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Mieux communiquer pour mieux soigner - concepts et outils à l'usage des professionnels de la santé

GAUME, Jean-Pierre
Graine d'Auteur , 06/2020 , 360 p.

Off-label drugs in palliative care - a group Delphi treatment recommendation process

REMI, Constanze ; WEINGARTNER, Kathrin ; HAGEMANN, Vera ; BAUSEWEIN, Claudia ; HODIAMONT, Farina
BMJ supportive and palliative care, 12/05/2020, Pagination inconnue

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Palliative care in heart transplantation

OWEN, Melissa I. ; BRAUN, Lynne T. ; HAMILTON, Rebekah J. ; GRADY, Kathleen L. ; GARY, Rebecca A. ; QUEST, Tammie E.
Progress in transplantation, 02/04/2020, Pagination inconnue

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Raisonnement clinique pour douleurs complexes - utilisation d'un guide en unités de soins palliatifs

BURUCOA, Benoît ; FRASCA, Matthieu ; SAUSSAC-PIETRI, Camille ; LAFARGUE, Aurélie ; PATERNOSTRE, Bernard ; HIRIART, Timothée
MEDECINE PALLIATIVE, Elsevier, 04/2020, vol.19, n°2, p. 63-71

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Development and testing of an informative guide about palliative care for family caregivers of people with advanced dementia

RIEDL, Lina ; BERTOK, Manuela ; HARTMANN, Julia ; FISCHER, Julia ; ROSSMEIER, Carola ; DINKEL, Andreas ; ORTNER, Marion ; DIEHL-SCHMID, Janine
BMC palliative care, 12/03/2020, vol.19, n°1, p. 1-8

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Thème : Soins. Cote : eD02.03.03

GUIDE ; DEMARCHE PALLIATIVE ; AIDANT ; DEMENCE

BACKGROUND: Since people with advanced dementia are usually not able to make complex decisions, it is usually the family caregivers, as proxies, who have to decide on treatments and their termination. However, these decisions are difficult for the caregivers to make, as they are often inadequately informed and cannot properly assess the consequences; moreover, they are concerned about harming the sick person. We aimed to first develop an informative booklet about palliative care issues for caregivers of people with advanced dementia. Secondly, we aimed to investigate a change in family caregivers' knowledge regarding palliative care issues and caregivers' involvement in medical and care decisions before and after studying this booklet.
METHODS: A first version of the booklet was drafted by an experienced psychiatrist and palliative care specialist based on existing booklets and guidelines; necessary cultural adaptions were taken into consideration. A nominal group process was conducted to develop the informative guide. In order to investigate the acceptance of the booklet and the possibility to implement it, 38 patient-caregiver dyads were recruited, and caregivers were interviewed both before receiving the booklet and after 3 months of receiving the booklet.
RESULTS: Experts from various disciplines collaborated on a German booklet for family caregivers of people with advanced dementia as an information aid regarding issues of palliative care. The subsequent test showed that all caregivers had experienced a personal benefit from the booklet. Caregivers had a significant gain of knowledge after provision of the booklet. A large proportion of caregivers who had not previously considered and/or discussed medical topics reported that they had done so within 3 months after obtaining the booklet, or planned to do so in the near future.
CONCLUSIONS: The caregivers valued the comprehensible, concise and well-structured information guide on palliative care issues in advanced dementia. They agreed it increases knowledge and prompts decision making and therefore should be developed in many languages and disseminated among family caregivers of people with dementia.

Origine : PubMed

Increasing preparedness for caregiving and death in family caregivers of patients with severe illness who are cared for at home - study protocol for a web-based intervention

ALVARIZA, Anette ; HAGER-TIBELL, Louise ; HOLM, Maja ; STEINECK, Gunnar ; KREICBERGS, Ulrika
BMC palliative care, 17/03/2020, vol.19, n°1, p. 1-8

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Standards, guidelines, and quality measures for successful specialty palliative care integration into oncology - current approaches and future directions

KAMAL, Arif H. ; BAUSEWEIN, Claudia ; CASARETT, David J. ; CURROW, David ; DUDGEON, Deborah J. ; HIGGINSON, Irene J.
Journal of clinical oncology, 05/02/2020, Pagination inconnue

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Je suis là - le guide indispensable pour tous ceux qui accompagnent un proche en souffrance

MARCHAND, Stéphanie
Michel Lafon , 02/2020 , 237 p.

Racial differences in the utilization of guideline-recommended and life-sustaining procedures during hospitalizations for out-of-hospital cardiac arrest

WOO, Kenneth K. ; CAN, Argun ; CHANG, Dong W.
Journal of racial and ethnic health disparities, 16/12/2019, Pagination inconnue

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The quality of guidelines on the end-of-life care - a systematic quality appraisal using AGREE II instrument

IRAJPOUR, Alireza ; HASHEMI, Maryam ; TALEGHANI, Fariba
Supportive care in cancer, 13/12/2019, Pagination inconnue

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Development and implementation of the family caregiver decision guide

ROBINSON, Carole A. ; BOTTORFF, Joan L. ; PESUT, Barbara ; ZERR, Janelle
Qualitative health research, 19/11/2019, p. 1-11

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Registered nurse verification of expected adult death - new guidance provides direction

LAVERTY, Diane ; WILSON, Jo ; COOPER, Marie
International Journal of Palliative Nursing, 01/01/2018, vol.24, n°4, p. 178-183

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Action research study on advance care planning for residents and their families in the long-term care facility

LEE, Hsin-Tzu Sophie ; CHEN, Ting-Ru ; YANG, Chia-Ling ; CHIU, Tai-Yuan ; HU, Wen-Yu
BMC palliative care, 05/11/2019, vol.18, n°1, p. 1-14

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Physician adherence to clinical guidelines in euthanasia and assisted suicide in the Netherlands - a qualitative study

RILEY, Sean R. ; OVERBEEK, Anouk ; VAN DER HEIDE, Agnes
Family practice, 02/11/2019, Pagination inconnue

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Advance care planning in family medicine training

DHILLON, Kiran ; JEROME, Dave ; TEELUCK, Rajiv ; YU, Yan
Canadian family physician, 01/01/2018, vol.64, n°5, p. 394-396

End of life care for adults - service delivery

NATIONAL GUIDELINE CENTRE (UK)
National Institute for Health and Care Excellence (UK) , 2019 , Pagination inconnue

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Mort, mais pas dans mon coeur - Accompagner un jeune en deuil

MASSON, Josée
Desclée de Brouwer , 10/2019 , 396 p.

Tutelle, curatelle, etc. - comment protéger un proche ?

AMABLE, Gérard ; BONPAIN, Véronique
Editions du Puits Fleuri , 2019 , 430 p.

Development of a clinical guide for identifying spiritual distress in family members of patients in the intensive care unit

ROZE DES ORDONS, Amanda L. ; SINCLAIR, Shane ; SINUFF, Tasnim ; GRINDROD-MILLAR, Kathleen ; STELFOX, Henry T.
JOURNAL OF PALLIATIVE MEDICINE, 02/2020, vol.23, n°2, p.171-178

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A systematic review and quality appraisal of bereavement care practice guidelines

KENT, Katherine ; JESSUP, Belinda ; MARSH, Pauline ; BARNETT, Tony ; BALL, Madeleine
Journal of evaluation in clinical practice, 09/07/2019, Pagination inconnue

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