VigiPallia : Résultats

MALADIE LETALE

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Consulting with young people - informing guidelines for children’s palliative care

TAYLOR, Johanna ; MURPHY, Sarah ; CHAMBERS, Lizzie ; ALDRIDGE, Jan
Archives of disease in childhood, 18/11/2020, Pagination inconnue

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Experiences of healthcare, including palliative care, of children with life-limiting and life-threatening conditions and their families - a longitudinal qualitative investigation

MITCHELL, Sarah ; SLOWTHER, Anne-Marie ; COAD, Jane ; DALE, Jeremy
Archives of disease in childhood, 16/11/2020, p. 1-7

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Decisions parents make when faced with potentially life-limiting fetal diagnoses and the importance of perinatal palliative care

MARC-AURELE, Krishelle L.
Frontiers in pediatrics, 2020, vol.8, p. 1-5

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The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs - a scoping review

GILL, Fenella J. ; HASHEM, Zahraa ; STEGMANN, Roswitha ; AOUN, Samar M.
PALLIATIVE MEDICINE, 24/10/2020, Pagination inconnue

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The role of hospital nurses in shared decision-making about life-prolonging treatment - a qualitative interview study

BOS-VAN DEN HOEK, Danique W. ; THODE, Maureen ; JONGERDEN, Irene P. ; VAN LAARHOVEN, Hanneke W. M. ; SMETS, Ellen M. A. ; TANGE, Dorien ; HENSELMANS, Inge ; PASMAN, H. Roeline
Journal of advanced nursing, 20/10/2020, p. 1-12

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Exploring the psychological impact of life-limiting illness using the attitude to health change scales - a qualitative focus group study in a hospice palliative care setting

DUNLEAVY, Lesley ; WALSHE, Catherine ; MACHIN, Linda
European journal of cancer care, 03/09/2020, Pagination inconnue

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The family talk intervention in palliative home care when a parent with dependent children has a life-threatening illness - a feasibility study from parents' perspectives

ALVARIZA, Anette ; JALMSELL, Li ; EKLUND, Rakel ; LOVGREN, Malin ; KREICBERGS, Ulrika
Palliative and supportive care, 28/08/2020, p. 1-7

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Community Tele-pal - a community-developed, culturally based palliative care tele-consult randomized controlled trial for African American and White Rural Southern elders with a life-limiting illness

WATTS, Kristen Allen ; GAZAWAY, Shena ; MALONE, Emily ; ELK, Ronit ; TUCKER, Rodney ; MCCAMMON, Susan ; GOLDHAGEN, Michele ; GRAHAM, Jacob ; TASSIN, Veronica ; HAUSER, Joshua ; RHOADES, Sidney ; KAGAWA-SINGER, Marjorie ; WALLACE, Eric ; MCELLIGOTT, James ; KENNEDY, Richard ; BAKITAS, Marie
Trials, 23/07/2020, vol.21, n°1, p. 1-16

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"Transition from children's to adult services for adolescents/young adults with life-limiting conditions - developing realist programme theory through an international comparison"

KERR, Helen ; WIDGER, Kimberley ; CULLEN-DEAN, Geraldine ; PRICE, Jayne ; O'HALLORAN, Peter
BMC palliative care, 30/07/2020, vol.19, n°1, p. 1-11

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Estimating the prevalence of life-limiting conditions in Queensland for children and young people aged 0-21 years using health administration data

BOWERS, Alison P. ; CHAN, Raymond J. ; HERBERT, Anthony ; YATES, Patsy
Australian health review, 08/2020, vol.44, n°4, p. 630-636

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Thème : Age de la vie, situations spécifiques liées à la fin de vie.

