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DETRESSE PSYCHOLOGIQUE

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Perceptions of a home hospice crisis - an exploratory study of family caregivers

PHONGTANKUEL, Veerawat ; BURCHETT, Chelsie O. ; SHALEV, Ariel ; ADELMAN, Ronald D. ; PRIGERSON, Holly G. ; CZAJA, Sara J. ; DIGNAM, Ritchell ; BAUGHN, Rosemary ; REID, M. Cary
JOURNAL OF PALLIATIVE MEDICINE, 28/03/2019, vol.22, n°9, p. 1046-1051

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Assessing the validity of the clinician-rated distress thermometer in palliative care

VAN LANDER, A. ; TAROT, A. ; SAVANOVITCH, C. ; PEREIRA, B. ; VENNAT, B. ; GUASTELLA, V.
BMC palliative care, 17/10/2019, vol.18, n°1, p. 1-7

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Thème : Recherche - Evaluation - Méthodologie. Cote : eD15.00.02.03

DEMARCHE PALLIATIVE ; DETRESSE PSYCHOLOGIQUE ; EVALUATION ; RECHERCHE QUANTITATIVE

BACKGROUND: The distress of patients suffering from a terminal illness can lead to a state of despair and requests for euthanasia and assisted suicide. It is a major challenge for palliative care workers. The Distress Thermometer (DT) is recommended by the National Comprehensive Cancer Network as a means of more easily assessing distress. It is available as a Self-assessment reported Distress Thermometer, but for a wider use in palliative care it should also be implemented in the form of a clinician-reported outcome (clinRO). Clinicians need to rate patient's distress when the patient is not able to do so (subject that cannot be addressed, defensive patient…). The primary aim of the quantitative study was to assess the validity of the Clinician-Rated Distress Thermometer in palliative care.
METHOD: The assessments were performed by teams working in three palliative care centres. The primary endpoint was concordance between the patient and clinicians’ responses via Lin’s concordance coefficient. Eligible patients were aged 18 years or older, suffering from a severe disease in the palliative phase, and with a sufficient level of awareness to consent to participate in the study. A total of 51 patients were recruited, 55% were male, with a mean age of 65.8 years [39–90 years].
RESULTS: Three hundred sixty-four clinician-Rated Distress Thermometer and 467 Self-Reported Distress Thermometer were performed. Only 364 of the 467 Self-Reported Distress Thermometer were used for the study, as investigators did not systematically ask the patient to give an account of his distress. Concordance between patient and clinician responses: The Lin's concordance coefficient with a threshold (alpha) of 5% was 0.46 [0.38; 0.54]. At the first assessment, it was 0.61 [0.44; 0.79]. The Cohen's kappa coefficient was 0.52, with a concordance rate of 79.6%. The sensitivity was 82.9% [66.4-93.4] and the specificity 71.4% [41.9-91.6].
CONCLUSION: The first assessment gave the best results in terms of concordance between Clinician-Rated DT and Self-Reported DT. In the next assessments, the Clinician-Rated DT were less consistent with the patients' Self-Reported DT.

Origine : PubMed

Prevalence and predictors of distress, anxiety, depression, and quality of life in bereaved family caregivers of patients with advanced cancer

OECHSLE, Karin ; ULLRICH, Anneke ; MARX, Gabriella ; BENZE, Gesine ; WOWRETZKO, Feline ; ZHANG, Youyou ; DICKEL, Lisa-Marie ; HEINE, Julia ; WENDT, Kim Nikola ; NAUCK, Friedemann ; BOKEMEYER, Carsten ; BERGELT, Corinna
The American journal of hospice and palliative care, 09/10/2019, Pagination inconnue

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Palliative care and moral distress - an institutional survey of critical care nurses

WOLF, Alexander T. ; WHITE, Kenneth R. ; EPSTEIN, Elizabeth G. ; ENFIELD, Kyle B.
Critical Care Nurse, 10/2019, vol.39, n°5, p. 38-49

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Assessing posttraumatic growth, complicated grief, and psychological distress in bereaved atheists and believers

SAWYER, Jacob S. ; BREWSTER, Melanie E.
DEATH STUDIES, 2019, vol.43, n°4, p. 224-234

La sédation profonde et continue maintenue jusqu’au décès à défaut d’une demande de mort anticipée, dans un contexte de souffrance morale - comment l’appréhender ?

