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Learning about end-of-life care from grandpa

HALPERN, Scott D.
The New England journal of medicine, 21/10/2020, p. 1-3

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Older age - a protective factor against perceived dignity related distress in patients with advanced cancer?

PERGOLIZZI, Denise ; MONFORTE-ROYO, Cristina ; BALAGUER, Albert ; PORTA-SALES, Josep ; RODRIGUEZ-PRAT, Andrea ; CRESPO, Iris
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 07/10/2020, Pagination inconnue

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Screening for the desire to die in the first palliative care encounter - a proof-of-concept study

CRESPO, Iris ; MONFORTE-ROYO, Cristina ; BALAGUER, Albert ; PERGOLIZZI, Denise ; CRUZ-SEQUEIROS, Claudia ; LUQUE-BLANCO, Ana ; PORTA-SALES, Josep
JOURNAL OF PALLIATIVE MEDICINE, 18/09/2020, Pagination inconnue

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Prevalence and characteristics of older adults with a persistent death wish without severe illness - a large cross-sectional survey

HARTOG, Iris D. ; ZOMERS, Margot L. ; VAN THIEL, Ghislaine J. M. W. ; LEGET, Carlo ; SACHS, Alfred P. E. ; UITERWAAL, Cuno S. P. M. ; VAN DEN BERG, Vera ; VAN WIJNGAARDEN, Els
BMC GERIATRICS, 17/09/2020, vol.20, n°1, p. 1-14

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Do doctors differentiate between suicide and physician-assisted death? - a qualitative study into the views of psychiatrists and general practitioners

PRONK, Rosalie ; WILLEMS, Dick L. ; VAN DE VATHORST, Suzanne
Culture, medicine and psychiatry, 24/08/2020, p. 1-14

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Cross-sectional survey of the wish to die among palliative patients in Spain - one phenomenon, different experiences

BELAR, Alazne ; ARANTZAMENDI, Maria ; SANTESTEBAN, Yolanda ; LOPEZ-FIDALGO, Jesús ; MARTINEZ, Marina ; LAMA, Marcos ; RULLAN, Maria ; OLZA, Inés ; BREEZE, Ruth ; CENTENO, Carlos
BMJ supportive and palliative care, 24/06/2020, p. 1-7

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Wish to die in older patients - development and validation of two assessment instruments

DÜRST, Anne-Véronique ; SPENCER, Brenda ; BÜLA, Christophe ; FUSTINONI, Sarah ; MAZZOCATO, Claudia ; ROCHAT, Etienne ; TRUCHARD, Eve Rubli ; MONOD, Stéfanie ; JOX, Ralf J.
Journal of the American Geriatrics Society, 29/02/2020, Pagination inconnue

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CRESPO, Iris ; RODRIGUEZ-PRAT, Andrea ; MONFORTE-ROYO, Cristina ; WILSON, Keith G. ; PORTA-SALES, Josep ; BALAGUER, Albert
PALLIATIVE MEDICINE, 27/02/2020, Pagination inconnue

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Communication about the desire to die: development and evaluation of a first needs-oriented training concept - a pilot study

FRERICH, Gerrit ; ROMOTZKY, Vanessa ; GALUSHKO, Maren ; HAMACHER, Stefanie ; PERRAR, Klaus Maria ; DOLL, Axel ; MONTAG, Thomas ; GOLLA, Heidrun ; STRUPP, Julia ; KREMEIKE, Kerstin ; VOLTZ, Raymond
Palliative and supportive care, 05/03/2020, p. 1-9

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Thème : Formation.

