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Dying still matters in the age of covid-19

RHEE, Joel ; GRANT, Matthew ; DETERING, Karen ; CLAYTON, Josephine ; ARTHURS, Kelly
Australian journal of general practice, 06/2020, vol.49, 2 p.

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Spirituality and religiosity in a palliative medicine population - mixed-methods study

O'CALLAGHAN, Clare C ; GEORGOUSOPOULOU, Ekavi ; SEAH, Davinia ; CLAYTON, Josephine M ; KISSANE, David W. ; MICHAEL, Natasha
BMJ supportive and palliative care, 04/06/2020, Pagination inconnue

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Palliative care needs and utilization of specialist services for people imminently dying with dementia - a national population-based study

DING, Jinfeng ; COOK, Angus ; QIN, Xiwen ; HO, Stephen C.H. ; JOHNSON, Claire E
International journal of nursing studies, 09/2020, vol.109, Pagination inconnue

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Physician attitudes to voluntary assisted dying - a scoping review

RUTHERFORD, Jodhi ; WILLMOTT, Lindy ; WHITE, Ben P
BMJ supportive and palliative care, 20/06/2020, Pagination inconnue

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Thème : Soins.

MEDECIN ; SUICIDE MEDICALEMENT ASSISTE ; AUSTRALIE ; ATTITUDE ; LOI

Background: Voluntary assisted dying (VAD) became legal in the Australian state of Victoria on 19 June 2019 and will be legal in Western Australia from 2021. Other Australian states are progressing similar law reform processes. In Australia and internationally, doctors are central to the operation of all legal VAD regimes. It is broadly accepted that doctors, as a profession, are less in favour of VAD law reform than the rest of the community. To date, there has been little analysis of the factors that motivate doctors’ support or opposition to legalised VAD in Australia.
Aim: To review all studies reporting the attitudes of Australian doctors regarding the legalisation of VAD, including their willingness to participate in it, and to observe and record common themes in existing attitudinal data.
Design: Scoping review and thematic analysis of qualitative and quantitative data.
Data sources: CINAHL, Embase, Scopus, PubMed and Informit were searched from inception to June 2019.
Results: 26 publications detailing 19 studies were identified. Thematic analysis of quantitative and qualitative findings was performed. Three overarching themes emerged. ‘Attitudes towards regulation’ encompassed doctors’ orientation towards legalisation, the shortcomings of binary categories of support or opposition and doctors’ concerns about additional regulation of their professional practices. ‘Professional and personal impact of legalisation’ described tensions between palliative care and VAD, and the emotional and social impact of being providers of VAD. ‘Practical considerations regarding access’ considered doctors’ concerns about eligibility criteria and their willingness to provide VAD.
Conclusion: A detailed understanding of medical perspectives about VAD would facilitate the design of legislative models that take better account of doctors’ concerns. This may facilitate their greater participation in VAD and help address potential access issues arising from availability of willing doctors.

Origine : DOI.org (Crossref

The burden of diagnostic investigations at the end of life for people with COPD

ROSS, Lauren ; TAVERNER, John ; JOHN, Jennifer ; BAISCH, Andreas ; IRVING, Louis ; PHILIP, Jennifer ; SMALLWOOD, Natasha
Internal medicine journal, 16/06/2020, Pagination inconnue

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Complexities and constraints in end of life care for hospitalised prisoner patients

PANOZZO, Stacey ; BRYAN, Tamsin ; COLLINS, Anna ; MARCO, David ; LETHBORG, Carrie ; PHILIP, Jennifer A.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 25/05/2020, p. 1-9

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Patients’ and caregivers’ experiences of driving with chronic breathlessness before and after regular low-dose sustained-release morphine - a qualitative study

FERREIRA, Diana H ; BOLAND, Jason W ; KOCHOVSKA, Slavica ; HONSON, Aaron ; PHILLIPS, Jane L ; CURROW, David C
PALLIATIVE MEDICINE, 10/06/2020, Pagination inconnue

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Factors associated with re-enrollment of patients from a specialist community palliative care service

HO, Ge Kai ; CHYE, Richard ; JANG, Danny ; SUTTON, Patricia ; SULLIVAN, Sandra ; SEAH, Davinia
JOURNAL OF PALLIATIVE MEDICINE, 29/05/2020, Pagination inconnue

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Personal and interpersonal factors and their associations with advance care planning documentation - a cross-sectional survey of older adults in Australia

SELLARS, Marcus ; DETERING, Karen M. ; SINCLAIR, Craig ; WHITE, Ben P. ; BUCK, Kimberly ; RUSECKAITE, Rasa ; CLAYTON, Josephine M. ; NOLTE, Linda
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/06/2020, vol.59, n°6, p. 1212-1222

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Triaging the terminally ill - development of the Responding to Urgency of Need in Palliative Care (RUN-PC) triage tool

