VigiPallia : Résultats

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Expanding the 3 wishes project for compassionate end-of-life care - a qualitative evaluation of local adaptations

VANSTONE, Meredith ; NEVILLE, Thanh H. ; SWINTON, Marilyn E. ; SADIK, Marina ; CLARKE, France J. ; LEBLANC, Allana ; TAM, Benjamin ; TAKAOKA, Alyson ; HOAD, Neala ; HANCOCK, Jennifer ; MCMULLEN, Sarah ; REEVE, Brenda ; DECHERT, William ; SMITH, Orla M. ; SANDHU, Gyan ; LOCKINGTON, Julie ; COOK, Deborah J.
BMC palliative care, 30/06/2020, vol.19, n°1, 9 p.

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A retrospective thematic analysis of patient, family, and staff creative art tiles developed on a tertiary palliative care unit

COLLINS, Andrew ; AYRE, Sandy ; BRULOTTE, Tiffany ; CROWE, Kim ; NEKOLAICHUK, Cheryl
The American journal of hospice and palliative care, 29/06/2020, 10 p.

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Process evaluation of the cancer home-life intervention - what can we learn from it for future intervention studies?

LA COUR, Karen ; GREGERSEN OESTERGAARD, Lisa ; BRANDT, Åse ; OFFERSEN, Sara Marie Hebsgaard ; LINDAHL-JACOBSEN, Line ; CUTCHIN, Malcolm ; PILEGAARD, Marc Sampedro
PALLIATIVE MEDICINE, 02/07/2020, 11 p.

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Content validation of the EORTC QLQ-C15-PAL with advanced cancer patients and health care professionals from palliative care services in Chile

ROJAS-CONCHA, Leslye ; HANSEN, Maiken Bang ; PETERSEN, Morten Aagaard ; GROENVOLD, Mogens
BMC palliative care, 09/06/2020, vol.19, n°1, p. 1-10

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Systematic symptom and problem assessment at admission to the palliative care ward - perspectives and prognostic impacts

COYM, Anja ; ULLRICH, Anneke ; HACKSPIEL, Lisa Kathrin ; AHRENHOLZ, Mareike ; BOKEMEYER, Carsten ; OECHSLE, Karin
BMC palliative care, 28/05/2020, vol.19, n°1, p. 1-11

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Development of an instrument to measure stress in Korean nurses performing end-of-life care for children

PARK, So Yeon ; JU, Hyeon Ok
Journal of pediatric nursing, 06/2020, Pagination inconnue

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Extended-hours palliative care service with a hospital-avoidance and enhanced-care approach - report of a quality improvement project

KEALL, Robyn ; LOVELL, Melanie
International Journal of Palliative Nursing, 02/06/2020, vol.26, n°5, p. 222-228

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Level of palliative care complexity in advanced cancer patients - a multinomial logistic analysis

CARRASCO-ZAFRA, Maria Isabel ; GOMEZ-GARCIA, Rafael ; OCANA-RIOLA, Ricardo ; MARTIN-ROSELLO, Maria Luisa ; BLANCO-REINA, Encarnación
Journal of clinical medicine, 23/06/2020, vol.9, n°6, p. 1-12

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Thème : Médecine. Cote : eD03.03.00

DEMARCHE PALLIATIVE ; CANCER ; ETUDE RETROSPECTIVE ; EVALUATION

The current treatment approach for patients in palliative care (PC) requires a health model based on shared and individualised care, according to the degree of complexity encountered. The aims of this study were to describe the levels of complexity that may be present, to determine their most prevalent elements and to identify factors that may be related to palliative complexity in advanced-stage cancer patients. An observational retrospective study was performed of patients attended to at the Cudeca Hospice. Socio-demographic and clinical data were compiled, together with information on the patients’ functional and performance status (according to the Palliative Performance Scale (PPS)). The level of complexity was determined by the Diagnostic Instrument of Complexity in Palliative Care (IDC-Pal©) and classified as highly complex, complex or non-complex. The impact of the independent variables on PC complexity was assessed by multinomial logistic regression analysis. Of the 501 patients studied, 44.8% presented a situation classed as highly complex and another 44% were considered complex. The highly complex items most frequently observed were the absence or insufficiency of family support and/or caregivers (24.3%) and the presence of difficult-to-control symptoms (17.3%). The complex item most frequently observed was an abrupt change in the level of functional autonomy (47.6%). The main factor related to the presence of high vs. non-complexity was that of performance status (odds ratio (OR) = 10.68, 95% confidence interval (CI) = 2.81–40.52, for PPS values < 40%). However, age was inversely related to high complexity. This study confirms the high level of complexity present in patients referred to a PC centre. Determining the factors related to this complexity could help physicians identify situations calling for timely referral for specialised PC, such as a low PPS score.

