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Qualitative analysis of European and Middle East intensive care unit nursing death rituals

BENBENISHTY, Julie ; BENNUN, Maureen ; LIND, Ranveig
Nursing in critical care, 22/10/2019, Pagination inconnue

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Quality of life and symptom intensity over time in people with cancer receiving palliative care - results from the international European palliative care cancer symptom study

VERKISSEN, Mariette N. ; HJERMSTAD, Marianne J. ; VAN BELLE, Simon ; KAASA, Stein ; DELIENS, Luc ; PARDON, Koen
Plos one, 2019, vol.14, n°10, p. 1-16

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Thème : Médecine.

FIN VIE ; EUROPE ; SOIN INTENSIF ; PRATIQUE MEDICALE ; LIMITATION TRAITEMENT

Importance: End-of-life decisions occur daily in intensive care units (ICUs) around the world, and these practices could change over time.
bjective To determine the changes in end-of-life practices in European ICUs after 16 years.
Design, Setting, and Participants: Ethicus-2 was a prospective observational study of 22 European ICUs previously included in the Ethicus-1 study (1999-2000). During a self-selected continuous 6-month period at each ICU, consecutive patients who died or had any limitation of life-sustaining therapy from September 2015 until October 2016 were included. Patients were followed up until death or until 2 months after the first treatment limitation decision.
Exposures: Comparison between the 1999-2000 cohort vs 2015-2016 cohort.
Main Outcomes and Measures: End-of-life outcomes were classified into 5 mutually exclusive categories (withholding of life-prolonging therapy, withdrawing of life-prolonging therapy, active shortening of the dying process, failed cardiopulmonary resuscitation [CPR], brain death). The primary outcome was whether patients received any treatment limitations (withholding or withdrawing of life-prolonging therapy or shortening of the dying process). Outcomes were determined by senior intensivists.
Results: Of 13 625 patients admitted to participating ICUs during the 2015-2016 study period, 1785 (13.1%) died or had limitations of life-prolonging therapies and were included in the study. Compared with the patients included in the 1999-2000 cohort (n = 2807), the patients in 2015-2016 cohort were significantly older (median age, 70 years [interquartile range {IQR}, 59-79] vs 67 years [IQR, 54-75]; P < .001) and the proportion of female patients was similar (39.6% vs 38.7%; P = .58). Significantly more treatment limitations occurred in the 2015-2016 cohort compared with the 1999-2000 cohort (1601 [89.7%] vs 1918 [68.3%]; difference, 21.4% [95% CI, 19.2% to 23.6%]; P < .001), with more withholding of life-prolonging therapy (892 [50.0%] vs 1143 [40.7%]; difference, 9.3% [95% CI, 6.4% to 12.3%]; P < .001), more withdrawing of life-prolonging therapy (692 [38.8%] vs 695 [24.8%]; difference, 14.0% [95% CI, 11.2% to 16.8%]; P < .001), less failed CPR (110 [6.2%] vs 628 [22.4%]; difference, -16.2% [95% CI, -18.1% to -14.3%]; P < .001), less brain death (74 [4.1%] vs 261 [9.3%]; difference, -5.2% [95% CI, -6.6% to -3.8%]; P < .001) and less active shortening of the dying process (17 [1.0%] vs 80 [2.9%]; difference, -1.9% [95% CI, -2.7% to -1.1%]; P < .001).
Conclusions and Relevance: Among patients who had treatment limitations or died in 22 European ICUs in 2015-2016, compared with data reported from the same ICUs in 1999-2000, limitations in life-prolonging therapies occurred significantly more frequently and death without limitations in life-prolonging therapies occurred significantly less frequently. These findings suggest a shift in end-of-life practices in European ICUs, but the study is limited in that it excluded patients who survived ICU hospitalization without treatment limitations.

Origine : PubMed

Palliative care in primary care - European forum for primary care position paper

ROTAR PAVLIC, Danica ; AARENDONK, Diederik ; WENS, Johan ; RODRIGUES SIMOES, José Augusto ; LYNCH, Marie ; MURRAY, Scott
Primary health care research and development, 18/09/2019, vol.20, p. 1-6

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Thème : Santé. Cote : eD01.01.01

