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MALADIE CHRONIQUE

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Development and validation of support tools for advance care planning in patients with chronic heart failure

TAKADA, Yasuko ; HAMATANI, Yasuhiro ; KAWANO, Yukie ; ANCHI, Yuta ; NAKAI, Michikazu ; IZUMI, Chisato ; YASUDA, Satoshi ; OGAWA, Hisao ; SUGANO, Yasuo ; ANZAI, Toshihisa ; SHIBATA, Tatsuhiro ; SUZUKI, Atsushi ; NISHIKAWA, Mitsunori ; ITO, Hiroto ; KATO, Masashi ; SHIGA, Tsuyoshi ; FUKUMOTO, Yoshihiro
International Journal of Palliative Nursing, 10/2019, vol.25, n°10, p. 494-502

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Advance care planning in COPD - guidance development for healthcare professionals

MEEHAN, Elaine ; SWEENEY, Catherine ; FOLEY, Tony ; LEHANE, Elaine ; BURGESS KELLEHER, Art ; HALLY, Ruth M. ; SHANAGHER, Deirdre ; KORN, Bettina ; RABBITTE, Mary ; DETERING, Karen Margaret ; CORNALLY, Nicola
BMJ supportive and palliative care, 04/11/2019, Pagination inconnue

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A qualitative study of pulmonary and palliative care clinician perspectives on early palliative care in chronic obstructive pulmonary disease

IYER, Anand S. ; DIONNE-ODOM, James Nicholas ; KHATEEB, Dina M. ; O'HARE, Lanier ; TUCKER, Rodney O. ; BROWN, Cynthia J. ; DRANSFIELD, Mark T. ; BAKITAS, Marie A.
JOURNAL OF PALLIATIVE MEDICINE, 29/10/2019, Pagination inconnue

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Soins palliatifs en médecine chronique - un rôle pour les infirmiers

TUDOUX, Julie ; GALLE-GAUDIN, Caroline
2018 , 59 p.

Early-integrated palliative home care and standard care for end-stage COPD (EPIC) - a phase II pilot RCT testing feasibility, acceptability and effectiveness

SCHEERENS, Charlotte ; PYPE, Peter ; VAN CAUWENBERG, Jelle ; VANBUTSELE, Gaëlle ; EECLOO, Kim ; DEROM, Eric ; VAN BELLE, Simon ; JOOS, Guy ; DELIENS, Luc ; CHAMBAERE, Kenneth
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 09/10/2019, Pagination inconnue

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Thème : Médecine.

HOSPITALISATION DOMICILE SOINS PALLIATIFS ; MALADIE CHRONIQUE ; MALADIE RESPIRATOIRE ; EFFICACITE ; EVALUATION

BACKGROUND: While early-integrated palliative home care (PHC) is believed to be beneficial for COPD patients, trials testing this hypothesis are rare and show inconclusive results.
AIM: To test feasibility, acceptability and preliminary effectiveness of early-integrated PHC for end-stage COPD.
METHOD: Testing a six-month early-integrated PHC pilot RCT given by PHC nurses for end-stage COPD with five components: (1) pre-inclusion COPD support training for PHC nurses; (2) monthly PHC visits; (3) leaflets on coping mechanisms; (4) a protocol on symptom management and support, a care and action plan; (5) integration of PHC and usual care through reporting and communication mechanisms. Patient-reported outcomes were assessed six-weekly. Participants and healthcare professionals involved were interviewed.
RESULTS: Of 70 eligible patients, 39 (56%) participated (20:19 intervention-control) and 64% completed the trial. A patient received on average 3.4 PHC visits, mainly for disease insight, symptom management and care planning. Nurses distributed all reports but hardly connected with health professionals except general practitioners (GPs); 8/10 interviewed patients referred to the psychosocial support, breathing exercises and care decisions as helpful. Some GPs criticised PHC being given too early but pulmonologists and PHC nurses did not. Effectiveness analysis showed no overall intervention effect for the outcomes, but between baseline and week 24 fewer hospitalisations in the control group (p=0.03) and a trend of higher perceived quality of care in the intervention group (p=0.06) was found. A clinically relevant difference was observed at week 24 for health-related quality of life in favour of the control group.
CONCLUSION: Our intervention on early-integrated PHC for end-stage COPD is feasible and accepted but did not yield the anticipated preliminary effectiveness. Before moving to a Phase III-trial, enhanced coordination of care, more GP involvement, more intensive training for PHC nurses in COPD support and revision of the trial design, e.g. of targeted outcomes in line with individual patient goals and care preferences should be improved.

