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"It's case by case, and it's a struggle" - a qualitative study of hospice practices, perspectives, and ethical dilemmas when caring for hospice enrollees with full-code status or intensive treatment preferences

DRESSLER, Gabrielle ; GARRETT, Sarah B. ; HUNT, Lauren J. ; THOMPSON, Nicole ; MAHONEY, Katherine ; SUDORE, Rebecca L. ; RITCHIE, Christine S. ; HARRISON, Krista L.
JOURNAL OF PALLIATIVE MEDICINE, 25/11/2020, Pagination inconnue

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Educational intervention to improve palliative care knowledge among informal caregivers of cognitively impaired older adults

NOH, Hyunjin ; LEE, Lewis H. ; WON, Chorong
Palliative and supportive care, undefined/ed, p. 1-9

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Health care provider barriers to patient referral to palliative care

ENGUIDANOS, Susan ; CARDENAS, Valeria ; WENCESLAO, Melissa ; HOE, Deborah ; MEJIA, Kiara ; LOMELI, Sindy ; RAHMAN, Anna
American journal of hospice and palliative medicine, 23/11/2020, p. 1-8

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Strengths and struggles for families involved in hospice care during the Covid-19 pandemic

GERGERICH, Erika ; MALLONEE, Jason ; GHERARDI, Stacy ; KALE-CHEEVER, Megan ; DUGA, Frankie
Journal of social work in end-of-life and palliative care, 23/11/2020, p. 1-20

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Emergency medical services and do not attempt resuscitation directives among patients with out-of-hospital cardiac arrest

COUNTS, Catherine R. ; BLACKWOOD, Jennifer ; WINCHELL, Ryan ; DRUCKER, Christopher ; JENNERICH, Ann L. ; FEDER, Sylvia ; POMPEO, Kathy ; WALDRON, Jody ; SAYRE, Michael R. ; KUDENCHUK, Peter J. ; REA, Thomas
Resuscitation, 19/11/2020, Pagination inconnue

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End of life care for persons under guardianship

MOYE, Jennifer ; STOLZMANN, Kelly ; AUGUSTE, Elizabeth J. ; COHEN, Andrew B. ; CATLIN, Casey ; SAGER, Zachary S. ; WEISKITTLE, Rachel E. ; WOOLVERTON, Cindy B. ; CONNORS, Heather L. ; SULLIVAN, Jennifer L.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 16/11/2020, Pagination inconnue

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Thème : Soins.

TUTELLE ; FIN VIE ; QUALITE SOIN ; ETATS-UNIS ; MEDECINE PALLIATIVE

Context: Guardians are surrogate decision makers appointed by a court when other health care decision-makers are unable, unwilling, or unavailable to make decisions. Prior studies suggest that persons under guardianship may experience delays in transitions of care.
Objectives: To compare quality of end-of-life care for persons under guardianship to a matched group on objective indicators and to identify narrative themes characterizing potential obstacles to quality end-of-life care.
Methods: One hundred sixty-seven persons under guardianship who died between 2003 and 2019 within the Veterans Healthcare Administration in Massachusetts and Connecticut matched on a 1:1 basis to persons without guardians. The groups were compared on treatment specialty at death, days of hospice and intensive care unit care, and receipt of palliative care consultation. Additionally, patient narratives for those under guardianship with extended lengths in intensive care unit were subjected to qualitative analysis.
Results: Overall, <1% were under guardianship. Within this sample of persons who died within the Veterans Health Administration, persons under guardianship were as likely as patients in the comparison group to receive palliative care consultation (odds ratio [CI] = 0.93 [.590-1.46], P = .359), but were more likely to have ethics consultation (odds ratio [CI] = 0.25 [0.66–0.92], P = .036) and have longer lengths of ICU admission (ß = -.34, t = -2.70, P = .009). Qualitative findings suggest that issues related to family conflict, fluctuating medical course, and limitations in guardian authority may underlie extended lengths of stay.
Conclusion: Guardianship appears to be rare, and as a rule, those under guardianship have equal access to hospice and palliative care within Veterans Health Administration. Guardianship may be associated with health-care challenges in a small number of cases, and this may drive perceptions of adverse outcomes.

