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Determining the informational needs of family caregivers of people with intellectual disability who require palliative care - a qualitative study

MCKIBBEN, Laurie ; BRAZIL, Kevin ; McLAUGHLIN, Dorry ; HUDSON, Peter
Palliative and supportive care, 03/11/2020, p. 1-10

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Going against patients' will? - a qualitative study of how palliative health-care professionals handle competing considerations when children are excluded from parental illness and death

JOHNSEN HOGSTAD, Ingrid ; LEER-SALVESEN, Kjartan
European journal of oncology nursing, 28/09/2020, vol.49, p. 1-8

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Information sharing challenges in end-of-life care - a qualitative study of patient, family and professional perspectives on the potential of an electronic palliative care co-ordination system

STANDING, Holly ; PATTERSON, Rebecca ; LEE, Mark A. ; DALKIN, Sonia Michelle ; LHUSSIER, Monique ; BATE, Angela ; EXLEY, Catherine ; BRITTAIN, Katie
BMJ Open, 05/10/2020, vol.10, n°10, p. 1-8

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Care of the dying person before and during the Covid-19 pandemic - a quality improvement project

TAVABIE, Simon ; BASS, Steve ; STEWART, Eleanor ; REDMORE, Ethan ; MINTON, Ollie
Future healthcare journal, 10/2020, vol.7, n°3, p. e50-e53

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Usage patterns of a web-based palliative care content platform (PalliCOVID) during the covid-19 pandemic

LAI, Lucinda ; SATO, Rintaro ; HE, Shuhan ; OUCHI, Kei ; LEITER, Richard ; THOMAS, Jane deLima ; LAWTON, Andrew ; LANDMAN, Adam B. ; ZHANG, Haipeng Mark
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 10/2020, vol.60, n°4, p. e20-e27

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Development of a palliative care toolkit for the covid-19 pandemic

DELIMA THOMAS, Jane ; LEITER, Richard E. ; ABRAHM, Janet L. ; SHAMEKLIS, Jaclyn C. ; KISER, Stephanie B. ; GELFAND, Samantha L. ; SCIACCA, Kate R. ; REVILLE, Barbara ; SIEGERT, Callie A. ; ZHANG, Haipeng ; LAI, Lucinda ; SATO, Rintaro ; SMITH, Lorie N. ; KAMDAR, Mihir M. ; GRECO, Lauren ; LEE, Kathleen A. ; TULSKY, James A. ; LAWTON, Andrew J.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 08/2020, vol.60, n°2, p. e22-e25

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Experiences with making difficult decisions of the family caregivers of patients on prolonged mechanical ventilation - a qualitative study

LEE, Yi-Wei ; HSIEH, Yu-Shan ; CHANG, Feng-Hang ; WU, Yi-Ling ; HUANG, Sheng-Jean ; LEE, Yi-Han ; CHEN, Yang-Ching
Annals of palliative medicine, 2020, vol.9, n°4, p. 1-10

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Worry as a mechanism to motivate information seeking about protective end-of-life communication behaviors

SEITER, Christian R. ; BROPHY, Nate S.
JOURNAL OF HEALTH COMMUNICATION, 18/05/2020, p. 1-8

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Associations between the intention to use early palliative care, sources of information, and attitudes toward a good death in Korean adults

KYE, Su Yeon ; HAN, Kyu-Tae ; CHOI, Jinyoung ; JHO, Hyun Jung ; PARK, So Jung ; SONG, In Gyu ; NAM, Eun Jung ; CHANG, Yoon Jung
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 08/2020, vol.60, n°3, p. 503-511

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Le thésaurus, un vocabulaire contrôlé pour parler le même langage

RENNESSON, Marina ; GEORGET, Marie ; PAILLARD, Christine ; PERRIN, Odile ; PIGEOTTE, Hervé ; TETE, Caroline
MEDECINE PALLIATIVE, Elsevier, 02/2020, vol.19, n°1, p. 15-23

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Les documentalistes comme partenaire dans la prise en charge des patients en fin de vie

TETE, Caroline
MEDECINE PALLIATIVE, Elsevier, 02/2020, vol.19, n°1, p. 3-6

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Children's self-reports about illness-related information and family communication when a parent has a life-threatening illness

EKLUND, Rakel ; KREICBERGS, Ulrika ; ALVARIZA, Anette ; LOVGREN, Malin
Journal of family nursing, 13/01/2020, Pagination inconnue

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Communicating health information at the end of life - the caregivers' perspectives

IBANEZ-MASERO, Olivia ; CARMONA-REGA, Inés Maria ; RUIZ-FERNANDEZ, Maria Dolores ; ORTIZ-AMO, Rocio ; CABRERA-TROYA, José ; ORTEGA-GALAN, Angela Maria
International journal of environmental research and public health, 01/01/2019, vol.16, n°14, p. 1-11

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"It's like a death sentence but it really isn't" what patients and families want to know about hospice care when making end-of-life decisions

TATE, Channing E. ; VENECHUK, Grace ; BRERETON, Elinor J. ; INGLE, Pilar ; ALLEN, Larry A. ; MORRIS, Megan A. ; MATLOCK, Daniel D.
The American journal of hospice and palliative care, 09/2020, vol.37, n°9, p. 721-727

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Adult palliative care in the USA - information-seeking behaviour patterns

CHENG, Brian T. ; HAUSER, Joshua M.
BMJ supportive and palliative care, 04/11/2019, Pagination inconnue

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Effect of written outcome information on attitude of perinatal healthcare professionals at the limit of viability - a randomized study

PAPADIMITRIOU, V. ; TOSELLO, B. ; PFISTER, R.
BMC medical ethics, 22/10/2019, vol.20, n°1, p. 1-8

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Providing data-driven equitable palliative and end-of-life care for structurally vulnerable population - a pilot survey of information management strategies

RAJARAM, Akshay ; MOREY, Trevor ; SHAH, Sonam ; DOSANI, Naheed ; MAMDANI, Muhammad
The American journal of hospice and palliative care, 29/08/2019, Pagination inconnue

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Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland

SCOTT, David ; HUDSON, Peter ; CHARNLEY, Karen ; PAYNE, Cathy ; WESTCOTT, Gareth
BMC palliative care, 30/08/2019, vol.18, n°1, p. 1-11

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Douleur et maladie lysosomale - un livret pour mieux la traiter

ROCCHISANI, Marie-Amélie ; CUDRY, Elisabeth
MEDECINE PALLIATIVE, 10/2018, vol.17, n°5, p. 305-307

Stakeholders' perceptions and information needs regarding research medical donation

EPSTEIN, Andrew S. ; HAMILTON, Jada G. ; SHUK, Elyse ; ROMANO, Danielle R. ; LYNCH, Kathleen ; KHAN, Erva ; GENOFF, Margaux ; MICHAEL, Chelsea ; IACOBUZIO-DONAHUE, Christine
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 11/07/2019, Pagination inconnue

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