in this context and advocate researchers in this field carefully consider the issues presented on a study-by-study basis.

Origine : PubMed

Psychological processes of suffering of palliative care patients in Malaysia - a thematic analysis

TAN, Seng Beng ; LOH, Ee Chin ; LAM, Chee Loong ; NG, Chong Guan ; LIM, Ee Jane ; BOEY, Christopher Chiong Meng
BMJ supportive and palliative care, 03/2019, vol.9, n°1, Pagination inconnue

Document en ligne

Thème : Psychologie, psychanalyse.

MALAISIE ; DEMARCHE PALLIATIVE ; ADULTE ; STRESS ; PSYCHOLOGIE ; PATIENT ; SOUFFRANCE PSYCHIQUE ; SOIN INFIRMIER ; ACCOMPAGNEMENT PSYCHOSOCIAL

Although suffering in palliative care has received increasing attention over the past decade, the psychological processes that underpin suffering remain relatively unexplored.
Objective: To understand the psychological processes involved in the experiencing of suffering at the end phase of life.
Methods: Semistructured interviews were conducted with 20 palliative care inpatients from an academic medical centre in Kuala Lumpur, Malaysia. The transcripts were thematically analysed with NVIVO9.
Results: 5 themes of psychological processes of suffering were generated: (1) perceptions, (2) cognitive appraisals, (3) hope and the struggles with acceptance, (4) emotions and (5) clinging. A model of suffering formation was constructed.
Conclusion: The findings may inform the development of mechanism-based interventions in the palliation of suffering.

Origine : PubMed

Training general practitioners contributes to the identification of palliative patients and to multidimensional care provision - secondary outcomes of an RCT

THOONSEN, Bregje ; GERRITZEN, Stefanie H. M. ; VISSERS, Kris C. P. ; VERHAGEN, Stans ; VAN WEEL, Chris ; GROOT, Marieke M. ; ENGELS, Yvonne
BMJ supportive and palliative care, 03/2019, vol.9, n°1, 8 p.

Document en ligne

Thème : Formation. Cote : eD14.00

DEMARCHE PALLIATIVE ; CANCER ; ADULTE ; ENQUETE ; QUESTIONNAIRE ; MEDECIN GENERALISTE ; CONSULTATION ; PLANIFICATION ; INSUFFISANCE CARDIAQUE ; BRONCHITE CHRONIQUE ; FORMATION ; IDENTIFICATION ; ANTICIPATION

Introduction: To support general practitioners (GPs) in providing early palliative care to patients with cancer, chronic obstructive pulmonary disease or heart failure, the RADboud university medical centre indicators for PAlliative Care needs tool (RADPAC) and a training programme were developed to identify such patients and to facilitate anticipatory palliative care planning. We studied whether GPs, after 1 year of training, identified more palliative patients, and provided multidimensional and multidisciplinary care more often than untrained GPs.
METHODS: We performed a survey 1 year after GPs in the intervention group of an RCT were trained. With the help of a questionnaire, all 134 GPs were asked how many palliative patients they had identified, and whether anticipatory care was provided. We studied number of identified palliative patients, expected lifetime, contact frequency, whether multidimensional care was provided and which other disciplines were involved.
RESULTS: Trained GPs identified more palliative patients than did untrained GPs (median 3 vs 2; p 0.046) and more often provided multidimensional palliative care (p 0.024). In both groups, most identified patients had cancer.
CONCLUSIONS: RADPAC sensitises GPs in the identification of palliative patients. Trained GPs more often provided multidimensional palliative care. Further adaptation and evaluation of the tools and training are necessary to improve early palliative care for patients with organ failure.

Origine : PubMed

Utility of a referral letter to improve comprehensibility of cancer patients in palliative care - a single-center study

KLOEPPEL, Eva-Marie ; HANAYA, Hani ; SEILACHER, Eckart ; SCHROTH, Sarah ; LIEBL, Patrick ; KEINKI, Christian ; JOLIN KOESTER, Marie ; HUEBNER, Jutta
Journal of cancer education, 01/01/2018, vol.33, n°2, p. 487-492

Document en ligne

Thème : Médecine.

