VigiPallia : Résultats

Recherches dans le fonds documentaire/
Toutes les bibliographies thématiques/
R/
Rapports de l'ONFV

##titre_notice##

##grp1_nom##

- ##grp2_nom## : ##grp2_synthese_detail##

##reservable_synthese##

##detail_synthese##

ISOLEMENT SOCIAL

0 sélectionnée(s) / 109 réponse(s)

(1) 2 3 4 ... 6 > »

Before hospice - symptom burden, dementia, and social participation in the last year of life

AMJAD, Halima ; SNYDER, Scott H. ; WOLFF, Jennifer L. ; OH, Esther ; SAMUS, Quincy M.
JOURNAL OF PALLIATIVE MEDICINE, 06/05/2019, Pagination inconnue

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie.

SYMPTOME ; DEMENCE ; ISOLEMENT SOCIAL ; FIN VIE ; PERSONNE AGEE ; ETATS-UNIS

Background: Little is known about clinical symptom burden, dementia, and social isolation in the last year of life among older adults.
Objective: To describe and contrast the type and severity of symptom burden for older decedents with and without dementia, and whether specific symptoms and presence of dementia are associated with limitations in social participation in the last year of life.
Design: Cross-sectional logistic regression analysis of a population-based study.
Setting/Subjects: A total of 1270 community-dwelling adults of age =65 years in the United States participated in the 2011 National Health and Aging Trends Study and died by 2015.
Measurements: Dementia status, 13 clinical symptoms, and limitations in 6 social activities were drawn from the interview preceding death. Severity of sensory, physical, and psychiatric symptom burden was examined in tertiles.
Results: Decedents with dementia (37.3%) had higher prevalence of all symptoms (p's < 0.05), except insomnia and breathing problems. Dementia was associated with greater likelihood of high versus low burden of sensory (odds ratio [OR] 4.52 [95% confidence interval {CI} 3.08–6.63]), physical (OR 3.49 [95% CI 2.48–4.91]), and psychiatric (OR 2.80 [95% CI 1.98–3.95]) symptoms. Dementia and physical symptoms (problems with speaking, leg strength/movement, and balance) were independently associated with limitations in at least three social activities (p's < 0.05 for adjusted ORs).
Conclusion: Symptom burden is higher in patients with dementia. Dementia and physical symptoms are associated with social activity limitations. Older patients with dementia or physical symptoms may benefit from earlier emphasis on palliative care and quality of life.

Origine : PubMed

Pouvoir bien finir sa vie chez soi - des pratiques françaises inspirantes pour les Québécois

SEVIGNY, Andrée ; BARIL-NADEAU, Héloïse ; DURIVAGE, Patrick ; DESROCHERS, JOHANNE ; CHATEL, Tanguy ; DUMONT, Serge ; LEMIEUX, Alain-Philippe
Cahiers francophones de soins palliatifs, 2018, vol.18, n°2, p. 64-77

Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : 00.07CAH

QUEBEC ; FRANCE ; LOI ; ISOLEMENT SOCIAL ; FIN VIE ; ACCOMPAGNEMENT ; DEUIL ; DEMARCHE PALLIATIVE ; MODELE ; EVOLUTION ; DOMICILE

La possibilité pour les personnes gravement malades de terminer leur vie à domicile constitue un objectif à atteindre pour le gouvernement français et celui du Québec (plans 2015-2018.fr ; 2015-2020. qc). A cet effet, en 2016, la loi Claeys-Leonetti a été instituée en France (Editeur officiel de la République française, 2016). Au Québec, la loi concernant les soins de fin de vie a été votée en 2014 (Editeur officiel du Québec, 2014). Cette dernière permet aux personnes en fin de vie de demeurer chez elles, si elles le désirent, en disposant de ressources qui améliorent leur qualité de vie tout en réduisant leur vulnérabilité. Toutefois, la réalisation de cet objectif soulève d'importants enjeux comme l'épuisement des proches, la fragilisation du lien social pouvant mener à l'isolement social, et les limites du bénévolat en soins palliatifs. Afin de composer avec ces enjeux, le Québec (Qc) et la France (Fr) sont confrontés à la nécessité de faire évoluer leur modèle de soins palliatifs et d'accompagnement en fin de vie.
[1er paragraphe]

How "elderly staying alone" cope up with their age and deteriorating health - a qualitative exploration from rural Wardha, Central India

