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Burnout and self care for palliative care practitioners

HORN, David J. ; JOHNSTON, Catherine Bree
The Medical Clinics of North America, 05/2020, vol.104, n°3, p. 561-572

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Complicated grief - risk factors, protective factors, and interventions

MASON, Tina M. ; TOFTHAGEN, Cindy S. ; BUCK, Harleah G.
Journal of social work in end-of-life and palliative care, 31/03/2020, p. 1-24

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Determinants of quality of life in patients with incurable cancer - quality of life in incurable cancer

DALY, Louise E. ; DOLAN, Ross D. ; POWER, Derek G. ; NI BHUACHALLA, Éadaoin ; SIM, Wei ; CUSHEN, Samantha J. ; FALLON, Marie T. ; SIMMONS, Claribel ; MCMILLAN, Donald C. ; LAIRD, Barry J. ; RYAN, Aoife M.
Cancer, 08/04/2020, Pagination inconnue

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Thème : Soins.

CANCER ; QUALITE VIE ; FACTEUR ; IRLANDE ; ROYAUME UNI

Background: Optimizing quality of life (QoL) remains the central tenet of care in patients with incurable cancer; however, determinants of QoL are not clear. The objective of the current study was to examine which factors influence QoL in patients with incurable cancer.
Methods: A multicenter study of adult patients with advanced cancer was conducted in Ireland and the United Kingdom between 2011 and 2016. Data were collected from patients at study entry and included patient demographics, Eastern Cooperative Oncology Group performance status (ECOG-PS), nutritional parameters (the percentage weight loss [%WL]), muscle parameters assessed using computed tomography images (skeletal muscle index and skeletal muscle attenuation), inflammatory markers (modified Glasgow Prognostic score [mGPS]), and QoL data (the European Organization for Research and Treatment Quality-of-Life Questionnaire C-30). The relation between clinical, nutritional, and inflammatory parameters with QoL was assessed using the Spearman rank correlation coefficient and multivariate binary logistic regression. Components of the European Organization for Research and Treatment Quality-of-Life Questionnaire C-30 (physical function, fatigue, and appetite loss) and summary QoL scores were mean-dichotomized for the logistic regression analyses.
Results: Data were available for 1027 patients (51% men; median age, 66 years). Gastrointestinal cancer was most prevalent (40%), followed by lung cancer (26%) and breast cancer (9%). Distant metastatic disease was present in 87% of patients. The %WL, ECOG-PS, and mGPS were significantly correlated with deteriorating QoL functional and symptom scales (all P < .001). On multivariate regression analysis, >10% WL (odds ratio [OR], 2.69; 95% CI, 1.63-4.42), an ECOG-PS of 3 or 4 (OR, 14.33; 95% CI, 6.76-30.37), and an mGPS of 2 (OR, 1.58; 95% CI, 1.09-2.29) were independently associated with poorer summary QoL scores. These parameters were also independently associated with poorer physical function, fatigue, and appetite loss (all P < .05). Low skeletal muscle attenuation was independently associated with poorer physical functioning (OR, 1.67; 95% CI, 1.09-2.56), but muscle parameters were not independently associated with fatigue, appetite loss, or QoL summary scores.
Conclusions: The current findings indicate that QoL is determined (at least in part) by WL, ECOG-PS, and the systemic inflammatory response in patients with advanced cancer. Identifying early predictors of poor QoL may allow the identification of patients who may benefit from early referral to palliative and supportive care, which has been shown to improve QoL.

Origine : DOI.org (Crossref

Systematic review on the influencing factors of nurses' and nursing students' attitudes toward hospice and palliative care

JEONG, Sung Hoon ; LEE, So Jeong ; CHO, Seul Min ; CHO, Hyun
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 04/2020, vol.22, n°2, p. 130-136

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Hospice use among individuals with severe persistent mental illness

HANAN, Diana M. ; LYONS, Karen S.
Journal of the American Psychiatric Nurses Association, 06/03/2020, Pagination inconnue

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Inequity in palliative care service full utilisation among patients with advanced cancer - a retrospective cohort study

D'ANGELO, Daniela ; DI NITTO, Marco ; GIANNARELLI, Diana ; CROCI, Ileana ; LATINA, Roberto ; MARCHETTI, Anna ; MAGNANI, Caterina ; MASTROIANNI, Chiara ; PIREDDA, Michela ; ARTICO, Marco ; DE MARINIS, Maria Grazia
Acta oncologica, 09/03/2020, p. 1-8

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Advanced stage of disease and systemic inflammation as factors associated with referral of patients with colorectal cancer to a palliative care unit

SILVA, Thiago Huaytalla ; PERES, Wilza Arantes Ferreira ; ROSA, Karla Santos da Costa ; SCHILITHZ, Arthur Orlando Correa ; DE OLIVEIRA, Livia Costa ; MURAD, Leonardo Borges
The American journal of hospice and palliative care, 07/02/2020, Pagination inconnue

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Palliative care for family caregivers

ALAM, Sorayya ; HANNON, Breffni ; ZIMMERMANN, Camilla
Journal of clinical oncology, 05/02/2020, Pagination inconnue

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Thème : Soins.