DEMARCHE PALLIATIVE ; COMMUNICATION ; CANCER ; ADULTE ; ENQUETE ; QUESTIONNAIRE ; MEDECIN ; PRONOSTIC ; CONSULTATION ; PLANIFICATION ; EDUCATION PATIENT ; INFORMATION MALADE

In spite of a referral letter as an important document for communicating between physicians, whether it could also be useful as a source of information for patients has not yet established. We included cancer patients in palliative care setting, all of whom completed a standardized questionnaire regarding their opinion concerning the utility of a referral letter as a source of information and its requirements to achieve a better understanding. Completed questionnaires were received from 50 cancer patients. Ninety-four percent of participants agreed that a referral letter could be of great importance for procuring medical information to them. There was only minor divergence among the participants respecting age, gender, or education. Particular requirements were diagnosis, treatment plan, prognosis, list of drugs, and contact data of involved physicians. Additional important topics were laboratory values, alternatives to current therapy, side effects and supportive therapy, and advices regarding lifestyle and naturopathy. The majority of patients also concluded to accept technical terms in doctor's letters if a glossary supported their comprehension. The majority of patients prefer a concise description of medical information in a referral letter. This form of a letter would boost patients' involvement and help them transfer medical information to other therapists or relatives.

Origine : PubMed

The last breath-enriching end-of-life moments

SHAPIRO, Martin F.
JAMA internal medicine, 28/05/2019, Pagination inconnue

Document en ligne

Thème : Soins.

FIN VIE ; TEMOIGNAGE ; MERE ; ENFANT ; ADULTE

I was getting ready to go to work when my sister called from Winnipeg. “Mom is dying,” she said. Our mother was 90 years old and had experienced a stepwise decline over several months after an episode of urosepsis, complicated by recurring episodes of aspiration pneumonia, Clostridium difficile diarrhea, and a pelvic fracture. She became less interactive with each complication. She had been clear in her instructions to us that she did not want to be kept alive if she was unable to interact meaningfully with those around her. We communicated to her clinicians that she was not to be resuscitated in the event of cardiopulmonary arrest. A few weeks after that, we moved her to a skilled nursing facility, understanding that it was inevitable that she would have further episodes of aspiration. A week later, she developed a fever and was given oral antibiotics for several days. A week after completing the course of antibiotics, she developed a fever again, so the antibiotics were restarted.

Origine : PubMed

Aspects pratiques relatifs à la mise en œuvre d’une sédation par midazolam

VANDERHOEVEN, Sandrine
REVUE DE L'INFIRMIERE, 03/2019, vol.68, n°249, p. 36-39

Document en ligne

Thème : Ethique et déontologie.

SEDATION ; MIDAZOLAM ; ADULTE ; PHASE PALLIATIVE

Dans un contexte de complication aiguë à risque vital immédiat ou de symptôme réfractaire, la mise en œuvre d’une sédation n’est pas une pratique anodine pour les équipes soignantes. La titration est une étape incontournable et essentielle. Zoom sur les aspects pratico-pratiques de la mise en œuvre d’une sédation par midazolam chez l’adulte en situation palliative.

Challenges of the transition - a case of noncompliance in an adult with congenital heart disease

JERSAK, Taylor ; GUSTIN, Jillian ; HUMPHREY, Lisa
JOURNAL OF PALLIATIVE MEDICINE, 15/05/2019, Pagination inconnue

Document en ligne

Thème : Médecine.

MALADIE CARDIOVASCULAIRE ; TRAJECTOIRE MALADIE ; PEDIATRIE ; ADULTE

There are more adults than children living with congenital heart disease (CHD) due to improvements in surgical and medical CHD management today. In 2011, though, fewer than 30% of adult CHD patients were following up with specialized providers. An ineffective transition from pediatric to adult-focused medical care can result in lapses in CHD medical care, patient noncompliance, and increased risk of late complications. Early involvement of a palliative care team offers development of autonomy, identification of potential barriers to care, and support for patient and family that may improve transition success and quality of life in CHD patients.

