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AUSTRALIE

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Bereaved parents informing research design - the place of a pilot study

DONOVAN, L. A. ; WAKEFIELD, C. E. ; RUSSELL, V. ; HETHERINGTON, Kate ; COHN, R. J.
DEATH STUDIES, 2019, vol.43, n°1, p. 62-69

Thème : Recherche - Evaluation - Méthodologie. Cote : e00.07DEA

AUSTRALIE ; PARENT ; DEUIL ; RECHERCHE

Background: Risk minimization in research with bereaved parents is important. However, little is known about which research methods balance the sensitivity required for bereaved research participants and the need for generalizable results.
Aim: To explore parental experiences of participating in mixed method bereavement research via a pilot study.
Design: A convergent parallel mixed method design assessing bereaved parents’ experience of research participation.
Setting/participants: Eleven parents whose child was treated for cancer at The Royal Children’s Hospital, Brisbane completed the questionnaire/interview being piloted (n = 8 mothers; n = 3 fathers; >6 months and <6 years bereaved). Of these, eight parents completed the pilot study evaluation questionnaire, providing feedback on their experience of participation.
Results: Participants acknowledged the importance of bereaved parents being central to research design and the development of bereavement programs. Sixty-three per cent (n = 5/8) of parents described completion of the questionnaire as ‘not at all/a little bit’ of a burden. Seventy-five per cent (n = 6/8) of parents opting into the telephone interview described participation as ‘not at all/a little bit’ of a burden. When considering the latest timeframes for participation in bereavement research 63% (n = 5/8) of parents indicated ‘no endpoint.’ Findings from the pilot study enabled important adjustments to be made to a large-scale future study.
Conclusions: As a research method, pilot studies may be utilized to minimize harm and maximize the potential benefits for vulnerable research participants. A mixed method approach allows researchers to generalize findings to a broader population while also drawing on the depth of the lived experience.

Help-seeking experiences of bereaved adolescents - a qualitative study

ANDRIESSEN, Karl ; LOBB, Elizabeth ; MOWLL, Jane ; DUDLEY, Michael ; DRAPER, Brian ; MITCHELL, Philip B.
DEATH STUDIES, 2019, vol.43, n°1, p. 1-8

Thème : Deuil et travail du deuil. Cote : e00.07DEA

AUSTRALIE ; ADOLESCENT ; DEUIL ; RECHERCHE QUALITATIVE ; SOUTIEN DEUIL

Despite the potentially devastating effects of a death on the lives of adolescents, little is known about their help-seeking experiences. We interviewed by telephone 39 bereaved adolescents on their help-seeking experiences. Thematic analysis resulted in three themes: Formal support, Informal support and School-related support. Participants provided a critical appraisal of positive and negative experiences, and noted barriers and facilitators for help-seeking. As adolescents bereaved through suicide may receive less social support, professional help is a much-needed auxiliary. Parental encouragement is important in accessing adequate professional help.

Restricting conversations about voluntary assisted dying - implications for clinical practice

WILLMOTT, Lindy ; WHITE, Ben ; KO, Danielle ; DOWNAR, James ; DELIENS, Luc
BMJ supportive and palliative care, 07/08/2019, Pagination inconnue