VigiPallia : Résultats

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Triaging the terminally ill - development of the Responding to Urgency of Need in Palliative Care (RUN-PC) triage tool

RUSSELL, Bethany ; VOGRIN, Sara ; PHILIP, Jennifer ; HENNESSY-ANDERSON, Nicole ; COLLINS, Anna ; BURCHELL, Jodie ; LE, Brian ; BRAND, Caroline ; HUDSON, Peter ; SUNDARARAJAN, Vijaya
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/2020, vol.59, n°1, p. 95-104

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Collaborative data familiarisation and quality assessment - reflections from use of a national dataset to investigate palliative care for indigenous Australians

WOODS, John A ; JOHNSON, Claire E ; ALLINGHAM, Samuel F ; NGO, Hanh T ; KATZENELLENBOGEN, Judith M ; THOMPSON, Sandra C
Health information management journal, 27/03/2020, Pagination inconnue

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General practitioners’ perceptions on the feasibility and acceptability of implementing a risk prediction checklist to support their end-of-life discussions in routine care - a qualitative study

LEWIS, Ebony T ; MAHIMBO, Abela ; LINHART, Christine ; WILLIAMSON, Margaret ; MORGAN, Mark ; HAMMILL, Kathrine ; HALL, John ; CARDONA, Magnolia
Family practice, 16/04/2020, Pagination inconnue

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Speech-language pathologists and adult palliative care in Australia

CHAHDA, Laura ; CAREY, Lindsay B. ; MATHISEN, Bernice A. ; THREATS, Travis
International journal of speech-language pathology, 17/03/2020, p. 1-13

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Older adults' understandings and perspectives on frailty in community and residential aged care - an interpretive description

ARCHIBALD, Mandy ; LAWLESS, Michael ; AMBAGTSHEER, Rachel C. ; KITSON, Alison
BMJ Open, 18/03/2020, vol.10, n°3, p. 1-9

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Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.04

PERSONNE AGEE ; VULNERABILITE ; RECHERCHE QUALITATIVE ; AUSTRALIE

OBJECTIVES: Despite growing interest in frailty as a significant public health challenge, comparatively little is known about how older adults perceive and experience frailty, limiting the effectiveness of strategies to improve frailty management and prevention. The objective of this study was to understand how older people, including frail older persons in residential aged care, perceive and understand frailty through an interpretive-descriptive qualitative study.
SETTING: Aged care facility, community-based university for older persons and an aged care auxiliary care group in a large metropolitan centre in South Australia.
PARTICIPANTS: 39 non-frail, prefrail, frail and very frail South Australian older adults.
METHODS: Seven focus groups were conducted. Participants completed one of two frailty instruments depending on setting and indicated whether they self-identified as frail. Data were analysed inductively and thematically by two independent investigators.
RESULTS: Frailty was described according to three schemas of (1) the old and frail: a static state near the end of life; (2) frailty at any age: a disability model; and (3) frailty as a loss of independence: control, actions and identity. In addition, a theme was identifying linking mindset, cognition and emotion to frailty. The term frailty was viewed negatively and was often implicated with personal choice. There was little correlation between frailty assessments and whether participants self-identified as frail.
CONCLUSIONS: Aside from a disability model, views of frailty as unmodifiable permeated older persons' diverse perspectives on frailty and are likely to impact health behaviours. To our knowledge, this is among the largest qualitative studies examining consumer perceptions of frailty and contributes a clinically relevant schema linking age, prevention and modifiability from a consumer perspective.

Origine : PubMed

"A monster that lives in our lives" - experiences of caregivers of people with motor neuron disease and identifying avenues for support

HENNESSY ANDERSON, Nicole ; GLUYAS, Cathy ; MATHERS, Susan ; HUDSON, Peter ; UGALDE, Anna
BMJ supportive and palliative care, 12/2019, vol.9, n°4, Pagination inconnue

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"I want to die in my sleep" - how people think about death, choice, and control: findings from a massive open online course

SANDERSON, Christine ; MILLER-LEWIS, Lauren ; RAWLINGS, Deb ; PARKER, Deborah ; TIEMAN, Jennifer
Annals of palliative medicine, 09/2019, vol.8, n°4, p. 411-419

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Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition - a cross-sectional study of caregiver-reported outcomes

COLLINS, Anna ; BURCHELL, Jodie ; REMEDIOS, Cheryl ; THOMAS, Kristina
PALLIATIVE MEDICINE, 27/02/2020, Pagination inconnue

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Australian policies on "futile" or "non-beneficial" treatment at the end of life - a qualitative content analysis

CLOSE, Eliana ; PARKER, Malcolm ; WILLMOTT, Lindy ; WHITE, Ben ; CROWDEN, Andrew
Journal of law and medicine, 12/2019, vol.27, n°2, p. 415-439

Challenges for nurses when communicating with people who have life-limiting illness and their families - a focus group study