Origine : PubMed

Grieving, bodily

GILMOUR, Julie
BEREAVEMENT CARE, 02/01/2019, vol.38, n°1, p. 3-5

Document en ligne

Thème : Deuil et travail du deuil.

TEMOIGNAGE ; ENFANT ; ADULTE ; MERE ; MORT SUBITE

My youngest daughter, Ruthie, died abruptly in her sleep at the age of 29. She had married ten years ago and lived far away, in central Mexico, where it was hard to get to her, and therefore all too easy to keep telling myself she was going to be all right, even when things that were happening to her were disturbing. She had been having small, partial-brain seizures for some months, which she had been told were a result of cutting back on alcohol and she was veering somewhat erratically on and off her anti-seizure medication because it often made her too sleepy to function.
[Extrait de l'article]

Origine : Taylor and Francis+NEJM

Psychological interventions for grief in adults - a systematic review and meta-analysis of randomized controlled trials

JOHANNSEN, Maja ; DAMHOLDT, Marlene Flensborg ; ZACHARIAE, Robert ; LUNDORFF, Marie ; FARVER-VESTERGAARD, Ingeborg ; O'CONNOR, Maja
Journal of affective disorders, 10/04/2019, vol.253, p. 69-86

Document en ligne

Thème : Deuil et travail du deuil.

DEUIL ; META-ANALYSE ; SOUTIEN DEUIL ; PSYCHOLOGIE ; ESSAI CONTROLE RANDOMISE ; REVUE LITTERATURE ; ADULTE

Background: The present meta-analysis evaluates the efficacy of psychological interventions for grief in bereaved adults and explores the possible moderating influence of various study characteristics.
Methods: A systematic literature search was conducted by two reviewers who independently searched electronic databases, reviewed and selected eligible studies, and evaluated their methodological quality.
Results: A total of 31 randomized controlled trials (RCTs) were included in the meta-analysis. Statistically significant pooled effects of psychological intervention on grief symptoms were found for both post-intervention (Hedges's g=0.41, p>.001,K=31) and follow-up (g=0.45, p>.001,K=18). While generally robust, the effect was smaller at post-intervention when adjusting for possible publication bias (g=0.31). Compared with the remaining studies, larger post-intervention effect sizes were found for studies with 1) individually delivered interventions (Beta=0.49, p<.001), 2) the ICG-(R)/PG-13 questionnaire as the grief instrument (Beta=0.46, p<.001), 3) participants who were >= 6 months post-loss (Beta=0.58, p<.001), 4) participants included based on high baseline symptom levels (Beta=0.40, p=.002) and 5) higher study quality (Beta=0.06, p=.013).
Limitations: The included studies were methodologically heterogeneous and their methodological quality varied considerably. Moreover, there were some indications of publication bias.
Conclusions: Given the recent introduction of Prolonged Grief Disorder in the ICD-11, the results of the present meta-analysis are timely and of clinical relevance. Based on our results, psychological intervention appears efficacious for alleviating grief symptoms in bereaved adults, with several study characteristics as possible moderators of the effect. The interpretability of the results, however, is challenged by some limitations of the available research, including possible publication bias.

Origine : ScienceDirect

Wisdom as the mediator in the relationships between meaning in life and attitude toward death

BRUDEK, Pawel ; SEKOWSKI, Marcin
Omega, 10/04/2019, 30 p.

Document en ligne

Thème : Psychologie, psychanalyse. Cote : e00.07OME

PERSONNE AGEE ; SENS ; PERCEPTION MORT ; ADULTE ; POLOGNE ; VIEILLISSEMENT

The goal of the presented research was to investigate if wisdom plays a mediating role in the relationships between meaning in life and the attitude toward death in the period of middle and late adulthood. A study was carried out that included 567 persons aged 40 to 75 years. Three measures were used: Personal Meaning Profile, Three-Dimensional Wisdom Scale, and Death Attitude Profile-Revised. The conducted analyses allowed the authors to confirm the mediating role of wisdom in the relationships between meaning in life and fear of death as well as death avoidance in persons during the period of middle and late adulthood.

