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MALADIE LETALE

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Construction of meanings during life-limiting illnesses and its impacts on palliative care - ethnographic study in an African context

AGOM, David A. ; NEILL, Sarah ; ALLEN, Stuart ; POOLE, Helen ; SIXSMITH, Judith ; ONYEKA, Tonia C. ; OMINYI, Jude
Psycho-oncology, 01/01/2019, vol.28, n°11, p. 2201-2209

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Specialized pediatric palliative care in neonates with life-limiting illness - a systematic review

ZUNIGA-VILLANUEVA, Gregorio ; WIDGER, Kimberley ; MEDEIROS, Christina ; TRENHOLM, Madeline ; STREULI, Jürg C.
American journal of perinatology, 24/04/2020, Pagination inconnue

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Measuring quality of life in life-threatening illness - content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

AXELSSON, Lena ; ALVARIZA, Anette ; CARLSSON, Nina ; COHEN, S. Robin ; SAWATZKY, Richard ; ARESTEDT, Kristofer
BMC palliative care, 12/2020, vol.19, n°1, p. 1-9

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Young adults with life-limiting or life-threatening conditions - sexuality and relationships support

EARLE, Sarah ; BLACKBURN, Madeleine
BMJ supportive and palliative care, 02/04/2020, Pagination inconnue

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Educational needs and preferred learning approaches of the paediatric palliative care workforce - a qualitative exploratory study

MALCOLM, Cari ; MCGIRR, Debbie
Nurse education today, Elsevier, 06/2020, vol.89, pagination inconnue

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Dyadic model of adaptation to life-limiting illness

AHLUWALIA, Sangeeta ; REDDY, Neha K. ; JOHNSON, Rebecca ; EMANUEL, Linda ; KNIGHT, Sara J.
JOURNAL OF PALLIATIVE MEDICINE, 28/02/2020, Pagination inconnue

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Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition - a cross-sectional study of caregiver-reported outcomes

COLLINS, Anna ; BURCHELL, Jodie ; REMEDIOS, Cheryl ; THOMAS, Kristina
PALLIATIVE MEDICINE, 27/02/2020, Pagination inconnue

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Challenges for nurses when communicating with people who have life-limiting illness and their families - a focus group study

KERR, Debra ; MILNES, Sharyn ; AMMENTORP, Jette ; MCKIE, Claire ; DUNNING, Trisha ; OSTASZKIEWICZ, Joan ; WOLDERSLUND, Maiken ; MARTIN, Peter J.
Journal of clinical nursing, 02/2020, vol.29, n°3-4, p. 416-428

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Prevalent statin use in long-stay nursing home residents with life-limiting illness

MACK, Deborah S. ; TJIA, Jennifer ; HUME, Anne L. ; LAPANE, Kate L.
Journal of the American Geriatrics Society, 14/02/2020, Pagination inconnue

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Thème : Médicaments - Pharmacie.

THERAPEUTIQUE MEDICAMENTEUSE ; PREVALENCE ; MAISON RETRAITE ; MALADIE LETALE ; ETATS-UNIS

OBJECTIVES; To evaluate the prevalence and factors associated with statin pharmacotherapy in long-stay nursing home residents with life-limiting illness.
DESIGN: Cross-sectional.
SETTING: US Medicare- and Medicaid-certified nursing home facilities.
PARTICIPANTS: Long-stay nursing home resident Medicare fee-for-service beneficiaries aged 65 years or older with life-limiting illness (n = 424 212).
MEASUREMENTS: Prevalent statin use was estimated as any low-moderate intensity (daily dose low-density lipoprotein-cholesterol [LDL-C] reduction <30%-50%) and high-intensity (daily dose LDL-C reduction >50%) use via Medicare Part D claims for a prescription supply on September 30, 2016, with a 90-day look-back period. Life-limiting illness was operationally defined to capture those near the end of life using evidence-based criteria to identify progressive terminal conditions or limited prognoses (<6 mo). Poisson models provided estimates of adjusted prevalence ratios and 95% confidence intervals for resident factors.
RESULTS: A total of 34% of residents with life-limiting illness were prescribed statins (65--75 y = 44.0%, high intensity = 11.1%; >75 y = 31.1%, high intensity = 5.4%). Prevalence of statins varied by life-limiting illness definition. Of those with a prognosis of less than 6 months, 23% of the 65 to 75 and 12% of the older than 75 age groups were on statins. Factors positively associated with statin use included minority race or ethnicity, use of more than five concurrent medications, and atherosclerotic cardiovascular disease or risk factors.
CONCLUSION: Despite having a life-limiting illness, more than one-third of clinically compromised long-stay nursing home residents remain on statins. Although recent national guidelines have expanded indications for statins, the benefit of continued therapy in an advanced age population near the end of life is questionable. Efforts to deprescribe statins in the nursing home setting may be warranted.