KERR, Debra ; MILNES, Sharyn ; AMMENTORP, Jette ; MCKIE, Claire ; DUNNING, Trisha ; OSTASZKIEWICZ, Joan ; WOLDERSLUND, Maiken ; MARTIN, Peter J.
Journal of clinical nursing, 02/2020, vol.29, n°3-4, p. 416-428

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Community knowledge of law on end-of-life decision-making - an Australian telephone survey

TILSE, Cheryl ; WILSON, Jill ; WHITE, Ben ; WILLMOTT, Lindy ; LAWSON, Deborah ; DUNN, Jeffrey ; AITKEN, Joanne F. ; PEARCE, Angela ; FERGUSON, Michele
Journal of law and medicine, 12/2019, vol.27, n°2, p. 399-414

Gag clause prevents discussion of assisted dying in Victoria, Australia

KIRBY, Tony
The Lancet. Respiratory medicine, 04/2020, vol.8, n°4, p. 341-342

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Improving palliative and end-of-life care for rural and remote Australians

WENHAM, Sarah ; CUMMING, Melissa ; SAURMAN, Emily
Public health research and practice, 10/03/2020, vol.30, n°1, p. 1-4

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What are the factors identifying caregivers who need help in managing medications for palliative care patients at home? - a population survey

TAIT, Paul ; CUTHBERTSON, Elizabeth ; CURROW, David
JOURNAL OF PALLIATIVE MEDICINE, 10/03/2020, Pagination inconnue

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End-of-life care in general practice - clinic-based data collection

DING, Jinfeng ; COOK, Angus ; CHUA, David ; LICQURISH, Sharon ; WOOLFORD, Marta ; DECKX, Laura ; MITCHELL, Geoffrey ; JOHNSON, Claire E.
BMJ supportive and palliative care, 17/02/2020, Pagination inconnue

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Nurses' knowledge of law at the end of life and implications for practice - a qualitative study

WILLMOTT, Lindy ; WHITE, Ben ; YATES, Patsy ; MITCHELL, Geoffrey ; CURROW, David ; GERBER, Katrin ; PIPER, Donella
PALLIATIVE MEDICINE, 07/02/2020, Pagination inconnue

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Anticancer therapy within the last 30 days of life - results of an audit and re-audit cycle from an Australian regional cancer centre

NGUYEN, Mike ; NG YING KIN, Sean ; SHUM, Evonne ; WANN, Alysson ; TAMJID, Babak ; SAHU, Arvind ; TORRES, Javier
BMC palliative care, 27/01/2020, vol.19, n°1, p. 1-10

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Victoria's voluntary assisted dying act - navigating the section 8 gag clause

MOORE, Bryanna ; HEMPTON, Courtney ; KENDAL, Evie
The medical journal of Australia, 19/01/2020, Pagination inconnue

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Mapping palliative and end of care research in Australia (2000-2018)

KHALIL, H. ; DOWNIE, A. ; RISTEVSKI, E.
Palliative and supportive care, 20/01/2020, p. 1-9

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Thème : Recherche - Evaluation - Méthodologie.

RECHERCHE ; AUSTRALIE ; REVUE LITTÉRATURE ; DEMARCHE PALLIATIVE ; FIN VIE

OBJECTIVE: The objective of this study is to map the existent research undertaken in Australia into broad thematic areas and identify the characteristics of the studies and areas of future research in the literature.
METHODS: A scoping review methodology was employed to map the current areas of research undertaken in Australia since January 2000 until the end of December 2018 according to years of publications, types of studies, populations studied, research themes, and areas of focus.
RESULTS: Our review identified 1,405 Australian palliative care research publications between January 2000 and December 2018. Nearly 40% of the studies were quantitative (39%) and a third were qualitative studies (31%). The remainder of the studies were reviews, mixed methods, quality improvement projects, and others. One-third (30%) of the research was done with carers' participants followed by nurses (22%) and doctors and physicians (18%). The most frequently reported diagnosis in the studies was cancer with 42% of the publication total. The most frequently explored theme was physical symptoms (such as pain, breathlessness, nausea, delirium, and dyspnea) with a total of 16% of all articles followed by communication (15%). There was a large gap to the next most frequently explored theme with service delivery (9%) and coordination of care (8%). Assessment of patients (7%), end-of-life decision-making (6%), and rural/regional (6%) all produced a similar number of publications. Very few studies addressed topics such as quality of life, E-Health, after-hours care, spirituality, and health economics. Moreover, there were only 15 (1%) studies focused on the last days of life.
SIGNIFICANCE OF THE RESULTS: The current review presented a comprehensive search of the literature across almost two decades in Australia in the palliative care setting. It has covered a breadth of research topics and highlighted urgent areas for further research.

Origine : PubMed

Choice depends on options - a public health framework incorporating the social determinants of dying to create options at end of life

GRINDROD, Andrea
PROGRESS IN PALLIATIVE CARE, 05/01/2020, p. 1-7

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