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End-of-life conversation from both sides of the bed - voices of family and staff

GILAD, Dvorit ; GOLDBLATT, Hadass ; ZEILIG, Gabi
Disability and rehabilitation, 21/11/2020, p. 1-10

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Integration of palliative care in services for children with life-limiting neurodevelopmental disabilities and their families - a Delphi study

GUERIN, Suzanne ; KIERNAN, Gemma ; COURTNEY, Eileen ; McQUILLAN, Regina ; RYAN, Karen
BMC health services research, 08/10/2020, vol.20, n°1, p. 1-10

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Palliative care in high-grade glioma - a review

CROOMS, Rita C. ; GOLDSTEIN, Nathan E. ; DIAMOND, Eli L. ; VICKREY, Barbara G.
Brain sciences, 13/10/2020, vol.10, n°10, p. 1-26

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Ethical and legal considerations related to disorders of consciousness

RISSMAN, Lauren ; PAQUETTE, Erin Talati
Current opinion in pediatrics, 12/2020, vol.32, n°6, p. 765-771

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Deep brain stimulation at end of life - clinical and ethical considerations

SANKARY, Lauren R. ; FORD, Paul J. ; MACHADO, Andre G. ; HOEKSEMA, Laura J. ; SAMALA, Renato V. ; HARRIS, David J.
JOURNAL OF PALLIATIVE MEDICINE, 04/2020, vol.23, n°4, p. 582-585

Short-term palliative care for advanced neurologic disease

BRIZZI, Kate T.
JAMA network open, 03/08/2020, vol.3, n°8, p. 1-2

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Legal assistance in dying for people with brain tumors

ISENBERG-GRZEDA, Elie ; SOFIE, Katie ; LARRIVEE, Evgenia J. ; GRABER, Jerome J.
Annals of palliative medicine, 31/07/2020, p. 1-6

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Neuroendocrine mechanisms of grief and bereavement - a systematic review and implications for future interventions

HOPF, Dora ; ECKSTEIN, Monika ; AGUILAR-RAAB, Corina ; WARTH, Marco ; DITZEN, Beate
Journal of neuroendocrinology, 08/2020, vol.32, n°8, p. 1-24

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Rehabilitation medicine in palliative care of chronic neurological conditions

NAIR, Krishnan P. S. ; CHANDLER, Barbara ; LEE, Mark A. ; OLIVER, David ; SANSAM, Kate ; KING, Lenyalo ; PAISLEY, Suzanne ; SUTTON, Anthea ; CANTRELL, Anna
BMJ supportive and palliative care, 24/08/2020, Pagination inconnue

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Manuel de soins palliatifs - clinique, psychologie, éthique

LE BERRE, Rozenn
Dunod , 08/2020 , 1260 p.

Chapter 32 - end of life care for patients with meningioma

MCDERMOTT, Michael W.
" Handbook of clinical neurology ", Elsevier , 2020 , p. 333-348

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Early do-not-resuscitate orders and outcome after intracerebral hemorrhage

MADHOK, Debbie Y. ; VITT, Jeffrey R. ; MACISAAC, Donna ; HSIA, Renee Y. ; KIM, Anthony S. ; HEMPHILL, J. Claude
Neurocritical care, 13/07/2020, Pagination inconnue

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Thème : Soins.

TESTAMENT VIE ; NEUROLOGIE ; ETUDE RETROSPECTIVE ; ETATS-UNIS

BACKGROUND: Do-not-resuscitate (DNR) orders are commonly used after intracerebral hemorrhage (ICH) and have been shown to be a predictor of mortality independent of disease severity. We determined the frequency of early DNR orders in ICH patients and whether a previously reported association with increased mortality still exists.
METHODS: We performed a retrospective analysis of patients discharged from non-federal California hospitals with a primary diagnosis of ICH from January 2013 through December 2014. Characteristics included hospital ICH volume and type and whether DNR order was placed within 24 h of admission (early DNR order). The risk of in-hospital mortality was evaluated both on the individual and hospital level using multivariable analyses. A case mix-adjusted hospital DNR index was calculated for each hospital by comparing the actual number of DNR cases with the expected number of DNR cases from a multivariate model.
RESULTS: A total of 9,958 patients were treated in 180 hospitals. Early DNR orders were placed in 20.1% of patients and 54.2% of these patients died during their hospitalization compared to 16.0% of patients without an early DNR order. For every 10% increase in a hospital's utilization of early DNR orders, there was a corresponding 26% increase in the likelihood of in-hospital mortality. Patients treated in hospitals within the highest quartile of adjusted DNR use had a higher relative risk of death compared to the lowest quartile (RR 3.9 vs 5.2) though the trend across quartiles was not statistically significant.
CONCLUSIONS: The use of early DNR orders for ICH continues to be a strong predictor of in-hospital mortality. However, patients treated at hospitals with an overall high or low use of early DNR had similar relative risks of death whether or not there was an early DNR order, suggesting that such orders may not be a proxy for less aggressive care as seen previously.