Origine : PubMed

Pediatric complex chronic conditions - does the classification system work for infants?

LINDLEY, Lisa C. ; FORTNEY, Christine A.
American journal of hospice and palliative medicine, 10/2019, vol.36, n°10, p. 858-863

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Treatment decisions in end-stage COPD: who decides how? - a cross-sectional survey of different medical specialties

GABLER, Martin ; OHRENBERGER, Gerald ; FUNK, Georg-Christian
ERJ open research, 07/2019, vol.5, n°3, p. 1-10

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End-of-life care in individuals with respiratory diseases - a population study comparing the dying experience between those with chronic obstructive pulmonary disease and lung cancer

KENDZERSKA, Tetyana ; NICKERSON, Jason W. ; HSU, Amy T. ; GERSHON, Andrea S. ; TALARICO, Robert ; MULPURU, Sunita ; PAKHALE, Smita ; TANUSEPUTRO, Peter
International journal of chronic obstructive pulmonary disease, 2019, vol.14, p. 1691-1701

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Les maladies inflamatoires chroniques intestinales

BALEZ, Eric
ASP LIAISONS, 06/2019, n°58, p. 25-27

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Early do-not-resuscitate directives decrease invasive procedures and health care expenses during the final hospitalization of life of copd patients

FU, Pin-Kuei ; YANG, Ming-Chin ; WANG, Chen-Yu ; LIN, Shin-Pin ; KUO, Chen-Tsung ; HSU, Chiann-Yi ; TUNG, Yu-Chi
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 09/08/2019, Pagination inconnue

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Integrating palliative home care early into standard care of end-stage COPD

SCHEERENS, Charlotte
ASP nv , 2019 , 297 p.

Longer duration of palliative care in patients with COPD is associated with death outside the hospital

KRASKOVSKY, Valeri ; SCHNEIDER, Jaclyn ; MADOR, M. Jeffery ; PROVOST, Karin A.
JOURNAL OF PALLIATIVE CARE, 02/07/2019, Pagination inconnue

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Nurse-led integration of palliative care for chronic obstructive pulmonary disease - an integrative literature review

ORA, Linda ; MANNIX, Judy ; MORGAN, Lucy ; WILKES, Lesley
Journal of clinical nursing, 20/07/2019, Pagination inconnue

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Integrating palliative care into the chronic illness continuum - a conceptual model for minority populations

GAZAWAY, Shena ; STEWART, Merry ; SCHUMACHER, Autumn
Journal of racial and ethnic health disparities, 27/06/2019, p. 1-9

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Perception of palliative medicine by health care professionals at a teaching community hospital - what is the key to a "palliative attitude"?

CHEUNG, Nga Yu ; GORELIK, Anna ; MEHTA, Parag ; MUDANNAYAKE, Louis ; RAMESH, Arundati ; BHARATHAN, Thayyllathil ; GOLDENBERG, Gregory
Journal of multidisciplinary healthcare, 2019, vol.12, p. 437-443

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The chronic sick role - its time has come

SCHIPKE, Timothy
OMEGA JOURNAL OF DEATH AND DYING, 18/06/2019, Pagination inconnue

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Study protocol to investigate the efficacy of normalisation of advance care planning (ACP) for people with chronic diseases in acute and community settings - a quasi-experimental design

JEONG, Sarah ; BARRETT, Tomiko ; OHR, Se Ok ; CLEASBY, Peter ; DAVID, Michael ; CHAN, Sally ; FAIRLAMB, Helen ; DAVEY, Ryan ; SAUL, Peter
BMC health services research, 04/05/2019, vol.19, n°1, 10 p.

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Improving the waiting times within a hospice breathlessness service

SIME, Caroline ; MILLIGAN, Stuart ; DONAL ROONEY, Kevin
BMJ open quality, 2019, vol.8, n°2, 7 p.

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Impacts of person-centred integrated chronic heart failure and palliative home care on pharmacological heart failure treatment - a substudy of a randomised trial

MARKGREN, Rickard ; BRANNSTROM, Margareta ; LUNDGREN, Claes ; BOMAN, Kurt
BMJ supportive and palliative care, 03/2019, vol.9, n°1, p. e10

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Costs and outcomes of advance care planning and end-of-life care for older adults with end-stage kidney disease - a person-centred decision analysis

SELLARS, Marcus ; CLAYTON, Josephine M. ; DETERING, Karen M. ; TONG, Allison ; POWER, David ; MORTON, Rachael L.
Plos one, 2019, vol.14, n°5, p. 1-11

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