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Use of the core bereavement items in adults aged 50 and older - a psychometric evaluation

LEVY, Kathryn
The American journal of hospice and palliative care, 07/2020, vol.37, n°7, p. 527-531

Predicting those who are at risk of dying within six to twelve months in primary care - a retrospective case-control general practice chart analysis

WOOLFIELD, Anne ; MITCHELL, Geoffrey ; KONDALSAMY-CHENNAKESAVAN, Srinivas ; SENIOR, Hugh
JOURNAL OF PALLIATIVE MEDICINE, 11/2019, vol.22, n°11, p. 1417-1424

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What is quality end-of-life care for patients with heart failure? - a qualitative study with physicians

HUTCHINSON, Rebecca N. ; GUTHEIL, Caitlin ; WESSLER, Benjamin S. ; PREVATT, Hayley ; SAWYER, Douglas B. ; HAN, Paul K. J.
Journal of the American Heart Association, 15/09/2020, vol.9, n°18, p. 1-16

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Comparison of patient self-reported quality of life and health care professional-assessed symptoms in terminally ill patients with cancer

MATSUMURA, Chikako ; KOYAMA, Nanako ; SAKO, Morito ; KUROSAWA, Hideo ; NOMURA, Takehisa ; EGUCHI, Yuki ; OHBA, Kazuki ; YANO, Yoshitaka
The American journal of hospice and palliative care, 24/07/2020, Pagination inconnue

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Factors influencing health-related quality of life of patients with multiple sclerosis and their caregivers

BUZGOVA, Radka ; KOZAKOVA, Radka ; SKUTOVA, Monika
European neurology, 28/07/2020, p. 331-339

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Are common delirium assessment tools appropriate for evaluating delirium at the end of life in cancer patients?

UCHIDA, Megumi ; MORITA, Tatsuya ; AKECHI, Tatsuo ; YOKOMICHI, Naosuke ; SAKASHITA, Akihiro ; HISANAGA, Takayuki ; MATSUI, Takashi ; OGAWA, Asao ; YOSHIUCHI, Kazuhiro ; IWASE, Satoru ; PHASE-R DELIRIUM STUDY GROUP
Psycho-oncology, 31/07/2020, Pagination inconnue

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The psychosocial assessment in palliative care #396

ALTILIO, Terry ; GRONINGER, Hunter ; KELEMEN, Anne
JOURNAL OF PALLIATIVE MEDICINE, 08/2020, vol.23, n°8, p. 1125-1126

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Assessment of patient decision-making capacity in the context of voluntary euthanasia for psychic suffering caused by psychiatric disorders - a qualitative study of approaches among belgian physicians

SCHWEITSER, Frank ; STUY, Johan ; DISTELMANS, Wim ; RIGO, Adelheid
Journal of medical ethics, 03/08/2020, Pagination inconnue

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Palliative care needs-assessment and measurement tools used in patients with heart failure - a systematic mixed-studies review with narrative synthesis

REMAWI, Bader Nael ; GADOUD, Amy ; MURPHY, Iain Malcolm James ; PRESTON, Nancy
Heart failure reviews, 03/08/2020, p. 1-19

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Measure scan and synthesis of palliative and end-of-life process quality measures for advanced cancer

O'HANLON, Claire E. ; LINDVALL, Charlotta ; LORENZ, Karl A. ; GIANNITRAPANI, Karleen F. ; GARRIDO, Melissa ; ASCH, Steven M. ; WENGER, Neil ; MALIN, Jennifer ; DY, Sydney Morss ; CANNING, Mark ; GAMBOA, Raziel C. ; WALLING, Anne M.
JCO oncology practice, 06/08/2020, Pagination inconnue

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Assessing the palliative and end-of-life care education-practice-competence triad in intensive care units - content validity, feasibility, and reliability of a new tool

ELTAYBANI, Sameh ; IGARASHI, Ayumi ; YAMAMOTO-MITANI, Noriko
JOURNAL OF PALLIATIVE CARE, 11/08/2020, Pagination inconnue

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How good is end of life care for patients dying with cystic fibrosis?