GOSWAMI, Sourav ; DESHMUKH, Pradeep R.
Indian journal of palliative care, 12/2018, vol.24, n°4, p. 465-471

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.04

RECHERCHE QUALITATIVE ; INDE ; PERSONNE AGEE ; MILIEU RURAL ; ISOLEMENT SOCIAL

Background: This study is done to explore the various changes and problems faced by the "elderly people staying alone" and how they cope up to maintain their life amidst the physical, familial, social, and financial crisis in their lives.
Materials and Methods: This qualitative study was carried out in the villages surrounding Bhidi Rural Health and Training Center, located in the Vidarbha region of Maharashtra. A triangulation of free listing and pile sorting exercise was used. Elderly >65 years of age of either sex, living alone in their own houses, for at least 2 years were included in the study. Twenty-four such individuals were selected purposively who could figure out the different words and concepts regarding the three domains of our study for the purpose of line listing, namely, change of life since staying alone, problems faced while staying alone, and how they cope up with the problem of living alone. The data were analyzed using Anthropac software. The study findings were presented to the participants, who later pointed out few recommendations to be made.
Results: The "elderly staying alone" face the problems of lack of family, social, and financial support in their day-to-day life. They cope with these problems by a number of ways. Although there are a number of government schemes to protect the elderly, none of these policies are dedicated to this special group of elderlies.
Conclusion: There is no social structure that can take care of this vulnerable group of elderlies in rural India. It is high time for the government to step in to bring some societal and familial reforms that will safeguard the elderly staying alone from the ongoing familial, social, and financial hardship.

Origine : PubMed

Changes in social engagement and depression predict incident loneliness among seriously ill home care clients

FERNANDES, Samantha ; DAVIDSON, Jacob G. S. ; GUTHRIE, Dawn M.
Palliative and supportive care, 04/2018, vol.16, n°2, p. 170-179

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie.

SOLITUDE ; MALADIE GRAVE ; PERSONNE AGEE ; SOIN DOMICILE ; TEMPS ; ETAT PSYCHOLOGIQUE ; ISOLEMENT SOCIAL ; ETUDE COHORTE ; DEPRESSION

Objective: This study identified the predictors of incident loneliness in a group of seriously ill older adults (aged 65+) receiving home care.
METHOD: Existing data collected with the Resident Assessment Instrument for Home Care (RAI-HC) were utilized. A cohort of clients (N = 2,499) with two RAI-HC assessments and no self-reported loneliness at time 1 were included. Self-reported loneliness, upon reassessment, was the outcome of interest. Clients with a prognosis of less than six months or severe health instability were included.
RESULTS: The average length of time between assessments was 5.9 months (standard deviation = 4.10). During that time, 7.8% (n = 181) of the sample developed loneliness. In a multivariate regression model, worsening symptoms of depression, a decline in social activities, and not living with a primary caregiver all increased the risk of loneliness.
SIGNIFICANCE OF RESULTS: These results highlight how changes in psychosocial factors over time can contribute to loneliness, which can inform clinicians as they seek to identify those who may be at risk for loneliness.

Origine : PubMed

Social consequences of advanced cancer in patients and their informal caregivers - a qualitative study

VAN ROIJ, Janneke ; BROM, Linda ; YOUSSEF-EL SOUD, Maggy ; VAN DE POLL-FRANSE, Lonneke ; RAIJMAKERS, Natasja J. H.
Supportive care in cancer, 13/09/2018, p. 1-9

