VigiPallia : Résultats

CULTURE

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Turning to Waheguru - religious and cultural coping mechanisms of bereaved Sikhs

AHLUWALIA, Muninder Kaur ; MOHABIR, Raman Kaur
OMEGA JOURNAL OF DEATH AND DYING, 02/2019, vol.78, n°3, p. 302-313

Adults’ perspectives on cultural, social and professional support on end-of-life preferences

HUANG, Ya-Ling ; YATES, Patsy ; THORBERG, Fred Arne ; WU, Chiung-Jung (Jo)
Collegian, 05/10/2019, Pagination inconnue

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Cultural humility - a way to reduce LGBTQ health disparities at the end of life

SPRIK, Petra ; GENTILE, Danielle
The American journal of hospice and palliative care, 13/10/2019, Pagination inconnue

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L’enfant messager - une approche transculturelle de la fin de vie

BOUZNAH, Serge
MEDECINE PALLIATIVE, 09/2019, vol.18, n°4-5, p. 200-203

Navigating complex end-of-life decisions in a family-centric society

LEE, Guozhang
Nursing ethics, 23/10/2019, Pagination inconnue

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“Keep all thee ‘til the end” - reclaiming the lifeworld for patients in the hospice setting

WEST, Emily ; ONWUTEAKA-PHILIPSEN, Bregje ; PHILIPSEN, Hans ; HIGGINSON, Irene J. ; PASMAN, H. R. W.
OMEGA JOURNAL OF DEATH AND DYING, 2019, vol.78, n°4, p. 390-403

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Advance care planning for mechanical ventilation - a qualitative study on health-care providers’ approaches to cross-cultural care

NAYFEH, Ayah ; MARCOUX, Isabelle ; JUTAI, Jeffrey
OMEGA JOURNAL OF DEATH AND DYING, 2019, vol.80, n°2, p. 305-330

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Des soins palliatifs à la médecine palliative - quels enjeux pour l'avenir ?

Centre national des soins palliatifs et de la fin de vie ; VIALLARD, Marcel-Louis
Centre national des soins palliatifs et de la fin de vie (CNSPFV) , 06/2019 , 75 p.

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Que faire de ma vulnérabilité ? - l'art du vieillir

THIEL, Marie-Jo
" L'éthique de la dépendance face au corps vulnérable ", Erès , 05/2019 , p. 95-118

Death - an evolving, normative concept

CAPLAN, Arthur
The Hastings center report, 11/2018, vol.48, n°Suppl 4, p. S60-S62

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Optimising compassionate nursing care at the end of life in hospital settings

ROBINSON, Jackie ; MOEKE-MAXELL, Tess ; PARR, Jenny ; SLARK, Julia ; BLACK, Stella ; GOTT, Merryn
Journal of clinical nursing, 08/09/2019, Pagination inconnue

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Thème : Soins.

COMPASSION ; FIN VIE ; NOUVELLE-ZELANDE ; SOIN INFIRMIER ; CULTURE

Background: An urgent need to improve palliative care in hospital has been identified. Moreover, service users consistently report care delivered by nurses in hospital as lacking compassion. Compassion is a fundamental component of nursing care and promoting compassionate care has been identified as a policy priority in many countries. To help address this within the hospital context, we recently completed research exploring bereaved family experiences of good end of life care in hospital. We found that family accounts of good care aligned with Nolan and Dewar's compassionate care framework and subsequently extended the framework to the bi-cultural context of Aotearoa, New Zealand.
Aims: In this discussion paper we explore synergies between our newly developed Kapakapa Manawa Framework: a bi-cultural approach to providing compassionate care at the end of life and the Fundamentals of Care. We argue that our framework can be used to support the implementation of the relational component of the Fundamentals of Care and the delivery of compassionate nursing practice in hospitals in Aotearoa, New Zealand.
Design: Discussion paper.
Methods: Review of relevant literature and construction of two vignettes describing good end of life care from the perspectives of bereaved family – one Maori and one non-Maori. The vignettes provide practical examples of how the values of the Kapakapa Manawa Framework can be enacted by nurses to provide compassionate care in alignment with the relationship component of the Fundamentals of Care.
Conclusions and relevance to clinical practice: Whilst the Kapakapa Manawa bi--cultural compassionate care framework has grown out of research conducted with people nearing the end of their lives, it has the potential to improve nursing care for all hospital inpatients. In addition, addressing the wider policy and health system factors detailed in the Fundamentals of Care will support its implementation in the clinical setting.

Origine : PubMed

Culturally adapting an advance care planning communication intervention with American Indian and Alaska native people in primary care

LILLIE, Kate M. ; DIRKS, Lisa G. ; CURTIS, J. Randall ; CANDRIAN, Carey ; KUTNER, Jean S. ; SHAW, Jennifer L.
Journal of transcultural nursing, 01/07/2019, Pagination inconnue

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Integrating palliative care into the chronic illness continuum - a conceptual model for minority populations

GAZAWAY, Shena ; STEWART, Merry ; SCHUMACHER, Autumn
Journal of racial and ethnic health disparities, 27/06/2019, p. 1-9

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Cultural considerations in forgoing enteral feeding - a comparison between the Hong Kong Chinese, North American, and Malaysian Islamic patients with advanced dementia at the end-of-life

NGAN, Olivia M. Y. ; BERGSTRESSER, Sara M. ; SANIP, Suhaila ; EMDADUL HAQUE, A. T. M. ; CHAN, Helen Y. L. ; AU, Derrick K. S.
Developing world bioethics, 26/06/2019, Pagination inconnue

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Evaluation of the quality of dying and death questionnaire in Kenya

MAH, Kenneth ; POWELL, Richard A. ; MALFITANO, Carmine ; GIKAARA, Nancy ; CHALKLIN, Lesley ; HALES, Sarah ; RYDALL, Anne ; ZIMMERMANN, Camilla ; MWANGI-POWELL, Faith N. ; RODIN, Gary
Journal of global oncology, 06/2019, n°5, p. 1-16

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Masculinity and military culture in VA hospice and palliative care - a narrative review with clinical recommendations

PLYS, Evan ; SMITH, Ronald ; JACOBS, M. Lindsey
JOURNAL OF PALLIATIVE CARE, 30/05/2019, Pagination inconnue

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Efficacy of motivational interviewing to enhance advance directive completion in Latinos with chronic illness - a randomized controlled trial

NEDJAT-HAIEM, Frances R. ; CADET, Tamara J. ; AMATYA, Anup ; THOMPSON, Beti ; MISHRA, Shiraz I.
The American journal of hospice and palliative care, 11/2019, vol.36, n°11, p. 980-992

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Meaningful and culturally appropriate palliative care for Chinese immigrants with a terminal condition - a qualitative systematic review protocol

WEI, Li ; WALTERS, Jennifer ; GUO, Qiaohong ; FETHERSTON, Catherine ; O'CONNOR, Moira
JBI database of systematic reviews and implementation reports, 22/05/2019, Pagination inconnue

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Planting the seeds - the role of Latino lay health advisors in end-of-life care

HAGWOOD, Dell N. ; LARSON, Kim L.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2019, vol.21, n°3, p. 223-228

End-of-life practices in rural South India - sociocultural determinants

RAMALINGAM, Sudha ; GANESAN, Subhashini
Indian journal of palliative care, 06/2019, vol.25, n°2, p. 224-227

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