MILLER, Mary G. ; LEE, Rachel ; YATES, Sharon ; BILLETT, Hannah C. ; BOURKE, Stephen ; FLIGHT, William G. ; QUIBELL, Rachel
BMJ supportive and palliative care, 24/08/2020, Pagination inconnue

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Poor physical and mental health predicts prolonged grief disorder - a prospective, population-based cohort study on caregivers of patients at the end of life

LENGER, Maja Krarup ; NEERGAARD, Mette Asbjoern ; GULDIN, Mai-Britt ; NIELSEN, Mette Kjaergaard
PALLIATIVE MEDICINE, 23/08/2020, p. 1-9

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Survey of satisfaction regarding palliative care provided to patients who died at home or in a hospital

KATSUKI, Masaaki ; NAKAMATA, Momoka ; EZAKI, Arisa ; YAMANAKA, Sayaka ; IMAMURA, Sakiko ; HONDA, Chika ; KUBOTA, Toshio ; MORIUCHI, Hiroshi ; IRIKURA, Mitsuru
International Journal of Palliative Nursing, 02/08/2020, vol.26, n°6, p. 272-277

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Feasibility of using a risk assessment tool to predict hospital transfers or death for older people in Australian residential aged care - a retrospective cohort study

OOI, Meidelynn ; LEWIS, Ebony T. ; BRISBANE, Julianne ; TUBB, Evalynne ; MCCLEAN, Tom ; ASSAREH, Hassan ; HILLMAN, Ken ; ACHAT, Helen ; CARDONA, Magnolia
Healthcare, 21/08/2020, vol.8, n°3, p. 1-11

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Utility of the modified frailty index in predicting toxicity and cancer outcomes for older adults with advanced pancreatic cancer receiving first-line palliative chemotherapy

RITTBERG, Rebekah ; ZHANG, Hanbo ; LAMBERT, Pascal ; KUDLOVICH, Robert ; KIM, Christina A. ; DAWE, David E.
Journal of geriatric oncology, 11/08/2020, Pagination inconnue

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QALY-time - experts' view on the use of the quality-adjusted life year in cost-effectiveness analysis in palliative care

WICHMANN, Anne B. ; GOLTSTEIN, Lia C. M. J. ; OBIHARA, Ndidi J. ; BERENDSEN, Madeleine R. ; VAN HOUDENHOVEN, M. ; MORRISON, R. Sean ; JOHNSTON, Bridget M. ; ENGELS, Yvonne ; RADBOUD HONOURS ACADEMY THINK TANK
BMC health services research, 16/07/2020, vol.20, n°1, p. 1-7

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Thème : Recherche - Evaluation - Méthodologie. Cote : eD15.00.02

MEDECINE PALLIATIVE ; QUALITE VIE ; OUTIL ; EVALUATION

BACKGROUND: The Quality-Adjusted Life Year (QALY) is internationally recognized as standard metric of health outcomes in cost-effectiveness analyses (CEAs) in healthcare. The ongoing debate concerning the appropriateness of its use for decision-making in palliative care has been recently mapped in a review. The aim was to report on and draw conclusions from two expert meetings that reflected on earlier mapped issues in order to reach consensus, and to advise on the QALY's future use in palliative care.
METHODS: A nominal group approach was used. In order to facilitate group decision making, three statements regarding the use of the QALY in palliative care were discussed in a structured way. Two groups of international policymakers, healthcare professionals and researchers participated. Data were analysed qualitatively using inductive coding.
RESULTS: 1) Most experts agreed that the recommended measurement tool for the QALYs 'Q' component, the EuroQol-5D (EQ-5D), is inappropriate for palliative care. A more sensitive tool, which might be based on the capabilities approach, could be used or developed. 2) Valuation of time should be incorporated in the 'Q' part, leaving the linear clock time in the 'LY' component. 3) Most experts agreed that the QALY, in its current shape, is not suitable for palliative care.
CONCLUSIONS: 1) Although the EQ-5D does not suffice, a generic tool is needed for the QALY. As long as no suitable alternative is available, other tools can be used besides or serve as basis for the EQ-5D because of issues in conceptual overlap. 2) Future research should further investigate the valuation of time issue, and how best to integrate it in the 'Q' component. 3) A generic outcome measure of effectiveness is essential to justly allocate healthcare resources. However, experts emphasized, the QALY is and should be one of multiple criteria for choices in the healthcare insurance package.

Origine : PubMed

Readability of the informed consent forms in Flanders using the Douma index - analyzing the documents that help patients make decisions

DEL VALLE RAMIREZ-DURAN, Maria ; DEL VALLE CORONADO-VAZQUEZ, Maria ; MARISCAL-CRESPO, María Isabel
Clinical ethics, 09/07/2020, Pagination inconnue

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Current collaboration between palliative care and neurology - a survey of clinicians in Europe

OLIVER, David ; BORASIO, Gian Domenico ; VERONESE, Simone ; VOLTZ, Raymond ; LORENZL, Stefan ; HEPGUL, Nilay
BMJ supportive and palliative care, 10/07/2020, Pagination inconnue

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