RUSSELL, Bethany ; VOGRIN, Sara ; PHILIP, Jennifer ; HENNESSY-ANDERSON, Nicole ; COLLINS, Anna ; BURCHELL, Jodie ; LE, Brian ; BRAND, Caroline ; HUDSON, Peter ; SUNDARARAJAN, Vijaya
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/2020, vol.59, n°1, p. 95-104

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Factors affecting access to subcutaneous medicines for people dying in the community

TAIT, Paul ; SHEEHY, Kylee ; SINDHUSAKE, Doungkamol ; MUSCILLO, Nina
PROGRESS IN PALLIATIVE CARE, 06/04/2020, p. 1-8

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The voluntary assisted dying law in Victoria - a good first step but many problems remain

SAVULESCU, Julian
Journal of law and medicine, 04/2020, vol.27, n°3, p. 535-550

Too much safety? - safeguards and equal access in the context of voluntary assisted dying legislation

MCDOUGALL, Rosalind ; PRATT, Bridget
BMC medical ethics, 13/05/2020, vol.21, n°1, p. 1-10

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End-of-life care in an Australian acute hospital - a retrospective observational study

MAUBACH, Ninya ; BATTEN, Monique ; JONES, Scott ; CHEN, Judy ; SCHOLZ, Brett ; DAVIS, Alison ; BROMLEY, Jonathan ; BURKE, Brandon ; TAN, Ren ; HURWITZ, Mark ; RODGERS, Helen ; MITCHELL, Imogen
Internal medicine journal, 01/01/2019, vol.49, n°11, p. 1400-1405

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Passing on wisdom - exploring the end-of-life wishes of Aboriginal people from the midwest of Western Australia

THOMPSON, Sandra ; LYFORD, Marilyn ; PAPERTALK, Lennelle ; HOLLOWAY, Michele
Rural and remote health, 01/01/2019, vol.19, n°4, p. 1-9

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Thème : Soins. Cote : eD02.03

AUSTRALIE ; FIN VIE ; ETHNICITE ; PREFERENCE

INTRODUCTION: Indigenous patients with life-limiting conditions have complex needs, experience reduced access to and uptake of treatment, and have lower utilisation of palliative care services than the general population. Lack of understanding of the role of palliative care and poor availability of culturally safe specialist palliative care services impact on Indigenous people's end-of-life decision-making.
METHODS: To understand Aboriginal people's perspectives and experiences at the end of life, an exploratory study using facilitated group discussions in community settings in a region of Western Australia was undertaken. Local Aboriginal people were engaged to talk frankly about their wishes and concerns around end of life. The community consultations included two meetings at the local Aboriginal corporation, an evening meeting for invited community members, a meeting at the local Aboriginal community controlled health service and two further meetings of community members at local gathering places. These were supplemented by the analysis of previous in-depth video-recorded interviews that were undertaken with Aboriginal people with cancer reporting on their concerns and wishes.
RESULTS: The community consultations raised considerable discussion about wills, where to die, burial versus cremation, and the cost of funerals. Possibilities emerging from participants' reflections on the issue were public celebrations to honour someone's life, the potential use of sorting cards to help discussions about end-of-life personal wishes, and interest in making and decorating coffins. Aboriginal people with cancer raised similar issues, and focused on avoiding family disharmony by ensuring their family were aware of their end-of-life wishes.
CONCLUSION: Within a safe space, Aboriginal people were happy to talk about end-of-life wishes, although certain aspects of death remain contentious. Sorting cards, ceremonies, education and care roles involving Aboriginal people offer potential means for effectively engaging Aboriginal people in preparing for death and dealing with grief.

Origine : PubMed

WOODS, John A. ; JOHNSON, Claire E. ; NGO, Hanh T. ; KATZENELLENBOGEN, Judith M. ; MURRAY, Kevin ; THOMPSON, Sandra C.
International journal of environmental research and public health, 30/04/2020, vol.17, n°9, p. 1-13

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Creating evidence - findings from a grounded theory of memory-making in neonatal bereavement care in Australia

THORNTON, Rebecca ; NICHOLSON, Patricia ; HARMS, Louise
Journal of pediatric nursing, 25/04/2020, vol.53, p. 29-35

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A multicomponent nonpharmacological intervention to prevent delirium for hospitalized people with advanced cancer - a phase II cluster randomized waitlist controlled trial (the preserve pilot study)

HOSIE, Annmarie ; PHILLIPS, Jane ; LAM, Lawrence ; KOCHOVSKA, Slavica ; NOBLE, Beverly ; BRASSIL, Meg ; KURRLE, Susan ; CUMMING, Anne ; CAPLAN, Gideon A. ; CHYE, Richard ; ELY, Eugene Wesley ; LAWLOR, Peter G. ; BUSH, Shirley H. ; DAVIS, Jan Maree ; LOVELL, Melanie ; PARR, Cynthia ; WILLIAMS, Sally ; HAUSER, Katherine ; MCARDLE, Susan ; JACQUIER, Karen ; PHILLIPSON, Carl ; KUWAHATA, Lynne ; KERFOOT, Jackie ; BROWN, Linda ; FAZEKAS, Belinda ; CHEAH, Seong Leang ; EDWARDS, Layla ; GREEN, Anna ; HUNT, Jane ; ATTWOOD, Robyn ; ASSEN, Teresa ; GARCIA, Maja ; WILCOCK, Julie ; AGAR, Meera
JOURNAL OF PALLIATIVE MEDICINE, 24/04/2020, Pagination inconnue

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Thème : Médecine.