LOUARN, Catherine ; PLANCON, Morgane
REVUE INTERNATIONALE DE SOINS PALLIATIFS, 03/2019, vol.34, n°1, p. 23-27

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Refractory psycho-existential distress and continuous deep sedation until death in palliative care - the French perspective

REICH, Michel ; BONDENET, Xavier ; RAMBAUD, Laurence ; AIT-KACI, Fazya ; SEDDA, Anne-Laure ; DA SILVA, Arlette ; VILLET, Stéphanie ; GAMBLIN, Vincent
Palliative and supportive care, 25/09/2019, p. 1-9

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Early palliative care reduces stress in parents of neonates with congenital heart disease - validation of the "baby, attachment, comfort interventions"

CALLAHAN, Katharine ; STEINWURTZEL, Rochelle ; BRUMARIE, Lyn ; SCHECHTER, Sarah ; PARRAVICINI, Elvira
Journal of perinatology, 05/09/2019, Pagination inconnue

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Emotional intelligence in neonatal intensive care unit nurses - decreasing moral distress in end-of-life care and laying a foundation for improved outcomes: an integrative review

LACEFIELD LEWIS, Stephanie
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2019, vol.21, n°4, p. 250-256

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Development of a clinical guide for identifying spiritual distress in family members of patients in the intensive care unit

ROZE DES ORDONS, Amanda L. ; SINCLAIR, Shane ; SINUFF, Tasnim ; GRINDROD-MILLAR, Kathleen ; STELFOX, Henry T.
JOURNAL OF PALLIATIVE MEDICINE, 02/08/2019, Pagination inconnue

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The accuracy of measures in screening adults for spiritual suffering in health care settings - a systematic review

BAHRAINI, Sayna ; GIFFORD, Wendy ; GRAHAM, Ian D. ; WAZNI, Liquaa ; BREMAULT-PHILLIPS, Suzette ; HACKBUSCH, Rebekah ; DEMERS, Catrine ; EGAN, Mary
Palliative and supportive care, 07/08/2019, p. 1-14

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Exploring and managing the impostor phenomenon in palliative care - a case series

LAWTON, Andrew J. ; LAWTON, Christopher W. ; DIETZ, Sarah Scott B. ; STEVENS, Erin E. ; WEIS, Jo M.
JOURNAL OF PALLIATIVE MEDICINE, 13/08/2019, Pagination inconnue

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Spiritual distress in family members of critically ill patients - perceptions and experiences

ROZE DES ORDONS, Amanda L. ; STELFOX, Henry T. ; SINUFF, Tasnim ; GRINDROD-MILLAR, Kathleen ; SMIECHOWSKI, Jennifer ; SINCLAIR, Shane
JOURNAL OF PALLIATIVE MEDICINE, 13/08/2019, Pagination inconnue

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Vers une nouvelle compréhension de la présence infirmière en soins palliatifs

GOYETTE, Christine ; VACHON, Mélanie
LES CAHIERS FRANCOPHONES DE SOINS PALLIATIFS, Publications Michel Sarrazin, 2019, vol.19, n°1, p. 48-59

Propofol-based palliative sedation to treat antipsychotic-resistant agitated delirium

COVARRUBIAS-GÓMEZ, Alfredo ; LÓPEZ COLLADA-ESTRADA, Maria
Journal of pain and palliative care pharmacotherapy, 02/10/2017, vol.31, n°3-4, p. 190-194

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Courses of change in good emotional preparedness for death and accurate prognostic awareness and their associations with psychological distress and quality of life in terminally ill cancer patients' last year of life

TANG, Siew Tzuh ; CHOU, Wen-Chi ; CHANG, Wen-Cheng ; CHEN, Jen-Shi ; HSIEH, Chia-Hsun ; WEN, Fur-Hsing ; CHUNG, Shih-Chi
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 02/07/2019, Pagination inconnue

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Spiritual coping and psychological symptoms as the end approaches - a closer look on ambulatory palliative care patients

GRYSCHEK, Guilherme ; MACHADO, Danusa De Almeida ; OTUYAMA, Leonardo Jun ; GOODWIN, Christian ; LIMA, Maria Cristina Pereira
Psychology, health and medicine, 09/07/2019, p. 1-8

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What young people need when a family member dies of cancer

MCDONALD, Fiona E. J. ; PATTERSON, Pandora ; TINDLE, Richard
Supportive care in cancer, 06/07/2019, p. 1-8

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Emotional intelligence in neonatal intensive care unit nurses - decreasing moral distress in end-of-life care and laying a foundation for improved outcomes: an integrative review

LEWIS, Stephanie Lacefield
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 08/2019, vol.21, n°4, p. 250-256

Les soins palliatifs - une histoire de conflit entre toute puissance et condition d’existence en détresse ?

AVEROUS, Véronique
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 06/2019, vol.N° 137, n°2, p. 11-23

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