DESIR MOURIR ; FORMATION PROFESSIONNELLE ; RELATION PERSONNEL SOIGNANT PATIENT ; COMMUNICATION

OBJECTIVE: Patients' desire to die (DD) is rarely discussed in palliative care (PC) due to health professionals' (HPs) feeling of uncertainty. The aim of the study was to develop and evaluate a training to increase HPs' self-confidence in responding professionally to patient's DD and to assess the feasibility of this approach.
METHODS: The training course was developed via focus groups and relevant literature and refined with an advisory board. An evaluation design was developed to evaluate training outcomes and to examine feasibility. To assess self-confidence, knowledge, skills, and attitudes: (1) standardized surveys were applied at T1 (before training), T2 (directly after), and T3 (3 months later), and were analyzed by descriptive and non-parametric statistics; and (2) participants' open feedback was summarized by content.
RESULTS: A two-day multi-disciplinary training was developed to improve self-confidence via diverse teaching methods. Twenty-four HPs from general and specialized PC were participated. Via self-rating on Likert scales at three time points, improvements were seen at T1, T2, and partly remained at T3, especially in the overall item of self-confidence in communicating with patients about their DD (means: 4.3. at T1, 5.7 at T2, and 5.9 at T3; on a 7-point scale with 1 = lowest value and 7 = highest value). Fewer improvements were found in skills (using different approaches) and attitudes (feeling less helplessness). Open feedback revealed a high appreciation for the training, especially the composition of participants, the role-play, and the overall increase of awareness of the topic.
SIGNIFICANCE OF RESULTS: The developed training on addressing DD meets a need and was perceived by the participants to be of added value. Future research should measure training effects with a validated instrument, including more participants, diverse participant groups, and a control group. Effects on patients should be assessed.

Origine : PubMed

Fantasmes de mort au sein d'une fratrie confrontée au handicap

DAYAN, Clémence
" Handicap et mort ", Erès , 2019 , p. 107-120

Soutenir l'expression des enfants sur le thème de la mort dans les familles confrontées au handicap

SCELLES, Régine
" Handicap et mort ", Erès , 2019 , p. 89-106

The clinical evaluation of the wish to hasten death is not upsetting for advanced cancer patients - a cross-sectional study

PORTA-SALES, Josep ; CRESPO, Iris ; MONFORTE-ROYO, Cristina ; MARIN, Mar ; ABENIA-CHAVARRIA, Sonia ; BALAGUER, Albert
PALLIATIVE MEDICINE, 06/2019, vol.33, n°6, p. 570-577

Being a burden to others and wishes to die - the importance of the sociopolitical context

ROEST, Bernadette ; TRAPPENBURG, Margo ; LEGET, Carlo
Bioethics, 21/10/2019, Pagination inconnue

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A captive, a wreck, a piece of dirt - aging anxieties embodied in older people with a death wish

VAN WIJNGAARDEN, Els ; LEGET, Carlo ; GOOSSENSEN, Anne ; POOL, Robert ; THE, Anne-Mei
OMEGA JOURNAL OF DEATH AND DYING, 2019, vol.80, n°2, p. 245-265

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How palliative care patients' feelings of being a burden to others can motivate a wish to die - moral challenges in clinics and families

GUDAT, Heike ; OHNSORGE, Kathrin ; STREECK, Nina ; REHMANN-SUTTER, Christoph
Bioethics, 05/2019, vol.33, n°4, p. 421-430

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Self-perceived burden to others as a moral emotion in wishes to die - a conceptual analysis

REHMANN-SUTTER, Christoph
Bioethics, 05/2019, vol.33, n°4, p. 439-447

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Mourir avant l'heure ? - Regards croisés autour des demandes de morts anticipées de malades en fin de vie

CHASSAGNE, Aline ; MATHIEU NICOT, Florence
" Le malade et la décision médicale ", PU de Franche-Comté - PUFC , 11/2018 , p. 107-123

Feeling like a burden to others and the wish to hasten death in patients with advanced illness - a systematic review

RODRIGUEZ-PRAT, Andrea ; BALAGUER, Albert ; CRESPO, Iris ; MONFORTE-ROYO, Cristina
Bioethics, 08/04/2019, Pagination inconnue

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Depression as mediator and or moderator on the relationship between hopelessness and patients' desire for hastened death

PARPA, Efi ; TSILIKA, Eleni ; GALANOS, Antonis ; NIKOLOUDI, Maria ; MYSTAKIDOU, Kyriaki
Supportive care in cancer, 21/03/2019, p. 1-6

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Assistance au suicide, euthanasies - situation suisse

WACKER, Jacques
ETUDES SUR LA MORT, L'esprit du temps, 2017, n°150, p. 79-92

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