Origine : PubMed

"[It] is now my responsibility to fulfill that wish:" - clinical and rapid autopsy staff members' experiences and perceptions of HIV reservoir research at the end of life

PERRY, Kelly E. ; TAYLOR, Jeff ; PATEL, Hursch ; JAVADI, Sogol Stephanie ; MATHUR, Kushagra ; KAYTES, Andy ; CONCHA-GARCIA, Susanna ; LITTLE, Susan ; SMITH, Davey ; GIANELLA, Sara ; DUBE, Karine
Plos one, 2020, vol.15, n°11, p. 1-20

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National trends in location of death in patients with end-stage liver disease

KAPLAN, Alyson ; FORTUNE, Brett ; UFERE, Nneka ; BROWN, Robert S. ; ROSENBLATT, Russell
Liver transplantation, 22/11/2020, Pagination inconnue

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Nursing home residents with dementia - association between place of death and patient safety culture

ORTH, Jessica ; LI, Yue ; SIMNING, Adam ; ZIMMERMAN, Sheryl ; TEMKIN-GREENER, Helena
The gerontologist, 18/11/2020, Pagination inconnue

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Urgent creation of a palliative care team in a small hospital during the covid crisis

MARTINEZ, Nydia ; TANEV, Hilah ; GUREVICH, Samuel ; DAVIS, Candilla ; CAZEAU, Mirlande ; MEHTA, Jinesh ; GILLENWATER, Samantha ; DAYA, Andrew ; RAHAGHI, Franck
American journal of hospice and palliative medicine, 19/11/2020, Pagination inconnue

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Covid, la mort en faceTime

TESSIER, Laurence
L'homme, 17/11/2020, vol.234-235, n°2, p. 33-50

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Guardianship and end-of-life care for veterans with dementia in nursing homes

COHEN, Andrew B. ; HAN, Ling ; FRIED, Terri R. ; O'LEARY, John R.
Journal of the American Geriatrics Society, 10/11/2020, Pagination inconnue

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Intensity of end-of-life care in a cohort of commercially insured women with metastatic breast cancer in the United States

FERRARIO, Alessandra ; XU, Xin ; ZANG, Fang ; ROSS-DEGNAN, Dennis ; WHARAM, J. Frank ; WAGNER, Anita K.
JCO oncology practice, 10/11/2020, Pagination inconnue

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Improving patient preparedness and confidence in discussing advance directives for end-of-life care with health care providers in the United States and Japan

FRIEND, John M. ; ALDEN, Dana L.
Medical decision making, 2021, vol.41, n°1, p. 60-73

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A multicenter qualitative analysis of medical student narratives after a palliative care elective

SAGIN, Alana ; ELLMAN, Matthew S. ; SHARIFF, Ruhi R. ; JONES, Christopher A. ; TINDALL, Kate ; SIROPAIDES, Caitlin H.
The American journal of hospice and palliative care, 04/11/2020, Pagination inconnue

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Teaching end-of-life preparation to African Americans

PRUITT, Delicia ; WEBER, Kirsten ; RAGINA, Neli
Palliative and supportive care, 06/11/2020, p. 1-6

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The type of intensive care unit matters - variations in palliative care for critically ill patients with chronic, life-limiting illness

LEE, Joshua D. ; JENNERICH, Ann L. ; ENGELBERG, Ruth A. ; DOWNEY, Lois ; CURTIS, J. Randall ; KHANDELWAL, Nita
JOURNAL OF PALLIATIVE MEDICINE, 06/11/2020, Pagination inconnue

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US clinicians' experiences and perspectives on resource limitation and patient care during the Covid-19 pandemic

BUTLER, Catherine R. ; WONG, Susan P. Y. ; WIGHTMAN, Aaron G. ; O'HARE, Ann M.
JAMA network open, 02/11/2020, vol.3, n°11, p. 1-15

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Associations between informal care costs, care quality, carer rewards, burden and subsequent grief - the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study)

HIGGINSON, Irene J. ; YI, Deokhee ; JOHNSTON, Bridget M. ; RYAN, Karen ; McQUILLAN, Regina ; SELMAN, Lucy ; PANTILAT, Stephen Z. ; DAVESON, Barbara A. ; MORRISON, R. Sean ; NORMAND, Charles E.
BMC medicine, 03/11/2020, vol.18, n°1, p. 1-13

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A social worker-led primary palliative care model for hospitalized patients admitted to the hospital medicine service

BERGLUND, Keisha ; CHAI, Emily ; MORENO, Jaison ; REYNA, Maria ; GELFMAN, Laura P.
Palliative medicine reports, 01/10/2020, vol.1, n°1, p. 234-241

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