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Fins de vie, éthique et société

HIRSCH, Emmanuel
Erès , 2016 , 856 p.

Palliative versus hospice care in patients with cancer - a systematic review

FRASCA, Matthieu ; GALVIN, Angeline ; RAHERISON, Chantal ; SOUBEYRAN, Pierre ; BURUCOA, Benoît ; BELLERA, Carine ; MATHOULIN-PELISSIER, Simone
BMJ supportive and palliative care, 17/07/2020, Pagination inconnue

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Effectiveness of a traditional training method in increasing long-term end-of-life care perception and clinical competency among oncology nurses - a pilot clinical trial

OMIDI, Khaled ; DEHGHAN, Mahlagha ; SHAHRBABAKI, Parvin Mangolian
Asia-Pacific journal of oncology nursing, 09/2020, vol.7, n°3, p. 287-294

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Integrating palliative care for patients on clinical trials - opportunities for oncology nurses

FERRELL, Betty R. ; BORNEMAN, Tami ; WILLIAMS, Anna Cathy ; SCARDINA, Angela ; FISCHER, Patricia ; SMITH, Thomas J.
Asia-Pacific journal of oncology nursing, 09/2020, vol.7, n°3, p. 243-249

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Nurses' decision-making about cancer patients' end-of-life skin care in Wales - an exploratory mixed-method vignette study protocol

SAMURIWO, Ray ; LOVELL-SMITH, Candida ; ANSTEY, Sally ; JOB, Claire ; HOPKINSON, Jane
BMJ Open, 05/07/2020, vol.10, n°7, 8 p.

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Opioid risk screening in an oncology palliative medicine clinic

GREINER, Rebecca S. ; BOSELLI, Danielle ; PATEL, Jai N. ; SALIB, Mariam ; EDELEN, Connie ; WALSH, Declan
JCO oncology practice, 30/06/2020, Pagination inconnue

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Perceptions and practices of spiritual care among hospice physicians and nurses in a taiwanese tertiary hospital - a qualitative study

TAO, Zoe ; WU, Poshu ; LUO, Amber ; HO, Tzu-Lin ; CHEN, Ching-Yu ; CHENG, Shao-Yi
BMC palliative care, 07/2020, vol.19, n°1, 8 p.

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Death self-efficacy, attitudes toward death and burnout among oncology nurses - a multicenter cross-sectional study

ZHENG, Ruishuang ; GUO, Qiaohong ; DONG, Fengqi ; GAO, Li
Cancer nursing, 03/06/2020, Pagination inconnue

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Evaluation of a virtual learning collaborative to integrate palliative care into routine oncology practice

KAMAL, Arif H. ; BOSSLEY, Heidi ; BLUM, Ronald ; BERMAN, Amy J. ; VON GUNTEN, Charles F. ; VON ROENN, Jamie
JCO oncology practice, 17/06/2020, Pagination inconnue

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A multicountry assessment in Eurasia - alignment of physician perspectives on palliative care integration in pediatric oncology with World Health Organization guidelines

EHRLICH, Bella S. ; MOVSISYAN, Narine ; BATMUNKH, Tsetsegsaikhan ; KUMIROVA, Ella ; BORISEVICH, Marina V. ; KIRGIZOV, Kirill ; GRAETZ, Dylan E. ; MCNEIL, Michael J. ; YAKIMKOVA, Taisiya ; VINITSKY, Anna ; FERRARA, Gia ; LI, Chen ; LU, Zhaohua ; KAYE, Erica C. ; BAKER, Justin N. ; AGULNIK, Asya ; FOR THE ADAPT RESEARCH GROUP
Cancer, 12/06/2020, Pagination inconnue

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Outcomes of airway stents in the palliative care of patients with cancer

CATARATA, Maria Joana Pereira ; SALEIRO, Sandra ; ARAUJO, Vânia Sá
American journal of hospice and palliative medicine, 26/05/2020, Pagination inconnue

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Provision of palliative care in National Cancer Grid treatment centres in India - a cross-sectional gap analysis survey

DAMANI, Anuja ; SALINS, Naveen ; GHOSHAL, Arunangshu ; CHOWDHURY, Jayeeta ; MUCKADEN, Mary Ann ; DEODHAR, Jayita ; PRAMESH, Cs
BMJ supportive and palliative care, 09/06/2020, Pagination inconnue