EUROPE ; DEMARCHE PALLIATIVE ; CONGRES ; POLITIQUE SANITAIRE

AIM: The aim of this position paper is to assist primary health care (PHC) providers, policymakers, and researchers by discussing the current context in which palliative health care functions within PHC in Europe. The position paper gives examples for improvements to palliative care models from studies and international discussions at European Forum for Primary Care (EFPC) workshops and conferences.
BACKGROUND: Palliative care is a holistic approach that improves the quality of life of patients and their families facing problems associated with terminal illness, through the prevention and relief of suffering by means of early identification and diligent assessment and treatment of pain and other problems, whether physical, psychosocial, or spiritual. Unfortunately, some Europeans, unless they have cancer, still do not have access to generalist or specialist palliative care.
METHODS: A draft of this position paper was distributed electronically through the EFPC network in 2015, 2016, and 2017. Active collaboration with the representatives of the International Primary Palliative Care Network was established from the very beginning and more recently with the EAPC Primary Care Reference Group. Barriers, opportunities, and examples of good and bad practices were discussed at workshops focusing on palliative care at the international conferences of Southeastern European countries in Ljubljana (2015) and Budva (2017), at regular conferences in Amsterdam (2015) and Riga (2016), at the WONCA Europe conferences in Istanbul (2015), Copenhagen (2016), and Prague (2017), and at the EAPC conference in Madrid (2017).
FINDINGS: There is great diversity in the extent and type of palliative care provided in primary care by European countries. Primary care teams (PCTs) are well placed to encourage timely palliative care. We collected examples from different countries. We found numerous barriers influencing PCTs in preparing care plans with patients. We identified many facilitators to improve the organization of palliative care.

Origine : PubMed

Consensus on treatment for residents in long-term care facilities - perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

TEN KOPPEL, M. ; PASMAN, H. R. W. ; VAN DER STEEN, J. T. ; VAN HOUT, H. P. J. ; KYLANEN, M. ; VAN DEN BLOCK, L. ; SMETS, T. ; DELIENS, Luc ; GAMBASSI, G. ; FROGGATT, K. ; SZCZERBINSKA, K. ; ONWUTEAKA-PHILIPSEN, B. D. ; PACE
BMC palliative care, 29/08/2019, vol.18, n°1, p. 1-11

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Dying in long-term care facilities in Europe - the PACE epidemiological study of deceased residents in six countries

HONINX, Elisabeth ; VAN DOP, Nanja ; SMETS, Tinne ; DELIENS, Luc ; VAN DEN NOORTGATE, Nele ; FROGGATT, Katherine ; GAMBASSI, Giovanni ; KYLANEN, Marika ; ONWUTEAKA-PHILIPSEN, Bregje ; SZCZERBINSKA, Katarzyna ; VAN DEN BLOCK, Lieve ; PACE
BMC public health, 30/08/2019, vol.19, n°1, p. 1-12

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Agreement of nursing home staff with palliative care principles - a PACE cross-sectional study among nurses and care assistants in five European countries

HONINX, Elisabeth ; SMETS, Tinne ; PIERS, Ruth ; DELIENS, Luc ; PAYNE, Sheila ; KYLANEN, Marika ; BARANSKA, Ilona ; PASMAN, H. Roeline W. ; GAMBASSI, Giovanni ; VAN DEN BLOCK, Lieve ; GATSOLAEVA, Yuliana ; MIRANDA, Rose ; PIVODIC, Lara ; TANGHE, Marc ; VAN HOUT, Hein ; VAN DEN NOORTGATE, Nele ; FROGGATT, Katherine ; ONWUTEAKA-PHILIPSEN, Bregje ; SZCZERBINSKA, Katarzyna ; OOSTERVELD-VLUG, Mariska ; WICHMANN, Anne B. ; ENGELS, Yvonne ; VERNOOIJ-DASSEN, Myrra JFJ. ; HOCKLEY, Jo ; LEPPAAHO, Suvi ; PAUTEX, Sophie ; BASSAL, Catherine ; MAMMARELLA, Federica ; MERCURI, Martina ; ROSSI, Paola ; SEGAT, Ivan ; STODOLSKA, Agata ; ADANG, Eddy ; ANDREASEN, Paula ; KUITUNEN-KAIJA, Outi ; MOORE, Danni Collingridge ; PAC, Agnieszka ; KIJOWSKA, Violetta ; KOPPEL, Maud ten ; VAN DER STEEN, Jenny T. ; MORGAN DE PAULA, Emilie
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 31/07/2019, p. 1-11

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Research, recruitment and observational data collection in care homes - lessons from the pace study

COLLINGRIDGE MOORE, Danni ; PAYNE, Sheila ; VAN DEN BLOCK, Lieve ; TEN KOPPEL, Maud ; SZCZERBINSKA, Katarzyna ; FROGGATT, Katherine ; PACE (PALLIATIVE CARE FOR OLDER PEOPLE IN CARE AND NURSING HOMES IN EUROPE) CONSORTIUM
BMC research notes, 14/08/2019, vol.12, n°1, p. 1-6

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Perception of the quality of communication with physicians among relatives of dying residents of long-term care facilities in 6 european countries - PACE cross-sectional study