Origine : PubMed

Physician orders for life-sustaining treatment and limiting overtreatment at the end of life

TRUOG, Robert D. ; FRIED, Terri R.
JAMA, 2020, vol.323, n°10, p. 934-935

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Healthcare utilization among children and young people with life-limiting conditions - exploring palliative care needs using national health insurance claims data

KIM, Cho Hee ; SONG, In Gyu ; KIM, Min Sun ; LEE, Jin Yong ; LIM, Nam Gu ; SHIN, Hee Young
Scientific reports, 14/02/2020, vol.10, n°1, p. 1-10

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Towards person-centred quality care for children with life-limiting and life-threatening illness - self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study

NAMISANGO, Eve ; BRISTOWE, Katherine ; MURTAGH, Fliss Em ; DOWNING, Julia ; POWELL, Richard A. ; ABAS, Melanie ; LOHFELD, Lynne ; ALI, Zipporah ; ATIENO, Mackuline ; HAUFIKU, Desiderius ; GUMA, Samuel ; LUYIRIKA, Emmanuel Bk ; MWANGI-POWELL, Faith N. ; HIGGINSON, Irene J. ; HARDING, Richard
PALLIATIVE MEDICINE, 21/02/2020, Pagination inconnue

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Physician Orders for Life-Sustaining Treatment and limiting overtreatment at the end of life

TRUOG, Robert D. ; FRIED, Terri R.
JAMA, 16/02/2020, p. 1-2

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Association of Physician Orders for Life-Sustaining Treatment with ICU admission among patients hospitalized near the end of life

LEE, Robert Y. ; BRUMBACK, Lyndia C. ; SATHITRATANACHEEWIN, Seelwan
JAMA, 16/02/2020, p. 1-11

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Initial validation of a patient-reported measure of compassion - determining the content validity and clinical sensibility among patients living with a life-limiting and incurable illness

SINCLAIR, Shane ; JAGGI, Priya ; HACK, Thomas F. ; RUSSELL, Lara ; MAC CLEMENT, Susan E. ; CUTHBERTSON, Lena ; SELMAN, Lucy E. ; LEGET, Carlo
The patient, 22/01/2020, Pagination inconnue

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Thème : Soins.

COMPASSION ; SOIN ; EVALUATION ; QUALITE SOIN ; MALADIE LETALE

BACKGROUND: Although compassionate care is considered a cornerstone of quality palliative care, there is a paucity of valid and reliable measures to study, assess, and evaluate how patients experience compassion/compassionate care in their care.
OBJECTIVE: The aim was to develop a patient-reported compassion measure for use in research and clinical practice with established content-related validity evidence for the items, question stems, and response scale.
METHODS: Content validation for an initial 109 items was conducted through a two-round modified Delphi technique, followed by cognitive interviews with patients. A panel of international Subject Matter Experts (SMEs) and a Patient Advisory Group (PAG) assessed the items for their relevancy to their associated domain of compassion, yielding an Item-level Content Validity Index (I-CVI), which was used to determine content modifications. The SMEs and the PAG also provided narrative feedback on the clarity, flow, and wording of the instructions, questions, and response scale, with items being modified accordingly. Cognitive interviews were conducted with 16 patients to further assess the clarity, comprehensibility, and readability of each item within the revised item pool.
RESULTS: The first round of the Delphi review produced an overall CVI of 72% among SMEs and 80% among the PAG for the 109 items. Delphi panelists then reviewed a revised measure containing 84 items, generating an overall CVI of 84% for SMEs and 86% for the PAG. Sixty-eight items underwent further testing via cognitive interviews with patients, resulting in an additional 14 items being removed.
CONCLUSIONS: Having established this initial validity evidence, further testing to assess internal consistency, test-retest reliability, factor structure, and relationships to other variables is required to produce the first valid, reliable, and clinically informed patient-reported measure of compassion.

Origine : PubMed

Children's self-reports about illness-related information and family communication when a parent has a life-threatening illness

EKLUND, Rakel ; KREICBERGS, Ulrika ; ALVARIZA, Anette ; LOVGREN, Malin
Journal of family nursing, 13/01/2020, Pagination inconnue

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Balancing medication use in nursing home residents with life-limiting disease

PAQUE, Kristel ; ELSEVIERS, Monique ; VANDER STICHELE, Robert ; PARDON, Koen ; VINKEROYE, Cinzia ; DELIENS, Luc ; CHRISTIAENS, Thierry ; DILLES, Tinne
European journal of clinical pharmacology, 07/2019, vol.75, n°7, p. 969-977

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Challenges faced by prehospital emergency physicians providing emergency care to patients with advanced incurable diseases

KAMPHAUSEN, Anne ; ROESE, Hanna ; OECHSLE, Karin ; ISSLEIB, Malte ; ZOLLNER, Christian ; BOKEMEYER, Carsten ; ULLRICH, Anneke
Emergency medicine international, 2019, vol.2019, p. 1-11

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Scoping review of symptoms in children with rare, progressive, life-threatening disorders

PAWLIUK, Colleen ; WIDGER, Kim ; DEWAN, Tammie ; BRANDER, Gina ; BROWN, Helen L. ; HERMANSEN, Anne-Mette ; GRÉGOIRE, Marie-Claude ; STEELE, Rose ; SIDEN, Harold Hal
BMJ supportive and palliative care, 12/12/2019, Pagination inconnue

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Buccal opioids for breakthrough pain in children with life-limiting conditions receiving end-of-life care

NORMAN, Cheryl ; MAYNARD, Linda
International Journal of Palliative Nursing, 10/2019, vol.25, n°10, p. 472-479

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