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The Yale journal of biology and medicine, 12/2019 , vol.92, n°4, Pagination inconnue

Intensive care nurses' experiences of withdrawal of life-sustaining treatments in intensive care patients - a qualitative study

FOSSUM TAYLOR, Ine Henriette ; DIHLE, Alfhild ; HOFSO, Kristin ; STEINDAL, Simen Alexander
Intensive and critical care nursing, 14/11/2019, Pagination inconnue

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Nature of discussions about systemic therapy discontinuation or hospice among patients, families, and palliative care clinicians during care for incurable cancer - a qualitative study

TRAEGER, Lara ; RAPOPORT, Chelsea ; WRIGHT, Emily ; EL-JAWAHRI, Areej ; GREER, Joseph A. ; PARK, Elyse R. ; JACKSON, Vicki A. ; TEMEL, Jennifer S.
JOURNAL OF PALLIATIVE MEDICINE, 13/11/2019, Pagination inconnue

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An objective approach to decisions to withdraw or withhold life-sustaining medical treatment

SAVULESCU, Julian ; CAMERON, James
Journal of law and medicine, 10/2019, vol.27, n°1, p. 192-210

The use of behavioural theories in end-of-life care research - a systematic review

SCHERRENS, Anne-Lore ; BEERNAERT, Kim ; ROBIJN, Lenzo ; DELIENS, Luc ; PAUWELS, Nele S. ; COHEN, Joachim ; DEFORCHE, Benedicte
PALLIATIVE MEDICINE, Sage publications, 06/2018, vol.32, n°6, 1055-1077

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Worth living or worth dying? - the views of the general public about allowing disabled children to die

BRICK, Claudia ; KAHANE, Guy ; WILKINSON, Dominic ; CAVIOLA, Lucius ; SAVULESCU, Julian
Journal of medical ethics, 15/10/2019, p. 1-9

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Association of family ratings of quality of end-of-life care with stopping dialysis treatment and receipt of hospice services

RICHARDS, Claire A. ; HEBERT, Paul L. ; LIU, Chuan-Fen ; ERSEK, Mary ; WACHTERMAN, Melissa W. ; TAYLOR, Leslie L. ; REINKE, Lynn F. ; O'HARE, Ann M.
JAMA network open, 02/10/2019, vol.2, n°10, Pagination inconnue

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Thème : Soins.

ARRET THERAPEUTIQUE ; DIALYSE ; QUALITE SOIN ; FIN VIE ; UNITE SOINS PALLIATIFS

Importance: Approximately 1 in 4 patients receiving maintenance dialysis for end-stage renal disease eventually stop treatment before death. Little is known about the association of stopping dialysis and quality of end-of-life care.
Objectives: To evaluate the association of stopping dialysis before death with family-rated quality of end-of-life care and whether this association differed according to receipt of hospice services at the time of death.
Design, Setting, and Participants: This survey study included data from 3369 patients who were treated with maintenance dialysis at 111 Department of Veterans Affairs medical centers and died between October 1, 2009, to September 30, 2015. Data set construction and analyses were conducted from September 2017 to July 2019.
Exposure: Cessation of dialysis treatment before death.
Main Outcomes and Measures: Bereaved Family Survey ratings.
Results: Among 3369 patients included, the mean (SD) age at death was 70.6 (10.2) years, and 3320 (98.5%) were male. Overall, 937 patients (27.8%) stopped dialysis before death and 2432 patients (72.2%) continued dialysis treatment until death. Patients who stopped dialysis were more likely to have been receiving hospice services at the time of death than patients who continued dialysis (544 patients [58.1%] vs 430 patients [17.7%]). Overall, 1701 patients (50.5%) had a family member who responded to the Bereaved Family Survey. In adjusted analyses, families were more likely to rate overall quality of end-of-life care as excellent if the patient had stopped dialysis (54.9% vs 45.9%; risk difference, 9.0% [95% CI, 3.3%-14.8%]; P = .002) or continued to receive dialysis but also received hospice services (60.5% vs 40.0%; risk difference, 20.5% [95% CI, 12.2%-28.9%]; P < .001).
Conclusions and Relevance: This survey study found that families rated overall quality of end-of-life care higher for patients who stopped dialysis before death or continued dialysis but received concurrent hospice services. More work to prepare patients for end-of-life decision-making and to expand access to hospice services may help to improve the quality of end-of-life care for patients with end-stage renal disease.

