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It is feasible to flag "near end-of-life" status in older patients from routine general practice data

CARDONA, Magnolia ; WILLIAMSON, Margaret ; JONES, Mark ; NÍ CHRÓINÍN, Danielle ; GULLOTTA, John ; HILLMAN, Ken ; LEWIS, Ebony T. ; MORGAN, Mark
Australian journal of general practice, 11/2020, vol.49, n°11, p. 752-758

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Content validation of the symptom control outcome for heart failure patients in palliative care

AFONSO, Beatriz Quirino ; FERREIRA, Natany da Costa ; BUTCHER, Rita de Cassia Gengo E. Silva
Revista gaucha de enfermagem, 2020, vol.41, p. 1-8

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Improving serious illness care for surgical patients - quality indicators for surgical palliative care

LEE, Katherine C. ; WALLING, Anne M. ; SENGLAUB, Steven S. ; BERNACKI, Rachelle ; FLEISHER, Lee A. ; RUSSELL, Marcia M. ; WENGER, Neil S. ; COOPER, Zara
Annals of surgery, 03/06/2020, Pagination inconnue

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Quality indicators of palliative care for acute cardiovascular diseases

MIZUNO, Atsushi ; MIYASHITA, Mitsunori ; KOHNO, Takashi ; TOKUDA, Yasuharu ; FUJIMOTO, Shuhei ; NAKAMURA, Masato ; TAKAYAMA, Morimasa ; NIWA, Koichiro ; FUKUDA, Terunobu ; ISHIMATSU, Shinichi ; KINOSHITA, Satomi ; OISHI, Shogo ; MOCHIZUKI, Hiroki ; UTSUNOMIYA, Akemi ; TAKADA, Yasuko ; OCHIAI, Ryota ; MOCHIZUKI, Toshiaki ; NAGAO, Ken ; YOSHIDA, Saran ; HAYASHI, Akitoshi ; SEKINE, Ryuichi ; ANZAI, Toshihisa
Journal of cardiology, 18/03/2020, Pagination inconnue

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Thème : Recherche - Evaluation - Méthodologie.

INDICATEUR SANTE ; DEMARCHE PALLIATIVE ; CARDIOLOGIE ; JAPON

Background: Although recent attention to palliative care for patients with cardiovascular diseases has been increasing, there are no specific recommendations on detailed palliative care practices. We proceed on a discussion of the appropriateness and applicability of potential quality indicators for acute cardiovascular diseases according to our previous systematic review.
Methods: We created a multidisciplinary panel of 20 team members and 7 external validation clinicians composed of clinical cardiologists, a nutritionist, a physiotherapist, a clinical psychologist, a critical and emergent care specialist, a catheterization specialist, a primary care specialist, a palliative care specialist, and nurses. After crafting potential indicators, we performed a Delphi rating, ranging from “1 = minimum” to “9 = maximum”. The criterion for the adoption of candidate indicators was set at a total mean score of seven or more. Finally, we subcategorized these indicators into several domains by using exploratory factor analysis.
Results: Sixteen of the panel members (80%) were men (age, 49.5 ± 13.7 years old). Among the initial 32 indicators, consensus was initially reached on total 23 indicators (71.8%), which were then summarized into 21 measures by selecting relatively feasible time variations. The major domains were “symptom palliation” and “supporting the decision-making process”. Factor analysis could not find optimal model. Narratively-developed seven sub-categories included “presence of palliative care team”, “patient-family relationship”, “multidisciplinary team approach”, “policy of approaching patients”, “symptom screening and management”, “presence of ethical review board”, “collecting and providing information for decision-maker”, and “determination of treatment strategy and the sharing of the care team’s decision”.
Conclusion: In this study we developed 21 quality indicators, which were categorized into 2 major domains and 7 sub-categories. These indicators might be useful for many healthcare providers in the initiation and enhancement of palliative care practices for acute cardiovascular diseases in Japan.