Document en ligne

Thème : Soins. Cote : eD02.03

CANCER ; AIDANT NATUREL ; RECHERCHE QUALITATIVE ; LIEN SOCIAL ; PATIENT ; IDENTITE ; ISOLEMENT SOCIAL

PURPOSE: Cancer threatens the social well-being of patients and their informal caregivers. Social life is even more profoundly affected in advanced diseases, but research on social consequences of advanced cancer is scarce. This study aims to explore social consequences of advanced cancer as experienced by patients and their informal caregivers.
METHODS: Seven focus groups and seven in-depth semi-structured interviews with patients (n = 18) suffering from advanced cancer and their informal caregivers (n = 15) were conducted. Audiotapes were transcribed verbatim and open coded using a thematic analysis approach.
RESULTS: Social consequences were categorized in three themes: "social engagement," "social identity," and "social network." Regarding social engagement, patients and informal caregivers said that they strive for normality by continuing their life as prior to the diagnosis, but experienced barriers in doing so. Regarding social identity, patients and informal caregivers reported feelings of social isolation. The social network became more transparent, and the value of social relations had increased since the diagnosis. Many experienced positive and negative shifts in the quantity and quality of their social relations.
CONCLUSIONS: Social consequences of advanced cancer are substantial. There appears to be a great risk of social isolation in which responses from social relations play an important role. Empowering patients and informal caregivers to discuss their experienced social consequences is beneficial. Creating awareness among healthcare professionals is essential as they provide social support and anticipate on social problems. Finally, educating social relations regarding the impact of advanced cancer and effective support methods may empower social support systems and reduce feelings of isolation.

Origine : PubMed

Dying alone - an indigenous man's journey at the end of life

BABLITZ, Cara ; AHNADZADEH, Arezoo ; BURTON MACLEOD, Sarah
Canadian family physician, 09/2018, vol.64, n°9, p. 667-668

Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.04

ETHNICITE ; FIN VIE ; CANADA ; ISOLEMENT SOCIAL

Palliative care is an approach to improving the quality of life for patients with life-threatening illnesses. It focuses on the whole person, including physical, emotional, mental, and spiritual health. There has been a recent focus on the disparity of palliative care resources in underserved areas, including First Nations reserves. This prompted the Canadian Society of Palliative Care Physicians to call for all Canadians to have access to high-quality palliative care. This case report highlights the inequities faced by an Indigenous patient at the end of life.
[Début de l'article]

Origine : PubMed

Tumeur changeante

MARAVAL DE BONNERY, Dominique
Livre actualité , 2018 , 135 p.

Thème : Littérature adulte. Cote : 17.02MAR

CANCER ; CERVEAU ; MERE ; TEMOIGNAGE ; VIE QUOTIDIENNE ; ISOLEMENT SOCIAL

"Tumeur changeante" est le récit d'un accompagnant qui relate le combat mené par Sylvie, une jeune mère de famille de 38 ans atteinte d'une tumeur au cerveau. Une maladie qui va bouleverser son quotidien et celui de sa petite famille entraînée avec elle dans la spirale de l'isolement. Une solitude qui va remettre en cause les rapports qu'elle entretenait jusqu'alors avec la Médecine, la Religion et la Société. Une société où l'indifférence des uns est compensée par l'empathie des autres.
[Résumé éditeur]

The diary of a nonagenarian-centenarian woman with dementia - memory loss, life changes, and community care in Japan

SUWA, Sayuri ; OTANI, Saori ; TSUJIMURA, Mayuko ; NOGAWA, Kotoko ; SHIYA, Yoko
International journal of nursing practice, 04/2018, vol.24, n°Suppl 1, p. 1-11

Document en ligne

Thème : Age de la vie, situations spécifiques liées à la fin de vie. Cote : eD05.04

DEMENCE ; JAPON ; FEMME ; PERSONNE AGEE ; VIE QUOTIDIENNE ; ISOLEMENT SOCIAL ; RECHERCHE QUALITATIVE ; TEMOIGNAGE

AIM: This study aimed to explore the experiences and thoughts of a nonagenarian-centenarian woman with dementia living alone, through detailed analysis of her unsolicited diary.
DATA SOURCE: After receiving consent from Aki (a pseudonym), her family and caregivers, copies of her diaries, hand-written in Japanese, were provided for analysis.
METHODS: The content of the diaries was broadly organized into themes and qualitative content analysis carried out for each theme along a sequential timeline. Changes in perspective, expression, quality of script, and frequency of notations were noted over time are compared with clinical assessments of dementia and activities of daily living recorded by health care providers. Demographic history was obtained from family members.
RESULTS: On recommendation by her nursing care manager, Aki began keeping a diary. By age 99, Aki was widowed and noted: "I'm lonely by myself." but still expressed hope: "I won't give up on myself." Concerning memory loss, she wrote: "I've already forgotten what happened this afternoon," and "I'll do things for myself." Regarding dependence, she said: "I get help from my children and others outside the family." And commented on the home care staff: "I don't know if they've come to help." "Is it someone I know well?" Although she thought that they took her belongings, she wrote: "I'll try not to forget to be grateful to them."
DISCUSSION: The diaries show that even as the dementia progressed, Aki was aware of her cognitive decline compounded by family losses. She used the diary as a coping method and to address relationships with family and caregivers.

