VigiPallia : Résultats

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"My wife is my doctor at home" - a qualitative study exploring the challenges of home-based palliative care in a resource-poor setting

SALIFU, Yakubu ; ALMACK, Kathryn ; CASWELL, Glenys
PALLIATIVE MEDICINE, 18/09/2020, p. 1-12

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Nurses' needs when collaborating with other healthcare professionals in palliative dementia care

KHEMAI, C. ; JANSSEN, D. J. A. ; SCHOLS, J. M. G. A. ; NAUS, L. ; KEMPER, S. ; JOLE, I. ; BOLT, S. R. ; MEIJERS, J. M. M.
Nurse education in practice, 28/08/2020, vol.48, Pagination inconnue

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Palliative care in the greater China region - a systematic review of needs, models and outcomes

CHUNG, Huei ; HARDING, Richard ; GUO, Ping
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 08/09/2020, p. 1-28

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Thème : Santé. Cote : e00.07JPS

DEMARCHE PALLIATIVE ; CHINE ; BESOIN ; REVUE SYSTEMATIQUE

CONTEXT: There is rapidly increasing need for palliative care in Greater China due to rapidly aging populations.
OBJECTIVES: This study aimed to systematically review and appraise evidence for palliative care needs, models of care, interventions, and outcomes in Greater China.
METHODS: Four databases (MEDLINE, EMBASE, CINAHL, PsycINFO) were searched, with hand searching of local journals and databases. Narrative synthesis was applied to the qualitative and quantitative evidence.
RESULTS: Nineteen qualitative studies and 47 quantitative studies were retained. With respect to care needs, nine themes were synthesised: pain control, reduced aggressive end-of-life care, truth telling, physical, emotional and spiritual support, and achieving preferred place of care/death. Informal caregivers expressed their needs for education and burden reduction. Healthcare professionals called for training and national policy support. Twenty-four studies evaluated interventions, mostly among advanced cancer patients. Positive effects were suggested for improvements in quality of life, pain, anxiety and depression, readmission rate, and costs. Models of care evaluated were mostly specialist palliative care delivered in various settings (hospitals, residential care and home). Outcome measures used were grouped into six categories of construct: quality of life, pain, physical assessment, psycho-spiritual assessment, quality of care, and implementation assessment. Limited rigorous randomised controlled trials is available to document intervention outcomes, and some problems (such as high attrition rates) reduced the strength of the evidence.
CONCLUSION: Palliative care services within Greater China should pay more attention to management of non-malignant disease, and to integration into primary services. Policy support is key to establishing culturally appropriate person-centred services.

Origine : PubMed

Who cares for the bereaved? - a national survey of family caregivers of people with motor neurone disease

AOUN, Samar M. ; CAFARELLA, Paul A. ; RUMBOLD, Bruce ; THOMAS, Geoff ; HOGDEN, Anne ; JIANG, Leanne ; GREGORY, Sonia ; KISSANE, David W.
Amyotrophic lateral sclerosis and frontotemporal degeneration, 10/09/2020, p. 1-11

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A systematic review exploring palliative care for families who are forced migrants

CLANCY, Marie ; TAYLOR, Julie ; BRADBURY-JONES, Caroline ; PHILLIMORE, Jenny
Journal of advanced nursing, 31/08/2020, p. 1-13

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Changing patterns of mortality during the covid-19 pandemic - population-based modelling to understand palliative care implications

BONE, Anna E. ; FINUCANE, Anne M. ; LENIZ, Javiera ; HIGGINSON, Irene J. ; SLEEMAN, Katherine E.
PALLIATIVE MEDICINE, 24/07/2020, p. 1193-1201

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Refining a taxonomy of goals for older adults with functional limitations and their caregivers to inform care planning

CLAIR, Catherine A. ; HENRY, Maureen ; JENNINGS, Lee A. ; REUBEN, David B. ; SANDBERG, Shana F. ; GIOVANNETTI, Erin R.
Journal of applied gerontology, 28/07/2020, Pagination inconnue

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Differing needs of mothers and fathers during their child's end-of-life care - secondary analysis of the "paediatric end-of-life care needs" (PELICAN) study

LEEMANN, Tanja ; BERGSTRAESSER, Eva ; CIGNACCO, Eva ; ZIMMERMANN, Karin
BMC palliative care, 04/08/2020, vol.19, n°1, p. 1-9

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Prevalence and correlates of unmet palliative care needs in dyads of Chinese patients with advanced cancer and their informal caregivers - a cross-sectional survey

WANG, Tao ; MOLASSIOTIS, Alex ; TAN, Jing-Yu ; CHUNG, Betty Pui Man ; HUANG, Hou-Qiang
Supportive care in cancer, 10/08/2020, Pagination inconnue

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Survey of palliative care providers' needs, perceived roles, and ethical concerns about addressing cancer family history at the end of life

CLEOPHAT, Jude E. ; PELLETIER, Sylvie ; DÉRY, Alberte ; JOLY, Yann ; GAGNON, Pierre ; MARIN, Ana ; CHIQUETTE, Jocelyne ; GAGNON, Bruno ; ROY, Louis ; BITZAS, Vasiliki ; NABI, Hermann ; DORVAL, Michel
Palliative and supportive care, 25/08/2020, p. 1-6

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Supporting the patients with advanced cancer and their family caregivers - what are their palliative care needs?