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Delivering hospital-based pediatric palliative care - the symptoms, interventions, and outcomes for children with cancer in Bangladesh

DOHERTY, Megan ; POWER, Liam ; THABET, Chloé
JCO global oncology, 06/2020, n°6, p. 884-891

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Behind the scenes - care coordination time in an outpatient pediatric palliative oncology clinic

BROCK, Katharine E. ; DEGROOTE, Nicholas P. ; ALLEN, Kristen E.
JOURNAL OF PALLIATIVE MEDICINE, 23/06/2020, Pagination inconnue

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Donner du sens à la maladie grave - représentations de la maladie et théories explicatives : de la cancérologie aux soins palliatifs

PEYRAT-APICELLA, Delphine ; POMMIER, François
Chronique Sociale , 06/2020 , 131 p.

Emotional communication in advanced pediatric cancer conversations

SISK, Bryan A. ; FRIEDRICH, Annie B. ; DUBOIS, James ; MACK, Jennifer W.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/2020, vol.59, n°4, p. 808-817

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Knowledge of and willingness to promote advanced care planning among oncology nurses in Southwest China

TANG, Meng-Yan ; LI, Xiao-Ling ; SHI, Zheng-Yan ; FU, Wen-Jing
International Journal of Palliative Nursing, 02/04/2020, vol.26, n°4, p. 175-182

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Bereaved parents' views on end-of-life care for children with cancer - quality marker implications

JOHNSTON, Emily E. ; MOLINA, Jannelle ; MARTINEZ, Isaac ; DIONNE-ODOM, J. Nicholas ; CURRIE, Erin R. ; CROWL, Terra ; BUTTERWORTH, Lori ; CHAMBERLAIN, Lisa J. ; BHATIA, Smita ; ROSENBERG, Abby R.
Cancer, 08/05/2020, Pagination inconnue

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Thème : Soins.

QUALITE SOIN ; PEDIATRIE ; CANCEROLOGIE ; PARENT ; RECHERCHE QUALITATIVE

Background: End-of-life (EOL) quality markers in adult oncology include home death and intensive care unit avoidance. Corresponding markers are lacking in pediatric oncology. This study was aimed at describing bereaved parents' perspectives of high-quality EOL care in pediatric oncology.
Methods: this study enrolled a convenience sample of 28 bereaved parents (English- or Spanish-speaking) whose children (0-21 years old) had died of cancer =6 months before. Semistructured interviews were conducted to elicit parental perceptions of medically intense/quality EOL care. Interviews were recorded and transcribed verbatim (30 hours), and study team consensus and content analyses identified themes related to EOL quality markers. Related quotes were scored on a 5-point Likert scale ranging from 1 (supported comfort care) to 5 (supported medically aggressive care).
Results: The children died in 1998-2017 at a mean age of 10 years (SD, 5.2 years); 50% had a solid tumor, and 46% were Spanish-speaking. Themes included 1) home death preference (unless home support was inadequate; median score, 1.6), nonaggressive care (median score, 2.4), and continued anticancer therapy (median score, 3.2); 2) programs/policies that could alleviate barriers limiting a family's time with a dying child (visiting restrictions and financial strains); 3) the need to prepare the family for death (eg, what would happen to the child's body), and 4) perceived abandonment.
Conclusions: This is the first qualitative study to identify quality makers for children dying of cancer from bereaved parents' perspectives. Natural death is generally preferred, and quality measures that address barriers to parents' spending time with their children, a lack of preparation for the events surrounding death, and feelings of abandonment are critical. Future studies need to validate these findings and develop targeted interventions.

Origine : PubMed

Palliative care services at cancer centres - room for improvement

MATHEWS, Jean ; ZIMMERMANN, Camilla
Nature reviews. Clinical oncology, 30/04/2020, Pagination inconnue

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Standard operating procedures (SOPs) for palliative care in German comprehensive cancer centers - an evaluation of the implementation status

LODEL, Sarah ; OSTGATHE, Christoph ; HECKEL, Maria ; OECHSLE, Karin ; GAHR, Susanne
BMC palliative care, 02/05/2020, vol.19, n°1, p. 1-9

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