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MALADIE CHRONIQUE

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Hospitalisation at the end of life among cancer and non-cancer patients in Denmark

VESTERGAARD, Anne Høy Seemann ; NEERGAARD, Mette Asbjoern ; CHRISTIANSEN, Christian Fynbo ; NIELSEN, Henrik ; LYNGAA, Thomas ; LAUT, Kristina Grønborg ; JOHNSEN, Søren Paaske
BMJ Open, 06/2020, vol.10, n°6, 8 p.

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"I could never prepare for something like the death of my own child" - parental perspectives on preparedness at end of life for children with complex chronic conditions

BOGETZ, Jori F. ; REVETTE, Anna ; ROSENBERG, Abby R. ; DECOURCEY, Danielle
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 03/07/2020, 10 p.

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An adapted conceptual model integrating palliative care in serious illness and multiple chronic conditions

MURALI, Komal Patel ; MERRIMAN, John D. ; YU, Gary ; VORDERSTRASSE, Allison ; KELLEY, Amy ; BRODY, Abraham A.
American journal of hospice and palliative medicine, 08/06/2020, Pagination inconnue

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Comparison of end-of-life care in people with chronic obstructive pulmonary disease or lung cancer - a systematic review

BUTLER, Stacey J ; ELLERTON, Lauren ; GERSHON, Andrea S ; GOLDSTEIN, Roger S ; BROOKS, Dina
PALLIATIVE MEDICINE, 02/06/2020, Pagination inconnue

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The burden of diagnostic investigations at the end of life for people with COPD

ROSS, Lauren ; TAVERNER, John ; JOHN, Jennifer ; BAISCH, Andreas ; IRVING, Louis ; PHILIP, Jennifer ; SMALLWOOD, Natasha
Internal medicine journal, 16/06/2020, Pagination inconnue

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Characteristics and health related quality of life in a population with advanced chronic obstructive pulmonary disease, a cross-sectional study

BOVE, D. G. ; LAVESEN, M. ; LINDEGAARD, B.
BMC palliative care, 18/06//2020, vol.19, n°1, p. 1-9

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Associations between end-of-life expenditures and hospice stay length vary by clinical condition and expenditure duration

HUNG, Peiyin ; HSU, Sylvia H. ; WANG, Shi-Yi
VALUE IN HEALTH, 06/2020, vol.23, n°6, p. 697-704

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Information needs of older patients living with chronic obstructive pulmonary disease (COPD) indicated for a specific geriatric rehabilitation programme - a prospective cohort study

WOUTERS, Timotheus J ; VAN DAM VAN ISSELT, Eléonore F ; ACHTERBERG, Wilco P
International Journal of Palliative Nursing, 02/06/2020, vol.26, n°5, p. 238-245

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Development and validation of a uremic pruritus treatment algorithm and patient information toolkit in patients with chronic kidney disease and end stage kidney disease

RAGAZZO, Jessica ; CESTA, Annemarie ; JASSAL, Vanita ; CHIANG, Nicholas ; BATTISTELLA, Marisa
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 02/2020, vol.59, n°2, p. 279-292

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Palliative care in liver disease - what does good look like?

WOODLAND, Hazel ; HUDSON, Ben ; FORBES, Karen ; MCCUNE, Anne ; WRIGHT, Mark
Frontline gastroenterology, 2020, vol.11, n°3, p. 218-227

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Advance directive preferences of patients with chronic and terminal illness towards end of life decisions - a sample from Saudi Arabia

BAHAROON, Salim ; ALZAHRANI, Mohsen ; ALSAFI, Eiman ; LAYQAH, Laila ; AL-JAHDALI, Hamdan ; AHMED, Anwar
Eastern Mediterranean health journal, 25/11/2019, vol.25, n°11, p. 791-797

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Proactive integration of geriatrics and palliative care principles into practice for chronic obstructive pulmonary disease

IYER, Anand S. ; CURTIS, J. Randall ; MEIER, Diane E.
JAMA internal medicine, 27/04/2020, vol.180, n°6, p. 815-816

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Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice

PRESTON, Nancy ; HASSELAAR, Jeroen ; HUGHES, Sean ; KALEY, Alex ; LINGE-DAHL, Lisa ; RADVANYI, Ildiko ; TUBMAN, Phil ; VAN BEEK, Karen ; VAREY, Sandra ; PAYNE, Sheila
BMC palliative care, 22/04/2020, vol.19, n°1, p. 1-8

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A paucity of code status documentation despite increasing complex chronic disease in pediatrics

BATTISTI, Katherine A. ; COHEN, Daniel M. ; BOURGEOIS, Tran ; KLINE, David ; ZHAO, Songzhu ; IYER, Maya S.
JOURNAL OF PALLIATIVE MEDICINE, 26/03/2020, Pagination inconnue

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Place of death for individuals with chronic lung disease - trends and associated factors from 2003 to 2017 in the United States

CROSS, Sarah H. ; ELY, E. Wesley ; KAVALIERATOS, Dio ; TULSKY, James A. ; WARRAICH, Haider J.
Chest, 03/2020, Pagination inconnue

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Thème : Santé.