DELIRE ; CANCER ; AUSTRALIE ; PRATIQUE ALTERNATIVE ; ESSAI CONTROLE RANDOMISE

Background: Delirium is a common debilitating complication of advanced cancer.
Objective: To determine if a multicomponent nonpharmacological delirium prevention intervention was feasible for adult patients with advanced cancer, before a phase III (efficacy) trial.
Design: Phase II (feasibility) cluster randomized controlled trial. All sites implemented delirium screening and diagnostic assessment. Strategies within sleep, vision and hearing, hydration, orientation, mobility, and family domains were delivered to enrolled patients at intervention site admission days 1–7. Control sites then implemented the intervention (“waitlist sites”).
Setting: Four Australian palliative care units.
Measurements: The primary outcome was adherence, with an a priori endpoint of at least 60% patients achieving full adherence. Secondary outcomes were interdisciplinary care delivery, delirium measures, and adverse events, analyzed descriptively and inferentially.
Rsults: Sixty-five enrolled patients (25 control, 20 intervention, and 20 waitlist) had 98% delirium screens and 75% diagnostic assessments completed. Nurses (67%), physicians (16%), allied health (8.4%), family (7%), patients (1%), and volunteers (0.5%) delivered the intervention. There was full adherence for 5% patients at intervention sites, partial for 25%. Both full and partial adherence were higher at waitlist sites: 25% and 45%, respectively. One-third of control site patients (32%) became delirious within seven days of admission compared to one-fifth (20%) at both intervention and waitlist sites (p = 0.5). Mean (standard deviation) Delirium Rating Scale-Revised-1998 scores were 16.8 + 12.0 control sites versus 18.4 + 8.2 (p = 0.6) intervention and 18.7 + 7.8 (p = 0.5) waitlist sites. The intervention caused no adverse events.
Conclusion: The intervention requires modification for optimal adherence in a phase III trial.

Origine : PubMed

Characteristics of people with dementia vs other conditions on admission to inpatient palliative care

DING, Jinfeng ; JOHNSON, Claire E. ; LEE, Yun Chong Olivia ; GAZEY, Angela ; COOK, Angus
Journal of the American Geriatrics Society, 24/04/2020, Pagination inconnue

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Thème : Médecine.

DEMENCE ; DEMARCHE PALLIATIVE ; AUSTRALIE ; SYMPTOME ; ANALYSE COMPARATIVE

OBJECTIVES: Our aim was to (1) describe the clinical characteristics and symptoms of people diagnosed with dementia at the time of admission to inpatient palliative care; and (2) compare the nature and severity of these palliative care–related problems to patients with other chronic diseases.
DESIGN: Descriptive study using assessment data on point of care outcomes (January 1, 2013, to December 31, 2018).
SETTING: A total of 129 inpatient palliative care services participating in the Australian Palliative Care Outcomes Collaboration.
PARTICIPANTS: A total of 29,971 patients with a primary diagnosis of dementia (n = 1,872), lung cancer (n = 19,499), cardiovascular disease (CVD, n = 5,079), stroke (n = 2,659), or motor neuron disease (MND, n = 862).
MEASUREMENTS: This study reported the data collected at the time of admission to inpatient palliative care services including patients' self-rated levels of distress from seven common physical symptoms, clinician-rated symptom severity, functional dependency, and performance status. Other data analyzed included number of admissions, length of inpatient stay, and palliative care phases.
RESULTS: At the time of admission to inpatient palliative care services, relative to patients with lung cancer, CVD, and MND, people with dementia presented with lower levels of distress from most symptoms (odds ratios [ORs] range from .15 to .80; P < .05 for all) but higher levels of functional impairment (ORs range from 3.02 to 8.62; P < .001 for all), and they needed more assistance with basic activities of daily living (ORs range from 3.83 to 12.24; P < .001 for all). The trends were mostly the opposite direction when compared with stroke patients. Patients with dementia tended to receive inpatient palliative care later than those with lung cancer and MND.
CONCLUSION: The unique pattern of palliative care problems experienced by people with dementia, as well as the skills of the relevant health services, need to be considered when deciding on the best location of care for each individual. Access to appropriately trained palliative care clinicians is important for people with high levels of physical or psychological concerns, irrespective of the care setting or diagnosis.

Origine : PubMed

Palliative care in the context of immune and targeted therapies - a qualitative study of bereaved carers' experiences in metastatic melanoma

FOX, Jennifer A. ; ROSENBERG, John ; EKBERG, Stuart ; LANGBECKER, Danette
PALLIATIVE MEDICINE, 27/04/2020, Pagination inconnue

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