Origine : PubMed

Conceptual and operational definitions for the indicators of the nursing outcome classification - symptom control in patients with heart failure in palliative care

QUIRINO AFONSO, Beatriz ; DA COSTA FERREIRA, Natany ; DE CASSIA GENGO E SILVA BUTCHER, Rita
Enfermeria clinica, 29/02/2020, Pagination inconnue

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The importance of the rate of pure "attended deaths at home" for objective outcome indicator for assessing the prevalence of home care in Japan

KAKIUCHI, Yasuhiro ; NAGAO, Ryoko ; OCHIAI, Eriko ; KAKIMOTO, Yu ; OSAWA, Motoki
ENVIRONMENTAL HEALTH AND PREVENTIVE MEDICINE, 17/12/2019, vol.24, n°1, p. 1-6

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Validation of claims data to identify death among aged persons utilizing enrollment data from health insurance unions

SAKAI, M. ; OHTERA, S. ; IWAO, T. ; NEFF, Y. ; KATO, G. ; TAKAHASHI, Y. ; NAKAYAMA, T. ; BIDAME (BIG DATA ANALYSIS OF MEDICAL CARE FOR THE ELDERLY IN KYOTO)
ENVIRONMENTAL HEALTH AND PREVENTIVE MEDICINE, 23/11/2019, vol.24, n°1, p. 1-6

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Mapping levels of palliative care development in 198 countries - the situation in 2017

CLARK, David ; BAUR, Nicole ; CLELLAND, David ; GARRALDA, Eduardo ; LOPEZ-FIDALGO, Jesus ; CONNOR, Stephen ; CENTENO, Carlos
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/2020, vol.59, n°4, p. 794-807

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Underprescription of step III opioids in French cancer survivors with chronic pain - a call for integrated early palliative care in oncology

JANAH, Asmaa ; BOUHNIK, Anne-Déborah ; TOUZANI, Rajae ; BENDIANE, Marc-Karim ; PERETTI-WATEL, Patrick
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 04/2020, vol.59, n°4, p. 836-847

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Population-based quality indicators for end-of-life cancer care - a systematic review

HENSON, Lesley Anne ; EDMONDS, Polly ; JOHNSTON, Anna ; JOHNSON, Halle Elizabeth ; NG YIN LING, Clarissa ; SKLAVOUNOS, Alexandros ; ELLIS-SMITH, Clare ; GAO, Wei
JAMA oncology, 24/10/2019, Pagination inconnue

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Thème : Recherche - Evaluation - Méthodologie.

FIN VIE ; CANCER ; REVUE LITTÉRATURE ; QUALITE SOIN ; INDICATEUR SANTE

Importance: Improving the quality of cancer care is an international priority. Population-based quality indicators (QIs) are key to this process yet remain almost exclusively used for evaluating care during the early, often curative, stages of disease.
Objectives: To identify all existing QIs for the care of patients with cancer who have advanced disease and/or are at the end of life and to evaluate each indicator's measurement properties and appropriateness for use.
Evidence Review: For this systematic review, 5 electronic databases (MEDLINE, Embase, CINAHL, PsycINFO, and the Cochrane Library) were searched from inception through February 4, 2019, for studies describing the development, review, and/or testing of QIs for the care of patients with cancer who have advanced disease and/or are at the end of life. For each QI identified, descriptive information was extracted and 6 measurement properties (acceptability, evidence base, definition, feasibility, reliability, and validity) were assessed using previously established criteria, with 4 possible ratings: positive, intermediate, negative, and unknown. Ratings were collated and each QI classified as appropriate for use, inappropriate for use, or of limited testing. Among the QIs determined as appropriate for use, a recommended shortlist was generated by excluding those that were specific to patient subgroups and/or care settings; related QIs were identified, and the indicator with the highest rating was retained.
Findings: The search yielded 7231 references, 35 of which (from 28 individual studies) met the eligibility criteria. Of 288 QIs extracted (260 unique), 103 (35.8%) evaluated physical aspects of care and 109 (37.8%) evaluated processes of care. Quality indicators relevant to psychosocial (18 [6.3%]) or spiritual and cultural (3 [1.0%]) care domains were limited. Eighty QIs (27.8%) were determined to be appropriate for use, 116 (40.3%) inappropriate for use, and 92 (31.9%) of limited testing. The measurement properties with the fewest positive assessments were acceptability (38 [13.2%]) and validity (63 [21.9%]). Benchmarking data were reported for only 16 QIs (5.6%). The final 15 recommended QIs came from 6 studies.
Conclusions and Relevance: The findings suggest that only a small proportion of QIs developed for the care of patients with cancer who have advanced disease and/or are at the end of life have received adequate testing and/or are appropriate for use. Further testing may be needed, as is research to establish benchmarking data and to expand QIs relevant to psychosocial, cultural, and spiritual care domains.