Origine : PubMed

Anticipating needs at end of life in narratives related by people living with HIV/AIDS in Appalachia

HALL, Joanne ; HUTSON, Sadie P. ; WEST, Frankie
The American journal of hospice and palliative care, 07/2018, vol.35, n°7, p. 985-992

Document en ligne

Thème : Soins.

ANTICIPATION ; FIN VIE ; INFECTION VIH ; ETATS-UNIS ; PLANIFICATION ; SOIN ; ETHNICITE ; ISOLEMENT SOCIAL ; MILIEU RURAL ; MORT ; ETAPE MOURIR

As part of a mixed methods study determining end-of-life and advanced care planning needs in southern Appalachia, a narrative analysis was done of stories told in interviews of 8 selected participants using transcript data. Narratives were fraught with contradiction and paradox. Tensions were evident about living in Appalachia, the Bible Belt, and an area wherein distances are long and community rejection can occur as news travels quickly. The primary finding was that stigma, from several sources, and shrinking circles of social support for people living with HIV/AIDS, all of whom were in treatment, combined to create a sense of solitariness. Narratives were fraught with tensions, contradictions, and paradoxes. Living in Appalachia, the Bible Belt, and an area wherein distances are long and community rejection can occur as news travels quickly. The rejection-based religiously based stigma was often predicated on stereotypes about sexual behavior and illicit drug use. Diagnosis was a key turning point after which many spiraled downward financially and socially. Implications for research and advanced care planning are included.

Origine : PubMed

Supportive care for the head and neck cancer patient

BUGA, Sorin ; BANERJEE, Chandana ; SALMAN, Jaroslava ; CANGIN, Marissa ; ZACHARIAH, Finly ; FREEMAN, Bonnie
Cancer treatment and research, 2018, vol.174, p. 249-270

Document en ligne

Thème : Médecine.

CANCER OSSEUX ; TETE ; COU ; PRISE EN CHARGE ; INTERDISCIPLINARITE ; SYMPTOME ; IMAGE CORPS ; SOUFFRANCE PSYCHIQUE ; ISOLEMENT SOCIAL ; ESTIME SOI ; ACCOMPAGNEMENT ; FIN VIE ; DEMARCHE PALLIATIVE ; SOINS SUPPORT ; UNITE SOINS PALLIATIFS

Patients with head and neck cancers (HNC) face multiple psychosocial and physical challenges that require multidisciplinary attention and care throughout their disease process. The psychoemotional symptoms may be triggered by cosmetic disfigurement and/or functional deficits related to the cancer itself or cancer-directed treatments. These physical and emotional symptoms can be demoralizing and require acute and long-term professional assistance throughout a patient's lifespan. HNC remains one of the most challenging cancers to treat due to disfigurement, emotional suffering, social isolation, and loss of self-esteem. The emotional and physical symptoms a supportive care team can address are discussed in this chapter.

Origine : PubMed

Le domicile - nouveau centre de gravité. Dossier

PERRIN, Antoine ; GUERIN, Serge ; LEDUC, Florence
PERSPECTIVES SANITAIRES ET SOCIALES, Perspectives sanitaires & sociales, 01/09/2017, n°254, p. 22-63

DOMICILE ; HOSPITALISATION DOMICILE ; MAINTIEN DOMICILE ; SERVICE SOIN INFIRMIER DOMICILE ; ETHIQUE ; AIDE ; LIEN SOCIAL ; SOLITUDE ; ISOLEMENT SOCIAL ; PERSONNE AGEE ; MALADE ; DIALYSE ; ETABLISSEMENT HEBERGEMENT PERSONNE AGEE DEPENDANTE ; MAISON RETRAITE ; LOGEMENT ; INNOVATION

Les dernières grandes lois promulguées fin 2015 et début 2016 (loi d'adaptation de la société au vieillissement et loi de modernisation du système de santé) ont confirmé le soutien par les pouvoirs publics du "domicile, en tant qu'indication de première intention pour le soin et l'accompagnement des personnes vulnérables". Ce numéro spécial permet d'appréhender le domicile dans toute sa diversité. Le lecteur aura accès à : - Une tribune de Serge Guérin, sociologue, "Penser la société de la longévité pour sortir de l'opposition domicile/maison de retraite" ; - Des interviews de Florence Leduc, Présidente de l'association Française des aidants, et d'un adhérent du champ du domicile qui nous parle des questions éthiques liées à ce sujet ; - Des témoignages sur des expériences innovantes comme l'EHPAD hors les murs ou le projet "voisinons ensemble" ; - Le point de vue des fédérations du domicile et des partenaires libéraux sur l'intervention à domicile d'ici 2028 ; - Les préconisations de la FEHAP.

