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Balancing medication use in nursing home residents with life-limiting disease

PAQUE, Kristel ; ELSEVIERS, Monique ; VANDER STICHELE, Robert ; PARDON, Koen ; VINKEROYE, Cinzia ; DELIENS, Luc ; CHRISTIAENS, Thierry ; DILLES, Tinne
European journal of clinical pharmacology, 07/2019, vol.75, n°7, p. 969-977

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Challenges faced by prehospital emergency physicians providing emergency care to patients with advanced incurable diseases

KAMPHAUSEN, Anne ; ROESE, Hanna ; OECHSLE, Karin ; ISSLEIB, Malte ; ZOLLNER, Christian ; BOKEMEYER, Carsten ; ULLRICH, Anneke
Emergency medicine international, 2019, vol.2019, p. 1-11

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Scoping review of symptoms in children with rare, progressive, life-threatening disorders

PAWLIUK, Colleen ; WIDGER, Kim ; DEWAN, Tammie ; BRANDER, Gina ; BROWN, Helen L. ; HERMANSEN, Anne-Mette ; GRÉGOIRE, Marie-Claude ; STEELE, Rose ; SIDEN, Harold Hal
BMJ supportive and palliative care, 12/12/2019, Pagination inconnue

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Buccal opioids for breakthrough pain in children with life-limiting conditions receiving end-of-life care

NORMAN, Cheryl ; MAYNARD, Linda
International Journal of Palliative Nursing, 10/2019, vol.25, n°10, p. 472-479

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Thematic analysis of spousal interaction patterns among Asian parents of children with chronic life-threatening illness

HO, Andy Hau Yan ; DUTTA, Oindrila ; TAN-HO, Geraldine ; CHOO, Ping Ying ; LOW, Xinyi Casuarine ; CHONG, Poh Heng ; NG, Carolyn ; GANAPATHY, Sashikumar
BMJ Open, 19/11/2019, vol.9, n°11, p. 1-8

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Parents' perspectives on hospital care for children and adolescents with life-limiting conditions - a grounded theory analysis of narrative interviews

ENGLER, Jennifer ; GRUBER, Dania ; ENGLER, Fabian ; HACH, Michaela ; SEIPP, Hannah ; KUSS, Katrin ; GERLACH, Ferdinand M. ; ULRICH, Lisa-R. ; ERLER, Antje
JOURNAL OF PALLIATIVE MEDICINE, 15/11/2019, Pagination inconnue

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The association of perceived social support with anxiety over time in parents of children with serious illnesses

BOYDEN, Jackelyn Y. ; HILL, Douglas L. ; CARROLL, Karen W. ; MORRISON, Wynne E. ; MILLER, Victoria A. ; FEUDTNER, Chris
JOURNAL OF PALLIATIVE MEDICINE, 07/11/2019, Pagination inconnue

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The need for cultural inclusivity in global palliative nursing - caring for selected underserved populations in the United States

MAZANEC, Polly ; VERGA, Sarah ; FOLEY, Helen ; MEHTA, Ambereen K.
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 12/2019, vol.21, n°6, p. E1-E8

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More comprehensively measuring quality of life in life-threatening illness - the McGill quality of life questionnaire - expanded

COHEN, S. Robin ; RUSSELL, Lara B. ; LEIS, Anne ; SHAHIDI, Javad ; PORTERFIELD, Pat ; KUHL, David R. ; GADERMANN, Anne M. ; SAWATZKY, Richard
BMC palliative care, 31/10/2019, vol.18, n°1, p. 1-11

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Thème : Recherche - Evaluation - Méthodologie. Cote : eD15.00.02.02

QUALITE VIE ; MALADIE LETALE ; QUESTIONNAIRE ; CANADA

Background: Domains other than those commonly measured (physical, psychological, social, and sometimes existential/spiritual) are important to the quality of life of people with life-threatening illness. The McGill Quality of Life Questionnaire (MQOL) – Revised measures the four common domains. The aim of this study was to create a psychometrically sound instrument, MQOL – Expanded, to comprehensively measure quality of life by adding to MQOL-Revised the domains of cognition, healthcare, environment, (feeling like a) burden, and possibly, finance.
Methods: Confirmatory factor analyses were conducted on three datasets to ascertain whether seven new items belonged with existing MQOL-Revised domains, whether good model fit was obtained with their addition as five separate domains to MQOL-Revised, and whether a second-order factor representing overall quality of life was present. People with life-threatening illnesses (mainly cancer) or aged > 80 were recruited from 15 healthcare sites in seven Canadian provinces. Settings included: palliative home care and inpatient units; acute care units; oncology outpatient clinics.
Results: Good model fit was obtained when adding each of the five domains separately to MQOL-Revised and for the nine correlated domains. Fit was acceptable for a second-order factor model. The financial domain was removed because of low importance. The resulting MQOL-Expanded is a 21-item instrument with eight domains (fit of eight correlated domains: Comparative Fit Index = .96; Root Mean Square Error of Approximation = .033).
Conclusions: MQOL-Expanded builds on MQOL-Revised to more comprehensively measure the quality of life of people with life-threatening illness. Our analyses provide validity evidence for the MQOL-Expanded domain and summary scores; the need for further validation research is discussed. Use of MQOL-Expanded will enable a more holistic understanding of the quality of life of people with a life-threatening illness and the impact of treatments and interventions upon it. It will allow for a better understanding of less commonly assessed but important life domains (cognition, healthcare, environment, feeling like a burden) and their relationship to the more commonly assessed domains (physical, psychological, social, existential/spiritual).