PREVALENCE ; PEDIATRIE ; AUSTRALIE ; MALADIE LETALE

Objective: The prevalence of life-limiting conditions in children in Australia is unknown; such data are needed to inform health service planning for paediatric palliative care. The aim of this study was to estimate the prevalence of life-limiting conditions for children and young people aged 0-21 years living in Queensland, Australia.
Methods: An observational study using linked administrative health data from the 2011 and 2016 calendar years was performed for all individuals with an International Statistical Classification of Diseases and Related Health Problems 10th Revision Australian Modification code relating to a life-limiting condition eligible for palliative care recorded against an admission to a public or private hospital and health service provider in Queensland or against a cause or underlying cause of death in the Queensland Registrar General Deaths.
Results: The overall prevalence of life-limiting conditions per 10000 population increased from 35.2 (95% confidence interval (CI) 34.2-36.2) in 2011 to 43.2 (95% CI 42.1-44.4) in 2016. This increase in prevalence was greatest for children <1 year of age and for those who identified as Aboriginal and Torres Strait Islander.
Conclusion: This study has estimated the prevalence of life-limiting conditions for children and young people aged 0-21 years living in Queensland. Estimation of the number of children and young people with life-limiting conditions can inform health service planning for paediatric palliative care in Queensland. Future research is needed to identify the number of children and young people with life-limiting conditions who do not have an admitted episode. What is known about the topic? Data from the UK indicate that the prevalence of life-limiting conditions among children and young people is increasing. However, such data are not available for the Australian population. Because prevalence data can be affected by population characteristics, it is important to establish country-specific epidemiological data rather than extrapolating data from other countries. Country-specific data can inform health planners and policy makers of the scale of the problem within a geographical and demographic context. This is essential for Australia given the diverse geographical and demographic characteristics and specific needs of Aboriginal and Torres Strait Islander peoples. What does this paper add? This study is the first to provide an estimate of the prevalence of life-limiting conditions in children and young people aged 0-21 years in Queensland. Estimates include the prevalence of life-limiting conditions in children and young people who identify as being of Aboriginal and/or Torres Strait Islander descent. What are the implications for practitioners? The prevalence of life-limiting conditions in Queensland is greater than previously thought. There is a need to grow both a generalist and specialist paediatric palliative care workforce in response to this increasing prevalence. The estimates of prevalence proportions from this study provide the foundation on which future health service activities can be built because they provide country-specific clinical and demographic characteristics.

Origine : PubMed

Severe mental illness and palliative care - patient semistructured interviews

KNIPPENBERG, Inge ; ZAGHOULI, Nasira ; ENGELS, Yvonne ; VISSERS, Kris C. P. ; GROOT, Marieke M.
BMJ supportive and palliative care, 11/08/2020, p. 1-7

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How is early palliative care defined and implemented for persons diagnosed with a life-limiting chronic illness - a scoping review protocol

KIRCHER, Colleen ; HANNA, Timothy ; TRANMER, Joan ; GOLDIE, Craig ; ROSS-WHITE, Amanda ; GOLDIE, Catherine
JBI evidence synthesis, 06/07/2020, Pagination inconnue

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Clinically significant depressive symptoms are prevalent in people with extremely short prognoses - a systematic review

LEE, Wei ; PULBROOK, Marley ; SHEEHAN, Caitlin ; KOCHOVSKA, Slavica ; CHANG, Sungwon ; HOSIE, Annmarie ; LOBB, Elizabeth ; PARKER, Deborah ; DRAPER, Brian ; AGAR, Meera R. ; CURROW, David
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 17/07/2020, p. 1-26

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Palliative care for young adults with life-limiting conditions - public health recommendations

COOK, Karen A ; BERGERON, Kim
BMJ supportive and palliative care, 19/06/2020, p. 1-8

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Construction of meanings during life-limiting illnesses and its impacts on palliative care - ethnographic study in an African context

AGOM, David A. ; NEILL, Sarah ; ALLEN, Stuart ; POOLE, Helen ; SIXSMITH, Judith ; ONYEKA, Tonia C. ; OMINYI, Jude
Psycho-oncology, 01/01/2019, vol.28, n°11, p. 2201-2209

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Specialized pediatric palliative care in neonates with life-limiting illness - a systematic review

ZUNIGA-VILLANUEVA, Gregorio ; WIDGER, Kimberley ; MEDEIROS, Christina ; TRENHOLM, Madeline ; STREULI, Jürg C.
American journal of perinatology, 24/04/2020, Pagination inconnue

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Measuring quality of life in life-threatening illness - content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

AXELSSON, Lena ; ALVARIZA, Anette ; CARLSSON, Nina ; COHEN, S. Robin ; SAWATZKY, Richard ; ARESTEDT, Kristofer
BMC palliative care, 12/2020, vol.19, n°1, p. 1-9

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Young adults with life-limiting or life-threatening conditions - sexuality and relationships support

EARLE, Sarah ; BLACKBURN, Madeleine
BMJ supportive and palliative care, 02/04/2020, Pagination inconnue

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Educational needs and preferred learning approaches of the paediatric palliative care workforce - a qualitative exploratory study

MALCOLM, Cari ; MCGIRR, Debbie
Nurse education today, Elsevier, 06/2020, vol.89, pagination inconnue

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Dyadic model of adaptation to life-limiting illness

AHLUWALIA, Sangeeta ; REDDY, Neha K. ; JOHNSON, Rebecca ; EMANUEL, Linda ; KNIGHT, Sara J.
JOURNAL OF PALLIATIVE MEDICINE, 28/02/2020, Pagination inconnue

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