Origine : PubMed

Recommendations for research on suicide loss - a commentary

NEIMEYER, Robert A. ; CEREL, Julie ; MAPLE, Myfanwy
DEATH STUDIES, 12/2017, vol.41, n°9, p. 673-679

Thème : Deuil et travail du deuil. Cote : 00.07DEA

PSYCHOLOGIE ; ADULTE ; DEUIL ; DEVELOPPEMENT HUMAIN ; PROGRAMME RECHERCHE ; RECOMMANDATION ; SUICIDE ; ETATS-UNIS

As detailed in the lead article in this Special Issue, the Survivors of Suicide Loss Task Force of the National Action Alliance for Suicide Prevention in the United States has recently worked to formulate national guidelines to mitigate the harmful aftereffects of suicide in social and family systems. In the present article, we elaborate on one of four strategic directions addressed by the Task Force, namely, the development of goals and objectives for surveillance, research and evaluation of the impact of suicide loss. By emphasizing methodological guidelines for the conduct of future studies and illustrating progressive programs of investigation as leading exemplars, we hope to contribute to the sophistication of research on public health initiatives, peer support and professional intervention with communities, families and individuals affected by suicide loss.

The effect of a grief support program on Turkish parents whose babies have died

YILDIZ, Hatice ; CIMETE, Güler
DEATH STUDIES, 10/2017, vol.41, n°9, p. 602-610

Thème : Deuil et travail du deuil. Cote : 00.07DEA

PSYCHOLOGIE ; PSYCHOSOCIOLOGIE ; TURQUIE ; ADULTE ; DEUIL ; PARENT ; JEUNE ADULTE ; MORT PERINATALE

The purpose of this study was to determine the effect of the Grief Support Program on the bereavement of parents whose babies had died. The sample consisted of 77 couples. The data was collected by the Texas Revised Inventory of Grief and the Coping Strategies Inventory. The intervention group was offered before, immediately after, and a month after death of their baby in accordance with the Grief Support Program guideline. The Grief Support Program did not affect grief intensity in the short term but had a positive effect 1 year later.

Gratitude, psychological well-being, and perceptions of posttraumatic growth in adults who lost a parent in childhood

GREENE, Nathan ; MCGOVERN, Katie
DEATH STUDIES, 08/2017, vol.41, n°7, p. 436-446

Thème : Deuil et travail du deuil. Cote : 00.07DEA

ETATS-UNIS ; ENFANT ; ADULTE ; PSYCHOLOGIE ; DEUIL ; MORT ; EMOTION ; RELATION INTERPERSONNELLE ; FAMILLE ; JEUNE ADULTE ; ENQUETE ; QUESTIONNAIRE

Findings from an online survey of 350 adults who experienced early parental death showed that current dispositional gratitude was positively correlated with psychological well-being and posttraumatic growth and negatively correlated with depression. Further, 281 participants produced textual responses indicating they could remember the time following their parent's death. Increases in gratitude attributable to the experience of losing a parent were reported by 79% of these participants. They associated their increased gratitude with a newfound belief that life is precious and with greater appreciation for loved ones. Direction of change in gratitude was associated with psychological well-being, posttraumatic growth, and depression.

"There but not there" - imagined bonds with siblings never known

CAMERON MEYER, Marcella ; CARLTON-FORD, Steve
DEATH STUDIES, 08/2017, vol.41, n°7, p. 416-426

Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : 00.07DEA

ETATS-UNIS ; ADULTE ; MORT ; CHAGRIN ; IMAGINAIRE ; ATTACHEMENT ; RELATION INTERPERSONNELLE ; FRATRIE ; JEUNE ADULTE ; PSYCHOLOGIE

Continuing a bond after a loved one's death is considered typical and healthy. However, such a bond can continue symbolically only if it existed in the first place. What of indirect grievers, those who never knew the decedent? The authors describe bonds between individuals who did not have a living relationship to begin with, a concept referred to as imagined bonds. Forty-nine adults, who had a sibling die that they never knew, were interviewed. This article describes the bonds constructed between participants and the sibling they never knew. The authors compare and contrast the concepts of continuing bonds versus imagined bonds.

