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Death and grieving for family caregivers of loved ones with life-limiting illnesses in the era of Covid-19 - considerations for case managers

HOLLAND, Diane E. ; VANDERBOOM, Catherine E. ; DOSE, Ann Marie ; MOORE, Derek ; ROBINSON, Kelly V. ; WILD, Ellen ; STILES, Carole ; INGRAM, Cory ; MANDREKAR, Jay ; BORAH, Bijan ; TAYLOR, Erin ; GRIFFIN, Joan M.
Professional case management, 10/11/2020, Pagination inconnue

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Nurses' experience with palliative sedation procedures in line with the 2005 Swiss guidelines - an exploratory study

TOMCZYK, Martyna ; SCHUMACHER, Bernard N.
Canadian oncology nursing journal, 2020, vol.30, n°4, p. 261-268

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Twelve tips to teach culturally sensitive palliative care

SUURMOND, Jeanine ; LANTING, Katja ; DE VOOGD, Xanthe ; OUESLATI, Roukayya ; BOLAND, Gudule ; VAN DEN MUIJSENBERGH, Maria
Medical teacher, 17/10/2020, p. 1-6

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The efficacy of specialised rehabilitation using the Op-reha Guide for cancer patients in palliative care units - protocol of a multicentre, randomised controlled trial (JORTC-RHB02)

NISHIYAMA, Nanako ; MATSUDA, Yoshinobu ; FUJIWARA, Noriko ; ARIYOSHI, Keisuke ; OYAMADA, Shunsuke ; NARITA, Keiichi ; ISHII, Ryouhei ; IWASE, Satoru
BMC palliative care, 22/10/2020, vol.19, n°1, p. 1-8

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Development of a stakeholder driven serious illness communication program for advance care planning in children, adolescents, and young adults with serious illness

DECOURCEY, Danielle D. ; PARTIN, Lindsay ; REVETTE, Anna ; BERNACKI, Rachelle ; WOLFE, Joanne
The journal of pediatrics, 16/09/2020, Pagination inconnue

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Models of palliative care delivery for individuals with cystic fibrosis - Cystic Fibrosis Foundation evidence-informed consensus guidelines

KAVALIERATOS, Dio ; GEORGIOPOULOS, Anna M. ; DHINGRA, Lara ; BASILE, Melissa J. ; RABINOWITZ, Elliot ; HEMPSTEAD, Sarah E. ; FARO, Albert ; DELLON, Elisabeth P. ; COMMITTEE ON PALLIATIVE CARE IN CYSTIC FIBROSIS
JOURNAL OF PALLIATIVE MEDICINE, 16/09/2020, p. 1-13

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Nursing education on palliative care across Europe - results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports

MARTINS PEREIRA, Sandra ; HERNANDEZ-MARRERO, Pablo ; PASMAN, H. Roeline ; CAPELAS, Manuel Luis ; LARKIN, Philip J. ; FRANCKE, Anneke L.
PALLIATIVE MEDICINE, 11/09/2020, Pagination inconnue

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Improving quality of withdrawal of life-sustaining measures in organ donation - a framework and implementation toolkit

HEALEY, Andrew ; HARTWICK, Michael ; DOWNAR, James ; KEENAN, Sean ; LALANI, Jehan ; MOHR, Jim ; APPLEBY, Amber ; SPRING, Jenna ; DELANEY, Jesse W. ; WILSON, Lindsay C. ; SHEMIE, Sam
Canadian journal of anaesthesia, 11/09/2020, p. 1549–1556

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Serious illness conversations with outpatient oncology clinicians - understanding the patient experience

KUMAR, Pallavi ; WIXON-GENACK, Jenna ; KAVANAGH, Jane ; SANDERS, Justin J. ; PALADINO, Joanna ; O'CONNOR, Nina R.
JCO oncology practice, 04/08/2020, Pagination inconnue

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Dead body management amidst global pandemic of covid-19

VIDUA, Raghvendra Kumar ; DUSKOVA, Irena ; BHARGAVA, Daideepya C. ; CHOUKSEY, Vivek Kumar ; PRAMANIK, Parthasarathi
The medico-legal journal, 07/2020, vol.88, n°2, p. 80-83

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Bereavement care for family caregivers of neuro-oncology patients

MORRIS, Sue E. ; SANNES, Timothy S.
Annals of palliative medicine, 03/07/2020, p. 1-11

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Adherence and concordance between serious illness care planning conversations and oncology clinician documentation among patients with advanced cancer

GEERSE, Olaf P. ; LAMAS, Daniela J. ; BERNACKI, Rachelle E. ; SANDERS, Justin J. ; PALADINO, Joanna ; BERENDSEN, Annette J. ; HILTERMANN, Thijo J.N. ; LINDVALL, Charlotta ; FROMME, Erik K. ; BLOCK, Susan D.
JOURNAL OF PALLIATIVE MEDICINE, 22/06/2020, Pagination inconnue

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Thème : Soins.