Origine : PubMed

Early palliative care consultation in the medical ICU - a cluster randomized crossover trial

MA, Jessica ; CHI, Stephen ; BUETTNER, Benjamin ; POLLARD, Katherine ; MUIR, Monica ; KOLEKAR, Charu ; AL-HAMMADI, Noor ; CHEN, Ling ; KOLLEF, Marin ; DANS, Maria
Critical care medicine, 12/2019, vol.477, n°12, p. 1707-1715

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Withdrawing noninvasive ventilation at end-of-life care - is there a right time?

TRIPODORO, Vilma A. ; RABEC, Claudio A. ; DE VITO, Eduardo L.
Current opinion in supportive and palliative care, 12/2019, vol.13, n°4, p. 344-350

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In the child's best interests - should life be sustained when further treatment is futile?

MARLAND, Emma ; DAVIES, Barbara
Nursing children and young people, 22/10/2019, Pagination inconnue

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Implantable cardioverter defibrillator deactivation and advance care planning - a focus group study

STOEVELAAR, Rik ; BRINKMAN-STOPPELENBURG, Arianne ; GEERT VAN DRIEL, Anne ; VAN BRUCHEM-VISSER, Rozemarijn L. ; THEUNS, Dominic Amj ; BHAGWANDIEN, Rohit E. ; VAN DER HEIDE, Agnes ; RIETJENS, Judith Ac
Heart, 19/09/2019, p. 1-6

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Withdrawing life-sustaining treatment - a stock-take of the legal and ethical position

RUCK KEENE, Alexander Charles Edward ; LEE, Annabel
Journal of medical ethics, 05/09/2019, Pagination inconnue

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Palliative extubation - a five-year experience in a pediatric hospital

DE ARAUJO AFFONSECA, Carolina ; DE CARVALHO, Luis Fernando Andrade ; DE PINHO BARROSO QUINET, Renata ; DA CUNHA GUIMARAES, Maila Cristina ; FERREIRA CURY, Veronica ; TELLECHEA ROTTA, Alexandre
Jornal de pediatria, 04/09/2019, p. 1-8

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International review of national-level guidelines on end-of-life care with focus on the withholding and withdrawing of artificial nutrition and hydration

MAYERS, Thomas ; KASHIWAGI, Shiho ; MATHIS, Bryan J. ; KAWABE, Makiko ; GALLAGHER, Joshua ; MORALES ALIAGA, Maria L. ; KAI, Ichiro ; TAMIYA, Nanako
Geriatrics and gerontology international, 06/08/2019, Pagination inconnue

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Consentir, entre liberté et contrainte

CECCALDI, Joël
LAENNEC, 2018, vol.66, n°4, p. 34-44

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To die, to sleep, perchance to dream? - a response to Demichelis, Shaul and Rapoport

GAMBLE, Joel L. ; GAMBLE, Nathan K. ; PRUSKI, Michal
Journal of medical ethics, 18/07/2019, Pagination inconnue

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Advance care plan barriers in older patients with end-stage renal disease - a qualitative nephrologist interview study

O'RIORDAN, Julien ; NOBLE, Helen ; KANE, P. M. ; SMYTH, Andrew
BMJ supportive and palliative care, 25/06/2019, Pagination inconnue

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Experiences of caregivers desiring to refuse life-prolonging treatment for their elderly parents at the end of life

MAURA, Yuki ; YAMAMOTO, Mariko ; TAMAKI, Tomoko ; ODACHI, Ryo ; ITO, Mikiko ; KITAMURA, Yuri ; SOBUE, Tomotaka
International journal of qualitative studies on health and well-being, 06/2019, vol.14, n°1, 10 p.

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Processes toward the end of life and dialysis withdrawal physicians' and nurses' perspectives

AXELSSON, Lena ; BENZEIN, Eva ; LINDBERG, Jenny ; PERSSON, Carina
Nursing ethics, 11/06/2019, Pagination inconnue

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