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Measuring quality of life in life-threatening illness - content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

AXELSSON, Lena ; ALVARIZA, Anette ; CARLSSON, Nina ; COHEN, S. Robin ; SAWATZKY, Richard ; ARESTEDT, Kristofer
BMC palliative care, 12/2020, vol.19, n°1, p. 1-9

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The views of physicians and nurses on the potentials of an electronic assessment system for recognizing the needs of patients in palliative care

RADIONOVA, Natalia ; BECKER, Gerhild ; MAYER-STEINACKER, Regine ; GENCER, Deniz ; RIEGER, Monika A. ; PREISER, Christine
BMC palliative care, 2020, vol.19, n°1, p. 1-9

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Development and psychometric evaluation of a new tool for measuring the attitudes of patients with progressive neurological diseases to ethical aspects of end-of-life care

BUZGOVA, Radka ; KOZAKOVA, Radka
BMC medical ethics, 12/2020, vol.21, n°1, p. 1-12

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Generalist palliative care in the California safety net - a structured assessment to design interventions for a range of care settings

ANDERSON, Wendy G. ; PARRISH, Monique ; KERR, Kathleen ; KINDERMAN, Anne ; RABOW, Michael ; SCHOEN, Melissa ; MEYERS, Kate
American journal of hospice and palliative medicine, 13/04/2020, Pagination inconnue

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Thème : Soins.

DEMARCHE PALLIATIVE ; ETATS-UNIS ; QUALITE SOIN ; EVALUATION

Background: To provide high quality care to all patients who have serious illness, health-care systems must develop effective generalist palliative care strategies.
Objective: To identify palliative care quality gaps within a range of settings in the California safety net and to develop theory-based interventions to address them.
Design: Structured assessment using the National Consensus Project for Quality Palliative Care Clinical Practice Guidelines and a Predisposing, Reinforcing, and Enabling Constructs in Educational/Environmental Diagnosis and Evaluation intervention planning model-based worksheet, which integrates behavior theories to identify factors that predispose, enable, and reinforce clinicians to perform recommended behaviors.
Setting and Participants: Adviser pairs—one from palliative care and one from a partner service line—from 10 California public health-care systems conducted assessments at their sites. A steering committee provided educational webinars, best practices, and assessment tools.
Measurements: Adviser pairs interviewed at least 6 partner service line stakeholders to identify palliative care quality gaps, behaviors clinicians should perform to close gaps, and factors that predispose, enable, and reinforce those behaviors.
Results: Partner service lines were primary care (n = 4), surgery (n = 3), emergency department (n = 2), and radiation oncology (n = 1). Selected gaps were advance care planning and goals of care communication (n = 6), identifying patients with serious illness (n = 3), and pain management (n = 1). All sites designed multiple interventions to address gaps, based on factors that predispose, enable, and reinforce a target audience to perform a target behavior. Advisers reported that the program strengthened relationships between palliative care and the partner service line
Conclusion: This structured assessment helped busy clinicians develop theory-based generalist palliative care interventions.

Origine : DOI.org (Crossref

Etude du niveau de qualification en soins palliatifs des infirmières libérales

CHENEVEZ, Michaël ; DEGOIS, Marc
MEDECINE PALLIATIVE, Elsevier, 04/2020, vol.19, n°2, p. 72-77

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Graduating nurses' knowledge of palliative and end-of-life care

CLEARY, Ann Selena
International Journal of Palliative Nursing, 01/2020, vol.26, n°1, p. 5-12

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Evaluation of measurement equivalence of the family satisfaction with the end-of-life care (FAMCARE) - tests of differential item functioning between hispanic and non-hispanic white caregivers

TERESI, Jeanne A. ; OCEPEK-WELIKSON, Katja ; RAMIREZ, Mildred ; KLEINMAN, Marjorie ; ORNSTEIN, Katherine ; SIU, Albert ; LUCHSINGER, Jose
Palliative and supportive care, 19/03/2020, p. 1-13

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Psychometric testing of the Korean version of the attitudes toward the advance directives in low-income chronically ill older adults

KIM, JinShil ; HEO, Seongkum ; HONG, Sun Woo ; KIM, HeeRyang ; JUNG, Ahrang ; AN, Minjeong ; SHIM, JaeLan
Healthcare, 18/03/2020, vol.8, n°1, p. 1-15

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End-of-life nursing knowledge among nursing students

CARVALHO, Lucia G. ; HAMILTON, Heather M. ; BURKE, Mary Ellen ; MCDONALD, Carl ; GRIGGS, Stephanie
The journal of nursing education, 01/03/2020, vol.59, n°3, p. 154-157

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Assessing undergraduate nursing students' attitudes toward the dying in an end-of-life simulation using an ACE.S unfolding case study

BYRNE, Deborah ; OVERBAUGH, Kristen ; CZEKANSKI, Kathleen ; WILBY, Mary ; BLUMENFELD, Stephanie ; LASKE, Rita Ann
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 04/2020, vol.22, n°2, p. 123-129

