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Dignity in end-of-life care at hospice - an action research study

VIFTRUP, Dorte Toudal ; HVIDT, Niels Christian ; PRINDS, Christina
Scandinavian journal of caring sciences, 17/05/2020, Pagination inconnue

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Le refus de soins, des situations complexes

MOUTEL, Grégoire ; SUZAT, Bertille ; GRANDAZZI, Guillaume
REVUE DE L'INFIRMIERE, 02/2020, vol.69, n°258, p. 16-18

The right to a self-determined death as expression of the right to freedom of personal development - the German constitutional court takes a clear stand on assisted suicide

HORN, Ruth
Journal of medical ethics, 27/03/2020, Pagination inconnue

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Psychiatric advance directives - navigating the regulatory landscape

MCDEVITT, Diane
The nurse practitioner, 04/2020, vol.45, n°4, p. 10-13

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CRESPO, Iris ; RODRIGUEZ-PRAT, Andrea ; MONFORTE-ROYO, Cristina ; WILSON, Keith G. ; PORTA-SALES, Josep ; BALAGUER, Albert
PALLIATIVE MEDICINE, 27/02/2020, Pagination inconnue

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Respect for autonomy in systems of postmortem organ procurement - a comment

DEN HARTOGH, Govert
Bioethics, 01/01/2019, vol.33, n°5, p. 550-556

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Underlying goals of advance care planning (ACP) - a qualitative analysis of the literature

FLEUREN, Nienke ; DEPLA, Marja F. I. A. ; JANSSEN, Daisy J. A. ; HUISMAN, Martijn ; HERTOGH, Cees M. P. M.
BMC palliative care, 06/03/2020, vol.19, n°1, p. 1-15

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Withdrawing treatment from patients with prolonged disorders of consciousness - the wrong answer is what the wrong question begets

WANG, Daniel Wei Liang
Journal of medical ethics, 13/02/2020, Pagination inconnue

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Self-management of patients with advanced cancer - a systematic review of experiences and attitudes

VAN DONGEN, Sophie I. ; DE NOOIJER, Kim ; CRAMM, Jane M. ; FRANCKE, Anneke L. ; OLDENMENGER, Wendy H. ; KORFAGE, Ida J. ; WITKAMP, Frederika E. ; STOEVELAAR, Rik ; VAN DER HEIDE, Agnes ; RIETJENS, Judith Ac
PALLIATIVE MEDICINE, 02/2020, vol.34, n°2, p. 160-178

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Thème : Soins.

CANCER ; PATIENT ; REVUE SYSTEMATIQUE ; ATTITUDE ; AUTONOMIE

BACKGROUND: Patients with advanced cancer are increasingly expected to self-manage. Thus far, this topic has received little systematic attention.
AIM: To summarise studies describing self-management strategies of patients with advanced cancer and associated experiences and personal characteristics. Also, to summarise attitudes of relatives and healthcare professionals towards patient self-management.
DESIGN: A systematic review including non-experimental quantitative and qualitative studies. Data were analysed using critical interpretive synthesis. Included studies were appraised on methodological quality and quality of reporting.
DATA SOURCES: MEDLINE, Embase, Cochrane Central, PsycINFO, CINAHL, Web of Science and Google Scholar (until 11 June 2019).
RESULTS: Of 1742 identified articles, 31 moderate-quality articles describing 8 quantitative and 23 qualitative studies were included. Patients with advanced cancer used self-management strategies in seven domains: medicine and pharmacology, lifestyle, mental health, social support, knowledge and information, navigation and coordination and medical decision-making (29 articles). Strategies were highly individual, sometimes ambivalent and dependent on social interactions. Older patients and patients with more depressive symptoms and lower levels of physical functioning, education and self-efficacy might have more difficulties with certain self-management strategies (six articles). Healthcare professionals perceived self-management as desirable and achievable if based on sufficient skills and knowledge and solid patient-professional partnerships (three articles).
CONCLUSION: Self-management of patients with advanced cancer is highly personal and multifaceted. Strategies may be substitutional, additional or even conflicting compared to care provided by healthcare professionals. Self-management support can benefit from an individualised approach embedded in solid partnerships with relatives and healthcare professionals.

Origine : PubMed

Validity of the French version of the autonomy preference index and its adaptation for patients with advanced cancer

COLOMBET, Isabelle ; RIGAL, Laurent ; URTIZBEREA, Miren ; VINANT-BINAM, Pascale ; ROUQUETTE, Alexandra
Plos one, 2020, vol.15, n°1, p. 1-16

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Death

The Yale journal of biology and medicine, 12/2019 , vol.92, n°4, Pagination inconnue

Respecting autonomy and promoting the patient's good in the setting of serious terminal and concurrent mental illness

MCKILLIP, Kathleen M. ; LOTT, Amy D. ; SWETZ, Keith M.
The Yale journal of biology and medicine, 12/2019, vol.92, n°4, p. 597-602

Autism and advance directives - determining capability and the use of health-care tools to aid in effective communication and decision-making

SATKOSKE, Valerie ; MIGYANKA, Joann M. ; KAPPEL, David
The American journal of hospice and palliative care, 05/2020, vol.37, n°5, p.354-363

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Autonomy, voluntariness and assisted dying

COLBURN, Ben
Journal of medical ethics, 12/11/2019, Pagination inconnue

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Patient autonomy and participation in end-of-life decision-making - an interpretive-systemic focus group study on perspectives of Asian healthcare professionals

DUTTA, Oindrila ; LALL, Priya ; PATINADAN, Paul Victor ; CAR, Josip ; LOW, Chan Kee ; TAN, Woan Shin ; HO, Andy Hau Yan
Palliative and supportive care, 08/11/2019, p. 1-6

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Hope and self-efficacy are associated with better satisfaction with life in people with ALS

GALIN, Shir ; HERUTI, Irit ; BARAK, Noa ; GOTKINE, Marc
Amyotrophic lateral sclerosis and frontotemporal degeneration, 01/01/2018, vol.19, n°7-8, p. 611-618

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Stopping eating and drinking by advance directives (SED by AD) in assisted living and nursing homes

WRIGHT, James L. ; JAGGARD, Peter M. ; HOLAHAN, Timothy ; ETHICS SUBCOMMITTEE OF AMDA–THE SOCIETY FOR POST-ACUTE AND LONG-TERM CARE
Journal of the American Medical Directors Association, 11/2019, vol.20, n°11, p. 1362-1366

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Against autonom - how proposed solutions to the problems of living wills forgot its underlying principle

MAST, Laurel
Bioethics, 02/10/2019, Pagination inconnue

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Navigating complex end-of-life decisions in a family-centric society

LEE, Guozhang
Nursing ethics, 23/10/2019, Pagination inconnue

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Nurses defending the autonomy of the elderly at the end of life

BARROSO GASPAR, Rafael ; MIRANDA DA SILVA, Marcelle ; MORAES ZEPEDA, Karen Gisela ; SILVA, Ítalo Rodolfo
Revista brasileira de enfermagem, 2019, vol.72, n°6, p. 1639-1645

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