Origine : PubMed

Enabling at-homeness for older people with life-limiting conditions - a participant observation study from nursing homes

SAARNIO, Lotta ; BOSTROM, Anne-Marie ; HEDMAN, Ragnhild ; GUSTAVSSON, Petter ; OHLEN, Joakim
Global qualitative nursing research, 12/2019, vol.6, p. 1-12

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Les ressources du psychologue auprès de l’enfant qui risque de mourir

FRIPPIAT, Jessica ; DUSSART, Harmony ; LAMBOTTE, Isabelle
MEDECINE PALLIATIVE, 09/2019, vol.18, n°4-5, p. 265-267

Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning

FAHNER, Jurrianne C. ; RIETJENS, Judith A. C. ; VAN DER HEIDE, Agnes ; VAN DELDEN, Johannes J. M. ; KARS, Marijke C.
Acta paediatrica, 18/10/2019, p. 1-29

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Facing the large variety of life-limiting conditions in children

HOELL, Jessica I. ; WEBER, Hannah ; WARFSMANN, Jens ; TROCAN, Laura ; GAGNON, Gabriele ; DANNEBERG, Mareike ; BALZER, Stefan ; KELLER, Thomas ; JANßEN, Gisela ; KUHLEN, Michaela
European journal of pediatrics, 17/10/2019, p. 1-10

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Les obstétriciens face aux poursuites de grossesse avec pathologie fœtale

DODERO, Charlotte ; MARTINI, Prisca ; ALLUIN, Raphaël
MEDECINE PALLIATIVE, 09/2019, vol.18, n°4-5, p. 226-229

Polypharmacy increases risk of dyspnea among adults with serious, life-limiting diseases

AKGUN, Kathleen M. ; KRISHNAN, Supriya ; FEDER, Shelli L. ; TATE, Janet ; KUTNER, Jean S. ; CROTHERS, Kristina
The American journal of hospice and palliative care, 24/09/2019, Pagination inconnue

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Thème : Médicaments - Pharmacie.

THERAPEUTIQUE MEDICAMENTEUSE ; DYSPNEE ; MALADIE LETALE

Background: Polypharmacy is associated with dyspnea in cross-sectional studies, but associations have not been determined in longitudinal analyses. Statins are commonly prescribed but their contribution to dyspnea is unknown. We determined whether polypharmacy was associated with dyspnea trajectory over time in adults with advanced illness enrolled in a statin discontinuation trial, overall, and in models stratified by statin discontinuation.
Methods: Using data from a parallel-group unblinded pragmatic clinical trial (patients on statins =3 months with life expectancy of 1 month to 1 year, enrolled in the parent study between June 3, 2011, and May 2, 2013, n = 308/381 [81%]), we restricted analyses to patients with available baseline medication count and =1 dyspnea score. Polypharmacy was assessed by self-reported chronic medication count. Dyspnea trajectory group, our primary outcome, was determined over 24 weeks using the Edmonton Symptom Assessment System.
Results: The mean age of the patients was 73.8 years (standard deviation [SD]: ±11.0) and the mean medication count was 11.6 (SD: ±5.0). We identified 3 dyspnea trajectory groups: none (n = 108), mild (n = 130), and moderate–severe (n = 70). Statins were discontinued in 51.8%, 48.5%, and 42.9% of patients, respectively. In multivariable models adjusting for age, sex, diagnosis, and statin discontinuation, each additional medication was associated with 8% (odds ratio [OR] = 1.08 [1.01-1.14]) and 16% (OR = 1.16 [1.08-1.25]) increased risk for mild and moderate–severe dyspnea, respectively. In stratified models, polypharmacy was associated with dyspnea in the statin continuation group only (mild OR = 1.12 [1.01-1.24], moderate–severe OR = 1.24 [1.11-1.39]) versus statin discontinuation (mild OR = 1.03 [0.95-1.12], and moderate–severe OR = 1.09 [0.98-1.22]).
Conclusion: Polypharmacy was strongly associated with dyspnea. Prospective interventions to decrease polypharmacy may impact dyspnea symptoms, especially for statins.

Origine : PubMed

End-of-life travel - a bucket list desire for patients with life-limiting illnesses

AISPORNA, Cheryl ; ERICKSON-HURT, Carma
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 10/2019, vol.21, n°5, p. 397-403

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Outcomes of deprescribing interventions in older patients with life-limiting illness and limited life expectancy - a systematic review

SHRESTHA, Shakti ; POUDEL, Arjun ; STEADMAN, Kathryn ; NISSEN, Lisa
British journal of clinical pharmacology, 04/09/2019, Pagination inconnue

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Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses

HOPPER, Audrey ; CRANE, Stacey
Nurse researcher, 24/07/2019, Pagination inconnue

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Managing palliative patients in inpatient rehabilitation through a short stay family training program

SMITH, Suzette ; WILSON, Christopher M. ; LIPPLE, Christine ; AVROMOV, Meghan ; MALTESE, John ; SIWA, Eliezer ; COLOMBO, Reyna ; SEIDELL, Janet Wiechec
The American journal of hospice and palliative care, 01/08/2019, Pagination inconnue

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Use of time in people with a life-limiting illness - a longitudinal cohort feasibility pilot study

JONES, Terry A. ; OLDS, Timothy S. ; CURROW, David ; WILLIAMS, Marie T.
PALLIATIVE MEDICINE, 01/08/2019, Pagination inconnue

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