LIEU DECES ; MALADIE RESPIRATOIRE ; MALADIE CHRONIQUE ; ETATS-UNIS ; EPIDEMIOLOGIE

Background: Chronic lung disease is a common cause of mortality, yet little is known about where individuals with chronic lung disease die.
Research Question: What are the trends and factors associated with place of death among individuals with chronic lung disease?
Study Design and Methods: We conducted a cross-sectional analysis of natural deaths using the Centers for Disease Control and Prevention Wide-ranging OnLine Data for Epidemiologic Research from 2003 to 2017 for which chronic obstructive pulmonary disease (COPD), interstitial lung disease (ILD), or cystic fibrosis (CF) was the underlying cause. Place of death was categorized as hospital, home, nursing facility, hospice facility, and other.
Results: From 2003 to 2017, more than 2.2. million deaths were primarily attributed to chronic lung disease (51.6% female, 92.4% white). Most were attributed to COPD (88.9%), followed by ILD (10.8.%), and CF (0.3%). Hospital and nursing facility deaths declined from 44.4% (n= 59,470) and 22.6% (n= 30,285) to 28.3% (n= 49,6555) and 19.7% (n= 34,495) while home and hospice facility deaths increased from 23.3% (n=31,296) and 0.1% (n=192) to 34.7% (n=60851) and 9.0% (n=15,861) respectively. Male sex, being married, and having some college education were associated with increased odds of home death while non-white race and Hispanic ethnicity were associated with increased odds of hospital death. Compared to decedents with COPD, individuals with ILD and CF had increased odds of hospital death and reduced odds of home, nursing facility or hospice facility death.
Interpretation: Home deaths are increasing among decedents from chronic lung disease increasing the need for quality end-of-life care in this setting. Further research should explore the end-of-life needs and preferences of these patients and their caregivers with particular attention paid to patients with ILD and CF who continue to have high rates of hospital death.

Origine : DOI.org (Crossref

NECPAL tool prognostication in advanced chronic illness - a rapid review and expert consensus

GOMEZ-BATISTE, Xavier ; TURRILLAS, Pamela ; TEBE, Cristian ; CALSINA-BERNA, Agnès ; AMBLAS-NOVELLAS, Jordi
BMJ supportive and palliative care, 02/04/2020, Pagination inconnue

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Clustering of patients with end-stage chronic diseases by symptoms - a new approach to identify health needs

FINAMORE, Panaiotis ; SPRUIT, Martijn A. ; SCHOLS, Jos M. G. A. ; ANTONELLI INCALZI, Raffaele ; WOUTERS, Emiel F. M. ; JANSSEN, Daisy J. A.
Aging clinical and experimental research, 11/04/2020, Pagination inconnue

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Effects of brief nurse advance care planning intervention with visual materials on goal-of-care preference of Japanese elderly patients with chronic disease - a pilot randomized-controlled trial

KIZAWA, Yoshiyuki ; OKADA, Hiroko ; KAWAHARA, Takuya ; MORITA, Tatsuya
JOURNAL OF PALLIATIVE MEDICINE, 15/04/2020, Pagination inconnue

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Trauma to transformation - the lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore

DUTTA, Oindrila ; TAN-HO, Geraldine ; CHOO, Ping Ying ; LOW, Xinyi Casuarine ; CHONG, Poh Heng ; NG, Carolyn ; GANAPATHY, Sashikumar ; HO, Andy Hau Yan
BMC palliative care, 2020, vol.19, n°1, p. 1-17

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Advance care planning in chronically ill persons diagnosed with heart failure or chronic obstructive pulmonary disease - an integrative review

WILLIAMS, Molly T. ; KOZACHIK, Sharon L. ; KARLEKAR, Mohana ; WRIGHT, Rebecca
The American journal of hospice and palliative care, 13/03/2020, Pagination inconnue

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