AIDANT ; DEMARCHE PALLIATIVE ; CANCER ; FACTEUR ; FAMILLE

Family caregivers provide substantial care for patients with advanced cancer, while suffering from hidden morbidity and unmet needs. The objectives of this review were to examine risk factors associated with caregiving for patients with advanced cancer, evaluate the evidence for pertinent interventions, and provide a practical framework for palliative care of caregivers in oncology settings. We reviewed studies examining the association of factors at the level of the caregiver, patient, caregiver-patient relationship, and caregiving itself, with adverse outcomes. In addition, we reviewed randomized controlled trials of interventions targeting the caregiver, the caregiver-patient dyad, or the patient and their family. Risk factors for adverse mental health outcomes included those related to the patient's declining status, symptom distress, and poor prognostic understanding; risk factors for adverse bereavement outcomes included unfavorable circumstances of the patient's death. Among the 16 randomized trials, the most promising results showed improvement of depression resulting from early palliative care interventions; results for quality of life were generally nonsignificant or showed an effect only on some subscales. Caregiving outcomes included burden, appraisal, and competence, among others, and showed mixed findings. Only three trials measured bereavement outcomes, with mostly nonsignificant results. On the basis of existent literature and our clinical experience, we propose the CARES framework to guide care for caregivers in oncology settings: Considering caregivers as part of the unit of care, Assessing the caregiver's situation and needs, Referring to appropriate services and resources, Educating about practical aspects of caregiving, and Supporting caregivers through bereavement. Additional trials are needed that are powered specifically for caregiver outcomes, use measures validated for advanced cancer caregivers, and test real-world interventions.

Origine : PubMed

Factors affecting decisions regarding terminal care locations of patients with metastatic breast cancer

NOGAMI, Noriko ; NAKAI, Katsuya ; HORIMOTO, Yoshiya ; MIZUSHIMA, Akio ; SAITO, Mitsue
The American journal of hospice and palliative care, 23/01/2020, Pagination inconnue

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Preference for death at home and associated factors among older people in the city of Belo Horizonte, Brazil

JORGE, Rafaela ; CALANZANI, Natália ; FREITAS, Adelaide ; NUNES, Rui ; SOUSA, Liliana
Ciencia and saude coletiva, 05/08/2019, vol.24, n°8, p. 3001-3012

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Swedish intensivists' experiences and attitudes regarding end-of-life decisions

NORDENSKJOLD SYROUS, Alma ; AGARD, Anders ; KOCK REDFORS, Maria ; NAREDI, Silvana ; BLOCK, Linda
Acta anaesthesiologica Scandinavica, 18/01/2020, p. 1-7

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Barriers to the composition and implementation of advance directives in oncology - a literature review

GRACHINSKI BUIAR, Pedro ; GOLDIM, José Roberto
Ecancermedicalscience, 2019, vol.13, p. 1-12

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Clinicians' attitudes towards do-not-resuscitate directives in a teaching hospital in Saudi Arabia

MADADIN, Mohammed ; ALSAFFAR, Gada M. ; ALESSA, Sara M. ; KHAN, Afnan ; BADGHAISH, Dania A. ; ALGARNI, Shahad M. ; MENEZES, Ritesh G.
Cureus, 30/12/2019, vol.11, n°12, p. 1-8

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Palliative care in chronic heart failure - a theoretically guided, qualitative meta-synthesis of decision-making

SINGH, Gursharan K. ; IVYNIAN, Serra E. ; FERGUSON, Caleb ; DAVIDSON, Patricia M. ; NEWTON, Phillip J.
Heart failure reviews, 03/01/2020, Pagination inconnue

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Factors which influence hospital doctors' advance care plan adherence

CRAIG, Denise Patricia ; RAY, Robin ; HARVEY, Desley ; SHIRCORE, Mandy
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 05/2020, vol.59, n°5, p. 1109-1126

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Predisposing and precipitating risk factors for delirium in palliative care patients

SEILER, Annina ; SCHUBERT, Maria ; HERTLER, Caroline ; SCHETTLE, Markus ; BLUM, David ; GUCKENBERGER, Matthias ; WELLER, Michael ; ERNST, Jutta ; VON KÄNEL, Roland ; BOETTGER, Soenke
Palliative and supportive care, 14/11/2019, p. 1-10

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Predictive factors of mortality in older adult residents of long-term care facilities

MOON, SeolHwa ; HONG, Gwi-Ryung Son
The journal of nursing research, 30/10/2019, p. 1-8

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Knowledge and attitudes toward end-of-life care among community health care providers and its influencing factors in China - a cross-sectional study

SHI, Hongrui ; SHAN, Baifeng ; ZHENG, Jianzhong ; PENG, Wei ; ZHANG, Ying ; ZHOU, Xue ; MIAO, Xiaohui ; HU, Xiuying
Medicine, 11/2019, vol.98, n°45, p. 1-8

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An objective approach to decisions to withdraw or withhold life-sustaining medical treatment

SAVULESCU, Julian ; CAMERON, James
Journal of law and medicine, 10/2019, vol.27, n°1, p. 192-210

Perceptions of a home hospice crisis - an exploratory study of family caregivers

PHONGTANKUEL, Veerawat ; BURCHETT, Chelsie O. ; SHALEV, Ariel ; ADELMAN, Ronald D. ; PRIGERSON, Holly G. ; CZAJA, Sara J. ; DIGNAM, Ritchell ; BAUGHN, Rosemary ; REID, M. Cary
JOURNAL OF PALLIATIVE MEDICINE, 28/03/2019, vol.22, n°9, p. 1046-1051

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