Origine : PubMed

Current collaboration between palliative care and neurology - a survey of clinicians in Europe

OLIVER, David ; BORASIO, Gian Domenico ; VERONESE, Simone ; VOLTZ, Raymond ; LORENZL, Stefan ; HEPGUL, Nilay
BMJ supportive and palliative care, 10/07/2020, Pagination inconnue

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Allied muslim healthcare professional perspectives on death by neurologic criteria

LEWIS, Ariane ; KITAMURA, Elizabeth ; PADELA, Aasim I.
Neurocritical care, 17/06/2020, Pagination inconnue

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Conceptions of dignity in the Charlie Gard, Alfie Evans and Isaiah Haastrup cases

JONAS, Monique ; EVANS, Amanda
Bioethics, 19/06/2020, Pagination inconnue

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Goals of care in the dark - guiding families of patients with “Covid-19 encephalopathy”

FRYDMAN, Julia L.
JOURNAL OF PALLIATIVE MEDICINE, 24/06/2020, p. 1-2

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Advance directives in the neurocritically ill - a systematic review

SUTTER, Raoul ; MEYER-ZEHNDER, Barbara ; BAUMANN, Sira M. ; MARSCH, Stephan ; PARGGER, Hans
Critical care medicine, 01/05/2020, Pagination inconnue

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Thème : Soins.

DIRECTIVE ANTICIPEE ; NEUROLOGIE ; REVUE SYSTEMATIQUE

OBJECTIVES: To determine the frequency of advance directives or directives disclosed by healthcare agents and their influence on decisions to withdraw/withhold life-sustaining care in neurocritically ill adults.
DATA SOURCES: PubMed, Embase, and Cochrane databases.
STUDY SELECTION: Screening was performed using predefined search terms to identify studies describing directives of neurocritically ill patients from 2000 to 2019. The review was registered prior to the screening process (International Prospective Register of Systematic Reviews [PROSPERO]-Identification number 149185).
DATA EXTRACTION: Data were collected using standardized forms. Primary outcomes were the frequency of directives and associated withholding/withdrawal of life-sustaining care.
DATA SYNTHESIS: Out of 721 articles, 25 studies were included representing 35,717 patients. The number of studies and cohort sizes increased over time. A median of 39% (interquartile range, 14-72%) of patients had directives and/or healthcare agents. The presence of directives was described in patients with stroke, status epilepticus, neurodegenerative disorders, neurotrauma, and neoplasms, with stroke patients representing the largest subgroup. Directives were more frequent among patients with neurodegenerative disorders compared with patients with other illnesses (p = 0.043). In reference to directives, care was adapted in 71% of European, 50% of Asian, and 42% of American studies, and was withheld or withdrawn more frequently over time with a median of 58% (interquartile range, 39-89%). Physicians withheld resuscitation in reference to directives in a median of 24% (interquartile range, 22-70%).
CONCLUSIONS: Studies regarding the use and translation of directives in neurocritically ill patients are increasing. In reference to directives, care was adapted in up to 71%, withheld or withdrawn in 58%, and resuscitation was withheld in every fourth patient, but the quality of evidence regarding their effects on critical care remains weak and the risk of bias high. The limited number of patients having directives is worrisome and studies aiming to increase the use and translation of directives are scarce. Efforts need to be made to increase the perception, use, and translation of directives of the neurocritically ill.

Origine : PubMed

Withholding or withdrawing life support in long-term neurointensive care patients - a single-centre, prospective, observational pilot study

STEFANOU, Maria-Ioanna ; SULYOK, Mihaly ; KOEHNLEIN, Martin ; SCHEIBE, Franziska ; FLEISCHMANN, Robert ; HOFFMANN, Sarah ; HOTTER, Benjamin ; ZIEMANN, Ulf ; MEISEL, Andreas ; MENGEL, Annerose Maria
Journal of medical ethics, 05/05/2020, Pagination inconnue

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Development and psychometric evaluation of a new tool for measuring the attitudes of patients with progressive neurological diseases to ethical aspects of end-of-life care

BUZGOVA, Radka ; KOZAKOVA, Radka
BMC medical ethics, 12/2020, vol.21, n°1, p. 1-12

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