BARANSKA, Ilona ; KIJOWSKA, Violetta ; ENGELS, Yvonne ; FINNE-SOVERI, Harriet ; FROGGATT, Katherine ; GAMBASSI, Giovanni ; HAMMAR, Teija ; OOSTERVELD-VLUG, Mariska ; PAYNE, Sheila ; VAN DEN NOORTGATE, Nele ; SMETS, Tinne ; DELIENS, Luc ; VAN DEN BLOCK, Lieve ; SZCZERBINSKA, Katarzyna ; PACE
Journal of the American Medical Directors Association, 01/07/2019, p. 1-7

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Palliative care provision in long-term care facilities differs across Europe - results of a cross-sectional study in six European countries (PACE)

TEN KOPPEL, Maud ; ONWUTEAKA-PHILIPSEN, Bregje D. ; VAN DEN BLOCK, Lieve ; DELIENS, Luc ; GAMBASSI, Giovanni ; HEYMANS, Martijn W. ; KYLÄNEN, Marika ; OOSTERVELD-VLUG, Mariska G. ; PASMAN, H. Roeline W. ; PAYNE, Sheila ; SMETS, Tinne ; SZCZERBINSKA, Katarzyna ; TWISK, Jos WR ; VAN DER STEEN, Jenny T. ; PACE
PALLIATIVE MEDICINE, 10/2019, vol.33, n°99, p. 1176-1188

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The Marco Cappato and Fabiano Antoniani (dj Fabo) case paves the way for new assisted suicide legislation in Italy - an overview of statutes from several European countries

MONTANARI VERGALLO, Gianluca
European Journal of Health Law, 19/06/2019, vol.26, n°3, p. 221-239

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La mort au Moyen Age

DEREGNAUCOURT, Jean-Pierre
J.-P. Gisserot , 06/2019 , 128 p.

Effectiveness of a short-term psychotherapeutic group for doctors and nurses in a hospice in Southern Europe

FLORIANA, Caccamo ; LUCA, Caldironi ; SIMONA, Ghedin
PROGRESS IN PALLIATIVE CARE, 04/2019, vol.27, n°2, p. 58-63

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Pilot testing of the first version of the European Association for palliative care basic dataset - a mixed methods study

SIGURDARDOTTIR, Katrin Ruth ; HJERMSTAD, Marianne J. ; FILBET, Marilene ; TRICOU, Colombe ; McQUILLAN, Regina ; COSTANTINI, Massimo ; AUTELITANO, Cristina ; BENNETT, Michael I. ; HAUGEN, Dagny Faksvåg
PALLIATIVE MEDICINE, 07/2019, vol.33, n°7, p. 832-849

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Advance directives in European long-term care facilities - a cross-sectional survey

ANDREASEN, Paula ; FINNE-SOVERI, Ulla Harriet ; DELIENS, Luc ; VAN DEN BLOCK, Lieve ; PAYNE, Sheila ; GAMBASSI, Giovanni ; ONWUTEAKA-PHILIPSEN, Bregje D. ; SMETS, Tinne ; LILJA, Eero ; KIJOWSKA, Violetta ; PACE CONSORTIU ; SZCZERBINSKA, Katarzyna
BMJ supportive and palliative care, 21/05/2019, p. 1-10

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Spiritual care in palliative care - a systematic review of the recent European literature

GIJSBERTS, Marie-José H. E. ; LIEFBROER, Anke I. ; OTTEN, René ; OLSMAN, Erik
Medical sciences, 07/02/2019, vol.7, n°2, p. 1-21

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Care staff’s self-efficacy regarding end-of-life communication in the long-term care setting - results of the PACE cross-sectional study in six European countries

TEN KOPPEL, M. ; ONWUTEAKA-PHILIPSEN, B. D. ; VAN DER STEEN, J. T. ; KYLANEN, M. ; VAN DEN BLOCK, L. ; SMETS, T. ; DELIENS, Luc ; GAMBASSI, G. ; COLLINGRIDGE MOORE, D. ; SZCZERBINSKA, K. ; PASMAN, H. R. W.
International journal of nursing studies, 04/2019, vol.92, p. 135-143

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Long-term care reforms in OECD countries

[ Les réformes des soins de longue durée dans les pays de l'OCDE ]
GORI, C. ; FERNANDES, J.L. ; WITTENBERG, R.
Policy Press , 2016 , 12 + 316 p.

Effective management of Long-Term Care Facilities

[ Efficience du management dans l'accès aux soins de long terme ]
SINGH, D.A.
Jones & Bartlett Learning , 2016 , 12 + 582 p.

States of mourning - a quantitative analysis of national mournings across European countries

RUSU, Mihai Stelian
DEATH STUDIES, 10/12/2018, p. 1-13

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