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Parental strengths in caring for their dying child - long-term follow-up in Kenya

HALEY, Janice Marie
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 04/2019, vol.21, n°2, p. 144-151

Thème : Soins. Cote : 00.07JHP

ETAPE MOURIR ; ENFANT ; KENYA ; GUIDE ; ACCOMPAGNEMENT ; PARENT ; EVALUATION ; ECHELLE MESURE ; UNITE SOINS PALLIATIFS ; DEMARCHE PALLIATIVE

Research conducted using the Haley Transcultural Strengths Assessment Interview Guide used in several studies has identified 11 sources of strength routinely utilized by parents caring for their child with intensive needs and child in hospice/palliative care. Results of past studies demonstrated this Strengths Guide (SG) interview to be an intervention bringing a heightened realization of the importance and utilization of one's inner strengths. The purpose of this study was to assess the long-term impact of this SG with a population of parents who participated in a previous study using the SG. This descriptive study was conducted using a quantitative tool, the Personal Strength Rating Scale, comparing the post-SG interview results with those results obtained 3 years later. Participants in this study were parents caring for a child receiving palliative/hospice care at home in Kenya. Results revealed the long-term retention of strengths following the SG interview 3 years previously was, for most sources of strength, equal to or greater than those obtained immediately following the SG.

Telling adolescents that a parent has died

SHEEHAN, Denice Kopchak ; HANSEN, Dana ; STEPHENSON, Pam ; MAYO, Murray ; ALBATAINEH, Raya ; ANABA, Ezinne
JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 04/2019, vol.21, n°2, p. 152-159

Thème : Soins. Cote : 00.07JHP

MORT ; PARENT ; ADOLESCENT ; FAMILLE ; RELATION INTERPERSONNELLE ; RECHERCHE QUALITATIVE ; ETATS-UNIS

The aim of this study was to explicate ways in which parents tell their adolescents about a parent's death. This study used a descriptive, qualitative design. From a large hospice in northeastern Ohio, nine adolescent children and six surviving spouses of recently deceased hospice patients were recruited. Participants completed a demographic questionnaire and a semistructured individual interview. Thematic content analysis techniques were used to analyze the data. Surviving parents tell adolescents about the parent's death in ways that are intended to inform and ease the adolescents' distress. They engage in the process of disclosure in one of three ways: measured telling, matter-of-fact telling, and inconsistent telling. Findings from the current study are consistent with the ways parents told their children about an ill parent's life-threatening illness and imminent death. The findings support a framework that describes the processes of disclosure of a parent's illness, imminent death, and death to their adolescent children. Predeath findings about telling foreshadowed the postdeath findings. These results can be used to inform the development of interventions in which nurses and other health care professionals assist families with disclosure before and after death by tailoring strategies according to the family's communication style.

Communication in families with minor children following the loss of a parent to cancer

WEBER, Megan ; ALVARIZA, Anette ; KREICBERGS, Ulrika ; SVEEN, Josefin
European journal of oncology nursing, 04/2019, vol.39, p. 41-46

Thème : Soins. Cote : eD02.04.01

COMMUNICATION ; MORT ; PARENT ; CANCER ; ENFANT ; PERSONNE ENDEUILLEE ; FAMILLE

PURPOSE: Family communication is a known protective factor for minor children's psychological health following the death of a parent, but there is little research describing communication within such families specifically from the perspective of the children. The purpose of this study was therefore to explore communication in parentally bereaved families from the perspective of the children and surviving parent.
METHODS: Interviews with four parents and four children from four families were analyzed using inductive content analysis. Interviews took place in the family's home or at the research center based on the family's wishes 4-14 months after a parent had died. Interviews had an open approach and were based on an interview guide. Each interview was between 60 and 120 min long.
RESULTS: Four categories emerged which were related to family members' experiences of family communication while adjusting to their new circumstances as bereaved: the importance of open and honest communication in the family; new challenges in the family which affect communication; communicating the need for help; and talking about and remembering the deceased parent.
CONCLUSIONS: This study illuminates the connection between family communication and adjustments to new circumstances following the death of a parent. The results suggest that the relationship between family adjustment and communication may be circular whereby the family's ability to adjust to their new circumstances is affected by how the family communicates. Similarly, family communication may be affected by the family's coping strategies and ability to adjust to their new circumstances.

Origine : PubMed