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ISOLEMENT SOCIAL

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Advance care planning - social isolation matters

CUDJOE, Thomas K. M. ; BOYD, Cynthia M. ; WOLFF, Jennifer L. ; ROTH, David L.
Journal of the American Geriatrics Society, 18/12/2019, Pagination inconnue

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Loneliness among cancer caregivers - a narrative review

GRAY, Tamryn F. ; AZIZODDIN, Desiree R. ; NERSESIAN, Paula V.
Palliative and supportive care, 04/10/2019, p. 1-9

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Thème : Soins.

SOLITUDE ; AIDANT ; CANCER ; ISOLEMENT SOCIAL

OBJECTIVE: Providing care to a loved one with cancer places demands on caregivers that result in changes to their daily routines and disruptions to their social relationships that then contribute to loneliness. Though caregivers' psychosocial challenges have been well studied, loneliness - a determinant of health - has not been well studied in this population. This narrative review sought to describe the current evidence on loneliness among caregivers of cancer patients. We aimed to (1) define loneliness, (2) describe its prevalence, (3) describe the association between loneliness and health outcomes, (4) describe risks and consequences of loneliness among cancer caregivers, (5) identify ways to assess loneliness, and (6) recommend strategies to mitigate loneliness in this unique population.
METHOD: We used evidence from articles listed in PubMed, PsycINFO, and Cumulative Index to Nursing and Allied Health Literature (CINAHL) databases, book chapters, and reports. Articles were reviewed for the following inclusion criteria: (1) published in English, (2) caregivers of cancer patients, (3) loneliness as a study variable, and (4) peer-reviewed with no restriction on the timeframe of publication. Caregivers were defined as relatives, friends, or partners who provide most of the care and support for someone with cancer.
RESULTS: Eighteen studies met inclusion criteria and were included in the analysis. Caregivers' experiences of loneliness can contribute to negative effects on one's social, emotional, and physical well-being. Social support interventions may not be sufficient to address this problem. Existing recommendations to mitigate loneliness include cognitive and psychological reframing, one-on-one and group therapy, befriending, resilience training, and technology-based interventions.
SIGNIFICANCE OF RESULTS: Limited attention to loneliness in cancer caregivers poses a twofold problem that impacts patient and caregiver outcomes. Interventions are critically needed to address loneliness as a determinant of health in caregivers, given their pivotal role in providing care and impacting health outcomes for people with cancer.

Origine : PubMed

Providing data-driven equitable palliative and end-of-life care for structurally vulnerable population - a pilot survey of information management strategies

RAJARAM, Akshay ; MOREY, Trevor ; SHAH, Sonam ; DOSANI, Naheed ; MAMDANI, Muhammad
The American journal of hospice and palliative care, 29/08/2019, Pagination inconnue

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Before hospice - symptom burden, dementia, and social participation in the last year of life

AMJAD, Halima ; SNYDER, Scott H. ; WOLFF, Jennifer L. ; OH, Esther ; SAMUS, Quincy M.
JOURNAL OF PALLIATIVE MEDICINE, 09/2019, vol.22, n°9, p. 1106-1114

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"Real experiences which increase empathy" - a preliminary exploration of the utility of an audio archive describing parents’ and clinicians’ experiences of stillbirth

BECK, Emma ; GIBSON, Nicola ; HEAZELL, Alexander
BEREAVEMENT CARE, Printemps 2019, vol.38, n°1, p. 33-41

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Pouvoir bien finir sa vie chez soi - des pratiques françaises inspirantes pour les Québécois

SEVIGNY, Andrée ; BARIL-NADEAU, Héloïse ; DURIVAGE, Patrick ; DESROCHERS, JOHANNE ; CHATEL, Tanguy ; DUMONT, Serge ; LEMIEUX, Alain-Philippe
Cahiers francophones de soins palliatifs, 2018, vol.18, n°2, p. 64-77

How "elderly staying alone" cope up with their age and deteriorating health - a qualitative exploration from rural Wardha, Central India

GOSWAMI, Sourav ; DESHMUKH, Pradeep R.
Indian journal of palliative care, 12/2018, vol.24, n°4, p. 465-471

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Changes in social engagement and depression predict incident loneliness among seriously ill home care clients

FERNANDES, Samantha ; DAVIDSON, Jacob G. S. ; GUTHRIE, Dawn M.
Palliative and supportive care, 04/2018, vol.16, n°2, p. 170-179

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Social consequences of advanced cancer in patients and their informal caregivers - a qualitative study

VAN ROIJ, Janneke ; BROM, Linda ; YOUSSEF-EL SOUD, Maggy ; VAN DE POLL-FRANSE, Lonneke ; RAIJMAKERS, Natasja J. H.
Supportive care in cancer, 13/09/2018, p. 1-9

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Dying alone - an indigenous man's journey at the end of life

BABLITZ, Cara ; AHNADZADEH, Arezoo ; BURTON MACLEOD, Sarah
Canadian family physician, 09/2018, vol.64, n°9, p. 667-668

Tumeur changeante

MARAVAL DE BONNERY, Dominique
Livre actualité , 2018 , 135 p.

The diary of a nonagenarian-centenarian woman with dementia - memory loss, life changes, and community care in Japan

SUWA, Sayuri ; OTANI, Saori ; TSUJIMURA, Mayuko ; NOGAWA, Kotoko ; SHIYA, Yoko
International journal of nursing practice, 04/2018, vol.24, n°Suppl 1, p. 1-11

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Anticipating needs at end of life in narratives related by people living with HIV/AIDS in Appalachia

HALL, Joanne ; HUTSON, Sadie P. ; WEST, Frankie
The American journal of hospice and palliative care, 07/2018, vol.35, n°7, p. 985-992

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Supportive care for the head and neck cancer patient

BUGA, Sorin ; BANERJEE, Chandana ; SALMAN, Jaroslava ; CANGIN, Marissa ; ZACHARIAH, Finly ; FREEMAN, Bonnie
Cancer treatment and research, 2018, vol.174, p. 249-270

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Le domicile - nouveau centre de gravité. Dossier

PERRIN, Antoine ; GUERIN, Serge ; LEDUC, Florence
PERSPECTIVES SANITAIRES ET SOCIALES, Perspectives sanitaires & sociales, 01/09/2017, n°254, p. 22-63

Liens et ruptures à l’approche de la mort

JALMALV JUSQU'A LA MORT, ACCOMPAGNER LA VIE, PUG , 04/2017 , n°131, 73 p.

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Bienvenue en Amérique

BOSTRÖM KNAUSGARD, Linda
Grasset , 2018 , 122 p.

Public stigma of prolonged grief disorder - an experimental study

EISMA, Maarten C.
Psychiatry research, 02/01/2018, vol.261, p. 173-177

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The stigma associated with bereavement by suicide and other sudden deaths - a qualitative interview study

PITMAN, Alexandra L. ; STEVENSON, Fiona ; OSBORN, David P. J. ; KING, Michael B.
Social science and medicine, 02/2018, vol.198, p. 121-129

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L’accompagnement social des patients en rupture familiale

KERBRAT-DREAN, Pascale
JALMALV JUSQU A LA MORT ACCOMPAGNER LA VIE, 12/2017, n°131, p. 61-64

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