Origine : BDSP. Notice produite par EHESP qFR0xGp8. Diffusion soumise à autorisation

Liens et ruptures à l’approche de la mort

JALMALV JUSQU'A LA MORT, ACCOMPAGNER LA VIE, PUG , 04/2017 , n°131, 73 p.

Document en ligne

Thème : Soins. Cote : 00.07JAL

ACCOMPAGNEMENT ; CONFLIT VALEUR ; FAMILLE ; ISOLEMENT SOCIAL ; RELATION PERSONNEL SOIGNANT PATIENT ; FIN VIE ; MORT ; COPING ; RESPECT ; ACCOMPAGNEMENT SOCIAL ; TEMOIGNAGE

Ce numéro thématique regroupe les articles suivants : sans famille, quelle histoire ? ; ruptures familiales et blessures invisibles ; liens et ruptures à l’approche de la mort ; accompagner des patients en rupture familiale : comment être le plus juste individuellement et en équipe ? ; respect du patient en fin de vie, respect des proches ; l’accompagnement social des patients en rupture familiale ; accompagnement des personnes en rupture familiale ; la fin de vie sans famille. Quel accompagnement ? ; accueillir la personne là où elle est.

Bienvenue en Amérique

BOSTRÖM KNAUSGARD, Linda
Grasset , 2018 , 122 p.

Thème : Littérature adulte.

ADOLESCENT ; MORT ; PERE ; CULPABILITE ; ISOLEMENT SOCIAL ; FAMILLE ; FRATRIE ; DEUIL ; PERSONNE ENDEUILLEE

Ellen, 11 ans, a prié pour que meure son père alcoolique et colérique. Alors quand il décède, la culpabilité l'envahit et elle se mure dans le silence. Elle assiste, muette, au drame familial. Son frère s'enferme à longueur de journée dans sa chambre tandis que sa mère, une ancienne grande actrice, s'efforce de maintenir l'image d'une famille lumineuse.
[©Electre 2018]

Public stigma of prolonged grief disorder - an experimental study

EISMA, Maarten C.
Psychiatry research, 02/01/2018, vol.261, p. 173-177

Document en ligne

Thème : Deuil et travail du deuil.

DEUIL COMPLIQUE ; ISOLEMENT SOCIAL ; TRAUMATISME ; EMOTION ; CLASSIFICATION ; PSYCHOLOGIE

Prolonged grief disorder (PGD), characterized by severe, persistent and disabling grief, is being considered for inclusion in the International Classification of Diseases' 11 (ICD-11) and a related disorder, Persistent Complex Bereavement Disorder (PCBD), is included for further investigation in the Diagnostic and Statistical Manual of Mental Disorders 5 (DSM-5). Establishing diagnoses for pathological grief may lead to stigmatization. Additionally, it has been argued that people experiencing severe grief responses after loss of non-family members (i.e., disenfranchised grief) may experience more stigmatizing reactions. Yet, no research to date has investigated this. To fill this gap in knowledge, 379 adults from the general population were randomly allocated to read one of 4 different vignettes of a person with and without a grief disorder diagnosis who had lost a friend or a spouse. After reading the vignettes, we assessed: 1) characteristics ascribed to the person, 2) emotional reactions to the person, and 3) desire for social distance. Notably, people with a diagnosis were attributed relatively more negative characteristics, and elicited more anger, anxiety and pro-social emotions and a stronger desire for social distance. Stigmatization and its negative consequences appear a valid concern to the establishment of pathological grief disorders in diagnostic manuals.