Origine : DOI.org (Crossref

Prehospital frailty and screening criteria for palliative care services in critically ill older adults - an observational cohort study

HOPE, Aluko A. ; ENILARI, Oladunni M. ; CHUANG, Elizabeth ; NAIR, Rahul ; GONG, Michelle Ng
JOURNAL OF PALLIATIVE MEDICINE, 23/06/2020, Pagination inconnue

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An evaluation of by my side - peer support in written form is acceptable and useful for parents bereaved by childhood cancer

RAHARJO, Callista V. ; HETHERINGTON, Kate ; DONOVAN, Leigh ; FARDELL, Joanna E. ; RUSSELL, Vera ; COHN, Richard J. ; MORGAN, Nicola L. ; SIDDIQUI, Julia ; WAKEFIELD, Claire E.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/06/2020, vol.59, n°6, p. 1278-1286

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Application of METAP methodology for clinical ethics consultation in end-of-life care in Bulgaria

ALEKSANDROVA-YANKULOVSKA, Silviya Stoyanova
Clinical ethics, 03/06/2020, Pagination inconnue

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Douleur et accompagnement des équipes de soins palliatifs

PICARD, Stéphane
Revue de l'infirmière, 03//2020, vol.69, n°259, p. 23-25

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Factors associated with overall satisfaction with care at the end-of-life - caregiver voices in New Zealand

FREY, Rosemary ; ROBINSON, Jackie ; OLD, Andrew ; RAPHAEL, Deborah ; GOTT, Merryn
Health and social care in the community, 21/06/2020, Pagination inconnue

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Hearing and heeding the voices of those with advanced illnesses

PIDERMAN, Katherine M. ; RADECKI BREITKOPF, Carmen ; JENKINS, Sarah M. ; INGRAM, Cory ; SYTSMA, Terin T. ; LAPID, Maria I. ; TATA, Beba S. ; CHATTERJEE, Krishanu ; EGGINTON, Jason S. ; JATOI, Aminah
JOURNAL OF PALLIATIVE CARE, 28/05/2020, Pagination inconnue

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Thème : Religions, spiritualité.

SPIRITUALITE ; OUTIL ; QUALITE VIE ; EVALUATION ; ECHELLE MESURE

Objectives:To describe the feasibility of a chaplain-led spiritually focused life review interview and the development of a spiritual legacy document (SLD) for patients with advanced diseases and to describe changes in spiritual well-being (SWB), spiritual coping strategies (SC), and quality of life (QOL) after receiving the SLD.
Patients and Methods: In all, 130 patients and support person (SP) pairs were recruited from July 2012 to January 2019. Following enrollment, demographic information was gathered and baseline questionnaires were administered. Functional Assessment of Chronic Illness Therapy'Spiritual Well-Being Scale (FACIT-Sp-12) and a linear analog scale assessment (LASA) measured SWB. LASAs also measured QOL and emotional well-being (EWB). Positive Religious Coping Scale (RCOPE) measured SC. After completion of baseline forms, participants were interviewed (individually) by a chaplain. Interviews were digitally recorded, transcribed, and verified. Transcripts were edited and participants were given the opportunity to make adaptations. The participant-approved draft was then developed into a professionally printed SLD. Follow-up questionnaires were administered to assess change.
Results: Significant improvements from baseline to post-SLD follow-up were found for patients on the LASAs: SWB (average 7.7-8.3, P = .01), QOL (average 6.7-7.3, P = .03), EWB (average 6.9-7.5, P = .01), and on the positive RCOPE (average 1.8-2.0, P = .007). Effect sizes were approximately 0.25. Considering any improvement, 61.0% improved their positive RCOPE score, 46.6% improved EWB, and 39.7% improved SWB. No significant changes were found on the FACIT-Sp-12. No significant changes were found for SPs.
Conclusion: The results suggest that the primary participants who completed the study benefited by significantly increasing their QOL, SWB, EWB, and SC.

Origine : SAGE Journals

Development and validation of the ACP-CAT for assessing the quality of advance care planning communication

YUEN, Jacqueline K. ; KELLEY, Amy S. ; GELFMAN, Laura P. ; LINDENBERGER, Elizabeth E. ; SMITH, Cardinale B. ; ARNOLD, Robert M. ; CALTON, Brook ; SCHELL, Jane ; BERNS, Stephen H.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/2020, vol.59, n°1, p. 1-8

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Mediation effects of compassion satisfaction and compassion fatigue in the relationships between resilience and anxiety or depression among hospice volunteers

JO, Minjeong ; NA, Hyunjoo ; JUNG, Young-Eun
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2020, vol.22, n°3, p. 246-253

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The evaluation of a palliative care advanced practice nursing externship

GENTRY, Jennifer H. ; DAHLIN, Constance
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 06/2020, vol.22, n°3, p. 172-179

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Evaluation des pratiques de soins palliatifs dans onze établissements pour personnes âgées dépendantes de Bourgogne-Franche-Comté

DEGOIS, Marc ; BESSET, Cécile ; NGAMBA, Esmaël ; RENOIR, Mary-Paule ; MANCASSOLA, Sophie ; SONNEY, Dominique
REVUE DE GERIATRIE, 03/2020, vol.45, n°3, p. 135-44

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National quality improvement participation among US radiation oncology facilities - compliance with guideline-concordant palliative radiotherapy for bone metastases

DINH, Tru-Khang T. ; FORD, Eric ; HALASZ, Lia M. ; LEE, Christoph I.
International journal of radiation oncology, biology, physics, 11/05/2020, Pagination inconnue

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Characteristics for a tool for timely identification of palliative needs in heart failure - the views of Dutch patients, their families and healthcare professionals

JANSSEN, Daisy JA ; AMENT, Stephanie Mc ; BOYNE, Josiane ; SCHOLS, Jos Mga ; LA ROCCA, Hans-Peter Brunner ; MAESSEN, José Mc ; VAN DEN BEUKEN-VAN EVERDINGEN, Marieke Hj
European journal of cardiovascular nursing, 05/05/2020, p. 1-10

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