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CULTURE

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Le miroir des princes

HAMROUNE, Zadig
04/2019, 04/2019 , 464 p.

Thème : Littérature adulte.

MORT ; MERE ; TRAVAIL DEUIL ; PERTE ; CULTURE ; FICTION

Le narrateur vient de perdre sa mère. Il cherche à conjurer la mort. Beur, enfant de la République, il part à la rencontre de deux figures du passé : le Ghassanide, poète contrarié devenu chef des armées du calife Abd el-Malek, et Maysara, fils d'un porteur d'eau berbère, qui, rebelle dans l'âme, a levé une armée et s'est autoproclamé calife. Quand le roman se referme, le deuil est surmonté. Le narrateur a réussi à réconcilier les trois cultures dont il est issu.
[Extrait 4ème de couv.]

Considerations for the cross-cultural adaptation of an advance care planning guide for youth with cancer

DE ARRUDA-COLLI, Marina Noronha Ferraz ; SANSOM-DALY, Ursula ; DOS SANTOS, Manoel Antônio ; WIENER, Lori
Clinical practice in pediatric psychology, 12/2018, vol.6, n°4, p. 341-354

Thème : Recherche - Evaluation - Méthodologie.

PLANIFICATION ; ANTICIPATION ; SOIN ; CANCER ; JEUNE ADULTE ; ADOLESCENT ; CULTURE ; AUSTRALIE ; BRESIL ; OUTIL ; COMMUNICATION

Objective: Adolescent and young adults' (AYAs) involvement in advance care planning and end-of-life discussions may enhance the decision-making process, reduce stress and improve the patient's quality of life. Given the importance of establishing adequate communication and having culturally-appropriate tools to introduce advance care planning, our paper will describe the cross-cultural adaptation of the advance care planning guide, Voicing My CHOiCES™ in Australia and in Brazil.
Methods: In Brazil, the process involved initially translating the document to Portuguese followed by evaluation by a group of providers and patients (aged 18-39) undergoing cancer treatment. The document was revised based on the feedback received, then back-translated to English and discussed with Voicing My CHOiCES™ 'authors to refine the final version in Portuguese. In Australia, a multi-perspective interview-based study was undertaken with AYA cancer patients/survivors (aged 15-25), siblings, parents, and a range of healthcare providers from the oncology setting, to determine the perceived acceptability of the tool within the Australian clinical context.
Results: These interviews pointed to a variety of recommended adaptations ranging from the aesthetic and linguistic, through to the re-structuring of content within the tool. Adaptations for the Australian setting were then revised in an iterative capacity within several focus groups of AYA participants and healthcare providers.
Conclusions: The processes used in both countries highlight ways to engage youth living with a life-limiting illness in conversations about advance care planning and how to develop culturally-appropriate clinical tools.

Origine : PubMed