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Validation of the critical care pain observational tool in palliative care

FEDELE, Sabrina ; STRASSER, Sélim ; ROULIN, Marie-José
Pain management nursing, 26/02/2020, Pagination inconnue

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Incorporating palliative radiotherapy education into hospice and palliative medicine fellowship training - a feasibility study

MARTIN, Emily J. ; NALAWADE, Vinit V. ; MURPHY, James D. ; JONES, Joshua A.
Annals of palliative medicine, 09/2019, vol.8, n°4, p. 436-441

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Symptom burden in patients with reduced performance status at the start of palliative radiotherapy

NIEDER, Carsten ; KAMPE, Thomas A.
In vivo, 04/2020, vol.34, n°2, p. 735-738

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Wish to die in older patients - development and validation of two assessment instruments

DÜRST, Anne-Véronique ; SPENCER, Brenda ; BÜLA, Christophe ; FUSTINONI, Sarah ; MAZZOCATO, Claudia ; ROCHAT, Etienne ; TRUCHARD, Eve Rubli ; MONOD, Stéfanie ; JOX, Ralf J.
Journal of the American Geriatrics Society, 29/02/2020, Pagination inconnue

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Association of hospital readmissions and survivability with frailty and palliative performance scores among long-term care residents

ARANHA, Anil N. F. ; SMITHERMAN, Herbert C. ; PATEL, Dhaval ; PATEL, Pragnesh J.
The American journal of hospice and palliative care, 01/03/2020, Pagination inconnue

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Assessment of the decision-making capacity for clinical research participation in patients with advanced cancer in the last weeks of life

GOSWAMI, Rachna ; MOORE, Jessica ; BRUERA, Eduardo ; HUI, David
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 24/02/2020, Pagination inconnue

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Attitudes of professional caregivers and family members regarding the use of monitoring devices to improve assessments of pain and discomfort during continuous sedation until death

SIX, Stefaan ; VAN OVERMEIRE, Roel ; BILSEN, Johan ; LAUREYS, Steven ; POELAERT, Jan ; THEUNS, Peter ; DESCHEPPER, Reginald
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 24/02/2020, Pagination inconnue

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High c-reactive protein to albumin ratio and the short-term survival prognosis within 30 days in terminal cancer patients receiving palliative care in a hospital setting - a retrospective analysis

JU, Sang-Yhun ; MA, Soo-Jin
Medicine, 02/2020, vol.99, n°9, p. 1-7

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The assessment of spiritual well-being in cancer patients with advanced disease - which are its meaningful dimensions?

RABITTI, Elisa ; CAVUTO, Silvio ; IANI, Luca ; OTTONELLI, Simona ; DE VINCENZO, Francesco ; COSTANTINI, Massimo
BMC palliative care, 06/03/2020, vol.19, n°1, p. 1-8

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Characteristics of hospices providing high-quality care

ANHANG PRICE, Rebecca ; TOLPADI, Anagha ; SCHLANG, Danielle ; BRADLEY, Melissa A. ; PARAST, Layla ; TENO, Joan M. ; ELLIOTT, Marc N.
JOURNAL OF PALLIATIVE MEDICINE, 06/03/2020, Pagination inconnue

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Thème : Santé.

UNITE SOINS PALLIATIFS ; QUALITE SOIN ; ETATS-UNIS ; EVALUATION

Background: The hospice market has changed substantially, shifting from predominately not-for-profit independent entities to for-profit national chains. Little is known about how hospice organizational characteristics are associated with quality of hospice care.
Objective: To examine the association between hospice characteristics and care processes and performance on measures of hospice care quality.
Design: Logistic regression models assessed the association between hospice characteristics and processes and hospices being in the top quartile of quality measure performance.
Setting/Subjects: U.S. hospices with publicly reported measure scores in 2015-2017.
Measurements: Summaries of hospice-level performance on Consumer Assessment of Healthcare Providers and Systems (CAHPS) Hospice Survey measures (including communication, timely care, symptom management, emotional and spiritual support, respect, training families, overall rating, and willingness to recommend) and Hospice Item Set (HIS) measures (including pain screening and assessment, dyspnea screening and treatment, bowel regimen for patients on opioids, discussion of treatment preferences, and beliefs/values addressed).
Results: Of the 2746 hospices that met public reporting requirements, 5.6% were in the top quartile of both CAHPS and HIS performance. Characteristics associated with being in the top quartile for CAHPS included being a nonprofit and nonchain or government hospice, smaller size (<200 patients per year), and serving a rural area. Characteristics associated with being in the top quartile for HIS included being in a for-profit chain, larger size (91+ patients per year), and having <40% of patients in a nursing home. Providing professional staff visits in the last two days of life to a higher proportion of patients was associated with hospices being in the top quartile of HIS and in the top quartile of CAHPS.
Conclusions: Hospice characteristics associated with strong performance on HIS measures differ from those associated with strong performance on CAHPS measures. Providing professional staff visits in the last two days of life is associated with high performance on both quality domains.

Origine : PubMed

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