Continuing bonds and place

JONSSON, Annika ; WALTER, Tony
DEATH STUDIES, 08/2017, vol.41, n°7, p. 406-415

Thème : Mort. Cote : 00.07DEA

ADULTE ; MORT ; LIEU DECES ; RELATION INTERPERSONNELLE ; ENTRETIEN ; ATTACHEMENT ; SUEDE ; ROYAUME UNI

Where do people feel closest to those they have lost? This article explores how continuing bonds with a deceased person can be rooted in a particular place or places. Some conceptual resources are sketched, namely continuing bonds, place attachment, ancestral places, home, reminder theory, and loss of place. The authors use these concepts to analyze interview material with seven Swedes and five Britons who often thought warmly of the deceased as residing in a particular place and often performing characteristic actions. The destruction of such a place, by contrast, could create a troubling, haunting absence, complicating the deceased's absent-presence.

Memory making in end-of-life care in the adult intensive care unit - a scoping review of the research literature

RIEGEL, Melissa ; RANDALL, Sue ; BUCKLEY, Thomas
Australian critical care, 17/01/2019, Pagination inconnue

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie.

SOUVENIR ; FIN VIE ; SOIN INTENSIF ; ADULTE ; REVUE LITTERATURE ; OUTIL ; PHOTOGRAPHIE ; FAMILLE ; ACCOMPAGNEMENT

OBJECTIVE: The objective of this review is to describe the practice of memory making as part of end-of-life care within an adult intensive care setting and determine reported outcomes.
METHODS: A scoping review of the literature was performed. Data were collected from sources such as ProQuest, CINAHL, Medline, Embase, PsycINFO, and PubMed using combinations of the keywords: including adult, critical care, intensive care, ICU, death, dying, grief, bereavement, end?of?life, memento*, memor*, keepsak*, and transitional object. Peer-reviewed studies reporting on the use of memory making within an adult intensive care setting and its outcomes for family members were included.
RESULTS: Four activities facilitating memory making as part of end-of-life care for adults are reported in the literature, all in the intensive care setting. Use of a computer-generated word cloud image received by families in the intensive care was reported as a meaningful keepsake and sometimes displayed in places such as the patient's funeral memorial. Offering a printed copy of the patient's electrocardiogram as a memento was considered by some to be extremely or very helpful during their bereavement experience and was reported by nursing staff to be well received by family members. The use of patient diaries during bereavement has been reported with the potential to promote better understanding of the events leading to the death, and photography was also included in some patient diaries as a visual memento.
CONCLUSION: Although limited evidence is available concerning memory making in the adult intensive care environment, from studies to date, surviving family members of deceased patients in the intensive care unit mostly report valuing memory-making opportunities when offered. However, further research is required to evaluate both healthcare staff's competence and confidence in offering memory making and determine if such offerings promote the family's adjustment to the loss of their loved one after a death in the intensive care area.

Origine : PubMed

What do surviving children wish for from a dying parent? - a qualitative exploration

MURIEL, Anna C. ; MOORE, Cynthia W. ; BEISER, Marguerite ; PARK, Elyse R. ; LIM, Christopher T. ; RAUCH, Paula
DEATH STUDIES, 09/01/2019, p. 1-9

Document en ligne

Thème : Deuil et travail du deuil.

RECHERCHE QUALITATIVE ; MORT ; PARENT ; ADULTE ; ENFANT ; PERSONNE ENDEUILLEE ; SOUVENIR ; TRAVAIL DEUIL

Legacy may play an important role in how children integrate the loss of a parent. Sixteen adults (19â€“40 years old, 69% women) who experienced the death of a parent from an illness before age 12 were interviewed, exploring legacies from their deceased parent. Transcribed interviews were iteratively analyzed by three independent coders. Extracted themes described their experiences and wish for remembrances and specific communication left for them, information about the parentâ€™s values and feelings about them, and personal possessions. This study provides novel data about legacies that bereaved children wish for in adulthood.

Origine : Taylor and Francis+NEJM

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