VigiPallia : Résultats

AUSTRALIE

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End-of-life care for Aboriginal and Torres Strait Islander people with cancer - an exploratory study of service utilisation and unmet supportive care needs

BERNARDES, Christina M. ; BEESLEY, Vanessa ; SHAHID, Shaouli ; MEDLIN, Linda ; GARVEY, Gail ; VALERY, Patricia C.
Supportive care in cancer, 29/08/2020, Pagination inconnue

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Characteristics of family meetings for patients with advanced disease in an Australian metropolitan tertiary hospital

WANG, Amy ; THOMAS, Kristina ; WEIL, Jennifer ; HUDSON, Peter
BMJ supportive and palliative care, 27/07/2020, Pagination inconnue

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Effect of antipsychotics and non-pharmacotherapy for the management of delirium in people receiving palliative care

LEE, Kar Yee ; TAN, Edwin Chin Kang ; HANRAHAN, Jane R. ; CHIRCOP, Christopher ; MICHAEL, Felicia ; ONG, Jennifer A.
Journal of pain and palliative care pharmacotherapy, 30/07/2020, p. 1-12

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A stepped-wedge randomised-controlled trial assessing the implementation, impact and costs of a prospective feedback loop to promote appropriate care and treatment for older patients in acute hospitals at the end of life - study protocol

LEE, Xing J. ; FARRINGTON, Alison ; CARTER, Hannah ; SHIELD, Carla ; GRAVES, Nicholas ; MCPHAIL, Steven M. ; HARVEY, Gillian ; WHITE, Ben P. ; WILLMOTT, Lindy ; CARDONA, Magnolia ; HILLMAN, Ken ; CALLAWAY, Leonie ; BARNETT, Adrian G.
BMC GERIATRICS, 29/07/2020, vol.20, n°1, p. 1-9

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Estimating the prevalence of life-limiting conditions in Queensland for children and young people aged 0-21 years using health administration data

BOWERS, Alison P. ; CHAN, Raymond J. ; HERBERT, Anthony ; YATES, Patsy
Australian health review, 08/2020, vol.44, n°4, p. 630-636

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

PREVALENCE ; PEDIATRIE ; AUSTRALIE ; MALADIE LETALE

Objective: The prevalence of life-limiting conditions in children in Australia is unknown; such data are needed to inform health service planning for paediatric palliative care. The aim of this study was to estimate the prevalence of life-limiting conditions for children and young people aged 0-21 years living in Queensland, Australia.
Methods: An observational study using linked administrative health data from the 2011 and 2016 calendar years was performed for all individuals with an International Statistical Classification of Diseases and Related Health Problems 10th Revision Australian Modification code relating to a life-limiting condition eligible for palliative care recorded against an admission to a public or private hospital and health service provider in Queensland or against a cause or underlying cause of death in the Queensland Registrar General Deaths.
Results: The overall prevalence of life-limiting conditions per 10000 population increased from 35.2 (95% confidence interval (CI) 34.2-36.2) in 2011 to 43.2 (95% CI 42.1-44.4) in 2016. This increase in prevalence was greatest for children <1 year of age and for those who identified as Aboriginal and Torres Strait Islander.
Conclusion: This study has estimated the prevalence of life-limiting conditions for children and young people aged 0-21 years living in Queensland. Estimation of the number of children and young people with life-limiting conditions can inform health service planning for paediatric palliative care in Queensland. Future research is needed to identify the number of children and young people with life-limiting conditions who do not have an admitted episode. What is known about the topic? Data from the UK indicate that the prevalence of life-limiting conditions among children and young people is increasing. However, such data are not available for the Australian population. Because prevalence data can be affected by population characteristics, it is important to establish country-specific epidemiological data rather than extrapolating data from other countries. Country-specific data can inform health planners and policy makers of the scale of the problem within a geographical and demographic context. This is essential for Australia given the diverse geographical and demographic characteristics and specific needs of Aboriginal and Torres Strait Islander peoples. What does this paper add? This study is the first to provide an estimate of the prevalence of life-limiting conditions in children and young people aged 0-21 years in Queensland. Estimates include the prevalence of life-limiting conditions in children and young people who identify as being of Aboriginal and/or Torres Strait Islander descent. What are the implications for practitioners? The prevalence of life-limiting conditions in Queensland is greater than previously thought. There is a need to grow both a generalist and specialist paediatric palliative care workforce in response to this increasing prevalence. The estimates of prevalence proportions from this study provide the foundation on which future health service activities can be built because they provide country-specific clinical and demographic characteristics.

Origine : PubMed

Palliative care physicians' preparation and planning for the implementation of the voluntary assisted dying act in Victoria

PHILIP, Jennifer ; HOLMES, Alex ; BENSON, Melanie ; BOUGHEY, Mark ; YOONG, Jaclyn ; CLINCH, Alexandra ; MORAN, Juli
Internal medicine journal, 03/08/2020, Pagination inconnue

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End-of-life doulas - a qualitative analysis of interviews with Australian and international death doulas on their role

RAWLINGS, Deb ; LITSTER, Caroline ; MILLER-LEWIS, Lauren ; TIEMAN, Jennifer ; SWETENHAM, Kate
Health and social care in the community, 03/08/2020, Pagination inconnue

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Cancer rehabilitation & palliative care - exploring the synergies

CHOWDHURY, Rabeya ; BRENNAN, Frank P. ; GARDINER, Matthew D.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/08/2020, p. 1-14

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Cause of death for people with end-stage kidney disease withdrawing from treatment in Australia and New Zealand

KHOU, Victor ; DE LA MATA, Nicole L. ; MORTON, Rachael L. ; KELLY, Patrick J. ; WEBSTER, Angela C.
Nephrology, dialysis, transplantation, 04/08/2020, Pagination inconnue

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Development of voluntary assisted dying training in Victoria, Australia - a model for consideration

WHITE, Ben P. ; WILLMOTT, Lindy ; CLOSE, Eliana ; HEWITT, Jayne ; MEEHAN, Rebecca ; GREAVES, Laura Ley ; PARKER, Malcolm H. ; YATES, Patsy
JOURNAL OF PALLIATIVE CARE, 04/08/2020, Pagination inconnue

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Thème : Formation.

