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NEUROLOGIE

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Current collaboration between palliative care and neurology - a survey of clinicians in Europe

OLIVER, David ; BORASIO, Gian Domenico ; VERONESE, Simone ; VOLTZ, Raymond ; LORENZL, Stefan ; HEPGUL, Nilay
BMJ supportive and palliative care, 10/07/2020, Pagination inconnue

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Allied muslim healthcare professional perspectives on death by neurologic criteria

LEWIS, Ariane ; KITAMURA, Elizabeth ; PADELA, Aasim I.
Neurocritical care, 17/06/2020, Pagination inconnue

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Conceptions of dignity in the Charlie Gard, Alfie Evans and Isaiah Haastrup cases

JONAS, Monique ; EVANS, Amanda
Bioethics, 19/06/2020, Pagination inconnue

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Goals of care in the dark - guiding families of patients with “Covid-19 encephalopathy”

FRYDMAN, Julia L.
JOURNAL OF PALLIATIVE MEDICINE, 24/06/2020, p. 1-2

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Advance directives in the neurocritically ill - a systematic review

SUTTER, Raoul ; MEYER-ZEHNDER, Barbara ; BAUMANN, Sira M. ; MARSCH, Stephan ; PARGGER, Hans
Critical care medicine, 01/05/2020, Pagination inconnue

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Thème : Soins.

DIRECTIVE ANTICIPEE ; NEUROLOGIE ; REVUE SYSTEMATIQUE

OBJECTIVES: To determine the frequency of advance directives or directives disclosed by healthcare agents and their influence on decisions to withdraw/withhold life-sustaining care in neurocritically ill adults.
DATA SOURCES: PubMed, Embase, and Cochrane databases.
STUDY SELECTION: Screening was performed using predefined search terms to identify studies describing directives of neurocritically ill patients from 2000 to 2019. The review was registered prior to the screening process (International Prospective Register of Systematic Reviews [PROSPERO]-Identification number 149185).
DATA EXTRACTION: Data were collected using standardized forms. Primary outcomes were the frequency of directives and associated withholding/withdrawal of life-sustaining care.
DATA SYNTHESIS: Out of 721 articles, 25 studies were included representing 35,717 patients. The number of studies and cohort sizes increased over time. A median of 39% (interquartile range, 14-72%) of patients had directives and/or healthcare agents. The presence of directives was described in patients with stroke, status epilepticus, neurodegenerative disorders, neurotrauma, and neoplasms, with stroke patients representing the largest subgroup. Directives were more frequent among patients with neurodegenerative disorders compared with patients with other illnesses (p = 0.043). In reference to directives, care was adapted in 71% of European, 50% of Asian, and 42% of American studies, and was withheld or withdrawn more frequently over time with a median of 58% (interquartile range, 39-89%). Physicians withheld resuscitation in reference to directives in a median of 24% (interquartile range, 22-70%).
CONCLUSIONS: Studies regarding the use and translation of directives in neurocritically ill patients are increasing. In reference to directives, care was adapted in up to 71%, withheld or withdrawn in 58%, and resuscitation was withheld in every fourth patient, but the quality of evidence regarding their effects on critical care remains weak and the risk of bias high. The limited number of patients having directives is worrisome and studies aiming to increase the use and translation of directives are scarce. Efforts need to be made to increase the perception, use, and translation of directives of the neurocritically ill.

Origine : PubMed

Withholding or withdrawing life support in long-term neurointensive care patients - a single-centre, prospective, observational pilot study

STEFANOU, Maria-Ioanna ; SULYOK, Mihaly ; KOEHNLEIN, Martin ; SCHEIBE, Franziska ; FLEISCHMANN, Robert ; HOFFMANN, Sarah ; HOTTER, Benjamin ; ZIEMANN, Ulf ; MEISEL, Andreas ; MENGEL, Annerose Maria
Journal of medical ethics, 05/05/2020, Pagination inconnue

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Development and psychometric evaluation of a new tool for measuring the attitudes of patients with progressive neurological diseases to ethical aspects of end-of-life care

BUZGOVA, Radka ; KOZAKOVA, Radka
BMC medical ethics, 12/2020, vol.21, n°1, p. 1-12

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Burying our mistakes - dealing with prognostic uncertainty after severe brain injury

GRAHAM, Mackenzie
Bioethics, 02/03/2020, p. 1-8

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Dying in the neurointensive care unit after withdrawal of life-sustaining therapy - associations of advance directives and health-care proxies with timing and treatment intensity

STACHULSKI, Frank ; SIEGERINK, Bob ; BOSEL, Julian
Journal of intensive care medicine, 24/02/2020, Pagination inconnue

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Disorders of consciousness - a practical approach for navigating coma and brain injury #382

FOUTZ, Renee A. ; PELTIER, Wendy
JOURNAL OF PALLIATIVE MEDICINE, 12/2019, vol.22, n°12, p. 1610-1611

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Symptom burden at the end of life for neuroendocrine tumors - an analysis of 2579 prospectively collected patient-reported outcomes

HALLET, Julie ; DAVIS, Laura E. ; MAHAR, Alyson L. ; ISENBERG-GRZEDA, Elie ; BUBIS, Lev D. ; MYREHAUG, Sten ; ZHAO, Haoyu ; BEYFUSS, Kaitlyn ; MOODY, Lesley ; LAW, Calvin H. L. ; COBURN, Natalie G.
Annals of surgical oncology, 09/2019, vol.26, n°9, p. 2711-2721

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Practice variability in determination of death by neurologic criteria for adult patients

JUNN, Alexandra ; HWANG, David Y.
The Yale journal of biology and medicine, 20/12/2019, vol.92, n°4, p. 719-724

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Death

The Yale journal of biology and medicine, 12/2019 , vol.92, n°4, Pagination inconnue

Perception of provision of futile care among clinicians in the neuroscience intensive care unit

AMOROSO, Shanna ; CHALELA, Julio A.
The journal of neuroscience nursing, 10/2019, vol.51, n°5, p. 249-252

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The case of Jahi McMath - a neurologist's view

SHEWMON, D. Alan
Hastings center report, 11/2018, vol.48, n°S4, p. S74-S76

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Older patients with severe traumatic brain injury - national variability in palliative care

HWANG, Franchesca ; PENTAKOTA, Sri Ram ; GLASS, Nina E. ; BERLIN, Ana ; LIVINGSTON, David H. ; MOSENTHAL, Anne C.
The journal of surgical research, 10/10/2019, vol.246, p. 224-230

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Levetiracetam at the end of life - a case report and discussion

MOHAMUDALLY, Anthoulla ; CLARK, Katherine
JOURNAL OF PALLIATIVE MEDICINE, 07/2020, vol.23, n°07, p. 995-997

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Entre la vie et la mort - un neuroscientifique explore cette frontière entre deux mondes

OWEN, Adrian M.
Guy Trédaniel , 10/2019 , 288 p.

Neurocritical care physicians' doubt about whether to withdraw life-sustaining treatment the first days after devastating brain injury - an interview study

ROBERTSEN, Annette ; HELSETH, Eirik ; LAAKE, Jon Henrik ; FORDE, Reidun
Scandinavian journal of trauma, resuscitation and emergency medicine, 28/08/2019, vol.27, n°1, p. 1-8

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Palliative care in the neuro-ICU - perceptions, practice patterns, and preferences of neurointensivists

BAR, Barak ; CREUTZFELDT, Claire J. ; RUBIN, Michael A.
Neurocritical care, 29/08/2019, p. 1-4

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