Origine : PubMed

The stigma associated with bereavement by suicide and other sudden deaths - a qualitative interview study

PITMAN, Alexandra L. ; STEVENSON, Fiona ; OSBORN, David P. J. ; KING, Michael B.
Social science and medicine, 02/2018, vol.198, p. 121-129

Document en ligne

Thème : Deuil et travail du deuil. Cote : eD10.01

DEUIL ; SUICIDE ; MORT SUBITE ; RECHERCHE QUALITATIVE ; ROYAUME UNI ; ETUDIANT ; ENSEIGNANT ; SOUTIEN DEUIL ; TABOU ; MORT ; COMPORTEMENT ; ISOLEMENT SOCIAL

Quantitative studies have found that suicide bereavement is associated with suicide attempt, and is perceived as the most stigmatising of sudden losses. Their findings also suggest that perceived stigma may explain the excess suicidality. There is a need to understand the nature of this stigma and address suicide risk in this group. We aimed to describe and compare the nature of the experiences of stigma reported by people bereaved by suicide, sudden unnatural death, and sudden natural death, and identify any commonalities and unique experiences. We conducted a population-based cross-sectional survey of 659,572 staff and students at 37 British higher educational institutions in 2010, inviting those aged 18–40 who had experienced sudden bereavement of a close contact since the age of 10 to take part in an on-line survey and to volunteer for an interview to discuss their experiences. We used maximum variation sampling from 1398 volunteer interviewees to capture a range of experiences, and conducted individual face-to-face semi-structured interviews to explore perceptions of stigma and support. We continued sampling until no new themes were forthcoming, reaching saturation at n = 27 interviews (11 participants bereaved by suicide). We employed thematic analysis to identify any distinct dimensions of reported stigma, and any commonalities across the three groups. We identified two key themes: specific negative attitudes of others, and social awkwardness. Both themes were common to interviewees bereaved by suicide, sudden unnatural death, and sudden natural death. All interviewees reported the experience of stigmatising social awkwardness, but this may have been experienced more acutely by those bereaved by suicide due to self-stigma. This study provides evidence of a persistent death taboo in relation to sudden deaths. There is potential for anti-stigma interventions to reduce the isolation and social awkwardness perceived by people bereaved suddenly, particularly after suicide loss.

Origine : ScienceDirect

L’accompagnement social des patients en rupture familiale

KERBRAT-DREAN, Pascale
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 12/2017, n°131, p. 61-64

Document en ligne

Thème : Soins. Cote : e00.07JAL

ACCOMPAGNEMENT SOCIAL ; FAMILLE ; ISOLEMENT SOCIAL ; CONFLIT VALEUR ; ASSISTANT SERVICE SOCIAL ; TEMOIGNAGE ; UNITE SOINS PALLIATIFS

En tant qu’assistante sociale en unité de soins palliatifs, comment réagir face aux patients en rupture familiale, comment pouvoir répondre à leurs demandes, sans porter de jugement, sans réagir avec nos propres représentations de la famille idéale, sans vouloir prendre parti dans ce conflit interne que vit le patient dans cette période de fin de vie ?

Origine : Cairn

La fin de vie sans famille - quel accompagnement ?

DELAGE, Michel
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 12/2017, n°131, p. 73-78

Document en ligne

Thème : Soins. Cote : 00.07JAL

FIN VIE ; ACCOMPAGNEMENT ; ISOLEMENT SOCIAL ; FAMILLE ; SOUFFRANCE PSYCHIQUE ; SPIRITUALITE ; ESPOIR ; PARDON ; RELATION PERSONNEL SOIGNANT PATIENT

Ce qui maintient chacun dans l’humanité, jusqu’au bout, c’est d’être relié, de se sentir reconnu par autrui comme être digne, d’affection, d’estime, de respect. C’est en principe les proches qui garantissent cette reliance et cette dignité. Mais quand ceux-ci viennent à manquer, la souffrance spirituelle est particulièrement vive. Quelles réponses les accompagnants, les professionnels du soin peuvent-ils apporter ?

Origine : Cairn

Living and dying with metastatic bowel cancer - serial in-depth interviews with patients

CARDUFF, E. ; KENDALL, Margaret ; MURRAY, S. A.
European journal of cancer care, 01/2018, vol.27, n°1, p. 1-8

Document en ligne

Thème : Soins. Cote : eD02.03.00

CANCER DIGESTIF ; DEMARCHE PALLIATIVE ; TEMOIGNAGE ; CHIMIOTHERAPIE ; ETUDE LONGITUDINALE ; DIAGNOSTIC ; THERAPEUTIQUE ANTI CANCEREUSE ; ISOLEMENT SOCIAL ; MORT ; ETAPE MOURIR ; ESPOIR