Origine : PubMed

Days spent at home in the last 6 months of life - a quality indicator of end of life care in patients with hematologic malignancies

CHEUNG, Matthew C. ; CROXFORD, Ruth ; EARLE, Craig C. ; SINGH, Simron
Leukemia and lymphoma, 22/08/2019, p. 1-9

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Development and validation of a deep learning algorithm for mortality prediction in selecting patients with dementia for earlier palliative care interventions

WANG, Liqin ; SHA, Long ; LAKIN, Joshua R. ; BYNUM, Julie ; BATES, David W. ; HONG, Pengyu ; ZHOU, Li
JAMA network open, 03/07/2019, vol.2, n°7, p. 1-14

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Which outcome domains are important in palliative care and when? - an international expert consensus workshop, using the nominal group technique

DE WOLF-LINDER, Susanne ; DAWKINS, Marsha ; WICKS, Francesca ; PASK, Sophie ; EAGAR, Kathy ; EVANS, Catherine J. ; HIGGINSON, Irene J. ; MURTAGH, Fliss E. M.
PALLIATIVE MEDICINE, 09/2019, vol.33, n°8, p. 1058-1068

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Consensus building on health indicators to assess PC global development with an international group of experts

ARIAS-CASAIS, Natalia ; GARRALDA, Eduardo ; LOPEZ-FIDALGO, Jesús ; RHEE, John Y. ; PONS, Juan José ; DE LIMA, Liliana ; CENTENO, Carlos
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 01/06/2019, Pagination inconnue

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Quality indicator rates for seriously ill home care clients - analysis of resident assessment instrument for home care data in six Canadian provinces

GUTHRIE, Dawn M. ; HARMAN, Lisa E. ; BARBERA, Lisa ; BURGE, Fred ; LAWSON, Beverley ; MCGRAIL, Kimberlyn ; SUTRADHAR, Rinku ; SEOW, Hsien
JOURNAL OF PALLIATIVE MEDICINE, 11/2019, vol.22, n°11, p. 1346-1356

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Improving quality of palliative care through implementation of national guidelines for palliative care

LO, Tong Jen ; NEO, Patricia S. H. ; PEH, Tan Ying ; AKHILESWARAN, Ramaswamy ; CHEN, Wei Ting ; LEE, Angel ; STANDARDS DEVELOPMENT SUBGROUP OF THE NATIONAL STRATEGY FOR PALLIATIVE CARE IMPLEMENTATION TASKFORCE, GUIDELINES IIMPLEMENTATION WORKGROUP
JOURNAL OF PALLIATIVE MEDICINE, 11/2019, vol.22, n°11, p. 1439-1444

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A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia

AMADOR, Sarah ; SAMPSON, Elizabeth L. ; GOODMAN, Claire ; ROBINSON, Louise ; SEED RESEARCH TEAM
PALLIATIVE MEDICINE, 04/2019, vol.33, n°4, p. 415-429

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Palliative care quality measures - an exploratory study

BUJA, Alessandra ; RIVERA, Michele ; BALDO, Vincenzo ; SOATTIN, Marta ; RIZZOLO, Ylenia ; ZAMENGO, Giuseppe ; BOSCOLO, Sarah ; GHIOTTO, Maria Cristina ; DAMIANI, Gianfranco
BMJ supportive and palliative care, 14/02/2019, Pagination inconnue

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Etats généraux de la bioéthique 2018 - rapport de synthèse du Comité consultatif national d'éthique, Travaux du comité citoyen

Comité Consultatif National d'Ethique pour les sciences de la vie et de la santé
CCNE , 06/2018 , 196 p.

Low transthyretin levels predict poor prognosis in cancer patients in palliative care settings

MIURA, Tomofumi ; AMANO, Koji ; SHIRADO, Akemi ; BABA, Mika ; OZAWA, Taketoshi ; NAKAJIMA, Nobuhisa ; SUGA, Akihiko ; MATSUMOTO, Yoshihisa ; SHIMIZU, Mie ; SHIMOYAMA, Satofumi ; KURIYAMA, Toshiyuki ; MATSUDA, Yoshinobu ; IWASHITA, Tomoyuki ; MORI, Ichiro ; KINOSHITA, Hiroya
Nutrition and cancer, 20/01/2019, p. 1-7

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