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One last round of chemo? - insights from conversations between oncologists and lung cancer patients about prognosis and treatment decisions

HAUGE, Amalie M.
Social science and medicine, 04/10/2020, vol.266, Pagination inconnue

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Performing care - emotion work and ‘dignity work’ - a joint autoethnography of caring for our mum at the end of life

WILKINSON, Samantha ; WILKINSON, Catherine
Sociology of health and illness, 18/09/2020, p. 1-14

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Withholding/withdrawing life-sustaining treatment in a multiethnic critical care setting - an ethnographic study

VAN KEER, Rose-Lima ; DESCHEPPER, Reginald ; HUYGHENS, Luc ; BILSEN, Johan
JOURNAL OF PALLIATIVE MEDICINE, 23/07/2020, Pagination inconnue

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Beyond the hour of death - family experiences of grief and bereavement following an end-of-life hospitalization in the intensive care unit

BANDINI, Julia I.
Health, 04/08/2020, Pagination inconnue

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Aims, actions and advance care planning by district nurses providing palliative care - an ethnographic observational study

WALSHE, Catherine
British journal of community nursing, 02/06/2020, vol.25, n°6, p. 276-286

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Understanding family caregivers’ needs to support relatives with advanced progressive disease at home - an ethnographic study in rural Portugal

TEIXEIRA, Maria João Cardoso ; ABREU, Wilson ; COSTA, Nilza ; MADDOCKS, Matthew
BMC palliative care, 25/05/2020, vol.19, n°1, p. 1-11

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Palliative care in its own discourse - a focused ethnography of professional messaging in palliative care

REIGADA, Carla ; ARANTZAMENDI, Maria ; CENTENO, Carlos
BMC palliative care, 22/06/2020, vol.19, n°1, p. 1-10

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"Everybody in this community is at risk of dying" - an ethnographic exploration on the potential of integrating a palliative approach to care among workers in inner-city settings

STAJDUHAR, Kelli ; GIESBRECHT, Melissa ; MOLLISON, Ashley ; D'ARCHANGELO, Margo
Palliative and supportive care, 07/05/2020, p. 1-6

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Construction of meanings during life-limiting illnesses and its impacts on palliative care - ethnographic study in an African context

AGOM, David A. ; NEILL, Sarah ; ALLEN, Stuart ; POOLE, Helen ; SIXSMITH, Judith ; ONYEKA, Tonia C. ; OMINYI, Jude
Psycho-oncology, 01/01/2019, vol.28, n°11, p. 2201-2209

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Caregiving at the margins - an ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-life

STAJDUHAR, Kelli ; GIESBRECHT, Melissa ; MOLLISON, Ashley ; DOSANI, Naheed ; MCNEIL, Ryan
PALLIATIVE MEDICINE, 07/2020, vol.34, n°7, p. 946-953

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Humour and laughing in patients with prolonged incurable cancer - an ethnographic study in a comprehensive cancer centre

BUITING, Hilde M. ; DE BREE, Remco ; BROM, Linda ; MACK, Jennifer W. ; VAN DEN BREKEL, Michiel W. M.
Quality of life research, 06/04/2020, Pagination inconnue

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Thème : Soins.

CANCEROLOGIE ; HUMOUR ; PAYS-BAS ; ETHNOGRAPHIE

Purpose: Most people are familiar with the expression ‘laughter is the best medicine’. By enhancing cognitive flexibility and strengthening relationships, laughter can be considered a holistic care-approach. Yet, in medical oncology, especially the palliative phase, using humour can be considered inappropriate or taboo. We aimed to explore the acceptability and functions of humour and laughter in patients with prolonged incurable cancer.
Methods: This study was performed in a Dutch Comprehensive Cancer Centre. We included four short conversations with patients, eighteen in-depth patient-interviews and eleven observational fieldnotes in which humour was a major topic of the conversation. We further administered an online questionnaire to thirty-three oncology clinicians about their experiences with humour. Qualitative data were thematically analysed. We specifically distinguished between humour and laughter.
Results: Nearly all specialists reported using humour (97%), and all reported sometimes laughing during consultations; 83% experienced a positive effect of laughter. These results were in line with patients’ experiences: Patients noted that humour always stayed alive despite medical difficulties. Apart from this human aspect, patients also used humour to broach difficult topics and downplay challenges. Patients and specialists acknowledged that using humour is sometimes inappropriate, partly because they did not always share the same humour. Laughter, in contrast, was regarded as ‘lighter’ than humour, and could, accordingly, more easily be implemented. Specialists cautioned against patients using laughter to avoid broaching difficult topics.
Conclusion: Many conversations were full of laughter. Hierarchy as usually experienced between healthcare professionals and patients/relatives seemed to disappear when using laughter. If applied appropriately, adding shared laughter may help optimize shared decision-making.

Origine : DOI.org (Crossref

Living in the mo(ve)ment - an ethnographic exploration of hospice patients' experiences of participating in Tai Chi

BRADSHAW, Andy ; PHOENIX, Cassandra ; BURKE, Shauna M.
Psychology of sport and exercice, Elsevier, 07/2020, vol.49, pagination inconnue

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Women's work at end of life - the intersecting gendered vulnerabilities of patients and caregivers in rural Malawi

MKANDAWIRE-VALHMU, Lucy ; KENDALL, Nancy ; DRESSEL, Anne ; WENDLAND, Claire ; SCHEER, Victoria L. ; KAKO, Peninnah ; NEIMAN, Tammy ; VALHMU, Wilmot ; RUIZ, Ashley ; LUEBKE, Jeneile ; MINJALE, Peter ; MERRIMAN, Anne ; FINCH, Lucy ; EGEDE, Leonard
Global public health, 21/02/2020, p. 1-11

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Un cannibalisme symbolique mutuel entre vivants et défunts - une ethnographie de la fête des morts en Bolivie

GEFFROY, Céline
ETUDES SUR LA MORT, 2019, n°152, p. 101-115

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La vitalité des morts en mésoamérique - transferts alimentaires et construction du lien social

PITROU, Perig
ETUDES SUR LA MORT, 2019, n°152, p. 73-85

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Perspectives of elders and their adult children of black and minority ethnic heritage on end-of-life conversations - a meta-ethnography

DE SOUZA, Joanna ; GILLETT, Karen ; FROGGATT, Katherine ; WALSHE, Catherine
PALLIATIVE MEDICINE, 2020, vol.34, n°2, p. 195-208

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Strategies to improve quality of life at the end of life - interdisciplinary team perspectives

SAGHA ZADEH, Rana ; ESHELMAN, Paul ; SETLA, Judith ; SADATSAFAVI, Hessam
The American journal of hospice and palliative care, 03/2018, vol.35, n°3, p. 411-416

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The value of the ethnographic approach to research issues in palliative care

REIGADA, Carla ; SAPETA, Paula ; CENTENO, Carlos
Current opinion in supportive and palliative care, 12/2019, vol.13, n°4, p. 337-343

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(End of) life spaces - an ethnographic study in Brazilian and French homes and medical-social institutions

CORDEIRO, Franciele Roberta ; KRUSE, Maria Henriqueta Luce
Revista gaucha de enfermagem, 2019, vol.40, p. 1-9

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Soins et prison - enquête auprès de détenus gravement malades

CHASSAGNE, Aline
Erès , 11/2019 , 290 p.

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