Colorectal cancer is the second highest cause of cancer deaths. There are significant physical and psycho-social effects on quality of life with advanced disease. Despite this, there are few accounts of the patient experience from advanced illness through to dying. We elicited the longitudinal experiences of living and dying with incurable metastatic colorectal cancer by conducting serial interviews with patients for 12 months or until they died. The interviews were analysed, using a narrative approach, longitudinally as case studies and then together. Thirty-six interviews with 16 patients were conducted. Patients experience metastatic colorectal cancer in three phases; (1) Diagnosis and initial treatment; (2) Deterioration and social isolation and (3) Death and dying. Many patients initially said they hoped to survive, but, as "private" and in-depth accounts of the experience emerged in further interviews, so did the understanding that this hope co-existed with the knowledge that death was near. Palliative chemotherapy and the challenge of accessing private accounts of patient experience can inhibit care planning and prevent patients benefitting from an active holistic palliative care approach earlier in the disease trajectory. This study has immediate clinical relevance for health care professionals in oncology, palliative care and primary care.

Origine : PubMed

The personal communities of men experiencing later life widowhood

COLLINS, Tracy
Health and social care in the community, 18/01/2018, Pagination inconnue

Document en ligne

Thème : Deuil et travail du deuil.

VEUVAGE ; SOLITUDE ; ISOLEMENT SOCIAL ; PERSONNE AGEE ; HOMME ; RECHERCHE QUALITATIVE ; SOUTIEN DEUIL ; ROYAUME UNI ; LIEN SOCIAL

Increasingly men are becoming widowed in later life due in part to a longer life expectancy. Social networks and social support are thought to help buffer the negative consequences of such later life transitions. This paper explores the personal communities of a group of older men experiencing widowhood. Qualitative in-depth interviews were conducted, September 2013-February 2014, with seven older widowers, 71-89 years of age, in North Staffordshire, UK. Interviews included personal community diagrams to identify the structure of the older men's social relationships. Data analysis comprised thematic analysis of interview transcripts and content analysis of personal community diagrams. Three overarching themes were identified from the interview data: "Personal identity and resilience assist transition," "Continuity in personal communities provides stability" and "Changes in social relationships and practices facilitate adaptation." The study identified three types of personal community among the older widowers, comprising different combinations of family, friends and others. The findings illustrate that some older widowers have very restricted personal communities which puts them at greater risk of loneliness and social isolation. The social needs of long-term carers should be addressed as isolation and loneliness can begin long before the death of a spouse. It is important to consider gender differences and preferences when designing interventions for older people in order to promote engagement, social inclusion and well-being.

Origine : PubMed

Accompagner des patients en rupture familiale - comment être le plus juste individuellement et en équipe ?

JOLY, Clémence ; PIQUENOT, Sophie
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 12/2017, n°131, p. 47-52

Document en ligne

Thème : Ethique et déontologie. Cote : 00.07JAL

ISOLEMENT SOCIAL ; CONFLIT VALEUR ; FAMILLE ; EQUIPE SOIGNANTE ; ACCOMPAGNEMENT ; VIGNETTE CLINIQUE ; RELATION PERSONNEL SOIGNANT FAMILLE ; ETHIQUE ; RELATION PATIENT FAMILLE

L’accompagnement des personnes isolées ou des personnes touchées par un grave conflit familial invite à se questionner. Les équipes n’ont pas à s’immiscer dans les conflits mais ne peuvent pas non plus toujours s’en extraire. Certains patients ou certaines familles essaient, consciemment ou non, d’instrumentaliser tel ou tel, pouvant parfois susciter des divisions au sein d’une équipe.

Origine : Cairn

(1) 2 3 4 ... 6 > »

Confirmer la suppression du commentaire

Actions

Voir la sélection

Déplier les références

Replier les références

Envoyer par Mail

Imprimer la sélection

Imprimer les premières

Sauvegarder les premières

Envoyer les premières par mail

Affiner votre recherche

ACCOMPAGNEMENT DEPENDANCE DEUIL DOMICILE FAMILLE FIN VIE FRANCE ISOLEMENT SOCIAL MORT PERSONNE AGEE RELATION PERSONNEL SOIGNANT PATIENT SOLITUDE SOUFFRANCE PSYCHIQUE SOUTIEN TEMOIGNAGE

Type de document

Article

Congrès

Contribution congrès

Extrait ouvrage

Mémoire ou Thèse

Monographie

N special periodique

Rapport

Vidéo