COMMUNICATION ; PROJET SOIN ANTICIPE ; CANCER ; GUIDE ; RELATION PERSONNEL SOIGNANT PATIENT

Background: Serious illness conversations are part of advance care planning (ACP) and focus on prognosis, values, and goals in patients who are seriously ill. To be maximally effective, such conversations must be documented accurately and be easily accessible.
Objectives: The two coprimary objectives of the study were to assess concordance between written documentation and recorded audiotaped conversations, and to evaluate adherence to the Serious Illness Conversation Guide questions.
Methods: Data were obtained as part of a trial in patients with advanced cancer. Clinicians were trained to use a guide to conduct and document serious illness conversations. Conversations were audiotaped. Two researchers independently compared audiorecordings with the corresponding documentation in an electronic health record (EHR) template and free-text progress notes, and rated the degree of concordance and adherence.
Results: We reviewed a total of 25 audiorecordings. Clinicians addressed 87% of the conversation guide elements. Prognosis was discussed least frequently, only in 55% of the patients who wanted that information. Documentation was fully concordant with the conversation 43% of the time. Concordance was best when documenting family matters and goals, and least frequently concordant when documenting prognostic communication. Most conversations (64%) were documented in the template, a minority (28%) only in progress notes and two conversations (8%) were not documented. Concordance was better when the template was used (62% vs. 28%).
Conclusion: Clinicians adhered well to the conversation guide. However, key information elicited was documented and fully concordant less than half the time. Greater concordance was observed when clinicians used a prespecified template. The combined use of a guide and EHR template holds promise for ACP conversations.

Origine : DOI.org (Crossref

Mieux communiquer pour mieux soigner - concepts et outils à l'usage des professionnels de la santé

GAUME, Jean-Pierre
Graine d'Auteur , 06/2020 , 360 p.

Off-label drugs in palliative care - a group Delphi treatment recommendation process

REMI, Constanze ; WEINGARTNER, Kathrin ; HAGEMANN, Vera ; BAUSEWEIN, Claudia ; HODIAMONT, Farina
BMJ supportive and palliative care, 12/05/2020, Pagination inconnue

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Palliative care in heart transplantation

OWEN, Melissa I. ; BRAUN, Lynne T. ; HAMILTON, Rebekah J. ; GRADY, Kathleen L. ; GARY, Rebecca A. ; QUEST, Tammie E.
Progress in transplantation, 02/04/2020, Pagination inconnue

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Raisonnement clinique pour douleurs complexes - utilisation d'un guide en unités de soins palliatifs

BURUCOA, Benoît ; FRASCA, Matthieu ; SAUSSAC-PIETRI, Camille ; LAFARGUE, Aurélie ; PATERNOSTRE, Bernard ; HIRIART, Timothée
MEDECINE PALLIATIVE, Elsevier, 04/2020, vol.19, n°2, p. 63-71

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Development and testing of an informative guide about palliative care for family caregivers of people with advanced dementia

RIEDL, Lina ; BERTOK, Manuela ; HARTMANN, Julia ; FISCHER, Julia ; ROSSMEIER, Carola ; DINKEL, Andreas ; ORTNER, Marion ; DIEHL-SCHMID, Janine
BMC palliative care, 12/03/2020, vol.19, n°1, p. 1-8

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Thème : Soins. Cote : eD02.03.03

GUIDE ; DEMARCHE PALLIATIVE ; AIDANT ; DEMENCE

BACKGROUND: Since people with advanced dementia are usually not able to make complex decisions, it is usually the family caregivers, as proxies, who have to decide on treatments and their termination. However, these decisions are difficult for the caregivers to make, as they are often inadequately informed and cannot properly assess the consequences; moreover, they are concerned about harming the sick person. We aimed to first develop an informative booklet about palliative care issues for caregivers of people with advanced dementia. Secondly, we aimed to investigate a change in family caregivers' knowledge regarding palliative care issues and caregivers' involvement in medical and care decisions before and after studying this booklet.
METHODS: A first version of the booklet was drafted by an experienced psychiatrist and palliative care specialist based on existing booklets and guidelines; necessary cultural adaptions were taken into consideration. A nominal group process was conducted to develop the informative guide. In order to investigate the acceptance of the booklet and the possibility to implement it, 38 patient-caregiver dyads were recruited, and caregivers were interviewed both before receiving the booklet and after 3 months of receiving the booklet.
RESULTS: Experts from various disciplines collaborated on a German booklet for family caregivers of people with advanced dementia as an information aid regarding issues of palliative care. The subsequent test showed that all caregivers had experienced a personal benefit from the booklet. Caregivers had a significant gain of knowledge after provision of the booklet. A large proportion of caregivers who had not previously considered and/or discussed medical topics reported that they had done so within 3 months after obtaining the booklet, or planned to do so in the near future.
CONCLUSIONS: The caregivers valued the comprehensible, concise and well-structured information guide on palliative care issues in advanced dementia. They agreed it increases knowledge and prompts decision making and therefore should be developed in many languages and disseminated among family caregivers of people with dementia.

Origine : PubMed

Increasing preparedness for caregiving and death in family caregivers of patients with severe illness who are cared for at home - study protocol for a web-based intervention

ALVARIZA, Anette ; HAGER-TIBELL, Louise ; HOLM, Maja ; STEINECK, Gunnar ; KREICBERGS, Ulrika
BMC palliative care, 17/03/2020, vol.19, n°1, p. 1-8

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Standards, guidelines, and quality measures for successful specialty palliative care integration into oncology - current approaches and future directions

KAMAL, Arif H. ; BAUSEWEIN, Claudia ; CASARETT, David J. ; CURROW, David ; DUDGEON, Deborah J. ; HIGGINSON, Irene J.
Journal of clinical oncology, 05/02/2020, Pagination inconnue

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Je suis là - le guide indispensable pour tous ceux qui accompagnent un proche en souffrance

MARCHAND, Stéphanie
Michel Lafon , 02/2020 , 237 p.

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