CHUA, Gek Phin ; PANG, Grace Su Yin ; YEE, Alethlea Chung Pheng ; NEO, Patricia Soek Hui ; ZHOU, Siqin ; LIM, Cindy ; WONG, Yin Yee ; QU, Debra Limin ; PAN, Fang Ting ; YANG, Grace Meijuan
BMC Cancer, 15/08/2020, vol.20, n°1, p. 1-15

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A tool for the evaluation of clinical needs and eligibility to pediatric palliative care - the validation of the ACCAPED scale

LAZZARIN, Pierina ; GIACOMELLI, Luca ; TERRENATO, Irene ; BENINI, Franca
JOURNAL OF PALLIATIVE MEDICINE, 08/07/2020, Pagination inconnue

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Supportive care needs and service use during palliative care in family caregivers of patients with advanced cancer - a prospective longitudinal study

ULLRICH, Anneke ; MARX, Gabriella ; BERGELT, Corinna ; BENZE, Gesine ; ZHANG, Youyou ; WOWRETZKO, Feline ; HEINE, Julia ; DICKEL, Lisa-Marie ; NAUCK, Friedemann ; BOKEMEYER, Carsten ; OECHSLE, Karin
Supportive care in cancer, 06/07/2020, 13 p.

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Dying still matters in the age of covid-19

RHEE, Joel ; GRANT, Matthew ; DETERING, Karen ; CLAYTON, Josephine ; ARTHURS, Kelly
Australian journal of general practice, 06/2020, vol.49, 2 p.

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Palliative care needs and care giver burden in neurodegenerative diseases - a cross sectional study

LITHIN, Zacharias ; THOMAS, Priya T. ; WARRIER, G. Manjusha ; BHASKAR, Adhin ; NASHI, Saraswathi ; VENGALIL, Seena ; POLAVARAPU, Kiran ; KUMAR, Preethish ; YADAV, Ravi ; ALLADI, Suvarna ; ATCHAYARAM, Nalini ; PAL, Pramod K.
Annals of Indian Academy of Neurology, 06/2020, vol.23, n°3, p. 313-317

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A drive for structure - a longitudinal qualitative study of the implementation of the carer support needs assessment tool (CSNAT) intervention during hospital discharge at end of life

HALL, Alex ; EWING, Gail ; ROWLAND, Christine ; GRANDE, Gunn
PALLIATIVE MEDICINE, 03/06/2020, p. 1-9

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Knowledge, attitudes and expectations of physicians with respect to palliative care in Ecuador - a qualitative study

DAVALOS-BATALLAS, Viviana ; MAHTANI-CHUGANI, Vinita ; LOPEZ-NUNEZ, Carla ; DUQUE, Víctor ; LEON-LARIOS, Fatima ; LOMAS-CAMPOS, Maria-de-las-Mercedes ; SANZ, Emilio
International journal of environmental research and public health, 31/05/2020, vol.17, n°11, p. 1-14

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Family conferences in prenatal palliative care

BERNARDES, Lisandra Stein ; OLIVEIRA, Fernanda Figueiredo ; JESUS, Roberta Carolina de Almeida ; BENUTE, Glaucia Rosana Guerra ; GIBELLI, Maria Augusta Bento Cicaroni ; NASCIMENTO, Nathalia Bertolassi ; BOLIBIO, Renata ; BARBOSA, Tercilia Virginia Aparecida ; SETUBAL, Maria Silvia Vellutini ; GOMES, Ana Lúcia ; ROCHA, Luana Sarmento Neves ; ROSA, Gladys Ribeiro ; FRANCISCO, Rossana Pulcinelli
JOURNAL OF PALLIATIVE MEDICINE, 01/06/2020, Pagination inconnue

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Trends in residential setting and hospice use at the end of life for medicare decedents - study examines trends in hospice use at the end of life for medicare decedents including hospice use in community-based residential settings, private residences, and nursing homes

ALDRIDGE, Melissa D. ; ORNSTEIN, Katherine A. ; MCKENDRICK, Karen ; MORENO, Jaison ; RECKREY, Jennifer M. ; LI, Lihua
Health affairs, 01/06/2020, vol.39, n°6, p. 1060-1064

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Understanding family caregivers’ needs to support relatives with advanced progressive disease at home - an ethnographic study in rural Portugal

TEIXEIRA, Maria João Cardoso ; ABREU, Wilson ; COSTA, Nilza ; MADDOCKS, Matthew
BMC palliative care, 25/05/2020, vol.19, n°1, p. 1-11

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