VigiPallia : Résultats

CULTURE

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What does it mean to be made vulnerable in the era of Covid-19?

AHMAD, Ayesha ; CHUNG, Ryoa ; ECKENWILER, Lisa ; GANGULI, Agomani Mitra ; HUNT, Matthew ; RICHARDS, Rebecca ; SAGHAI, Yashar ; SCHWARTZ, Lisa ; SCULLY, Jackie Leach ; WILD, Verina
The Lancet, 09/05/2020, vol.395, n°10235, p. 1481-1482

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Caregiving and bereavement in palliative care - a cross-cultural study between Brazil and Portugal

DELALIBERA, Mayra ; COELHO, Alexandra ; FRADE, Pedro ; BARBOSA, Antonio ; LEAL, Isabel
Transcultural Psychiatry, 26/03/2020, Pagination inconnue

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Developing and testing the feasibility of a culturally based tele-palliative care consult based on the cultural values and preferences of Southern, rural African American and white community members - a program by and for the community

ELK, Ronit ; EMANUEL, Linda ; HAUSER, Joshua ; BAKITAS, Marie ; LEVKOFF, Sue
Health equity, 01/03/2020, vol.4, n°1, p. 52-83

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Oncopediatrics death - does cancer endanger the family in Cameroonian context?

MAKAK, Serge Patient ; OTSAMBA, Gwladys Véronique Aliana
MEDECINE PALLIATIVE, Elsevier, 04/2020, vol.19, n°2, p. 105-113

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Le trésor de Sunthy

FRIEDMAN, Arnaud
Lucca Editions , 2019 , 232 p.

Moi, je veux vraiment savoir ce qu'est la mort !

MONSIEUR MOUCH ; MARIA-PAZ
Gulf stream , 2020 , 48 p.

Eternité - Demain, tous immortels ?

NESSMAN, Philippe ; DUPOND, Léonard
De la Martinière Jeunesse , 2018 , 88 p.

Catrina

SOUTIF, Michael
L'atelier du poisson soluble , 2018 , 36 p.

End-of-life communication among Chinese elderly in a Malaysian nursing home

JIAO, Ng Xi ; HUSSIN, Nur Atikah Mohamed
Journal of patient experience, 02/2020, vol.7, n°1, p. 62-70

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Hispanic hospice utilization - integrative review and meta-analysis

RISING, Margaret L. ; HASSOUNEH, Dena S. ; LUTZ, Kristin F. ; BERRY, Pat ; LEE, Chris S.
Journal of health care for the poor and underserved, 2019, vol.30, n°2, p. 468-494

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Caregiving motivations and experiences among family caregivers of patients living with advanced breast cancer in Ghana

KUSI, Grace ; BOAMAH MENSAH, Adwoa Bemah ; BOAMAH MENSAH, Kofi ; DZOMEKU, Veronica Millicent ; APIRIBU, Felix ; DUODU, Precious Adade
Plos one, 2020, vol.15, n°3, p. 1-17

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Cross-cultural experiences of hospice and palliative care services - a thematic analysis

HERBSTSOMER, R. Adam ; STAHL, Sarah T.
Omega, 20/02/2020, p. 30222820904205-

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Bereaved families' perspectives of end-of-life care - towards a bicultural whare Tapa Wha older person's palliative care model

MOEKE-MAXWELL, Tess ; COLLIER, Aileen ; WILES, Janine ; WILLIAMS, Lisa ; BLACK, Stella ; GOTT, Merryn
Journal of cross-cultural gerontology, 20/02/2020, Pagination inconnue

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Feasibility and acceptability of a culturally adapted advance care planning intervention for people living with advanced cancer and their families - a mixed methods study

LIN, Cheng-Pei ; EVANS, Catherine J. ; KOFFMAN, Jonathan ; CHEN, Ping-Jen ; HOU, Ming-Feng ; HARDING, Richard
PALLIATIVE MEDICINE, 21/02/2020, Pagination inconnue

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Thème : Soins.

PROJET SOIN ANTICIPE ; CULTURE ; CANCER ; TAIWAN

Background: Increasing evidence shows that advance care planning is effective in improving outcomes. However, its applicability and acceptability outside Western cultures remain unknown. Examination of relevant cultural adaptations is required prior to wider adoption.
Aim: To examine the feasibility and acceptability of a culturally adapted advance care planning intervention in a Taiwanese inpatient hospital for advanced cancer patients, family members and healthcare professionals.
Methods: A single-group, non-controlled, mixed methods feasibility study guided by a previously developed logic model. The culturally adapted advance care planning intervention represented a one-time intervention, comprising pre-advance care planning preparation and follow-up consultation. Qualitative interviews explored participants’ view on their involvement in the study. Patients’ medical records were examined to assess intervention fidelity. Findings from both data sets were integrated following analysis.
Results: N = 29 participants (n = 10 patients; n = 10 family members and n = 9 healthcare professionals) participated in the intervention, of who 28 completed follow-up interviews. Of the 10 advance care planning interventions delivered, most components (n = 10/13) were met. Key contextual moderators influencing the intervention feasibility included: (1) resource constraints resulting in increased workload; (2) care decisions informed by relatives’ experiences of care; (3) the requirement for financial and policy support; and (4) a presumption for end-of-life care provision and surrogate decision-making. Six areas of intervention refinement were identified for future research.
Conclusion: Implementing a culturally adapted advance care planning intervention in an inpatient hospital setting in Taiwan is possible. The participants reported the intervention to be acceptable. However, careful attention to the conceptual underpinning using local primary data is imperative for its success.

Origine : PubMed

Their last breath - death and dying in a Hmong American community

HELSEL, Deborah ; THAO, Kao Shoua ; WHITNEY, Robin
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 02/2020, vol.22, n°1, p. 68-74

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A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes - the PACE steps to success programme

HOCKLEY, Jo ; FROGGATT, Katherine ; VAN DEN BLOCK, Lieve ; ONWUTEAKA-PHILIPSEN, Bregje ; KYLANEN, Marika ; SZCZERBINSKA, Katarzyna ; GAMBASSI, Giovanni ; PAUTEX, Sophie ; PAYNE, Sheila Alison ; PACE
BMC health services research, 24/10/2019, vol.19, n°1, p. 1-11

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Digital story-telling research methods - supporting the reclamation and retention of indigenous end-of-life care customs in Aotearoa New Zealand

MOEKE-MAXWELL, Tess ; MASON, Kathleen ; WILLIAMS, Lisa ; GOTT, Merryn
PROGRESS IN PALLIATIVE CARE, 17/01/2020, p. 1-6

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A review of the literature on native Hawaiian end-of-life care - implications for research and practice

WONG, Shelley M. ; KAMAKA, Martina ; CARPENTER, Dee-Ann L. ; SEAMON, Elisabeth M.
Hawai'i journal of health and social welfare, 12/2019, vol.78, n°12 Suppl 3, p. 41-44

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Life, love, hope, faith, and death-too complex for likert

VAUGHAN, Leigh M. ; KOFMEHL, Emma L.
JOURNAL OF PALLIATIVE CARE, 07/01/2020, Pagination inconnue

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UK childhood bereavement services - a reflection on their development and cultural influence

ROLLS, Liz
BEREAVEMENT CARE, été-hiver 2019, vol.38, n°2-3, p. 91-103

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