SUICIDE MEDICALEMENT ASSISTE ; AUSTRALIE ; FORMATION PROFESSIONNELLE ; MEDECIN

BACKGROUND: Voluntary assisted dying was legalized in Victoria, Australia in June 2019, and was the first jurisdiction internationally to legislatively mandate training for doctors conducting eligibility assessments of patients. Mandatory training was designed as a safeguard to ensure compliance within the system, so that only eligible patients would gain access to voluntary assisted dying.
OBJECTIVE: This article outlines the development of training mandated for doctors prior to undertaking eligibility assessments for voluntary assisted dying. The training addressed required legal knowledge, including doctors' roles, duties and legal protections, and also provided instruction on relevant clinical skills.
DESIGN: Training design was based on 2 main principles: to comprehensively impart the legal duties imposed by the legislation; and to be readily accessible for busy doctors. The law was first mapped into a curriculum, and circulated to medical colleges, societies and professional organizations as well as international experts for feedback. The training was converted into an online e-learning format and tested at a focus group of doctors.
RESULTS: The training comprises 9 modules including an assessment module. While the predominant focus of the modules is on law, they also contain some clinical components and links to further resources. Modules also contain videos, case studies and interactive exercises. The assessment consists of 30 questions, selected randomly from a question bank, with a pass mark of 90%.
CONCLUSION: The Victorian legislatively-mandated voluntary assisted dying training provides standardized baseline knowledge to enhance the quality and consistency of decision-making by doctors. While further evaluation of this training is needed, it may provide a model for other jurisdictions considering making voluntary assisted dying lawful.

Origine : PubMed

Australian College of Critical Care Nurses and Australasian College for Infection Prevention and Control position statement on facilitating next-of-kin presence for patients dying from coronavirus disease 2019 (COVID-19) in the intensive care unit

BLOOMER, Melissa J. ; BOUCHOUCHA, Stéphane
Australian critical care, 16/07/2020, p. 1-3

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Prevalence of advance care planning documentation and self-reported uptake in older Australians with a cancer diagnosis

DETERING, Karen M. ; SELLARS, Marcus ; KELLY, Helana ; CLAYTON, Josephine M. ; BUCK, Kim ; NOLTE, Linda
Journal of geriatric oncology, 29/07/2020, Pagination inconnue

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Feasibility of using a risk assessment tool to predict hospital transfers or death for older people in Australian residential aged care - a retrospective cohort study

OOI, Meidelynn ; LEWIS, Ebony T. ; BRISBANE, Julianne ; TUBB, Evalynne ; MCCLEAN, Tom ; ASSAREH, Hassan ; HILLMAN, Ken ; ACHAT, Helen ; CARDONA, Magnolia
Healthcare, 21/08/2020, vol.8, n°3, p. 1-11

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Navigating the complexities of voluntary assisted dying in palliative care

WARAN, Eswaran ; WILLIAM, Leeroy
The medical journal of Australia, 23/08/2020, Pagination inconnue

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The pervasive relevance of covid-19 within routine paediatric palliative care consultations during the pandemic - a conversation analytic study

EKBERG, Katie ; WEINGLASS, Lara ; EKBERG, Stuart ; DANBY, Susan ; HERBERT, Anthony
PALLIATIVE MEDICINE, 16/08/2020, Pagination inconnue

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Association between region of birth and advance care planning documentation among older Australian migrant communities - a multi-center audit study

SINCLAIR, Craig ; SELLARS, Marcus ; BUCK, Kimberly ; DETERING, Karen M. ; WHITE, Ben P. ; NOLTE, Linda
The Journals of gerontology. Series B, psychological sciences and social sciences, 17/08/2020, p. 1-35

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Conflicts of interest in the context of end of life care for potential organ donors in Australia

VAN HAREN, Frank M. P. ; CARTER, Angus ; CAVAZZONI, Elena ; CHAPMAN, Michael ; D'COSTA, Rohit L. ; JONES, Sarah L. ; MCGEE, Andrew ; MOODIE, Stewart ; NUNNINK, Leo ; O'LEARY, Michael ; OPDAM, Helen ; RADFORD, Sam ; TURNER, Andrew J. ; MARTIN, Dominique
Journal of critical care, 04/07/2020, vol.59, p. 166-171

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Specialist palliative care activity at an acute care tertiary hospital and its representation in administrative data

STUBBS, Joanne M. ; ASSAREH, Hassan ; ACHAT, Helen M. ; GREENAWAY, Sally ; MURUGANANTHAM, Poorani
The American journal of hospice and palliative care, 14/07/2020, Pagination inconnue

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The compassionate communities connectors model for end-of-life care - a community and health service partnership in Western Australia

AOUN, Samar M. ; ABEL, Julian ; RUMBOLD, Bruce ; CROSS, Kate ; MOORE, Jo ; SKEERS, Piari ; DELIENS, Luc
Palliative care and social practice, 2020, vol.14, Pagination inconnue

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Communication of advance care planning decisions - a retrospective cohort study of documents in general practice

PANOZZO, Laura ; HARVEY, Pam ; ADAMS, Meagan-Jane ; O'CONNOR, Dennis ; WARD, Bernadette
BMC palliative care, 14/07/2020, vol.19, n°1, p. 1-7

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