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AUTONOMIE

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Validity of the French version of the autonomy preference index and its adaptation for patients with advanced cancer

COLOMBET, Isabelle ; RIGAL, Laurent ; URTIZBEREA, Miren ; VINANT-BINAM, Pascale ; ROUQUETTE, Alexandra
Plos one, 2020, vol.15, n°1, p. 1-16

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Death

The Yale journal of biology and medicine, 12/2019 , vol.92, n°4, Pagination inconnue

Respecting autonomy and promoting the patient's good in the setting of serious terminal and concurrent mental illness

MCKILLIP, Kathleen M. ; LOTT, Amy D. ; SWETZ, Keith M.
The Yale journal of biology and medicine, 12/2019, vol.92, n°4, p. 597-602

Autism and advance directives - determining capability and the use of health-care tools to aid in effective communication and decision-making

SATKOSKE, Valerie ; MIGYANKA, Joann M. ; KAPPEL, David
The American journal of hospice and palliative care, 21/11/2019, Pagination inconnue

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Autonomy, voluntariness and assisted dying

COLBURN, Ben
Journal of medical ethics, 12/11/2019, Pagination inconnue

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Patient autonomy and participation in end-of-life decision-making - an interpretive-systemic focus group study on perspectives of Asian healthcare professionals

DUTTA, Oindrila ; LALL, Priya ; PATINADAN, Paul Victor ; CAR, Josip ; LOW, Chan Kee ; TAN, Woan Shin ; HO, Andy Hau Yan
Palliative and supportive care, 08/11/2019, p. 1-6

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Hope and self-efficacy are associated with better satisfaction with life in people with ALS

GALIN, Shir ; HERUTI, Irit ; BARAK, Noa ; GOTKINE, Marc
Amyotrophic lateral sclerosis and frontotemporal degeneration, 01/01/2018, vol.19, n°7-8, p. 611-618

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Stopping eating and drinking by advance directives (SED by AD) in assisted living and nursing homes

WRIGHT, James L. ; JAGGARD, Peter M. ; HOLAHAN, Timothy ; ETHICS SUBCOMMITTEE OF AMDA–THE SOCIETY FOR POST-ACUTE AND LONG-TERM CARE
Journal of the American Medical Directors Association, 11/2019, vol.20, n°11, p. 1362-1366

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Against autonom - how proposed solutions to the problems of living wills forgot its underlying principle

MAST, Laurel
Bioethics, 02/10/2019, Pagination inconnue

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Navigating complex end-of-life decisions in a family-centric society

LEE, Guozhang
Nursing ethics, 23/10/2019, Pagination inconnue

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Nurses defending the autonomy of the elderly at the end of life

BARROSO GASPAR, Rafael ; MIRANDA DA SILVA, Marcelle ; MORAES ZEPEDA, Karen Gisela ; SILVA, Ítalo Rodolfo
Revista brasileira de enfermagem, 2019, vol.72, n°6, p. 1639-1645

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Penser la fin de vie - l'éthique au coeur d'un choix de société

RICOT, Jacques ; LEONETTI, Jean ; POZZO DI BORGO, Philippe
Hygée Editions , 10/2019 , 350 p.

Paradox of choice and the illusion of autonomy - the construction of ethical subjects in right-to-die activism

GANDSMAN, Ari
DEATH STUDIES, 2018, vol.42, n°5, p. 329-335

The role of palliative rehabilitation in serious illness #364

JAVIER, Noelle Marie ; MONTAGNINI, Marcos
JOURNAL OF PALLIATIVE MEDICINE, 01/12/2018, vol.21, n°12, p. 1808-1809

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Capacity for preferences - respecting patients with compromised decision-making

WASSERMAN, Jason Adam ; NAVIN, Mark Christopher
The Hastings center report, 01/01/2018, vol.48, n°3, p. 31-39

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Thème : Ethique et déontologie.

PERSONNE CONFIANCE ; PRISE DECISION ; AUTONOMIE ; PREFERENCE ; PATIENT

When a patient lacks decision-making capacity, then according to standard clinical ethics practice in the United States, the health care team should seek guidance from a surrogate decision-maker, either previously selected by the patient or appointed by the courts. If there are no surrogates willing or able to exercise substituted judgment, then the team is to choose interventions that promote a patient's best interests. We argue that, even when there is input from a surrogate, patient preferences should be an additional source of guidance for decisions about patients who lack decision-making capacity. Our proposal builds on other efforts to help patients who lack decision-making capacity provide input into decisions about their care. For example, "supported," "assisted," or "guided" decision-making models reflect a commitment to humanistic patient engagement and create a more supportive process for patients, families, and health care teams. But often, they are supportive processes for guiding a patient toward a decision that the surrogate or team believes to be in the patient's medical best interests. Another approach holds that taking seriously the preferences of such a patient can help surrogates develop a better account of what the patient's treatment choices would have been if the patient had retained decision-making capacity; the surrogate then must try to integrate features of the patient's formerly rational self with the preferences of the patient's currently compromised self. Patients who lack decision-making capacity are well served by these efforts to solicit and use their preferences to promote best interests or to craft would-be autonomous patient images for use by surrogates. However, we go further: the moral reasons for valuing the preferences of patients without decision-making capacity are not reducible to either best-interests or (surrogate) autonomy considerations but can be grounded in the values of liberty and respect for persons. This has important consequences for treatment decisions involving these vulnerable patients.

Origine : PubMed

De la modélisation numérique à la césarienne de la mort - la résistible ascension de l’homme-machine

LACAU SAINT GUILY, Jean
LAENNEC, 2018, vol.66, n°4, p. 21-33

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Clinical considerations in physician-assisted death for probable Alzheimer's disease - decision-making capacity, anosognosia, and suffering

MONDRAGON, Jaime D. ; SALAME, Latife ; KRAUS, Arnoldo ; DE DEYN, Peter Paul
Dementia and geriatric cognitive disorders extra, 08/2019, vol.9, n°2, p. 217-226

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Neuropsychological predictors of decision-making capacity in terminally ill patients with advanced cancer

KOLVA, Elissa ; ROSENFELD, Barry ; SARACINO, Rebecca M.
Archives of clinical neuropsychology, 21/07/2019, Pagination inconnue

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Walking the tightrope between study participant autonomy and researcher integrity - the case study of a research participant with Alzheimer's disease pursuing euthanasia in Switzerland

PORTACOLONE, Elena ; COVINSKY, Kenneth E. ; JOHNSON, Julene K. ; RUBINSTEIN, Robert L. ; HALPERN, Jodi
Journal of empirical research on human research ethics, 10/06/2019, Pagination inconnue

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Autonomy and dyspnea in palliative care - a case report

MARTINS, M. ; CAMPOA, E. ; FERREIRA, M. ; REIS-PINA, P.
Pulmonology, 31/05/2019, p. 1-3

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